Added: 1 year ago
From: laurenvparrott
Views: 2,188
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  • CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.

    The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca

  • Hi! My name is Sam,(female, 23, London) I was diagnosed with ms on 13th July 2010. For the most part my symptoms have been minimal, they occurred on two occasions and have been not entirely life altering (slight numbness, "vibrations" and finally vision problem in my left eye) but, I feel, the unpredictable nature have left me mentally crippled...unable to move on, unable to enjoy life as it is right now, because i fear the balance of happiness to pain; will be that if i enjoy myself, the unive

  • ...

  • HI from rwhitefdmc I just watched some of your vids and I think they are great .I just was DX with MS in Oct 09 but I guess I have had it sence 06 or 05 I have found alot of your vids helpful and keep up the good work .

  • @rwhitefdmc I'm so glad you found my videos! I hope you are doing well!

  • Wishing you the best- God Bless

  • @frankieloveband Thank you so much! God Bless You!

  • Well I just finished the last video, or most recent one I should say ;) Words can't really do justice in adequately describing what this experience has meant, other then that it has changed my life. I hope that doesn't sound cliche, but this is really powerful stuff and you have touched my heart. I have never had anyone to talk to about my MS since my diagnosis in 2002 that I felt understood until now. I feel like such a tremendous weight has been lifted so THANK YOU and may God Bless you!!

  • @aeolos58 Your comment just described exactly what I was trying to do for others with MS! Thank You Thank You Thank You!! You are such a kind person and I feel so grateful to have you as a friend! God Bless You and let's please keep in touch!

  • Hard to argue with someone who has been successful. =)

  • @gphx Thank you for your comment...I always say that "proof is in the pudding" and I feel amazing! I hope you're doing well!

  • 2 videos in 3 days woohoo!! Hope you had a Lovely mothers day Lauren, loved the photo of you and your Mum :) Really informative video as ever, nice to hear complex matters explained in a simple to understand way, this is the best way to get new information.

    p.s. Purple is my favourite colour, nice blouse hehe!!!

    Love and hugs,

    your dear friend Tony xxxxxxx

  • @tonywilde1234 Hi Tony!! You are so sweet :) Thanks for saying that about the picture with my mum! I appreciate you saying that my video is simple to understand! That's exactly what I try to do!

    I love purple, too! Thank you! :)

    Much love...hugs and kisses!

    Lauren :)

  • Lauren, always nice to hear from you, and you always have great advice to give. Your videos are certainly a HUGE relief to those in limbo, newly diagnosed, or been living with MS for years. Lots of Hugs!!!! xoxoxo Laura.

  • @dmplaura Hi Laura! Thank you so much for saying that about my videos!! Sending lots of love!! xoxo Lauren :)

  • But if I write down my symptoms every day, it will be harder for me to stay positive, because for me that will be overfocusing on the desease. But I'm glade if others find it helpful.

    I guess Tysabri and The Liberation Procedure are good ways to make the desease stay under control.

  • @Prissie28 I can totally understand that. I'm hoping that Tysabri and the Liberation Procedure will keep my disease under control!

  • The best way to prevent RRMS from turning into SPMS.

    Liberation Treatment.

    In my honest opinion.

  • @irishbear76 Agree. 110%.

  • @dmplaura I know, can't wait until I can get the procedure done!

  • @irishbear76 Hey Mark! I'm really hoping for the best with the Liberation Procedure! I can't afford to do anything right now, but hopefully in the future! Are you going to have the procedure done? I'm anxious to know how it helps you! God Bless you and Dr. Zamboni!

  • @laurenvparrott

    I am in the same boat your are in. I do not have the money right now for medical tourism to Poland or wherever...

    It is my dream for the procedure to be available in my region.

    Ironically, the Midwest is the worst regarding CCSVI awareness and advocacy.

    Michigan and Indiana are two of the worst states to live in as far as getting a venous specialist to "buy in".

    I believe in the LIberation Procedure and hopefully the truth will win out.

    Nice to see you, Lauren :)

    Mark

  • Thanks Lauren for this info.

    Tysabri has stopped attacks completely since April 2009 ... but I'm still on wheelchair

    Waiting for a cure >>>-)

    Mody :)

  • @medad1 Hi Mody!! I'm soooo happy that Tysabri has stopped attacks since April 09', and I really believe that you are going to walk one day. Whether it be continuing Tysabri, or CCSVI, you are going to walk! You're in my prayers all the time :)

  • Hi Lauren thanks for sharing love ur videos :):)

  • @ppsf1958nr Thank you so much!!

  • Thank you for the video and have to thank you as well as all the commentators for sharing.

  • @qualisarx Thank you for your comment! I hope you're doing well!

  • Hi Lauren;

    I had an EDSS of 6.5 before Tysabri. Now; 2.5.

    I can never downplay that statistic (nor will I). Take care Lauren and have a great day!

  • @vbeachy Hi Vern! Oh my gosh, isn't that amazing?! I won't downplay the statistic either! I hope you're having a wonderful week!

  • Yes! I tell myself this every time I have to fork over thousands of dollars or take my Rebif ...!

  • @haiqin Me too! I don't think you can put a price tag on your health :)

  • hopefully Tysabri will be as helpful for me as it has been for you... i actually started to have new symptoms after my first infusion but i am still hoping after a few more infusions it will get under control! =)

  • @ezechicano I really hope it can be helpful for you too! What kind of new symptoms were you experiencing? I really hope that after a few more infusions it will get under control, too!

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