My favorite saying is "STUPID LUPUS." So in the way of my regular life. But I'm one of the lucky ones. I have insurance, great care, can work. Today was a bad day but most of them are not.
my birth mom had lupus. its killing her. i was adopted when i was 9 months old. she couldnt take care of me or my sisters. the past few months i have had headaches, really bad joint pain, EXTREME fatigue and i have been losing and gaining off and on. i told a doctor and i took blood tests this morning. i'll find out thursday if i have lupus. i'm kinda scared, i didnt realize how bad it was until my adoptive mom told me about my birth mom and that there is no cure. wish me luck.
the comments on the video were touching . I've known that I have Lupus for about 3 months , and yes it is very scary at times . However I will not give up , and I am VERY lucky to have the support that I do .
Hang in there everyone . We can all get through this .
This is great video awareness. My mother died of Lupus and I am now trying to do what I can to help with the discovery of a cure. I am documenting on journey with video blogs at my channel on youtube called yougivegood.
Thank you for being so caring, I know your Mother is very proud of you. I have Lupus, I was diagnosed (sorry can't spell anymore) about 10 yrs ago. I was fired for being sick a couple yrs ago, I don't have insurance, so I don't have treatment or doctors anymore. Your good work will really help everyone, I know it. Thank you.
i know its hard ...you don't want to be reminded that your not healthy... but it is very necessary you take care of yourself so that your vital organs are not harmed by this illness. good luck and much love to you all. Mary Theresa
if you can avoid stress and get as many hours of sleep each night as you can. i thought when i first got this lupus i had only 10 years...but now i know people can live to as high as 80 years old with medication and treatment and regular checkups with their doctor. remember to go for blood work at least once a month.
lupus is scary but when in remission you can lead a almost normal life just as long as you keep getting your blood checked and see your lupus specialist whenever you can. you have to get your eyes checked every year too with this illness. try not to take any strenuous activity like jogging or any heavy inpact workouts. they mess with your joints. stick to low inpact workouts or just go for walks or even swim.
i can't live without sleep..because without enough sleep my body just aches even more. i have to kids 17 year old young man and a 14 year old daughter. i'm lucky i know and i never regreted having them when i did.
i take a multivitamin too. once a day its called. i have ostiporosis because of the drug i take for lupus because it doesn't let my bones take in the calcuim as well as it would if i didn't take the drug. so i take calcuim pills. my hands look like their deformed because my knuckles are perminatly swollen because i don't want to get injection to take the swelling down because i hear that only helps for a lil bit and comes back and the more use of the injections in the joints cause more damag
i am working at a desk job but i am scared to lose my job because of my lupus. i work fairly well though since it is just a desk job. i'm forgetful more then i used to be. my kids get mad at me because they say they already told me they did their homework and i already asked them if they did their homework. makes me feel sad and scared. i take plaqtinel...the spelling if off and extra strength tylenol when i need to but that is it.
i'm 39 years old and i have lupus. i've had it for about 17 years now. i almost lost complete eye sight but meds through iv in the hospital brang most of it back. my left lower leg lost its nerve and i was dragging my foot around like it was broke for about 3 weeks until the nerve came back. i am tired alot and i get fevers every 3rd or 4th day. i get headaches and knee and wrist pains...practically every bone has artritis in it it seems.
Get into the Loop for Lupus and raise awareness. My goal is to raise awareness so that medical professionals are educated and Lupus patients have support for educational and outreach programs.
I was diagnosed in 1991 after 2 years of discoid leisions and joint paint, finally I couldn't take it and got a second opinion. At least I have a diagnosis and they can treat it. I've been under control for 10 years. The hardest part is not being able to do the work around the house like I used to and to have it still expected of me. Yeah even at 60 someone still belly aches because I didn't do the vacuuming. Oh well, it wont go anywhere. I'll think about that tomorrow.
Lupus sucks. People's responses to it aren't much better. In my life anyway, no one knows about it or understands its hideous attack on our bodies. Get the word out, they have made progress, but SO MUCH MORE needs to be done!!! Good job on your video!
lupus could have something to do with the chemicals they are spraying in our air, all over the world
youtube
chemtrails
morgellons
i was diagnosed with discoid lupis, i don't take their drugs because they do more harm than good, the only thing i use to treat my skin lesions is hot water and they have healed with no problem, i had this one lesion on my face for 7 years before i used only hot water and it has healed
My name is Steve:I was diagnose with lupus at 40.I'm now 44 and on full disability and I've had 3 heart attacks(1st at 32)with 6 stints in my cornary arteries,on countless drugs. I'm not even close to the same person I use to be.I'm in pain most of the time. Chest,rib,hands,feet,neck,Sholders,hips, pelvis,all my tendons.Unbelievable fatigue!!! I live with fear that I could killover at any moment.Divorce from my wife and to top it all off I'm Incredibly poor. It really unfair and shitty.
talk to doctors about reseting the hypothalamus pituitary axis with oxytocin, vasopressin systemically to to straight to the gland via surgery. reset it and autoimmune should be much better.
Is there a chapter of the Lupus Foundation there? We have the Lupus Foundation of America, You can contact them via the internet. There are lots of books that can be very helpful. Also calm down, that's one of the first things you need to do. Find a good Rheumatologist who will listen. Good luck, Love from California USA
Keep Fighting Everyone...our better days are coming =)
modelnsinginme19 2 months ago
My favorite saying is "STUPID LUPUS." So in the way of my regular life. But I'm one of the lucky ones. I have insurance, great care, can work. Today was a bad day but most of them are not.
jillblackstone 1 year ago
my birth mom had lupus. its killing her. i was adopted when i was 9 months old. she couldnt take care of me or my sisters. the past few months i have had headaches, really bad joint pain, EXTREME fatigue and i have been losing and gaining off and on. i told a doctor and i took blood tests this morning. i'll find out thursday if i have lupus. i'm kinda scared, i didnt realize how bad it was until my adoptive mom told me about my birth mom and that there is no cure. wish me luck.
kerrie722 2 years ago
why were only women dipicted in this video. im a 21 year old male with lupus. it sucks, but we do what we do to get by.
kasper8ball7 2 years ago
the comments on the video were touching . I've known that I have Lupus for about 3 months , and yes it is very scary at times . However I will not give up , and I am VERY lucky to have the support that I do .
Hang in there everyone . We can all get through this .
jhnewbill 2 years ago
This is great video awareness. My mother died of Lupus and I am now trying to do what I can to help with the discovery of a cure. I am documenting on journey with video blogs at my channel on youtube called yougivegood.
yougivegood 3 years ago
Thank you for being so caring, I know your Mother is very proud of you. I have Lupus, I was diagnosed (sorry can't spell anymore) about 10 yrs ago. I was fired for being sick a couple yrs ago, I don't have insurance, so I don't have treatment or doctors anymore. Your good work will really help everyone, I know it. Thank you.
MsBunnyLove4Ever 2 years ago
Everyone with lupus i just wanna say
I LOVE YOU!I UNDERSTAND!UR NOT ALONE!
KEEP ON KEEPIN' ON!
cortezyvonne 3 years ago
i have lupus, it suxs
narnia12fan 3 years ago
fuck lupusi got it too, but i ant givivng up
donutmaker 3 years ago
i know its hard ...you don't want to be reminded that your not healthy... but it is very necessary you take care of yourself so that your vital organs are not harmed by this illness. good luck and much love to you all. Mary Theresa
malijsanteles 3 years ago
if you can avoid stress and get as many hours of sleep each night as you can. i thought when i first got this lupus i had only 10 years...but now i know people can live to as high as 80 years old with medication and treatment and regular checkups with their doctor. remember to go for blood work at least once a month.
malijsanteles 3 years ago
lupus is scary but when in remission you can lead a almost normal life just as long as you keep getting your blood checked and see your lupus specialist whenever you can. you have to get your eyes checked every year too with this illness. try not to take any strenuous activity like jogging or any heavy inpact workouts. they mess with your joints. stick to low inpact workouts or just go for walks or even swim.
malijsanteles 3 years ago
i can't live without sleep..because without enough sleep my body just aches even more. i have to kids 17 year old young man and a 14 year old daughter. i'm lucky i know and i never regreted having them when i did.
malijsanteles 3 years ago
i take a multivitamin too. once a day its called. i have ostiporosis because of the drug i take for lupus because it doesn't let my bones take in the calcuim as well as it would if i didn't take the drug. so i take calcuim pills. my hands look like their deformed because my knuckles are perminatly swollen because i don't want to get injection to take the swelling down because i hear that only helps for a lil bit and comes back and the more use of the injections in the joints cause more damag
malijsanteles 3 years ago
i am working at a desk job but i am scared to lose my job because of my lupus. i work fairly well though since it is just a desk job. i'm forgetful more then i used to be. my kids get mad at me because they say they already told me they did their homework and i already asked them if they did their homework. makes me feel sad and scared. i take plaqtinel...the spelling if off and extra strength tylenol when i need to but that is it.
malijsanteles 3 years ago
i'm 39 years old and i have lupus. i've had it for about 17 years now. i almost lost complete eye sight but meds through iv in the hospital brang most of it back. my left lower leg lost its nerve and i was dragging my foot around like it was broke for about 3 weeks until the nerve came back. i am tired alot and i get fevers every 3rd or 4th day. i get headaches and knee and wrist pains...practically every bone has artritis in it it seems.
malijsanteles 3 years ago
Lupus Sucks!
Get into the Loop for Lupus and raise awareness. My goal is to raise awareness so that medical professionals are educated and Lupus patients have support for educational and outreach programs.
Thanks and stay in the loop for Lupus.
LALupusLady (Living with Lupus since 1983)
LALupusLady 3 years ago
I was diagnosed in 1991 after 2 years of discoid leisions and joint paint, finally I couldn't take it and got a second opinion. At least I have a diagnosis and they can treat it. I've been under control for 10 years. The hardest part is not being able to do the work around the house like I used to and to have it still expected of me. Yeah even at 60 someone still belly aches because I didn't do the vacuuming. Oh well, it wont go anywhere. I'll think about that tomorrow.
violet2048 3 years ago
Lupus sucks. People's responses to it aren't much better. In my life anyway, no one knows about it or understands its hideous attack on our bodies. Get the word out, they have made progress, but SO MUCH MORE needs to be done!!! Good job on your video!
emusedone 4 years ago 2
lupus could have something to do with the chemicals they are spraying in our air, all over the world
youtube
chemtrails
morgellons
i was diagnosed with discoid lupis, i don't take their drugs because they do more harm than good, the only thing i use to treat my skin lesions is hot water and they have healed with no problem, i had this one lesion on my face for 7 years before i used only hot water and it has healed
united we stand divided we fall
anonsummer 4 years ago
My name is Steve:I was diagnose with lupus at 40.I'm now 44 and on full disability and I've had 3 heart attacks(1st at 32)with 6 stints in my cornary arteries,on countless drugs. I'm not even close to the same person I use to be.I'm in pain most of the time. Chest,rib,hands,feet,neck,Sholders,hips, pelvis,all my tendons.Unbelievable fatigue!!! I live with fear that I could killover at any moment.Divorce from my wife and to top it all off I'm Incredibly poor. It really unfair and shitty.
Hurtzdoughnut 4 years ago
talk to doctors about reseting the hypothalamus pituitary axis with oxytocin, vasopressin systemically to to straight to the gland via surgery. reset it and autoimmune should be much better.
badblues9 4 years ago
Nice...Ive just recently been diagnosed with Lupus, im not american though im from uk, like the vid
iseedeadmonkeys 4 years ago
Is there a chapter of the Lupus Foundation there? We have the Lupus Foundation of America, You can contact them via the internet. There are lots of books that can be very helpful. Also calm down, that's one of the first things you need to do. Find a good Rheumatologist who will listen. Good luck, Love from California USA
violet2048 3 years ago
iseedeadmonkeys, check with your doctor for the Lupus Foundation in your area. Or check through the internet for Lupus Foundation of America.
violet2048 3 years ago
Thank you for taking the time to create and post this video, Erin.
It means so much someone would make such a beautiful contribution to the community.
-----CourtneyPetit-----Don't give up! Don't ever give up.
lupusvabb2 4 years ago
...I'm close to giveing up hope... :(
CourtneyPetit 4 years ago
Thank you! I have Lupus!
Arschficker88 4 years ago
Great video Erin. Thanks for making the group :)
~Steph
Likes2Bead 4 years ago
You're welcome. I really enjoy your videos by the way. =)
ezza0ezza 4 years ago
Thank you :)
Likes2Bead 4 years ago