Thank you for your comment! ...almost always, but not always. Spasmus nutans were ruled out, as were all other eye conditions. Sadly, these seizures progressed until they did show on the EEG...and now we can't get them under control. My son has a strong history of having seizures that do not show on the EEG. *Smile* He is an oddball case...we have stumped many neurologists. For anyone wondering....these are complex partial seizures that originate from both sides of my son's temporal lobe.
My son has complex partials that look very similar to this. He also has several other types of seizures. We also have the neurologists stumped at this point and are considering going out of state for another opinion.
How is your little guy doing now? Thank you for posting...these videos are really helping me recognize what's going on with our son - the neurologists have been useless in teeching us what to watch for.
clean eeg almost always means no seizures. Our daughter was diagnosed with spasmus nutans this past march. i too would hold off on the medications until you have ruled out some conditions.
we've actually been told the opposite. That it's very frequent that they are not able to see the seizure activity on EEG. We'll be doing a 48 hour EEG next month in hopes of finally catching some of our son's seizures on it.
My son has spasmus nutans characterized by head-nodding add rapid nystagmus when he is gazing, especially if he gazes to the right or left. Generally this is benign when it presents in infancy. My son started with this at 4 months. Other than moderate delays in his speech and walking I have not noticed any significant problems. I'd caution against use of medications on him until you have a clear understanding about his condition. If it is in fact spasmus nutans, no treatment is needed.
I watched this video again and he has some autistic movements - the finger fiddling and the staring- my son is autistic and he had some of these same movements when he was a baby
You should get him tested for Celiac commonly associated with Myoclonic seizures. I have them as well. I would get thousands a day. They are a symptom of an autoimmune disorder. Mine are controled now by going on a gluten free diet, completely med free. I only had 2 today, a small flare up, but have gone a few months without any thanks to a strict wheat free diet. Worth looking into, it is a simple blood test. Search Celiac & myclonic, find a celiac specialist in your area & get him tested.
how is he today??? Do u know what he has??
plushbanana 1 year ago
Thank you for your comment! ...almost always, but not always. Spasmus nutans were ruled out, as were all other eye conditions. Sadly, these seizures progressed until they did show on the EEG...and now we can't get them under control. My son has a strong history of having seizures that do not show on the EEG. *Smile* He is an oddball case...we have stumped many neurologists. For anyone wondering....these are complex partial seizures that originate from both sides of my son's temporal lobe.
karen92778 2 years ago
My son has complex partials that look very similar to this. He also has several other types of seizures. We also have the neurologists stumped at this point and are considering going out of state for another opinion.
How is your little guy doing now? Thank you for posting...these videos are really helping me recognize what's going on with our son - the neurologists have been useless in teeching us what to watch for.
kristencurrent 2 years ago
clean eeg almost always means no seizures. Our daughter was diagnosed with spasmus nutans this past march. i too would hold off on the medications until you have ruled out some conditions.
GoddessNoir 2 years ago
we've actually been told the opposite. That it's very frequent that they are not able to see the seizure activity on EEG. We'll be doing a 48 hour EEG next month in hopes of finally catching some of our son's seizures on it.
kristencurrent 2 years ago
My son has spasmus nutans characterized by head-nodding add rapid nystagmus when he is gazing, especially if he gazes to the right or left. Generally this is benign when it presents in infancy. My son started with this at 4 months. Other than moderate delays in his speech and walking I have not noticed any significant problems. I'd caution against use of medications on him until you have a clear understanding about his condition. If it is in fact spasmus nutans, no treatment is needed.
zimovjel 2 years ago
I watched this video again and he has some autistic movements - the finger fiddling and the staring- my son is autistic and he had some of these same movements when he was a baby
pickytwo222 3 years ago
has autisim been ruled out?
pickytwo222 3 years ago
This has been flagged as spam show
You should get him tested for Celiac commonly associated with Myoclonic seizures. I have them as well. I would get thousands a day. They are a symptom of an autoimmune disorder. Mine are controled now by going on a gluten free diet, completely med free. I only had 2 today, a small flare up, but have gone a few months without any thanks to a strict wheat free diet. Worth looking into, it is a simple blood test. Search Celiac & myclonic, find a celiac specialist in your area & get him tested.
pamelamadindong 3 years ago
Looks like seizures to me.
RulesTheRoost82 3 years ago