Tysabri Recovery Series - What's next?

[medad1]

Ha Ha Ha Congratulations Vern (I did)

thanks

Mody :)

[medad1]

Hi Vern this is Mody again

Thanks for replying and I 'm gonna talk to my neurologist about it

I'm suffering of bowel&bladder problems shall I get any improvement after using it?

Regards

[vbeachy]

Hi Mody;

I don't know. I do not have bowel or bladder problems as a result of MS (knock on wood).

[Redstick27]

Hey man!!

I am happy to see that tysabri has given you your life back, this is fantastic!

I hope the best for you, and I hope that a cure is less than few years away.

[vbeachy]

Yes, as you know Gary...quality of life IS IT.

I sure hope steroids get you over the 'hump.'

Vern

[Westenhizzel]

I guess you have heard the latest on Ty. Quality of life IS the most important factor.

I had my 4th Rituxan was feeling good then got a cold. Colds knock my body out. Doin the steroid thing as of yesterday. Hang in there Vern.

[trytomakeitwonderful]

thanks for kind words about my shingles. You answered back on 3 weeks shingles YOUR skin looks healed. Am at day 10 with shingles trying to be up and around keep blood flow. nerves in hands ok so far am a professional musician. Chronic low back pain for years dragged me down also flu twice since Feb. Valtrex 1 gram 3x per day must have helped w/shingles. Wear 2 shirts to leave house protect those who haven't had chicken pox. Glad infusions going well. glad you got rid of shingles take care

[vbeachy]

I still have numbness on my forehead...but the rash is gone!

[trytomakeitwonderful]

but do you still have pain from the shingles?

[lazzad1968]

Mr Beachy - you inspire me, you give me hope - i am due my 3rd tysabri infusion in a fortnight - i too suffer right drop foot which makes walking a near impossibilty - i use crutches all the time. i realise everyone responds different but if i get 50% of your benefits then i'll be happy.

thanks

david

[vbeachy]

I hope you get 100% of the benefits David!

[qualisarx]

I am waiting for more data on Revimmune as well, therefore I agree with vern! I have researched the osmound drug as well qand you have to be in stage 1 of RRMS...

[dgalexandermd]

What medication is the one that Alan Osmond (of the OSMOND BROTHERS)talks about - SF-1019? I am very glad you are doing well- Dan

[vbeachy]

I am not familiar with it. I was thinking about Revimmune.

[MingLee07]

I think it's aimspro or something like that. it's goat piss.

[MingLee07]

Vern have you heard about Revimmune? many feelthis in fact a cure, but with great risk to have the treatment.

[vbeachy]

Yes I have heard of Revimmune, but very little. I have heard that it is the next thing up from Tysabri

[MingLee07]

With revimmune it's a one time deal. They hope that the MS does nto return ever.