That was in November, and now it is March. I loved doing these readings with Dr. Rashad...he died just a couple of days ago, so I thought I'd leave a note here.
To go on the record, I miss you Dr. Rashad. I loved sitting and reading to you, even as it seemed to make you sleep :-). I made a promise to you that I now have to break.
I promised you I would finish the book readings with only you. Now you have died...so I will carry on, with you by my side in spirit. No one can ever take your place.
Thank you for taking the time to share your story of Dysautonomia here on Youtube. It has been very informative as well as very interesting. Being able to understand from the perspective of one who has first hand experience with this disorder is invaluable. Maybe it's just me, but i have to say that the level of excitement of your associate in these videos was very distracting. It's difficult to stay focused while in the presence of a man of such unbridled exuberance. ;) ;) ;)
They want these evil goblins to stay in my head and keep me in bed all of the time..but I always fight them...they seek death...I could draw a picture of them; a giant one tries to squeeze my head.
...but we seek life....I am going to Church this am! ;-)
...NO to nursing home for me! Survivors, are we all...the battle is a daily battle, as we all know.
off to church. Bye. I feel God in my stomach, like...little ...butterflies....Happy Day!!!!!!!!!!!!!!!!!
Now I remember this video made me so sick because of the way I was reading, then standing, then turning the book around backwards...these all added up to an 'attack' or wave of severe nausea. That's the Mal De Debarquement Syndrome (MDDS) I also have.....
Coined by the French in the 1700's, after sailors that walked off the boat as if they were drunk; waddling, losing balance, falling over...eye stimulation, watching ping-pong = seasickness. Bla. Not fun. No roller coaster rides for me :-).
Yes, but I still get my strength in God and in YT's Spirit of Survival and friendship. Off to sleep, just because ... I am wrong and you are right.....(not many doctors saying that, eh?) :-) . Going to church tomorrow, so I believe God will set me straight again! I promise, if I'm too tired, I won't even go to church. I promise. Thanks for your caring. LOL, Margaret
Dear Doctor, It has nothing to do with right or wrong, its human nature to try harder when you set your sight on a goal which you have done just that, good night and sleep well and please don't try to reply on this comment b/c I am signing off now and look forward to next video.
Did you make yourself sick doing this video? You looked like you were about ready to pass out. My prayers are with you my dear friend. I would appreciate it if you could send me either a PM or comment so I know that you are OK? Thanks!
You're so sweet..Yes...was sick. Thanks for caring. Will write more on this video later, but wanted to let you know I'm okay. Just no more videos for today ;-0 . Off to church in the morning. I need to be around a bunch of people that are going to be together forever in Eternity with Christ. I really love to sing and Praise God.
That was in November, and now it is March. I loved doing these readings with Dr. Rashad...he died just a couple of days ago, so I thought I'd leave a note here.
To go on the record, I miss you Dr. Rashad. I loved sitting and reading to you, even as it seemed to make you sleep :-). I made a promise to you that I now have to break.
I promised you I would finish the book readings with only you. Now you have died...so I will carry on, with you by my side in spirit. No one can ever take your place.
PHANTOMx209y 1 year ago
Thank you for taking the time to share your story of Dysautonomia here on Youtube. It has been very informative as well as very interesting. Being able to understand from the perspective of one who has first hand experience with this disorder is invaluable. Maybe it's just me, but i have to say that the level of excitement of your associate in these videos was very distracting. It's difficult to stay focused while in the presence of a man of such unbridled exuberance. ;) ;) ;)
NoWattz 2 years ago
:-).
Sorry I was feeling so sick in this video.
Yes, Dr. Rashad was one of my teachers from...1992?
I hope to live as long as he. :-)
I was getting a migraine here....not in a good mood at all, and having a 'bad' day.
Lots of Love, Margaret
DysautonomiaMD 2 years ago
@NoWattz : :-)
DysautonomiaMD 1 year ago
They want these evil goblins to stay in my head and keep me in bed all of the time..but I always fight them...they seek death...I could draw a picture of them; a giant one tries to squeeze my head.
...but we seek life....I am going to Church this am! ;-)
...NO to nursing home for me! Survivors, are we all...the battle is a daily battle, as we all know.
off to church. Bye. I feel God in my stomach, like...little ...butterflies....Happy Day!!!!!!!!!!!!!!!!!
Above All, I Thank God for You.
Dr M
DysautonomiaMD 2 years ago
Now I remember this video made me so sick because of the way I was reading, then standing, then turning the book around backwards...these all added up to an 'attack' or wave of severe nausea. That's the Mal De Debarquement Syndrome (MDDS) I also have.....
Coined by the French in the 1700's, after sailors that walked off the boat as if they were drunk; waddling, losing balance, falling over...eye stimulation, watching ping-pong = seasickness. Bla. Not fun. No roller coaster rides for me :-).
DysautonomiaMD 2 years ago
You are over exerted, please, please, please take good care of yourself, God Bless.
THX1138x29 2 years ago 10
Yes, but I still get my strength in God and in YT's Spirit of Survival and friendship. Off to sleep, just because ... I am wrong and you are right.....(not many doctors saying that, eh?) :-) . Going to church tomorrow, so I believe God will set me straight again! I promise, if I'm too tired, I won't even go to church. I promise. Thanks for your caring. LOL, Margaret
DysautonomiaMD 2 years ago
Dear Doctor, It has nothing to do with right or wrong, its human nature to try harder when you set your sight on a goal which you have done just that, good night and sleep well and please don't try to reply on this comment b/c I am signing off now and look forward to next video.
THX1138x29 2 years ago 11
Dear Margaret,
Did you make yourself sick doing this video? You looked like you were about ready to pass out. My prayers are with you my dear friend. I would appreciate it if you could send me either a PM or comment so I know that you are OK? Thanks!
Your Brother In Christ,
Jeff
jd450lh 2 years ago 12
You're so sweet..Yes...was sick. Thanks for caring. Will write more on this video later, but wanted to let you know I'm okay. Just no more videos for today ;-0 . Off to church in the morning. I need to be around a bunch of people that are going to be together forever in Eternity with Christ. I really love to sing and Praise God.
Your Sister in Christ,
Margaret
DysautonomiaMD 2 years ago