Fibromyalgia: Part III - Friendships & Relationships

[AwakendStarSeeder]

I also was very active-went from going a thousand miles an hr to 4. You know like driving on the interstate and doing 65 orrrrrrrrr 70 then you get off the freeway and you are doing 35-ya know?

very depressing.

[AwakendStarSeeder]

I Know what you mean-I have been taking Hydrocodone for 7 or 8 yrs now. I am going to go to a pain management center so I can go to school. Crazy huh?

[orandanan]

Thank you. Its just plain good to know that someone understands what we are going through.

[Megpieballew]

Love your videos!!!! You ahve really helped me and inspired me:) I ahve been very sick with PCOS, Fibro, psoriatic arthritis, and Hypothyriodism. The fibro always barks the loudest to me.. The neck and back muscles always spazzing and tight! and the sleep problems ...Ive been up now for over 23 hours.. Please dont stop making videos, ive bene in dark place , very depressed:( U are needed!!!

[funnnstarrr]

Your right....there is 2 different types of people. Hope someone has just one day of pain like this just to know how horrible it hurts.

[sarahwithstars]

helpless useless dependent frustrated lonely pointless depressed. then the support goes away for a while and you are worse than before. better just to stay mildly active and self dependent.

[ViBgYoR8888]

My wife is type A and my 37 year old narcissistic stepson just expects us to feed him and do his dishes. I wish he was a type B. My wife usually ends up doing his dishes. I don't like that as she has her own health issues, also.

This is wrong, but I sometimes wish that those that mock us could walk inside our shoes for a week:

Positively 4th Street, Bob Dylan

Positively 4th Street

You got a lotta nerve

To say you are my friend

When I was down

You just stood there grinning

Verse One

[Candiceseesu]

hi i also have fibromyagia and i feel exactly how u describe it ever day and night i never heard someone exlain it exactly how i feel i suddenly dont feel so alone thank you from the depths of my soul iv subscribed so i can watch all your vid because i finally feel understtod and finally feel a little hope that its not in my head for u i thank u i have two young chldren that keep me going ls message me whenever you want itd be nice to know u esp when u understand thank u

[SuperScreamingEagle]

I've got fibro but I don't have anyone helping me with anything. Where do you find these people to do things for you? lol.

[Courtneynicholeztube]

I'm 18 and I have fibro. I love how you put this! The A and B group. My friends are the A group. They think I'm being dramatic unless I am screaming and crying and then they become the B group. I HATE IT. I have a job and it's like the least amount of work that anybody could do and it KILLS me. And my coworkers don't get it of course. I luv how you're making these videos. Maybe people will someday understand people like you and me and not just think we're faking it. And it's NOT in our head :)

[ParanoidKitty]

@Courtneynicholeztube They need to invent pain meters that you can place on someone and see the level of pain they are in. Then you could compare the headache someone is complaining about to your fibro pain in number in front of them LOL. Then everyone would admire us because of the pain we are in and wonder how we go on with our day. We would be heros =)

[happysad321]

couldn't have said this better, it's like you totally get me!

[nikamirovak]

LOL you're so dead on about the a and b groups. most people are so extreme one way or the other. there's a happy middle folks!

[darlingtester1982]

Hello I totally agree with video, same in this boat etc. hugs kisses love Stewart xox

[Lesli2]

thank you for doing this set of videos

[amybrand]

At least you have people who love & care about you. I was flat on my back yesterday with FMS & had no one to check in on me or help me out. It was pretty damn pathetic!

[ParanoidKitty]

I have been there too. I have crawled literally around my apartment before to get a glass of water or whatever I needed, I also have fallen asleep on my kitchen floor before while I was crawling to get things. I am very lucky to have someone in my life NOW, but I didn't before and I know how hard it is. =(

[MyPinkRainbow]

hi there i hear that oh is there anything i can do for you and when you need it no one is there , that sucks and they dont understand you hurt and it doesnt get better ever , and they dont get it when you hurt so bad you cant even talk you feel like your crumbling in horrific pain

[qtcarla]

it really is a balancing act....Life...family ...friends...house work....fun stuff....*smiling* Thanks again...

[debswildhoney]

I know how the loosing friends thing is when I can't go out anymore and/or be active with them. I can't drink or smoke it doesn't go with me due to the fibro. True friends stick around and most of mine now have chronic pain so we understand each other. Great video.

[ParanoidKitty]

I realized I have 0 true friends around here, that kind of hurt. But it's ok, as always when I start doing better I make more. Until then I have the most AMAZING friends online who don't care if I am not online all the time. =)

[debswildhoney]

I'm glad you are here and that you probably understand me more than most. All the best to you, my friend. :O)

[ParanoidKitty]

I think all people with FMS or CFS understand one another. The best part is if you are in somewhat the same time zone or climate you find your FMS friends online and awake the same odd times you are so you always have someone to talk too when you have insomnia. The best part, they understand =)

[yougotmalk]

i think i need to watch the other videos first to figure out what your talking about..*S*