tuberous sclerosis

[Bellaella86]

Thats so sad to see, poor little guy. He is so beautiful and I do hope he gets the help he needs and gets better. I will pray for him and God Bless you and your family. Sweet Angel.

[denisemiller1]

My little boy is just turning 1 and was recently diagnosed with tuberous sclerosis. I hope your little guy is ok. Mine is doing well so far, God willing.

[marielcorvera]

@denisemiller1 ..is your child ok now?..what was your remedy to treat your child..can you help..thank you.

[senoritabee]

Hi my son has TSC he is coming up 8 months and was diagnosed when he was only 2 weeks old as when he was 6 days old he started having seizures. he developed west syndrome also when he was 5 months old but has responded well to treatment. we are just taking it day by day when it comes to the TSC and his epilepsy X

[jackieboyroyall]

hi my name is jack iam 15 and have tsc i live in england my mum just joined the ts american site i would like to add you to my friends list is that ok love jack

[averageworker77]

My little girl has Tuberous Sclerosis also. She is 2.5 yrs old now, found out at her first seizure at age 11 mos. i was wondering how many seizues your son has, how often and have they effected his development? my girl is behind, has no speech, but she has a great impact on everyone she meets. good luck! It is a difficult disorder to deal with, but hang in there. God gave you him for a reason. :) Katie

[navywife1977]

Sweet baby, I pray he will be ok. What challenges are you facing in the future? I tried to find info on his condition, but it was vague. Bless you and him.. Your a good mama to him. :o)

[mommasmith1977]

thank you!! we have to take it day to day with his disorder. he has a good neurologist that is trying hard to help him