Mary McDonnell Talk On Lyme Disease at Columbia U.

[godduss73]

I 2 was looking up BattleStar Galatica vids when I came upon this video.Holy serendipity I have been suffering from a diagnosis of Fibromyalgia for 8 years with no relief.I do remember a tick that long ago,which I found snug in my bathing suit top that I wore over night and found the next afternoon.I pulled it out of my breast,not thinking anything about it!Just that it was gross and freaky.Now after watching this,which I just started to sob,because this is my life and now Im goin 2 get tested!

[WatchMeGoDown]

Educate yourself about this!! I've been sick for a long time and misdiagnosed for years. Lost everything :( THIS IS SERIOUS and WAY more common than people possibly understand!!

I cried listening to this. So many things strike a chord. EDUCATE YOURSELF ABOUT LYME DISEASE> It's killing us.....

[rowansart]

I have recently come to find that I may have had this for ten years or more. My heart is broken for sure. Nobody believes me and I didn't believe myself until the symptoms were so far along I couldn't deny it. I experience this pain in the muscles etc. I'm so sick these days I can't get out of bed. My family just thinks I'm delusional and they abandoned me. I had to fail out of school last term. I can't cope anymore.

Where do we go?

[NextTenMinutes]

Thank you. Thank you. Thank you.

[iamshebear777]

Gee Thanks so much.....I use to live not far away now I live east of Hartford.....

I so appreciate this. I did discover that I was tested 2x in August of 99 and the tests were negative and now it is like 11 years later.

I am a retired cop and this kills me to be in so much pain and I do not take pain meds except once in awhile Aleve.

Thank You ever so much......

[marieatthelake]

@iamshebear777 My child is a cop in a CT town. Go to lymenet dot (org) to the flash discussion then to doctor seek. You need a Lyme Literate MD.

[iamshebear777]

@marieatthelake

Thank You soo very much

[iamshebear777]

I have many many medical problems, and I knew that something else was going on......I was bitten, went to a doctor had a blood test and then negative....SO years started passing migraines are getting worse, body aches are so bad but they blame it on other causes, and now after 10 years, I just learned......I am so upset, and feel hurt and loss because I am all alone.....

If anyone has info I live in CT I would love to hear from them.....

[adickst]

@iamshebear777

There is a new Lyme test available in Milford CT. Just "google" LYME DNA TEST MILFORD CT for details.

[marieatthelake]

@adickst I grew up in Milford. Who has that test? Are the LLMDs offering it?

[ecftube]

Wrote a Lyme disease brochure with the help of 2 Lyme specialists. Will email to anyone interested.

[GrissomLovesSara]

oh my God this is so moving.

[Coraxuss]

you mean:

oh my Gods this is so moving. :)

[GrissomLovesSara]

Lyme is treated just like Chronic Fatigue and Fibromyalgia. There is no respect for the suffering these real diseases cause. Travelling, pounding hurt is exactly what Fibro feels like. The cognitive difficulties are also very bad with Fibro as well. I wonder sometimes if all Fibro is related to Lyme. Someone's got to figure it out. Being told your depressed is always fun too. Totally awful

[edslittleworld]

I'm glad that somebody will suggest that Lyme is transmissible between humans.

[gwennaelle1107]

I did not know this disease until I typed up Mary McDonnell on youtube because I was looking for BSG videos. I looked what this is on wiki. Thank you tvcee15 for this. I'll be a little less ignorant when the day ends today. It makes me so grateful for my health.

[yootoobrob]

@gwennaelle1107 Opposite way round for me... big BSG fan but actually I was just looking for lyme videos because I have it and found this - was pretty surprised to find the President of the Colonies giving a talk on lyme! haha

[ecftube]

Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. WE ARE ALL IN THIS TOGETHER !

God Bless,

[Jacey517]

wow, mary mcdonnel sounds so much like President Roslin from BSG. i feel like im hearing a speech on colonial one!!

[melikerns]

Thank you for having the courage and compassion for speaking out about this disease. It is so widespread. Thanks again, please stay with this fight for everyone who is suffering from this disease. Bless you.

[dipsydi]

No...it is a bacterial infection transmitted through insects. Don't try to make things more complicated than they already are, please. The Lyme situation is politicized enough.

[lymegone]

This is well done. There are answers... search "chronic lyme disease success story" and watch the videos. Only people who beat lyme can show you the way. Keep looking creatively until you find answers. There are answers, but maybe not where you would expect them. If a mainstream medicine can't do the job, then you've got to look elsewhere.

[violiner2000]

A dear friend from high school had Lyme disease and ended up having to drop out of school and live as a recluse at home. She gave up her dream of pursuing her dream of studying Shakespeare because of this horrible disease. This is an incredibly beautiful and truthful speech on the disease. Thanks to Ms. McDonnell for using her celebrity to bring this to the light.

[voyagezradio]

I think this video of Mary Mcdonnell was very informative and says a lot regarding Lyme Disease and it's debilitating effects on "all" person(s) involved. Thank you, Thank you, Thank You for her and every other person(s) support in fighting this horrible, sad, and sometimes forgotten 'chronic' disease.

Ballet1

[RedFireRoslin]

Thank you, Mary, for using your celebrity to shine a light on something that we are far too ignorant about. As a chronically ill person who always has to justify my illness to everyone, I am so grateful for such a powerful and intelligent presentation. Mary is amazing.

[texasdar]

I know about what yr going threw. I was bit in 1992, then 1996, and now get to stay home 24-7, becouse I cant do anything without colasping. Google Dar's Toy Story, I wrote it 1 year ago, to let others know what we go threw every day. Been downloaded 6 Mil. times in 1 year. Its on Lyme-Net. Dont look back@what ya did, see what ya can do, it could be worse,like me. Prayers can only help. Were alone out here,and can,hoping anybody will hear us. Texas Dar !

[ecftube]

Thank you Mary. More people that are able need to take a stand. For my area, I made up a comprehensive brochure that was approved by 2 Lyme specialists. I was overwhelmed by emails requesting a brochure. Currently, I am in the process of having this brochure scanned so I can start email to anyone interested. Whatever you can do to educate others, do it. Neighborhood meetings, church gatherings, etc. Direct people interested in Lyme disease to youtube as this is a great resource.

[nordnuts1]

Powerful message. Thank you for sharing this! I hope it comforts and helps many!

Krissy

[11moonelf]

i am humbled. i worked in health care in the west for a long time and sadly not surprised at the response she mentions. mary is a good teacher! a marvelous job done to bring increased awareness to this issue.

[tizzydogg]

That was wonderful. really good. Thanks for posting.

[speedybak]

go get'em Mary! I want to become an avid Lyme Disease advocate like you as soon as I have enough energy and immunity to fight the non-believers. I had Lyme Disease for a minimum of a year before being properly diagnosed and treated. I'm still undergoing treatment. I made a believer out of my primary doctor after seeing an ILADS physician, but there are many more to crack on the mis-conceptions they are taught in medical school and by the medical community such as the CDC. Go Mary!

[stsw33]

I have lymes and didnt know it for about ten years. constant fatgue 2 heart attacks at age 40, told many symptems are mental. I have now been on antibiotics for 5 yrs. another heart attack last year 11 stenz. lost house i built. After year and half fnally recieved disability.

[ukgirlonce]

i am waiting for my test results..i am afraid i will get a false negative ..i thought i was going crazy ...i was so scared...my mind ...it's like i stepped out for a while & somebody else is runnung the show...my heart does'nt beat properly ..i fall down ...i can't work...& am afraid they wont hear me...

[warrioriamnow]

Im going through this now, it took me two years for diagnosis. Now im being treated but Noone thinks I have it except for my lyme doc and me, it sucks because im almost out of money. I can't afford to be sick, I don't know what to do, and noone wants to help me out because of what other doctors said, its all in my head or it only takes 30 days on the IV what a joke.

[GtarNved98752]

Thank you for showing this video. My husband is in the hospital now after he stopped breathing and had to be put on a ventaltor. He's off now and conscious. Diagnosed with Lyme two years ago, after eight years of misdiagnoses and 48 doctors. Hospital knows nothing of Lyme and thinks we are nuts when we know more, all tests of course show nothing..because it is due to Lyme. Thank you Mary!!!

[loggerbuck]

The truth is that many of our docs who are lyme competent have HAD the disease. We are glad they are there but that is the truth. Our medical system is broken.... from poor science due to politics. Socialized medicine will only make it worse... You won't be able to get care even if you pay out of pocket... practicing "outside the system" will be ILLEGAL! If you know anything about goverment, know it is all about politcis and nothing about the stated task.

[blackroze2200]

Thank God, The real view from a survivor stand point. Fighting to get threw A DAY, but always hoping for a cure. AS a survivor, thank you Roze

[sunsetdivingbird]

Thank you so much for sharing this.

[maciejwrotek]

Shock, that 9 year old girl is being told that she has depression or being told that she lies to avoid school. But that is realty and that is how doctors describe failure in treatment of Lyme disease.

[mytauru]

this is really worth listening to. like firstlady said, Go Mary!

[PinkChampagneOnIce]

Wow. That was really profound. Thanks for posting.

[pennyfeline]

This was intense. Thank you for sharing.

[Firstlady1408]

Wow, you really don't know about stuff like this do you. This is why it is so good to have a public figurehead on each illness no matter how distastful. This was captivating. Go Mary!