Infantile Spasms Miracle

[Ladietmeyer]

I can't watch this without tears in my eyes! We, too, are experiencing a miracle with our daughter, 3 yrs old, who underwent a 2nd brain surgery (a hemispherectomy) in July. She's now almost 4 months seizure free, having battled IS since 4 months of age. The seizures have left her w/ severe disabilities, but since her surgery, we are amazed at the things she is learning! We have felt God's unending presence during this LONG journey, and we praise Him for each day that passes without a seizure! 

[XDinexitaXD]

This is so, so beutiful. the ending made me cry. I wish to listen to that by our baby girl. Our little girl is 3 and a half years old and is still struggling a lot with west syndrome. We pray everyday for a miracle and God has given us one : being able to live with her. But we want one that will cure her forever. She doesnt' deserve any of this. She barely walks or speaks. this is not fair at all. Bless your baby boy! Thank God he's healthy <33

[registeredscs]

Thank you for sharing this video. Our son was diagnosed this past Saturday, on his 4 month birthday, with infantile spasm. Now it all makes sense what we have observed with him before now. The plan is to start him on ACTH pending clearance by the doctors.

[dikeledij]

my son has been having spasms since a month he was born , he was on ACTH,cortozone , prednizone and epilim , he still had the spasms and was irritable , was huge from ACTH . now he is 23 months and has stopped the spasms ,its been a month now ,i am thankful to God , i pray it remains that way so that he can start developing more quicker cause he cant hold his head and cant sit yet . thanks for the video

[19afanasyuk]

THANK GOD!!!!

[zsazsaelenismommy]

This video was beyond inspirational. My daughter was diagnosed with cryogenic IS one month ago today. She's been on ACTH and after just 2 of treatment her EEG showed zero seizure. Several nurses her paediatrician and physical therapist all have been shocked at how well she looks. "doesn't look or act like an IS baby" We thank God everday

[blueeyeassasin]

He seems to being doing a whole lot better. I have a question for eshier: how did you know he had a reaction to an immunization?

[blueeyeassasin]

You just have to have faith in God for a great healing! I have a son that has seizures and has a very rare bleeding disorder! I first brought my opionions and thoughts to his regular doctor he did not listen. We ended up in an emergency room and transferred to a children's hospital and a fighting battle to keep my kid! God has prevailed and will continue to prevail in my sons life! I pray every night for a speedy recovery! He is taking pheno barbitol and is only 4 monthls old.

[Sabrocita]

Praise God!!!! This is so beautiful... brought tears to my eyes. God is beyond awesome! I am soooo glad that you are giving Him all the glory. And rightfully so! :) God bless you and your family always.

[SimplicityLoves]

Thank you so much. Peace and blessings to you and yours

[Tabitha1298]

Thank you so much for sharing your story! God did a mighty work in him! Our daughter is now 4 yrs old & she started having seizures at 7 months old & diagnosed with IS. A few months before she turned 2 her doctor found a tumor on her left temporal lobe & it was removed just before she turned 2. She will be 5 in April & we will celebrate her being seizure free for 3 years. We praise God for his healing power! Our Selah is developmentally around 12 months old we are believing for complete healing!

[Dawoudkhalifa]

Yes, God did heal him and answered your prayer. hank God for everything.

alhamdo lellaah

I wish all the best that life can bring for your beautiful son. God Bless you all :)

[gregfl]

I share your joy as my daughter Emma resolved from IS as well. However you are making some pretty fantastic claims like resolution of Hysparythmia was "not supposed to happen" within two weeks. Actually, in cryptogenic cases resolution often happens even sooner with ACTH or other anti-epileptic medications. In our case the Spasms resolved in two days. Emma is now a totally normal 3.3 year old. Some kids whos parents pray never recover. I love your result but not your claims.

[myactseb]

I got touched by your story and may God be with you and your family always and forever! God Bless you

[XDinexitaXD]

You're a very lucky family - consider it. Our beutiful Girl Carolina was a healthy child when she was born but at 6 months old, she was diagnosticed with Infantile Spasms (west syndrome). she's now your son's age and she still has seizures and she's not stable yet. You're a VERY lucky person!

[vostergarza]

my daughter has been seizure free for one month and completely weaned OFF of the medication (pred) for over almost 2 weeks now. she is doing wonderful. she is still playing catch up with her development, but not bad at all. i am praying things continue to progress. she is a little fighter. she is 5 1/2 months old now. there is HOPE (so far)

[amysarahh]

My daughter's spasms did not look like this. Her head would drop and they would happen over and over again. Her arm would punch forward. The spasms your son is having look like they can be overlooked by some. Scary that the bigger seizures don't cause brain damage but these small ones do.

[amysarahh]

My daughter started having IS when she was 1 and is now 2. At 5 months old she was diagnosed with Tuberous Sclerosis because of complex partial seizures. I was told that infantile spasms do cause brain damage and there are people that just think it is normal baby movements or colic. My baby was put on Vigabatrin and they stopped pretty quickly. The earlier they are caught the better the child's outcome. My baby has reached all her milesones and like any other 2 year old.

[ladyhonda1]

7/22/10 My two year old son has started having these same spasms a month ago. In 2009 he was deathly ill from immunization reactions. he went into cardiac arrest and was resuscitated a minimum of 6 times. The doctor warned us he might be susceptible to seizures. God IS GREAT because even though he is having seizures for now, he has learned to sit up, crawl, and walk again.

[eshier365]

@ladyhonda1 He is indeed good. Glad to hear your son is progressing well. How are things going with the spasms?

[blueeyeassasin]

@ladyhonda1 how did you know he had an immunization reaction?

[ladyhonda1]

@blueeyeassasin Our son was diagnosed with chicken pox shortly after receiving the vaccine. Additionally, a fluid filled sore ( common with chicken pox) was directly linked to his vaccine through a DNA test done by the pediatrician. His immune system was so low the weakened viruses in the other vaccines were able to gain strength. He contracted mumps Measles, and Rubella. Liver enzymes count was off the chart ( from his Hep shot), encephalitis set in after the chicken pox.

[vostergarza]

@eshier365- i misunderstood you, i thought you mentioned the "spasms" were causing damage to the brain- not the medication. ahhhh!! this is all a huge learning curve for us, just glad they didnt find a problem with her brain...? have to keep hope

[eshier365]

@vostergarza No...to my knowledge it is the spasms themselves and not the meds that cause brain damage. The meds have different side effects, though.

How is your daughter?

[vostergarza]

my daughter is having the same spasms, and was diagnosed yesterday with IS, after getting her MRI today, the neurologist says this is NOT causing damage to the brain, she is now on prednisolone and we are home, but she is still having the spasms. we are afraid they are causing damage to the brain, but per the neurologist, it is NOT. do you know if we should take his word?

[eshier365]

@vostergarza

I, of couse, cannot speak to your situation. Prednisolone was not part of Drew's treatment, so I am unfamiliar with it. I am sure you can understand why I am hesitant to offer anything that might seem like medical advice. Our doctor, who we trust implicitly, told us the spasms also cause damage to the brain. If you are unsure about what your neurologist has told you or prescribed, I think you should get a second opinion. It cannot hurt. You are your daughter's advocate.

[adaywid]

@eshier365

my baby girl has same thing but i want ask about medicine what the said effect .i am so sad what i do now

[armenmeno13]

@vostergarza My son was diagnosed with IS 4 months ago. he was first given phenobarbitol which didn't work and then his neurologist prescribed him prenisolone that didn't work, he is now on topamax and has been seizure free for over 2 months. he is developing slowly but getting there. IS do cause brain damage to infants.

[AriesXDiamond]

Aww such a beautiful babyboy, Glad he is doing so much better, God bless him always and forever!! Thanks for sharing!! The video was sad but i had a smile on towards the end of the video!!

[mawomacks]

amen.

[fackinacormack]

thank you for asking about my Shonah. Tomorrow will be our last injection of ACTH. Then we are taking prednisolone for 2-3 weeks and will go long term with something like Topamax. We've been on the ACTH for 25 days and it has been hard. We are humbled before God and His Mighty Hand.

[CapoeiraSM]

Doctors and other medical workers study all their life to help people and treat them, and GOD takes all the credit. That`s not fair :)

No, but seriously, I`m really glad about your son, and thank you for posting this video.

[eshier365]

@CapoeiraSM

I can see why you would say that. His doctor was AMAZING. He actually graduated from High School with him and we are SO grateful for his knowledge and expertise. We believe that God used his skills in healing our son. Ultimately, though, we believe that God brought about Drew's ultimate and complete healing and we glorify Him for it!

[eekather]

Thank you so much for sharing your son's story. I have watched your video often, and pray that my son will be as fortunate as your Andrew has been in his battle with IS. I have to admit, I cry tears of joy every time I watch it. My son was diagnosed idiopathic at 6months old and has been sz free for almost 5 months now (and almost developmentally on track at 13 months!). I cant thank you enough for for giving me hope when I had so very little left. God bless your family!

[eshier365]

@eekather Praying for your son! Please keep us update on his progress!

[eshier365]

@eshier365 BTW, Drew was idiopathic as well, and was seizure free almost immediately...and has been so ever since!

[fackinacormack]

my daughter Shonah is on her 7th day of ACTH. She is 14 months old. Your story is an inspiration. We too believe in the Mighty Healing Hand of our Savior Jesus Christ. Thank you for sharing your miracle story.

[eshier365]

@fackinacormack How is Shonah doing?

[toddwills]

he is such a cute and a happy little kid:)

[ParentsOfAndre]

It's so hard to trust Doctors these days they have a name for everything! My son is only 9months & he already has a whole list of diagnoses! They even suggested that I terminate the pregnancy because of all the difficulties (indirectly of course) I almost lost hope & still struggle with trust in what God tells me or doctors tell me. Id like to add, that even though so many gave up on my baby, I never did and never will with the strenght of God

[kylekatiekris]

I loved your story, my daughter too had infantile spasms, back in 2004. She too recovered quickly from the grace of god, I truely believe in that. I give thanks to him everyday. She is 5 now and is in kindergarten, she struggles a little bit, and needs a little help, but she is a smart girl. We are truely blessed and thankful for her to be healthy and fuctioning ok.

[LisanoLashes]

My 5 1/2 month old daughter was diagnosed with infantile Spasms last week. Will you please pray for her??

[eshier365]

Of course. It would be my honor. What is her name?

I am so sorry you are going through this. I know how scary this must be for you. Please let me know how she responds to treatment.

[LisanoLashes]

Her name is Sarah Lacey and we live in Ireland. I will let you know!! Thank you. I think she needs as many prayers as she can get right now.

[nixadrewski]

This is Luke's mom still....

Anyway, we have people all over the world praying for Luke. Thank you for praying. Maybe, like Andrew, God will move in such a way that there is no doubt it is HIS DOING.

We need a miracle. Luke suffered a brain bleed at birth, so he has many obstacles to overcome. God heal Luke for YOUR Glory!!

THanks again for posting. We praise God for what He has done for your son!!

Blessings,

Andrew and Kristi Lundgren

[eshier365]

How is Luke doing?

[nixadrewski]

Thank you for asking about Luke. God has truly been with us!

After trying Sabril (Vigabatrin) for one month, we requested that Luke be placed on the Keotgenic Diet. I (Luke's mom) felt let by the Lord to ask for this treatment before ACTH therapy. The doctors agreed. Luke started the diet on Dec. 7th and we've seen a 90% reduction in seizure activity!!

THanks be to God!!! We are continuing now to trust God for complete restoration of Luke's brain and complete healing.

[LisanoLashes]

Sarah has been seizure free for two weeks now. She is back to herself and is progressing with her development. She has an EEG in the middle of March so fingers crossed there will be a marnked improvement. Thank you for keeping us in your thoughts and prayers.

[nixadrewski]

This video is such an encouragement to us. We are Christians also, and have seen God do many miracles already in our son, Luke. He was just diagnosed last month with Infantile Spasms. He is 13 months old. We are trying a medicine called Vigabatrin and so far it's not working. They want us to to try ACTH next. We are so scared to go this route because of Luke's medical history. We really don't think he will handle it well. Would you please pray for Luke this week?

[tupapa123]

Good to see the little man is

beter. My son also went through this terror. He was treated at the University of Virginia medical center, and also had ACTH treatment. He is now a healthy 10 year old. They initially told us that IS may be the result of a reaction to the Pertussis vaccination. He has not been allowed any vaccines since.

For those of you looking for answers, UVA is one of the authorities on this disorder, they may be worth a look.

Best wishes to all of you. I remember the pain.

[nickey3067]

Thank God!!! :)

[medic951149]

I have to tell you I lost it when I watched this video.. My daughter was diag in May 2009, SInce day 6 of ACTH she has been SF :) Her underlying condition is HIE.. BUt I pray everyday she will be like your son.. Thank you so much for this video.. It gives us all hope

[majaken4]

praise God! thank you , Jesus for your miracle in Andrew!

[wonderfullywise]

you were lucky, ACTH did not work on my nephew, today he is 27 and severely retarded. God is good, your boy is well :)

[MeLisSaeLaiNe89]

this is such a touching video... Praise the Lord.. Glad to see that God healed Andrew... he is such a lovely boy..

[nickyreynolds531]

Thank you so much for sharing your story. I'm so happy for your family. My 7 month old son, Gabriel, is in the 4th week of ACTH. This has been completely devasating, but I'm praying for a result like yours - I didn't know it was possible! I know miracles through God are possible, and believe in the power of prayer. All we've heard about IS seems to be negative. My son is a miracle to me no matter what the outcome of his IS. Thanks again for your story, and for giving others like me hope.

[brookewade1]

andrew truly is a little miracle!! my daughter kaitlyn was diagnosed with IS when she was 8 months old & she is almost 3 now.. i pray every day that god will heal my angel & i know he will!! & now andrew has gave me more hope!!! God bless you guys! & please everyone pray for my kaitlyn!!

[teodoroprea]

beautiful little boy :) i cried when i first seen the video our son is 20 months old and he has seizures from the 8 month.he did a serie of ACTH but it didn't worked.hope that at the 2nd serie he will be better.we are from romania, east europe but he take him every 3 months in rome, italy for threatment. God help us all! thanks Andrew for giving my hope back!

[LHampsonCyberEd123]

Blessed be the name of our lord!!! Matthew has been healed in a way in such that there is no doubt it was the hand of God!!! Two Weeks, the day before he stopped having them, he had about 70 in a row. Thank You, and to many others for their prayers. Thanks be to God!

[LHampsonCyberEd123]

Please pray for us!!! My Matthew has the same thing, I know God will heal him. Help me find the faith. Please!

[eshier365]

My husband and I prayed together just now for your son. We prayed that God would heal him and that you would be able to tell the world that our Awe-inspiring God healed your son. Please keep us updated so we can pray for you! We know how tough and scary this road is...the only thing that is certain is that God is all-loving, all-powerful and holds you son in the palm of his capable hand.

[enadayila]

I have watched this video ,over and over again,I can't stop to marvel at this miracle, praying for my own little testimony,Eunice is 3 going on $yrs in dec,we've done the ACTH on 2 diff courses. Pray I have the grace to speak like this.Godbless!

[eshier365]

We, too, are praying that Eunice responds well to treatment and that God will heal her, just as He did Drew. Please keep us updated on her progress so we can pray for you!

[azngalpirate]

He's adorable, and that's wonderful how God has healed him. And he's left handed like me that is awesome. And I love the song in the video.

[ebstiens08]

Hi. What a miracle yo have seen your son. Our son is IS and we are about to try ACTH too. He aslo has multiple Haert condtions and has a tough road since birth he is now 10 months old. I amso happy to see results like yours, I cant wait to start the treatment. Thankyou

[taalsaas]

Hi. Andrew is a wonderful kid. God be with your family always. Thanks a lot for posting Andrew's story. My sister's daughter was diagnosed with IS a few days ago and they will start her on ACTH tomorrow. However, the period of medication is different from what you said in your video. Could you please tell me how much was the dosage of the injections Andrew received? It'll be a great help!

[eshier365]

Our heart breaks for your sister, her child and your family. IS is such a terrifying diagnosis! Because ACTH is a steroid derivative, Andrew's doctor did not want him to be on it for longer than 12 weeks at a time. The dosage, if I recall correctly, was .25 mL. May God heal your neice and bless you all.

[annatheresayu]

Hi I am from the Philippines my 9month old daughter has been diagnosed with generalized epilepsy.. but our neurologist has not ruled out IS. Thank you for posting this video. You gave me strenth and hope to face this situation. May God bless you and your family always. To God be the glory!

[ariette69]

Looks like our story!

Our son was also diagnosed with West syndrome. After about three weeks of seizures, the medication started working and the seizures stopped. So he too came out very well :)

He's eleven years old now, and even the smartest kid in his class!

[bshaidy]

Halleluyah

[bestisyetocome]

blesses be the name of the LORD!

[flutterbybluestar]

what a gorgous lil boy my son had infantile spasms he is 7 now he has global developmental delay and when he was 2 he was diagnosed with autism he's just started talking and now i can't shut him up lol but its wonderful

i'm so glad everything worked out for you

x

[majaken4]

what a beautiful story. with God all things are possible. i hope that it works for my granddaughter, too.

[eshier365]

I prayed for Kenadi a few minutes ago...specifically that the neurologists would diagnose quickly, that treatment would be effective and that God would heal that sweet girl completely! My heart hurts for your family, knowing the uncertainty and fear you are experiencing.

[eshier365]

I am praying even now for your little one. May God heal him completely and restore him to perfect health!

IS is such a scary thing, caused by so many factors. I pray that one day they will find a treatment that works for all children as well as ACTH worked for Drew.

[amafarris]

My son also has IS He has IS everyday we are praying for a med that will give his some control The Lord is all that is keeping us going If it were not for prayer and the Lord I would not be talking about my little smile maker now. His IS were caused from bac menegitis and 3CVAs at the age of 4mo We were told he would not live through the first night Thank you Lord for giving us all miricles in life!!! God Bless and best of luck in the future You will touch many of lives with your video of Andrew

[kevinfruet]

That's beautiful!

My son had some seizures like Infantile spasms when he was a baby too. At age 2 he was dx's autism. Now he is a smart and energetic boy.

I believe that only God can do the things better. Jesus when came cure everyone. I have faith!

God bless you!