POTS - a Chronic Illness

[TheShulamite1]

I had a severe case in my teens where I got continually worse until my doctor feared I might die but we heard of a place in the DR that used a holistic treatment called Ozone therapy and we went in1992. It not only saved my life but set me on the road to recovery. I had Ozone gas directly injected into my viens every day for several weeks and it seemed to give me what I needed to detoxify and fight back. There is one ND, Dr. Prytula, in St. Catharines Ontario who now uses this therapy.

[fballmen]

@TheShulamite1 Wow. That's very interesting. Was it injected as a liquid in your veins?

[TheShulamite1]

@fballmen No. it is in the gas form of O3 but contrary to common fear it is harmless in the blood stream unlike regular air that can cause an embulism. O3 is pure and kills only foriegn contaminents and in doing so discharges the 3rd molecule thus converting back to O2. This supper-charges the blood stream with oxygen enabling the immune system to purify the body more effectively. You just can't breathe it directly through your mouth or nose but is so powerful for good in the blood!

[Pizzazz80]

God bless you for making this video and for spreading TRUTH that more chemicals/toxins do NOT help a chemical/toxin caused disease!

Anyone with POTS, anyone just wanting to be healthy period should remember this.

Please do your best to drink only PURE water, NO fluoride!!! Fluoride is a HUGE toxin and causes so many problems.

Do your best to eat healthy NATURAL foods, nutrition is key for fighting any disease!

Take what this video recommends as well as Modifilan & liquid Chlorophyll!

Good luck!

[Pizzazz80]

Also be sure you do your best to stay away from chemicals in foods, especially chemical sweeteners.

If we could just get back to eating how God intended we'd see so much less disease.

They have jam packed all our foods with toxins, do your own research and do your best to rid yourself of them as well as to never put them back into your body.

Nutrition and GOD can heal you! :)

Good luck and God bless you! :)

[fballmen]

@Pizzazz80 Thanks for the tips. I 'll try your tips. Good luck to you too

[SausageLinks131]

This video made me cry because I have POTS too, and it sucks. But the music doesn't help my emotions!

[SuperLover123456789]

i have this..very badly..i just absoultly hate life with it. i can't do it anymomre. i feel like so hopeless. and my doctors are hopeless too. i'm pretty much hospidalized. and they don't know how in the world i'm going to make it through..

[TheShulamite1]

@SuperLover123456789 I ache in my heart for you since I can relate to the hopelessness. I struggled with this condition from the time I was 16 but they didn't have a name for it then and said it was in my head. I lost my active life & felt suicidally depressed for most of my teens. But I found some therapies finally that helped and I'm so glad I hung in there as my life is now so rich with the blessing of 3 beautiful children I never thought I'd have. I pray you'll find a breakthrough too! <3

[sn0white68]

I LIVE WITH THIS DISEASE EVERYDAY. I HOPE THESE NATURAL REMEDIES WILL HELP CAUSE I AM SOOOO EXHAUSTED FROM ALL THE MEDICINES I HAVE BEEN PRESCRIBED. I JUST CANNOT HANDLE THE PAIN ANYMORE. SO THIS IS MY NEXT HOPE!

[arumseed]

"Emotional Freedom Technique"

[pcbuilder97]

mine started slowly at age 21. now in 23 and i havent gotten out of bed in a year and a half. my heart rate and blood pressure both instantly reach very very high levels. my heart and lungs and chest are severly inflammed. this all started as cstochodritis the inflamation spred triggering severe pots. my doctor fears heart failure is starting to set in. as a combonation of the extra load along with the inflamation. if the inflamation would go away i would be cured. but its to severe to treat

[LAXluv33]

I have POTS and I understand that it can be really difficult to deal with. I hate the fact that I've gone from being on high honer roll to honer roll this past marking period as a result of missing weeks of school, and I've been out of sports. Yet, I feel lucky that I don't have a disease that I'm going to die from, it's only a syndrome that has challenged me. In these past few weeks I've been put on midodrine in adddition to a beta-blocker, and exercises hours every day and i feel terrific!

[TheatregirlwithPOTS]

I've had POTS for a long time...but it was undiagnosed until I was in high school. I remember so many doctors saying I was making it up to get attention. Thank you for this video. I feel especially sick tonight and this just made me feel a little better. I hope everything goes well for all of you out there with POTS...Keep fighting it!!!

[pambrosesubscribes]

I was diagnosed with this a few weeks ago but needed the tilt table test to support the diagnosis. I feel scared but almost relief that all these symptoms over the years were not in my head.

[BabyBrunette313]

i was diagnosed three years ago, and im still feeling like shit. i needed the titlt table test too. its nice to know there are other POTS people out there tho.

god thats a terrible acronym.

[ddominatedd]

tilt table test was only fun until the table started to move

[nessa27country]

thank u so so much for makeing this video alot of people even doctors have never heard of this but its very real i was always told it WAS IN MY HEAD for 2 yrs and finally i have proved them wrong!!!

[aliwrytes4]

i've got tears streaming down my face....wow.... thanks for making this

[Mandydcollins]

I love this video! My POTS reared it's ugly head at the age of 14, & most people just don't get the effects it has on a person. Thank you for sharing this!

[cluffrn]

My mother, who was of great support to me just died, I'm 40 and have had POTS for 2 years now, during which time I took care of her here at home. I know my stress levels are high now, hopefully time will heal, and my POTS will get better ( I hope ). I know in the past when my stress was bad, so was my POTS.

[butsl747]

not me i don't have pots, i'm just worried about my girlfriend, after watching this i sugested natural treatment she had already tried it but being an incompitant teen she didnt really push through so being older shes gonna try again with my support. thank you,

[butsl747]

does pots get worse over time if untreated??

[fballmen]

It's hard to say... Docs say some get better in 2-5 yrs, some never recover, and some get worse overtime. My experience was that I got worse doing nothing; got worse even faster with medical treatment and got better with natural treatments. Docs say that if symtoms are bearable, it's better not to take medicine & to try to improve one's lifestyle. I guess each person's different...some have rapid onsets; some have slow onsets and get worse over time. Is it getting worse for you? XOXO

[Stacey31233]

Very good video, well done=]

Stacey

[WalkersNBoxers]

Thank you for your wonderful video!I enjoyed them very much. Have you heard of any one with POTS having Jaw pain and Stroke like symptoms? Flushing like water down your legs then tingling?

[fballmen]

Hi!I had pains on my left shoulder that reached the left bottom of my jaw; as far as strokes, i'm not sure... I've had twice in different occasions 'pop' sensations in my forehead that got me very lightheaded & my <3rate increased drastically right after (191bpm upright & pass out // 160 bpm laying down). I'm not sure what they were. I obviously survived!

[fballmen]

I've had flushing between my legs with burning sensations also. I'd talk to your doc about the jaw pain & the stroke sensations for further testing. could be serious. Lots of love to you!! I'm sorry you are going thru that much!!! <3!

[WalkersNBoxers]

Do you still get that burning cramping sensation in your chest? (Like in your other video) Do you still get the lower back pain or was it the salt? Do you get "Episodes" and then get better? Have you had full body tremors or just the right leg tremors? I am still seeing doctors and trying to get into the Mayo. Thank you for all your comments and God be with you! You are my POTS Angel!

[fballmen]

Boy! you're So sweet!! :)

Well, after a whole year of herbal treatment, I am almost symptoms free. The worst of my Terrible chest cramps vanished after 4-5 months of treatment; I still get lower back pain in the mornings sometimes but not as bad & not as often. I came to the conclusion the pain might come from adrenal glands or small kidney stones. I haven't had an 'episode' since this summer. I did get full body tremors, so violent that Docs who witnessed them thought I was having seizures(..)

[Amanda0517Melissa]

Please fballmen tell me what herbal treatments your on. My daughter suffers so bad...

[Amanda0517Melissa]

Which Mayo are you trying to get into? We see Dr. Philip Fischer at Mayo in Rochester, Minnesota.

[fballmen]

I visited with Dr Fealey in Neurology in MN, as the head guy. I also saw many different docs at the Mayo MN, from other dpts, for a whole week. May Dr Fisher be of great help to you! Good Luck to you! ;)

[WalkersNBoxers]

That sounds very frightening! It is really amazing what the body can survive.I think it is very important to get POTS awareness out. There is not a lot of info. available. Please keep up the great work. And let others know what you have experienced with this chronic illness, so we wont believe it is all in our heads or just anxiety.

[cluffrn]

I have actually thought someone has thrown water on me down my leg. Following my sciatic nerve but my doc says it was due to pincned spinal nervel

[chumpro]

Very good video. I am the father of a daughter who suffers with POTS; (lbrond711 on youtube). I will encourage her to try this route for awhile, as she does not seem to be making much progress through traditional means. Although their are varying degrees, there sure could be no harm in a more natural method of dealing with POTS. Your video was very well done and very much appreciated as it brings further attention to this delibitating medical problem. Keep up the good work! GB

[mdudley2u]

Excellent video on a condition that the world needs to be more aware of. It is so frustrating that the ER and doctors don't even know about or acknowledge this illness. You did a fantastic video. Please do more.

[dipic7]

I have this as well as too other orthostatic abnormalities and chronic fatigue syndrome.

It sucks. =/

[irishcatholicgirlie]

I have this as well as two connective tissue diseases and fibromyalgia.

[judielise]

Thanks so much for this video. My 12yr old son has POTS and we have found that many natural items help, even with his medication. He is going to P/T to help with his legs, and I hope one day, he will be better, maybe not cured but better.