Please go to beikebiotech (.) com and on the first page, there is a recent article about new studies on stem cells and Ataxia ! Please read it carefully . I am willing to go and try it.
@azilanaolim Thanks for asking about my son. He is having trouble with muscles and coordination and feeling really tired. He is no longer able to walk and is having difficulty with lots of things but remains head strong and determined to be as independant as possible. I admire him so much for his strength. There are times when it really gets to him but he tries to bounce back as fast as possible. It is a terrible disease that needs to be eliminated.
Please go to beikebiotech (.) com and on the first page, there is a recent article about new studies on stem cells and Ataxia ! Please read it carefully . I am willing to go and try it.
@xXshamm3rsXx that is why God gave us a brain, so we could use it and realize God . the new findings from genetic studies shows that there is a constant record of our lives being stored in our dna . the way jesus healed was through God's words which were heard by the ears of another human being, thus being written to that persons genes and healing them ! only the one true God's words, through his unconditional love and forgivenes can heal the sick . that is the God of abraham, issac, and jacob .
I took care of a 67 year old lady w/ this disease and she was blind and quadrapalygic but in good spirits. Other than congenitial heart disease she was ok and healthy but blind couldnt talk or move but .... she is my friend had it since 12
don't think this was FA, she would not have survived to 67 but it could have been close. Did she do genetic testing for FA? This disease is life shortening. The sad thing about it is that even plants need frataxin to survive. If they can get frataxin from a plant then why can't they go ahead and make a synthetic frataxin, delivered somewhat like insulin is to a diabetic? What is taking so long?
@ritenow3 Yes it was FA for sure no doubt. I took her to every doctor apt. ect ect she was one of the oldest to survive. If you would like to look her up private messege me and I will give her name. She had dna testing ect. She went to a doctor at the age of 19 followed him all around the country for special drugs they gave her that were NOT fda approved. She followed him for years. She resided in Augusta maine and YES died at 67 with genetic testing for FA.
Thanks for the comments. The Nth Brighton Rotary, Melbourne, Australia, commissioned the video to fundraise for genetic research & symptom relief.
We tell audiences of this rare disease, offer hope to sufferers & try to make a difference.
Its really a plea for awareness & donations.
So far, the video has Brighton North Rotary received donations & Research Grant to contribute to a 3-year research program at Murdoch Childrens Research Inst. Melbourne. Please continue to share the video
I´m not the first but the second one , two ears ago I started getting the symphtoms , currently I am 20 Years old I ´M FROM colombia . i KNOW HOW HARD THI IS so I know there is not proper words to sa y . just a hug from southamerica !!!
@sherebaby oG, thats really bad...how are you all now?i hope it will not happen to my daughter. I want to have kid again, but.... im scared. having FA is not a joke.
i have Freidreich's ataxia, and i would like to make people aware of wut it is and i would like to meet new people with FA the same age as me, i'm 16.
God bless you! My father has FA, my brother has it, my grandmother had it, my great grandfather had it, and my cousin as well as my great aunt had it. Stay strong!
....i bet you sound beautiful to me. my sister has FA. the disease is ugly, YOUR NOT. i dont know, but i love you. stay strong, the end of this shitty disease is coming soon!
Thanks to all concerned for making this video. We need FA to become better known, so we can find a cure for this disorder. Good to see some good friends on You Tube!!
Please go to beikebiotech (.) com and on the first page, there is a recent article about new studies on stem cells and Ataxia ! Please read it carefully . I am willing to go and try it.
ct89ccx 1 month ago
my friend has FA and I would really like to help him! it's so sad to just look at him and do nothing...
NjeeC 3 months ago
Ugh. Another religion debate. >.<
VReyland91 3 months ago
My son has friedreich's Ataxia. I am praying for a cure and I am praying that it happens immediately.
ritenow3 8 months ago
@ritenow3 hi! how is your son? if you find any cure please contact me... i need it too....
azilanaolim 2 months ago
@azilanaolim Thanks for asking about my son. He is having trouble with muscles and coordination and feeling really tired. He is no longer able to walk and is having difficulty with lots of things but remains head strong and determined to be as independant as possible. I admire him so much for his strength. There are times when it really gets to him but he tries to bounce back as fast as possible. It is a terrible disease that needs to be eliminated.
ritenow3 2 months ago
@ritenow3 keep fighting... thanks for the reply... does he takes any med? happy new year:)
azilanaolim 2 months ago
@azilanaolim
Youtube does not let me put links in here.
Please go to beikebiotech (.) com and on the first page, there is a recent article about new studies on stem cells and Ataxia ! Please read it carefully . I am willing to go and try it.
ct89ccx 1 month ago
@FurballRZ that would be a test of faith wouldn't it ?
stonerj0e 1 year ago
i watch this video and think to myself "how the fuck can there possibly be a god" god is a cunt
xXshamm3rsXx 2 years ago
@xXshamm3rsXx that is why God gave us a brain, so we could use it and realize God . the new findings from genetic studies shows that there is a constant record of our lives being stored in our dna . the way jesus healed was through God's words which were heard by the ears of another human being, thus being written to that persons genes and healing them ! only the one true God's words, through his unconditional love and forgivenes can heal the sick . that is the God of abraham, issac, and jacob .
stonerj0e 1 year ago
God bless you all. You are beautiful no matter what people say . i pray God everyday that we find a cure soon.
This will happen....
drgood3 2 years ago
I took care of a 67 year old lady w/ this disease and she was blind and quadrapalygic but in good spirits. Other than congenitial heart disease she was ok and healthy but blind couldnt talk or move but .... she is my friend had it since 12
andrearobinthornhill 2 years ago
@andrearobinthornhill
don't think this was FA, she would not have survived to 67 but it could have been close. Did she do genetic testing for FA? This disease is life shortening. The sad thing about it is that even plants need frataxin to survive. If they can get frataxin from a plant then why can't they go ahead and make a synthetic frataxin, delivered somewhat like insulin is to a diabetic? What is taking so long?
ritenow3 2 months ago
@ritenow3 Yes it was FA for sure no doubt. I took her to every doctor apt. ect ect she was one of the oldest to survive. If you would like to look her up private messege me and I will give her name. She had dna testing ect. She went to a doctor at the age of 19 followed him all around the country for special drugs they gave her that were NOT fda approved. She followed him for years. She resided in Augusta maine and YES died at 67 with genetic testing for FA.
pianosongz83 2 months ago
yea i got this crap
gonfig297 2 years ago
Thanks for the comments. The Nth Brighton Rotary, Melbourne, Australia, commissioned the video to fundraise for genetic research & symptom relief.
We tell audiences of this rare disease, offer hope to sufferers & try to make a difference.
Its really a plea for awareness & donations.
So far, the video has Brighton North Rotary received donations & Research Grant to contribute to a 3-year research program at Murdoch Childrens Research Inst. Melbourne. Please continue to share the video
AtaxiaHelp09 2 years ago
I am the first in my family to get it too.
whitkofreshman 2 years ago
I´m not the first but the second one , two ears ago I started getting the symphtoms , currently I am 20 Years old I ´M FROM colombia . i KNOW HOW HARD THI IS so I know there is not proper words to sa y . just a hug from southamerica !!!
mpmg4 2 years ago
i am the first one in my family to get it
FriedreichsGirl 3 years ago
my whole family has been affected by fa its a terriable condition please pray for us.
sherebaby 3 years ago 15
@sherebaby oG, thats really bad...how are you all now?i hope it will not happen to my daughter. I want to have kid again, but.... im scared. having FA is not a joke.
azilanaolim 2 months ago
i have Freidreich's ataxia, and i would like to make people aware of wut it is and i would like to meet new people with FA the same age as me, i'm 16.
wrestlingk14 3 years ago
God bless you! My father has FA, my brother has it, my grandmother had it, my great grandfather had it, and my cousin as well as my great aunt had it. Stay strong!
plantspert 3 years ago
Wow, that's how I sound, it's very ugly, isn't it?
snookemdookims 3 years ago
....i bet you sound beautiful to me. my sister has FA. the disease is ugly, YOUR NOT. i dont know, but i love you. stay strong, the end of this shitty disease is coming soon!
oscargurses 3 years ago 12
Please keep this Videos coming on Youtube, we need to raise awarness , my good friend has FA
kamlondonuk 3 years ago
Great, informative video. But like most neuro-disease vids, it focuses on what we CAN'T do. It pleas for sympathy.
Please see My Videos for examples of what an FA'er CAN do.
Not all of us have life stories segued by sad piano intermissions.
themiff 4 years ago
Thanks to all concerned for making this video. We need FA to become better known, so we can find a cure for this disorder. Good to see some good friends on You Tube!!
Cheers
Sandie K
Victoria
sandiebeach44 4 years ago