Wow, I don't really know what to say. This video was soo touching! I feel truly blessed to have met Renne. Also, Amae is a good friend of mine and this video was a great reminder of how generous she is.
Oh, and the rumor is true...Renee is very beautiful!!!
Since I still have some paralysis on my left side. My left eye tears up when I eat, I also lost hearing in left ear. When I had that severe Bells Palsy look, I used to cover up my normal side and tell everyone this is my serious side. Your very pretty and I believe you have a good attitude.
HI---I have 2 ANs---one side is 4 cm and other is 2 cm. I was diagnosed in 93 and with yearly monitoring have had no growth. Don't just jump on surgery as every case is different. I posted my MRI scan on youtube for others to reference.
I too had an acoustic neuroma when I was 15. It was a 18 hour long surgery that left my partially paralyzed on my right side. I am now 23 and still deel with my face not being normal. I mostly miss the use of my eye.
I too had an acoustic neuroma when I was 15. It was a 18 hour long surgery that left my partially paralyzed on my right side. I am now 23 and still deel with my face not being normal. I mostly miss the use of my eye. Having an acoustic neuroma was the hardest thing I've ever gone through and I truly feel for anyone who has had to go through this torment!
I totally understand how it feels. I am 24-years-old and I also had an acoustic neuroma removed in December of 2004, while attending college. Besides the hearing loss and buzzing sound my face is also partially paralized. I don't smile the way I used to, but I guess the important thing is that we are alive and can still have some influence in the world.
My AN situation was urgent due to the location, size and life-threatening symptoms. Acoustic neuromas are difficult to predict. It is not typical to receive news of possible death due to the tumor,as I was intially told. Symptoms continued to manifest at an alarming rate that landed me in the ER and made surgery impairative. Please seek medical advice through a SPECIALIST dealing with AN. Best of health and life!
I had an AN removed in 1997, I was 17 at the time. Unfortunately, I too had a very large tumor which was pushing against my brainstem. I had surgery 2 weeks after being diagnosed. Surgery left me with no hearing on my right side and severe facial paralysis. I am grateful everyday for the people I have in my life and the life I am able to live. But, I struggle everyday to cope with the way that I look. I am amazed to see how wonderful you look in your video and would appreciate any suggestions.
I was told I had 6 weeks to make a decision if I planned to live and my tumor was only 2.8CM it is possible depending on where your tumor is placed and if your brain stem is involved.
I'm finding this video very,very hard to believe.I have an acoustic neuroma (3cm) for 4 years and there has been no growth at all. I know of several people who have had 4.5 > 5cm tumours and had to have surgery but nobody I know has ever been told they have weeks to live. It is a very slow growing tumour which does not work like this. If you think I am being offensive do an internet search for acoustic neuroma and take a look at proper evidence for yourselves.
Non-fiction is non-fiction is non-fiction. What I can tell you is that the doctors featured are some of the best in the business so if you're questioning their credibility, don't. If you'd like to discuss your case/condition with either of these pros I can get you their contact. Good luck with everything and I'm glad to hear that your condition is not all that serious.
Wow, I don't really know what to say. This video was soo touching! I feel truly blessed to have met Renne. Also, Amae is a good friend of mine and this video was a great reminder of how generous she is.
Oh, and the rumor is true...Renee is very beautiful!!!
Love'
Light'
-Alexis ;)
alicatt1619 3 years ago
Hello,
I had this surgery in Sept 1987 when I was 30
Since I still have some paralysis on my left side. My left eye tears up when I eat, I also lost hearing in left ear. When I had that severe Bells Palsy look, I used to cover up my normal side and tell everyone this is my serious side. Your very pretty and I believe you have a good attitude.
Keep up the good work
Gary
ecgdude 4 years ago 2
HI---I have 2 ANs---one side is 4 cm and other is 2 cm. I was diagnosed in 93 and with yearly monitoring have had no growth. Don't just jump on surgery as every case is different. I posted my MRI scan on youtube for others to reference.
Best of luck.
METALGOD3667 4 years ago
I too had an acoustic neuroma when I was 15. It was a 18 hour long surgery that left my partially paralyzed on my right side. I am now 23 and still deel with my face not being normal. I mostly miss the use of my eye.
dirtbro413 4 years ago
I too had an acoustic neuroma when I was 15. It was a 18 hour long surgery that left my partially paralyzed on my right side. I am now 23 and still deel with my face not being normal. I mostly miss the use of my eye. Having an acoustic neuroma was the hardest thing I've ever gone through and I truly feel for anyone who has had to go through this torment!
dirtbro413 4 years ago
I totally understand how it feels. I am 24-years-old and I also had an acoustic neuroma removed in December of 2004, while attending college. Besides the hearing loss and buzzing sound my face is also partially paralized. I don't smile the way I used to, but I guess the important thing is that we are alive and can still have some influence in the world.
yiannis920 4 years ago
my dad had surgery for this a couple years ago. i find this video very inspiring, you are a hero too many. thank you.
MFsxhali 4 years ago
AN IMPORTANT NOTE REGARDING THIS FILM:
My AN situation was urgent due to the location, size and life-threatening symptoms. Acoustic neuromas are difficult to predict. It is not typical to receive news of possible death due to the tumor,as I was intially told. Symptoms continued to manifest at an alarming rate that landed me in the ER and made surgery impairative. Please seek medical advice through a SPECIALIST dealing with AN. Best of health and life!
reneeairya 4 years ago
I had an AN removed in 1997, I was 17 at the time. Unfortunately, I too had a very large tumor which was pushing against my brainstem. I had surgery 2 weeks after being diagnosed. Surgery left me with no hearing on my right side and severe facial paralysis. I am grateful everyday for the people I have in my life and the life I am able to live. But, I struggle everyday to cope with the way that I look. I am amazed to see how wonderful you look in your video and would appreciate any suggestions.
ambbri 4 years ago
;;;;
reneeairya 4 years ago
I was told I had 6 weeks to make a decision if I planned to live and my tumor was only 2.8CM it is possible depending on where your tumor is placed and if your brain stem is involved.
Princessbattyp 4 years ago
I'm finding this video very,very hard to believe.I have an acoustic neuroma (3cm) for 4 years and there has been no growth at all. I know of several people who have had 4.5 > 5cm tumours and had to have surgery but nobody I know has ever been told they have weeks to live. It is a very slow growing tumour which does not work like this. If you think I am being offensive do an internet search for acoustic neuroma and take a look at proper evidence for yourselves.
crabbydan69 4 years ago
Non-fiction is non-fiction is non-fiction. What I can tell you is that the doctors featured are some of the best in the business so if you're questioning their credibility, don't. If you'd like to discuss your case/condition with either of these pros I can get you their contact. Good luck with everything and I'm glad to hear that your condition is not all that serious.
UncleTodd1122 4 years ago