Multiple Sclerosis: CCSVI and the LIberation procedure; Advocacy for Paolo Zamboni

[msngigya]

Wish to bring forth this case of young lady in New Delhi having MS syndrome and it is getting worse, unless some proper cure is found. Also praying with hope that some good soul would volunteer and enable for her treatment of MS Syndrome.

[Jessica1963Forester]

Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube v=jFQr2eqm3Cg. Log on to ccsviclinic. ca for more information.

[Jessica1963Forester]

“I feel I am completely cured” says Ms. Gianopoulos, “my symptoms have disappeared and I have a recovery of many functions, notably my balance and my muscle strength is all coming (back). Even after six months, I feel like there are good changes happening almost every day. Before, my biggest fear was that the changes wouldn’t (hold). I don’t even worry about having a relapse anymore”. Log on to ccsviclinic. ca for more information.

[governslayer]

you speak the truth hey bud.

[governslayer]

yeah

[AWDESIGNS8]

ok bear i'ts been 1 year ago how are you doing . is your ms still in remission . please let me know and the world i guess. love ya april

[coldmountainpix]

Thank you!!! I just found out about this the other night- was DX with RRMS 18 yrs ago. This is so cool - I am so filled with hope and determination now! God Bless You for getting the word out :) Maria

[kidofponymaker]

I am the one in the COMMERCIALS...and I have MS... Have not done any of these treatments...but I am for sure out there in front of all this if I like it or not... so I was trying to see what was going on out here... thanks! Holly Clark

[thane17]

So what caused the venus issue then? I think the reason some of the veins are closing back up again is because the underlying chronic infection isn't being addressed. Addressed the infection, it eliminates the autoimmune and the vein will stay open after the treatment. thats my take anyway

[irishbear76]

@thane17

There was a conference of vascular specialists at Georgetown University that concluded CCSVI is present from birth or congenital.

That was the consensus report from the world's leading vascular studs.

It makes me think that many of us renarrow simply because the veins do not know any more than being closed because they have been that way our whole lives.

It has changed my mind about stenting because the Lib Pro is not guaranteed to KEEP THEM OPEN.

I think efficacy for stents is >

[DiedTwiceInEden]

Just got CCSVI done yesterday. There is help, in USA, New England. Please contact me for details if you cannot find anyone to do this.

[DiedTwiceInEden]

Just got the Liberation Procedure done yesterday in USA. I'm in New England. I want to help others, too. Auto immune, yes, because the blood backing up into your brain is your blood working against you! CCSVI is a miracle. Why can't people accept it?

[MACGWEEDORE]

I have RR MS and have an appointment in Poland in September for CCSVI examination. I have noticed lately when i take my Betaferon injections that next day MS bad. In Ireland there is a high number of persons with MS.

A disgrace that i have to travel to another country for CCSVI and 100% agree pharmacutal companies behind any negative press concerning advancements of CCSVI.

How individuals sleep knowing that they are enchancing suffering.

[irishbear76]

@MACGWEEDORE

I agree that the bastards should lose sleep for what they are doing to suppress this procedure.

I am of Scottish and Irish descent (Scott/Crowe) two nations particularly hard hit by MS.

I am telling you this with the greatest confidence.

Because you are relapsing-remitting getting this procedure is going to decide how the rest of your life goes. You are doing the best thing possible to make sure that MS doesn't progress to being totally debilitating.

Slainte,

Mark

[DiedTwiceInEden]

Got CCSVI procedure yesterday. I'm in New England- there is help. We have to get this out there- Please let me know if you need Dr. name & location.

[DiedTwiceInEden]

@MACGWEEDORE 

[ficko83]

zamboni for nobel prize!

[astronautsandwitch]

My numbers were 8.7 billion in 2009. that is a big fat cat. or should i say a big lunch meat sandwich.

[giac135]

doctors tought my had a stroke ,so she took baby aspiring foe two weeks .she got immediatly better.she stop the aspirin and she had all the bad simpton again. i strongly believe ms is cause by ccsvi! go zamboni.you can `t stop the truth.

[sploggon]

laurenparrot *Lol* shes a sales person for Tysabri which as killed so many people..

I pray everyone checks out LDN and Histermine on the goodshape website..

[MrSteve757575]

I have been liberated,I live in Barrie Ontario Canada.I was one of 6 done in Canada.I am on the news and in the papers.If i can help anyone or help to get the word out let me know

[milorad173]

where is how much pharmaceut company prpfit per years, please....

[irishbear76]

The conservative figures show the pharmaceutical companies stand to make 8.8 billion this year. This number is likely to increase as more oral drugs come out over the course of the next 5 years.

[irishbear76]

@milorad173

8.8 billion dollars on MS drugs alone!!!!!!!

[steffi2italy]

Hi Mark, finally got my doppler result! Went to Poland since things slowly start to move in Italy, but I was too curious to wait + stuffed of the politics! My diagnosis: "Left jugular vein - the vein is occluded by pathologic valve in the junction with the brachiocephalic vein. Nearly no flow in the vein. The vein does not change its diameter in the sitting vs supine position." And what convinced me most is that I saw it myself on the screen! Zamboni and Simka: Heureka!!!!

[irishbear76]

WONDERFUL news.

I am so happy.

UR in great hands with Zamboni and Simka they are the two people in the world I would trust most with my veins.

God bless you and YIPEEE!!!

Mark

[Regna]

dam thats crazy, il let you know if its the same when my mother get's her one done could be a while tho

[Regna]

Well said , I just found out about this about 3 week's ago my mother has secondery progressive and we tried stem cell's had a big fund raiser turned out to be a bloody scam and nothing came of it , tried mitoxintrone but she took an illergic reaction to the steroids.

So now i found this liberation treatment were in ireland tho we were on to the irish ms society they send out magazine's etc they dont even know about it the neurologist's seem like they dont want to know about it. I

[Regna]

It's like they dont care or dont want to know about it they seem to be brushing it aside it's like every neurologist ive met is arrogant and doesnt want to hear something different.

Im finding it hard to find out where i can even get this thing done trying to get a scan done for my mother soon hopefully.

My sister read in a paper in the uk it was being called a cure for ms and some women payed ot get it done privately over in the state's for 5,000 dollar's.

[irishbear76]

If they are putting CCSVI on the front page of the Mirror and Mail it will be a matter of time before you can get this.

Check out the CCSVI society in the UK

It is coordinated by a bunch of dear people.

Check out HKintheUK on Youtube for more info.

[MrMarkafisher]

Hi Regna,

I had a stem cell transplant in 2000 in RMH Melbourne Victoria Australia. It was really difficult, but I pulled through OK. It didn't achieve the result they were hoping for, but I had to try.

Let's wait to see if this is approved for trials. I'm happy to try something new.

Regards

Mark

[MrMarkafisher]

Hi Mark,

Enjoyed your video, please check me out at ms taking action.

It appears we both have good experience to draw upon.

I hope this ccsvi thing is legit & we will all benefit.

thanks mate

Mark

[irishbear76]

I will check it out.

[plunk52o]

Free radical scarring on the blood vessels would not be cured by vitamin D after the fact of the scarring, would it? Surgery is a legitimate mode of treatment as per the results from research and proceedures thus far by Dr. Zamboni's team.

[irishbear76]

UR correct.

What's done is done.

The VItamin D (IMHO) comes into play when 1) We are in utero 2) during our formative growing years from birth to age 15 whilst everything is falling into it's right place so to speak.

[haz740]

cheers for all this info irish bear I have done alot of research and the problem we are gonna face now is the neurologist not allowing this liberation process to take place. i dnt know how us MSers can be heard i have suffered from it for the past 10 years and i really want to get this process done to be reborn again

[irishbear76]

That is where spreading the word is important.

Emailing and calling local new stations and radio and asking why nothing is being done about this.

It starts with letters to the editior, phone calls to local affiliates, etc...

[etymon2]

People in the MS field must know this also but we're watching Big Pharma fight potential loss of profits. Never thought I'd say this, but I want to go to Poland (for liberation procedure before any more of my brain is destroyed)! Can't we have the right to make our own informed decisions???

[etymon2]

Zamboni had a large control group--over a thousand. NONE had CCSVI, while ALL MS sufferers had some occlusion (blockage). I've been reading research studies of various kinds all my life and this is quite rare.

[MrJohnnyk27]

Hey do you have any idea of what to do to speed up their study for the ccsvi plz reply it seems to take forever we have no time to waste with our heatlh or whats left of it ... ?

[irishbear76]

Unfortunately, there is nothing I can think of that would speed it up.

The scientific process is a long, grueling process.

Once you start seeing LARGE CONTROL numbers and multiple universities around the world researching it you will know it will be available soon.

However, if you got in a clinical trial you could be a guinea pig as soon as early next year.

[nappycloud9]

Saw doc yesterday and she said go for it but she reffered me to a cardiologist. Praying he will give me a refferal to a Venous specialist. Didn't even try the neuro, suppose to start Tysabri on the 22 nd of December...trying to hold out for CCSVI and the LIberation procedure,

[irishbear76]

please make sure they know what they are doing.

Zamboni's team have said it takes a few months of training to even be able to know where to look.

There are published papers that describe the procedure, what instruments are used, etc...

[lynne4cobis]

Read Ashton Embrays blog on CCVIS. He seems pretty convinced of it's efficacy as a cause of immune problems and I think he feels that lack of Vitamin D may be the raisin d' être behind the narrowed veins and that vitamin D in high doses prior to the teen years may be curative or maybe prevent full- blown M.S.

[irishbear76]

will do

[lynne4cobis]

I often feel that MSers have reactions that seem to be pinched from other auto- immune diseases if that's what they are; lack of adrenalin like Addisons, sleepiness like narcolepsy, balance problems like Meniers syndrome, weak necks and eyelids like myasthenia gravis, one side weaknessess like stroke etc. Could occluded veins and/ arteries be a common denominator! Could fat emboli make the blood tackier ?

[irishbear76]

These are simply the buffet that MS offers us to feast from.

Because the brain is so intricate and serves so many functions that is why we see such an array of symptoms that mimic other conditions.

[lynne4cobis]

Ib,You are such an inspiration to folks! Its easy to be resigned, if like me, you feel that with SPMS you cant improve much ,but its not all bad.This is my 29th year dx and I'm still working and walking (wonkily)! Yes I have problems especially with my balance and I couldnt manage without my husband's support. Keep up the fight. Thanks for the videos.They teach us so much!

[irishbear76]

I appreciate that.

You are a dear lass and your work with ASD is very important.

I have some experience working with severely autistic adults.

[notapplicable66]

MS should also be compared to other neurological brain diseases. Such as Narcolepsy, Epilepsy, Parkinson's, Cerebral palsy, etc. Even strokes should be compared.

[irishbear76]

I believe that Zamboni's trial did have a control group of people with an array of neurological problems. ONLY the MS'ers had jugular and azygous stenosis!!!!

[notapplicable66]

It's still interesting to read about those other illnesses and see the things they have in common with MS.

[lynne4cobis]

I teach kids with ASD - mainly Asperger Syndrome. They are more anxious in Winter which I believe is caused by decreased Vitamin D intake. Many dark- skinned children now have ASD from living in cooler climates. I feel this is worsened by the encouragement to breast - feed.unfortunately if too little Vit D in Mum - too little in the babe. I only wish I knew that before nursing my own kids. My daughters are well clued up though on how to protect their wee ones - sun or no sun!

[JANESKY217]

THANK YOU SO MUCH for looking into a link w/ AUTISM. I'm pretty sure there are many more out there like us. I have had MS for 25 years and I don't have the strength to do my own research.

[JANESKY217]

I think that the MS community desperately needs awareness made of CCSVI. Michelle Obama's father had suffered from MS for many years before his death. i'M SURE THE FIRST PARENTS WOULD NOT LIKE IT IF Sasha and/or Malia were to be dx with MS. Mrs. Obama and Opra Winfrey seem tight. We need Oprah to spread awareness.

[codefellow]

Zamboni's discovery seems to fit with everything with one glaring exception I have not seen addressed -- the gender bias of MS. Also, were there not some studies that showed MS symptoms waxed and wane with various stages of pregnancy? What has your research shown you about this, Mark? (BTW, thanks for making these videos.)

[irishbear76]

A couple of things happen in pregnancy.

Vascularity increases in pregnancy and that would help a struggling jugular or azygous vein greatly. This makes perfect sense.

As far as women being affected twice as often as men merely look at your mother's varicose veins :) Seriously, I do believe prevelance in venous insufficiency in the periphery is more common in women too.

Either way I believe that many things come together for MS to happen. Vitamin D does play a role in cardiovascular developmen

[JANESKY217]

I know this is off-base but can they use this out of box thinking to see if vascular abnormalities can be a cause of autism? Most of the people I know with MS including myself have close family members with autism.

[irishbear76]

I will have to look further into any kind of link between autism, mutliple sclerosis, and vascular abnormalities.

I have an autistic cousin.

[notapplicable66]

Far as I am concerned there is no such thing as a auto immune disease. There has always a reason and cause for it. The body just doesn't wake up one day and say, "I'm going to start attacking myself for no good reason!"

[irishbear76]

There are cases of auto immunity; however, I really have doubts about MS where I never did before.

The fact is...I STILLthink that MS is autoimmune but only after the CCSVI causes this. The causation of the autoimmunity is now apparent.

[notapplicable66]

That is my point. Every single case of auto immune disease has a reason for it, and it has a trigger or more than one.

[XopherPaul]

Thx Mark! I was dismayed after applying online for the Buffalo study seeking 1,100 MSers that no Doppler or MRV reports will be given to participants or their docs, yet this is precisely what participants, who must pay their way/stay there, will want to know. I can't justify the expense of making the trip if this is the case, & fear others will feel the same. which could greatly delay the study. Why would they be unwilling to let participants know their results? How to get them to reconsider?

[irishbear76]

Hmmm.

I think they are keeping the results hidden for a couple of reasons.

How do you think over 1000 people will react to the medical establishment if it is known they have an occluded vein and NOTHING IS BEING DONE ABOUT IT and to keep the "blind" part of the study.

[lynne4cobis]

What's CVD?

[irishbear76]

CardioVascular Disease

[2468canada]

hello mark,

could you please help me with a reference for the side note you made about zambonis reserch where almost 90% of the children with CVD developed MS?? thank you!

i'm currently writing a paper or CCSVI and have found your videos very interesting, so any info would help! thanks again

[irishbear76]

I am looking. It was something Zamboni was working on in the 90's.

I will look for it. I think I have a PDF of it.

Email me at me yahoo address and I will send it forth

[iamianthe]

Hi Irishbear...I live in Canada. I was just at the M.S research clinic in London, Ontario on Thursday..I have to say I went there with hope and left feeling quite depressed. The neuro there really didn't believe that CCSVI and Dr.Zamboni's research had much validity. The good news is that the Canadian M.S society has secured 10 million for the research on CCSVI. I was basically told not to hold my breath.

[lynne4cobis]

Could this neck and spine vein occlusion cause aches in the left shoulder and left hip that feel like they've been scalded or scraped?They've been there for weeks and seem weird and incongrous. I have no other pains.

[lynne4cobis]

What does horse- chestnut do for you? Is it the same thing I used for varicose veins in pregnancy?

[irishbear76]

The exact same process but hopefully in the head/neck area.

It is my hope that bringing blood up from the legs is much harder than bringing blood down from the brain.

i am not sure it will work but it is for venous insufficiency.

[medad1]

Well ...do you think this research could cure of MS?

Regards

Mody :)

[irishbear76]

I do think this research will lead to the cure. I think it already can stop the progression of MS.

[steffi2italy]

Thanks for your great videos! And for all your time! Keep on going!

[irishbear76]

UR welcome.

God bless.

[gekiryudojo]

IN YOUR FACE (well mine) just Back from the Ultrasound yes there is something strange, with my left jugular vain! and it warrants further investigation the sonographer said (she had difficulty seeing the left Jugular and there was something going on with it !) the right was great and so were the carotid arteries, more later, QED :)

[irishbear76]

I KNEW THEY WOULD FIND SOMETHING!!!!!!!!!

IF they didn't it would have been because they were doing it wrong.

WE ALL HAVE THIS, I am certain.

Keep me posted, Trev.

blessings

Mark

[handipeep]

i'm a 'lurker' (lol) but i've really enjoyed your posts and just wanted to say keep up the good work - the good fight I should say - it's so critical and you are helping out all of us who are afflicted w/ MS. Whether we agree/disagree/whatever the opinion, don't we owe it to ourselves to be open to new/alternative therapies and educate ourselves in order to make our own informed consent?? Yes!! ;) Thanks for providing a great source for this info and a sounding board.

[irishbear76]

I would not make such a fuss unless I REALLY BELIEVED that Dr. Zamboni is on to something.

This is Gettysburg in the war against MS whether people choose to see it or not.

Take care,

Mark

[steffi2italy]

Yes, for me just the link CCSVI and MS is already an overwhelming discovery. Whether cause or effect, let them do further research, but if veins are blocked, that's no good. And if there is suspect of CCSVI this should be diagnosed and treated immediately as any other illness...and agree that will certainly bring immediate improvement on fatigue and other circulatory problems! Aside most likely more (as my scientific sense also tells me), and which further research will then confirm/reveal...

[irishbear76]

I agree totally.

[steffi2italy]

Contacted Dr Collins in Belfast this was reply:

I'm afraid we do not specifically perform such assessments.

Despite postings that I believe have appeared on the internet we are not involved in research or treatment with regard to CCSVI in Belfast

Regards Anton Collins

I also requested info from Poland and Switzerland...if they do not move here in italy soon on doing the test lets then break the news that an Italian resident had to seek such a simple exam as a doppler test outside Italy ;-)

[irishbear76]

Sometimes

NEGATIVE PUBLICITY is the only language that self-interested people speak.

Put their feet to the fire.

God bless.

Mark

[eddysacat]

Thank you for the recent video. I tell anyone who will listen about CCSVI. Unfortunately, few will listen. When I tell them there may be a cure for MS they automatically think I'm a fool. I can't stop thinking about CCSVI and when the day will come when I'll be able to get tested and treated.

[irishbear76]

HOPEFULLY WE WILL MAKE THEM LISTEN.

Take care, bro,

Mark

[jeff0516161]

Thank-you! Keep the videos going. The more people who hear about ccsvi will find your videos when they search for it within youtube.

[irishbear76]

Thank YOU

[gekiryudojo]

by the way I hate safari Browser !

[irishbear76]

I hate Alistair Compston M.D. right now. He is the biggest opponent of CCSVI in the UK right now.

[gekiryudojo]

I'm going to find this Alistair Compston M.D and tear the F****R a new one!

[gekiryudojo]

In 9 hours I will be getting a Doppler scan, I will get back to you on that,

Great Video "M" I see the tide is sifting but Like you say they an-not un-invent CCSVI so the game is on,

Trev

[omexmc80]

I hope they find something in the doppler and they fix the problrm withe the vessel. good luck man. I'm going to see my GP next week, hes a good friend of mine and ask him to book me in for a doppler if he can.. again good luck..

[gekiryudojo]

My biggest fear is that they don't know what they are looking at!

but they have been told to look for stenosis

[omexmc80]

They best find it, just keep telling them to keep looking until they find something. take some Dr zamboni info with you.. maybe a print screen from the zamboni doppler vid on youtube.

[gekiryudojo]

I already sent them Dr zamboni's Protocol to read (but they said they have to use the hospitals Protocol) I told them to just read it,

[omexmc80]

I just wish they find it and this struggle with MS comes to an end for you.. i will pray for you..

[steffi2italy]

Ha, hospitals protocol! I hope they will now read Zamboni's more thoroughly to investigate your left jugular further! And maybe there is even more...

[gekiryudojo]

actually the sonographer was very good I sent her Doctor zamboni's Protocol last week and even though she had to abide by the Hospital Protocol she had read it and she even had news clippings of Doctor Zamboni and she also did a trail on the ultra-scan so good on her!

[steffi2italy]

Super! That gives me hope that there are specialists out there that are open to new research and really try to help!

[irishbear76]

Game ON, INDEED

[omexmc80]

Amazing video Mark, Again thank you.. I am trying my best in the UK. I have contacted all the major newspapers in the UK and given them the information on Dr Zamboni. and when i get on that stage for britians got talant on Tuesday i am going to mention it. take care, i have taken you Email address. I wish i had great knowledge about this disease like you do.. thanx man.

[irishbear76]

You have knowledge about being a good human being and that is the greatest wisdom in the world.

Take care, man and GOOD LUCK ON BGT!!!!!!!

Mark

[omexmc80]

I have just put an Email in circulation and have asked people to forward it to eveyone in thier address book and so on.. because evryone knows someone with MS.. hope it gets around..

[MSVlogSupport]

This is what I have done so far on top of making my videos.

Written my local,news the paper, local hospitals and doctors, state officals. I have also wrote Oprah, Bill Moyers, Michael Moore, Montel William, ABC News, CBS New NBC News. wrote to Michelle Obama whose father had MS and since has past away.

I also wrote Avis Favaro who did the story on Dr. Zamboni that ran on ran the news. Asking her if she was going to do a follow up peice now that Dr. Zamboni is no longer able to proceed.

[andie221]

All round a great vid Mark thank you!

[irishbear76]

Thanks a bunch!!!!!!!!

[ChaozFear]

shared on FB. -Norway

[irishbear76]

I appreciate that. Keep getting the word out in Norway and the world.

[angelusa73]

Hi Mark,

if you would like to come by, I have a Facebook too that I started 2 weeks ago where I post Italian and English news.

It's called flowers4MS just like my project.

The Italians are very involved in speaking up and they will win, don't worry. We are slow...but things are moving, even if it's not as fast as we would like them to be!

The AISM, the Italian MS society will meet with Dr. Zamboni on the 22nd of this month. Let's cross our fingers!

Thansk for supporting Dr. Zamboni!

[irishbear76]

Thank you too!!!!!

[auntoni51]

This gives me so much hope and determination to help make this possible for us all.....Never thought i would see the day in my lifetime that ms could be changed and/or cured.....It is clear as day, that dr zamboni's research and findings are so evidentally correct......Why would anyone want to stop this?......You encourage me to push and get the word out everywhere for people to make this happen.........This has given me the sweetest hope for my future........GOD bless....ione marie

[irishbear76]

Keep hoping and getting the word out.

We are in control!!!!

God bless you too!!!

Mark