my grandmother has cancer, first it was from the lungs, and then it shifted to the spinal cord, anyway, my grandma knows that she doesn't want to live any longer, as she has no purpose for living life on this earth, and that her time is done, she stops eating from time to time, because she feels like she is ruining all of her children's lives, she feels like it's time for her to reincarnate to something good, or reincarnate and do her "homework".
I don't believe in an afterlife, but I do believe that what Jonny Kennedy has done is incredible for future generations. He has left a legacy. His persistence gave us all lessons. We've got one shot, folks. Jonny's story is an example of making a difference. Thank you to Jonny's family and friends and charity creators and charity givers to create a cure for EB.
For as long as your response is .. Your essentially saying absolutely nothing! Or just nothing intelligent.. If Johnny doesn't accept Christ then he's going to hell, the bible is extremely clear on that. You should be ashamed for such a poorly assembled answer. Before you can learn to critically think ... You much learn to think first! Good luck to ya
I feel like he would not be pleased to see people writing death threats to each other on his documentary... ahem people who previously commented.. But I think this should be a video shown in all schools & annually on television. It could change the world. In the time that I spent watching this, I can easily say that he is THE most inspiring & wonderful person I have ever heard of.. His most striking qualities were his sense of humour & his philosophical mind. I would have loved to be his friend.
It's hard to be sad for him. That sounds harsh, but he did everything he wanted, he inspired many, and he's in a better place now. He got the release from the pain he wanted, I am happy for him.
This blows me away, I've no words... All I know is that this needs to be seen by almost everybody in this planet. This is one of the most intensely educational and beautiful films I have ever seen... I'm just lost in love and sadness. Happiness and wisdom. What a fantastic soul. Jonny, you absolute charmer.
funny how he insults us by saying hes a burden, if hes a burden we would be.....a fat piece of poo rolling around the street causing messes everywhere. he is the strongest man ive seen and what he taught us is irreplaceable i think i can speak for everyone that johnny brought blessing into all of us
@wreckem881 Christian doctrine basically says a lot of things about this. But at the end of the day it is God's judgement and God's decision. If Christianity really is based on Jesus Christ than you'd think that Jonny, brave, beautiful Jonny, will be enjoying the peace and love of heaven for now and evermore. Also, you talk about being 'uneducated and ignorant' to hensonnn. That's ironic because your first question shows you lack tact. Look up tact in the dictionary. All the best. Row
Jonny easily is one of the most inspirational people I have ever seen... I watched this documentary years ago and I've never ever forgotten it, it's had a major impact on me. I admire even in the midst of his pain he still maintained a fantastic sense of humour. This truly was a life-changing documentary, one I'll never ever forget. R.I.P Jonny x
... It's so sad watching how he's become weaker in this last part! D: You feel like you know him when you've watched to 4 first ones. I would have been honored to meet him in real life.
What a powerful, story, if I had the money I would donate it all. All I can do at this time is spread awareness. There are so many genetic disorders around the globe that are not being aided. Thank you Johnny, and thank you to his friends and family whom keep his memory alive. I will not soon forgot about this. Goddess be with you.
I'm speechless..I feel tired a bit sad, I really don't know what to say. but thank you for sharing. thats all i can think about for now.. im really sad.. =:(::::
I am not someone who is easily inspired by others, but Jonny really has done just that. He is very likely the most interesting and wonderful person I've ever heard of. I normally only donate to animal charities, but I will definitely be donating to D.E.B.R.A as well from now on. Jonny, wherever you are, you have touched many, many people. Knowing that there was a person as lovely as you in this world has definitely made a difference in my life.
What an extraordinary, courageous, and witty man! He would have been a friend to treasure. The world is a poorer place without him, but I am thankful he is at peace and free from pain now.
okay. I am holding back the tears. This was one of the deepest things I have ever watched. What's really amazing is how pain can make people do incredible things. Maybe this is the real and most incomprehensible proof of the existence of an ultimate justice in this universe.
Absolutely beautiful. Words don't do this justice. Extraordinary man. Extraordinary life. I think Jonny took every opportunity to learn the lessons he needed to learn.
I just lost a friend recently. It's a wonderful feeling, knowing that she's finally free. Jonny can finally take a deep breath without pain. What a blessed thing it is to be without pain!
Esses 5 videos são os mais valiosos do youtube, pois mostram uma lição de vida. Jonny você merece o ligar mais bonito ao lado de Deus e todos os anjos do Senhor cantando em sua homenagem!!!
5:00 there's the bright blue sky with the puffy white clouds Jonny wanted... You were an amazing insperation to many people Jonny Kennedy. I hope you live a wonderful afterlife.
While I don't believe in god or an afterlife... but his words on life were very inspiring. My petty problems are nothing compared to his, what an inspiration. What an amazing, good-hearted, powerful person he must have been.
That Pizza Box was him!!! It was a joke from him!!!! hahah See you never know when he will pop up, even as a pizza box...RIP lil man...see you in the future
This guy is an inspiration to world!!!! I cried so much...but he leaved us a big lesson of life...just live your life and enjoy it!!!! Life does suck sometimes, but you just go on just like him!!! I wish I could met him...he was so adorable and kind...I just wanted to kiss him and hug him...
R.I.P. Jonny Kennedy...World has lost a beautiful soul but God has a beautiful angel by his side since then.-
You sir were not worthless, a burden or a waste of space....god made you perfect on the inside...in mind and spirit...and as you said, he just gave you a dodgy case.
why would the mother say at the end that he was not worthless as he was when he made this documentary...? so that people could rethink and abort the baby if she has a potential EB baby? every baby has souls and she should have told him that he is loved and cared by many people instead of calling him worthless.
@jamaigloo she wasn't calling him worthless, she was saying that he may have felt that way, and making this documentary may have helped him feel like he was worth something.
I cried at the end when he passed on, not because I was sad that he died, but because I was sad that the world had lost such a wonderful and inspirational person. Thank you Jonny
aaahhh dear johnny! I lost one of my children with my husband and father in 1997. Watched your story tonight, and you would be so very pleased to know you bright a big, big smile to face! A tad of saddness, but smiles mostly! You and my son and many others are free of pain and worry, sadness and sickness! I pray that I live the time I have left as admirably as you lived yours!
i have pretty severe eczema all over my body and i know how painful it can be to do the slightest move on my worst days things like having a shower is fucking agonising but everytime i stand there in pain i think of this man...definately a inspiration
In most societies of Europe, to say someone is "worthless" means they are sickly or very incapable of doing a certain task. It is not meant to be insulting at all.
Wow. I was sad, inspired and uplifted by Johnny's film. I'm sure he's happy now, free from his condition. Rest in peace or living it up as you probably would prefer!
What an amazing man you were Jonny. You are such an inspiration with the way you went through life and handled what it put in your path. RIP and may you be pain free in whatever comes next.
sometimes i listen to/ think that i have it hard. the past year or two i had troubles but when things are bad i try think of how you kept your chin up even though your in excruciating pain, still cracking jokes. as many people say we are happy with the knowqledge you are pain free now. much love and respect xxxxx
He seemed to have a great sense of humour, which in all fairness was admirable. I remember watching him try to put his hat on, drop it... stare at it for a while and then just say "C**t" in a really small dramatic voice. it made me chuckle... The way he said that word, not the fact he couldn't put his hat on, I mean. RIP Jonny.
im overweight and im always deppressed about it, and i see this and it makes me think to appreciate the way i am.i can lose weight but there was nothing he could do,only the lord knows why, he has a purpose for everything , and its to show people like me and you to count our blessings, and im sure the lord has good things waiting for him, even jonny said in this video theres a purpose for everything.
@StonesTHATdontROLL you are so ignorant to think all overweight people eat cakes actually im not a cake eater i have a thyroid conditon that causes fluid and weight gain and i dont eat junk so the next time you see a fat person dont assume thats what they do eat cakes and junk actually alot of fat people eat very little, and one more thing i can see you have no sympothy for people and quick to judge whose gonna wipe your ass wen you get old you probly be alone
@302jkfsd I'm sorry some ppl have no class... no compassion. You needn't explain yourself to anyone, certainly not the likes of an ignorant jerk like that. Hold your head high. Your top comment is exactly what Johnny wanted ppl to get from his story. xx
@AlexYates1994 So sorry. My brother passed away at 16 ( in 1995) from the same form of EB that Johnny had. This was so hard to watch. And you are right, it is a horrible disease, the most horrible. So much pain is involved.
and Jonny just showed us how strong he was . how he wanted to go an be free from all his pain. thats how we felt when we lost our brother david . fore they r both free from pain , free to do anything that they want to do. they r lookin down on there love ones , just like all there loved ones r lookin up to them . so rip Jonny Kennedy , an David . u will be truly missed an loved for ever
i had a brother , who was much older then me , he passed away when he was 27 years old , people made fun of him , be cuz he was different . he was not like me an u . he himself . he had a disease that caused him to become blind, not able to walk nor talk. but all my brothers an sisters looked passed that , for he was our brother an we loved him so much . we miss his even more then we could ever say. he's been gone for 8yrs already but it still feels like yesterday. no one is worthless .
To be 'worthless' in this life or in the eyes of this carnal world, is the best investment for the life to come. As I see it, these are the type of people who will be the rulers of the coming righteous age
more people should be like jonhnny .. I lovr him and I hope he is doing great ! I hope his family can smile instead of cry when they think of him.
He is truly an angel and a huge insperation to all who ever knew him! To be delt the hand he was delt he sure as hell handled them cards right ! This documentry touched my heart as im sure it will anyones .... John was a blessing and I hope people can open thier eyes and see it not about what you dont have its what u do with what you do that counts !
Im happy he died. Not because he was gone but all the pain he had gone through everyday of his life. This man is great and he showed the world that he could do whatever he even through so much pain. I repeat Im happy he died not because he was gone but because he didnt have to go through any more pain. Rest in peace Jonny. We all love you and miss you dearly. You were an inspiration.
I LOVE HIS MOTHER...WHAT AN INCREDIBLE LADY! I DO NOT THINK THAT SHE MEANT FOR THE COMMENT THAT SHE MADE TO COME OUT THE WAY IT DID. (AS WORTHLESS AS HE WAS). I THINK THE STATEMENT JUST CAME OUT WRONG.
amazing video and amazing guy as i can see a vast majority agree
all these people on here who laugh at this are not worth even arguing with, just know that when you people die.. whos gonna give a fuck, noone!! youre sick!
@aagandesg I can't comprehend people who laugh at others who are in pain. They have no conscience. I understand that in most cases, it's because compassion wasn't instilled in them growing up...but they're so repugnant, that I wish that there is an afterlife dimension of anguish to teach them how foul they are. I should pity them, but I can't. And that's my fault. But I can't change it.
that was a awesome, courageous and inspirational story, growing up with a condition like that he had plently support from his family and friends but it was his time to go, to end the suffering for himself and his falmily, God Bless.
you know it's sick when people con the goverment,and say they are sick when they are not, look at this guy tough as boot leather, I can understand the pain he was going through, I had an attack of sjs and I was in agony for 6 weeks, this fellow is one tough guy
I feel sorry for his mother, there must have been a sense of relief at the same time as sadness when Jonny passed away, relief that he was at peace. His brother seemed a nice enough bloke, i felt sorry for him too.
What he says about life and having to learn and that our bodies are a shell, it's so sad and yet so inspiring. I'd advise anyone with doubt about their lives to watch this.
channel 4 has blocked this on other channels under copyright i hope they don't stop it all together because I like to watch it from time to time and spare johnny a thought or too he inspires me to keep going in my own struggle
I can never hear this song without thinking of Johnny...such a sad story, but what a brilliant outlook he had on Life....and his Heinz 57 coffin was classic
@jdavidgaviria yes he actually was Dead at that time. the way the screen moved made it look like his eyes moved but they didnt. I thought the same thing at first but then I relized it was just the screen "Moved" that made it look like that.
She meant not as worthless as Johnny thought himself as. Man this doco made me really take notice of my own illness, how I THINK I can't cope, but all I have to do is think of HIS suffering and I know I can go on.
Beautiful soul, may his charity get all the help it needs.
jonny died on that train back home...he was 36...makes you realise how fortunate you are if you are in full health, it's the most important thing we take for granted...RIP mister kennedy...
this is a lesson for us....life is very important, and we dont realise this...we only see money and cars and big houses and we don't think about our life..... thanks jonny... your place is in heaven...
omg i love him ,i agree the words he spoke i will as long as i live not ever forget his strength! not enough earthly words to describe how this made me feel,period. Thank you Jonny ! you have helped me and others,you were never a waste of space, only people that are are killers and sex offenders my friend! i will never forget you or your story, love you always sasha from wisconsin!
man this had to be the most inspiration vid i have ever seen to watch johnny go threw wat he went threw but with a smile on his face was heart warming...now thats a person who lived life and to think goin threw wat he did he still lived life to the fullest then most ppl....thank u johnny for teaching us a life lesson....and to his mother and bother god bless
arn't we all in misery and pain every day thats the beauty of death whether you believe in god or not. ps i don't think thats the point of the documentary !!
my grandmother has cancer, first it was from the lungs, and then it shifted to the spinal cord, anyway, my grandma knows that she doesn't want to live any longer, as she has no purpose for living life on this earth, and that her time is done, she stops eating from time to time, because she feels like she is ruining all of her children's lives, she feels like it's time for her to reincarnate to something good, or reincarnate and do her "homework".
ghmj2607 1 day ago
Godbless you Johnny may you now and forever rest in peace and be up there with Freddie :,)
TheFoxSummoner 1 day ago
what a beautiful soul... i would like to meet him in his new form... He is such an inspiration...
Samikines 2 days ago
just like Johny said its a very shallow person who dosent believe theres somthing after we die. God bless you my friend
Normpercy 3 days ago
I don't believe in an afterlife, but I do believe that what Jonny Kennedy has done is incredible for future generations. He has left a legacy. His persistence gave us all lessons. We've got one shot, folks. Jonny's story is an example of making a difference. Thank you to Jonny's family and friends and charity creators and charity givers to create a cure for EB.
truvelocity 4 days ago
R.I.P Jonny, You are a legend
Slyraider100 5 days ago 2
For as long as your response is .. Your essentially saying absolutely nothing! Or just nothing intelligent.. If Johnny doesn't accept Christ then he's going to hell, the bible is extremely clear on that. You should be ashamed for such a poorly assembled answer. Before you can learn to critically think ... You much learn to think first! Good luck to ya
wreckem881 5 days ago
Nobody knew his pain, just him, he lived it, but now he's in peace, not suffering any more.
excusasnotendras 6 days ago
you could tell that mom was sick and tired, of course, she looks a lot fresher after a year her son passed away. she is a strong woman.
artemaso 6 days ago
You're a tiger now, Jonny. Stronger than any in existence. Finally, your body reflects your personality.
SorrowToSerenity 1 week ago
i am so inspired
applepiepie123 1 week ago
I feel like he would not be pleased to see people writing death threats to each other on his documentary... ahem people who previously commented.. But I think this should be a video shown in all schools & annually on television. It could change the world. In the time that I spent watching this, I can easily say that he is THE most inspiring & wonderful person I have ever heard of.. His most striking qualities were his sense of humour & his philosophical mind. I would have loved to be his friend.
femmedebelle 1 week ago
It's hard to be sad for him. That sounds harsh, but he did everything he wanted, he inspired many, and he's in a better place now. He got the release from the pain he wanted, I am happy for him.
luxyzpen15 1 week ago
This blows me away, I've no words... All I know is that this needs to be seen by almost everybody in this planet. This is one of the most intensely educational and beautiful films I have ever seen... I'm just lost in love and sadness. Happiness and wisdom. What a fantastic soul. Jonny, you absolute charmer.
R0WMaC 1 week ago 5
I saw this documentary for the first time when I was, I think, 9 years old. It stuck in my mind from the first time I saw it. He was so strong.
equineiscool 1 week ago
funny how he insults us by saying hes a burden, if hes a burden we would be.....a fat piece of poo rolling around the street causing messes everywhere. he is the strongest man ive seen and what he taught us is irreplaceable i think i can speak for everyone that johnny brought blessing into all of us
SuperYouTrube 1 week ago
@hensonnnn That is an uneducated and ignorant reaction, shame on you.
wreckem881 2 weeks ago
Is there a chance he went to hell? Based on the christian doctrine
wreckem881 2 weeks ago
@wreckem881 YOU are for sure. I want to reach through the screen and end your life.
hensonnnn 2 weeks ago
@wreckem881 Christian doctrine basically says a lot of things about this. But at the end of the day it is God's judgement and God's decision. If Christianity really is based on Jesus Christ than you'd think that Jonny, brave, beautiful Jonny, will be enjoying the peace and love of heaven for now and evermore. Also, you talk about being 'uneducated and ignorant' to hensonnn. That's ironic because your first question shows you lack tact. Look up tact in the dictionary. All the best. Row
R0WMaC 1 week ago
Jonny easily is one of the most inspirational people I have ever seen... I watched this documentary years ago and I've never ever forgotten it, it's had a major impact on me. I admire even in the midst of his pain he still maintained a fantastic sense of humour. This truly was a life-changing documentary, one I'll never ever forget. R.I.P Jonny x
Jabberwoxx 2 weeks ago 5
amazing man, well spoken ... wonderful person.
SasaYamaoka 2 weeks ago
he had a great mother who took care of him this is so sad like shit im crying
veryspecialcase 2 weeks ago
His mother seems practically giddy at the funeral.
bembry409 2 weeks ago
i'm glad he got to do all the things he wanted before he passed. he passed away a happy man, no regrets.
nevoshaii 2 weeks ago
I have so much respect for Johnny. He was definitely one in a million.
kborys2 3 weeks ago
... It's so sad watching how he's become weaker in this last part! D: You feel like you know him when you've watched to 4 first ones. I would have been honored to meet him in real life.
SarahsFan1 3 weeks ago
What a powerful, story, if I had the money I would donate it all. All I can do at this time is spread awareness. There are so many genetic disorders around the globe that are not being aided. Thank you Johnny, and thank you to his friends and family whom keep his memory alive. I will not soon forgot about this. Goddess be with you.
ashlee53913 3 weeks ago
too painful to watch. RIP Jonny Kennedy. God Bless
I hope more and more people will donate more to your cause, and to the cause of countless other people suffering from cancer.
fatszenji89 3 weeks ago
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fatszenji89 3 weeks ago
The saddest part of it was not that he died, but seeing him progressively get worse.
halliehater 3 weeks ago 3
incredible man i watched this a couple of years ago and cried my eyes out...god bless you johnny
limojack49 3 weeks ago 2
I'm speechless..I feel tired a bit sad, I really don't know what to say. but thank you for sharing. thats all i can think about for now.. im really sad.. =:(::::
Pi3C35 3 weeks ago
omg this was the saddest thing i have ever seen but so beautiful because now hes free
supermassivepkachu 3 weeks ago 3
I am not someone who is easily inspired by others, but Jonny really has done just that. He is very likely the most interesting and wonderful person I've ever heard of. I normally only donate to animal charities, but I will definitely be donating to D.E.B.R.A as well from now on. Jonny, wherever you are, you have touched many, many people. Knowing that there was a person as lovely as you in this world has definitely made a difference in my life.
Superkittensnugs 3 weeks ago 2
It`s so sad because as the days narrowed down you can see his energy just decline so quickly . He wasn`t the same as he was the first few videos
Daishaboo2 3 weeks ago
What an extraordinary, courageous, and witty man! He would have been a friend to treasure. The world is a poorer place without him, but I am thankful he is at peace and free from pain now.
gimmedatstick 4 weeks ago
omg i like literaly cried at this :'(
princcesjojo 4 weeks ago
when i die i will put a tiger on my coffin and below it it will say JONNY KENNEDY
Yagami665 4 weeks ago
okay. I am holding back the tears. This was one of the deepest things I have ever watched. What's really amazing is how pain can make people do incredible things. Maybe this is the real and most incomprehensible proof of the existence of an ultimate justice in this universe.
I hope to meet this man when I'll die.
kramnic86 1 month ago
Absolutely beautiful. Words don't do this justice. Extraordinary man. Extraordinary life. I think Jonny took every opportunity to learn the lessons he needed to learn.
I just lost a friend recently. It's a wonderful feeling, knowing that she's finally free. Jonny can finally take a deep breath without pain. What a blessed thing it is to be without pain!
Amazing. Absolutely amazing.
Jennafu832 1 month ago
Esses 5 videos são os mais valiosos do youtube, pois mostram uma lição de vida. Jonny você merece o ligar mais bonito ao lado de Deus e todos os anjos do Senhor cantando em sua homenagem!!!
mag20pegar 1 month ago
He was SO lovely! My heart ACHES, BREAKS ans SOBS for you Jonny! God Bless you and I KNOW you are in heaven!
bambis46 1 month ago in playlist More videos from 0utlook 3
This was life-changing...
corvettesolos 1 month ago 3
r.i.p johnny and merry christmas 2011 we wish you luck for your very happy and fun afterlife
NickNSteven 1 month ago
omg its so sad:(
0433017183 1 month ago
The most amazing, most inspiring documentary I have ever watched.
lizvandort666 1 month ago 4
That was a good 50 minutes of my life... How inspiring.
TrickshotsOnCOD 1 month ago 6
I shed a few tears but they were tears of joy in that he is free now ...his pain is gone from him finally
thank-you to all for sharing this remarkable life-story
gaiagale 1 month ago
5:00 there's the bright blue sky with the puffy white clouds Jonny wanted... You were an amazing insperation to many people Jonny Kennedy. I hope you live a wonderful afterlife.
otakufanatic98 1 month ago 4
While I don't believe in god or an afterlife... but his words on life were very inspiring. My petty problems are nothing compared to his, what an inspiration. What an amazing, good-hearted, powerful person he must have been.
EmberGunz93 1 month ago
Wow. What a inspiring human- What a wonderful family.
Aliopp74 1 month ago in playlist More videos from 0utlook 2
That Pizza Box was him!!! It was a joke from him!!!! hahah See you never know when he will pop up, even as a pizza box...RIP lil man...see you in the future
mattymo56 1 month ago 4
WEll now he has no pain
michelleymou 1 month ago
I have seen this documentary many times and now everytime I hear Don't Stop me know I think of Johnny R.i.p
musicexecution 1 month ago
This guy is an inspiration to world!!!! I cried so much...but he leaved us a big lesson of life...just live your life and enjoy it!!!! Life does suck sometimes, but you just go on just like him!!! I wish I could met him...he was so adorable and kind...I just wanted to kiss him and hug him...
R.I.P. Jonny Kennedy...World has lost a beautiful soul but God has a beautiful angel by his side since then.-
BettyBoop201910 1 month ago 4
You sir were not worthless, a burden or a waste of space....god made you perfect on the inside...in mind and spirit...and as you said, he just gave you a dodgy case.
shimmerbrite 1 month ago 8
You weren't worthless Johnny, you were a gift to us on earth. So sad to see someone like you go.
ImSorryOfficer 1 month ago 2
why would the mother say at the end that he was not worthless as he was when he made this documentary...? so that people could rethink and abort the baby if she has a potential EB baby? every baby has souls and she should have told him that he is loved and cared by many people instead of calling him worthless.
jamaigloo 1 month ago
@jamaigloo she wasn't calling him worthless, she was saying that he may have felt that way, and making this documentary may have helped him feel like he was worth something.
SangosEvilTwin 1 month ago 3
who the hell dislikes this.
TheSillyPirate 1 month ago 2
wow
Sm0k4bl3 2 months ago
I cried at the end when he passed on, not because I was sad that he died, but because I was sad that the world had lost such a wonderful and inspirational person. Thank you Jonny
potatoperson5 2 months ago 115
This was one of the most inspirational stories I have ever watched. What an amazing person, huge heart & gentle soul.
RIP Johnny Kennedy. xx
AZAP28 2 months ago 6
I just watched this.. amazing man! RIP Jonny x
Ouchiyama2011 2 months ago
aaahhh dear johnny! I lost one of my children with my husband and father in 1997. Watched your story tonight, and you would be so very pleased to know you bright a big, big smile to face! A tad of saddness, but smiles mostly! You and my son and many others are free of pain and worry, sadness and sickness! I pray that I live the time I have left as admirably as you lived yours!
luvsmonks4902 2 months ago
fuck you channel 4 for blocking the rest of these i now have to watch it on 4od with shitty ads
kgeldart 2 months ago 3
i have pretty severe eczema all over my body and i know how painful it can be to do the slightest move on my worst days things like having a shower is fucking agonising but everytime i stand there in pain i think of this man...definately a inspiration
gunz1and2rozez3boy4 2 months ago
Oh wow I balled like a baby this was so amazing
PaintedinallColors 3 months ago 4
@PaintedinallColors me too
TheAlannabaker 2 months ago
In most societies of Europe, to say someone is "worthless" means they are sickly or very incapable of doing a certain task. It is not meant to be insulting at all.
DinoonVacation 3 months ago 29
Aww I grew to love him in like an hour and then he looks all...lifeless at the end D:
MeowcatBissy 3 months ago
HI LOUIS JONES!!!!! IM IN MEDIA!!!!
LYEMaTTy 3 months ago
@LYEMaTTy I knew u would say some thing like this lol
VitexProductions 3 months ago
Thumbs up if you cried. RIP Jonny.
wittw 3 months ago 7
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wittw 3 months ago
Amazing story, i welled up:'( Rip inspirational story Rip
Liamwebbpinnock115 3 months ago
Wow. I was sad, inspired and uplifted by Johnny's film. I'm sure he's happy now, free from his condition. Rest in peace or living it up as you probably would prefer!
eleanorlalala 3 months ago
that is really sad :(
leilapace 3 months ago
What an amazing man you were Jonny. You are such an inspiration with the way you went through life and handled what it put in your path. RIP and may you be pain free in whatever comes next.
srnale 4 months ago
Comment removed
srnale 4 months ago
rip johny
Shanamay91 4 months ago
prtty sure tigers dont break the laws of gravity .. lol
SamElliott420 4 months ago
god bless.. what a spirit
zem1956 4 months ago
God Speed Jonny <3 <3
shynablue17 4 months ago
r.i.p dude. lil johnny, inspiration to millions.
sometimes i listen to/ think that i have it hard. the past year or two i had troubles but when things are bad i try think of how you kept your chin up even though your in excruciating pain, still cracking jokes. as many people say we are happy with the knowqledge you are pain free now. much love and respect xxxxx
mike6y666 4 months ago
this was soooo sad! watching him die was horrible! im soooo glad he lived the life he wanted living with that. :)
MyGreatLife1729 4 months ago
He seemed to have a great sense of humour, which in all fairness was admirable. I remember watching him try to put his hat on, drop it... stare at it for a while and then just say "C**t" in a really small dramatic voice. it made me chuckle... The way he said that word, not the fact he couldn't put his hat on, I mean. RIP Jonny.
KevKev26 5 months ago
i remember watching this on TV in like 2004/2005. haven't seen it in 6years since great documentary.
JoshMufc101 5 months ago
Truly an inspirational story. He was a good man.
RyaVids 6 months ago
This breaks my heart every time I watch it.
MrRoborobot 6 months ago
that made me so happy and gave me a new way to think about life.
ChriistaMaarie 7 months ago
What an absolute brave soul!!
malcolmsnake 7 months ago
strong person.
BOKNOWSCOMPUTERS 7 months ago
im overweight and im always deppressed about it, and i see this and it makes me think to appreciate the way i am.i can lose weight but there was nothing he could do,only the lord knows why, he has a purpose for everything , and its to show people like me and you to count our blessings, and im sure the lord has good things waiting for him, even jonny said in this video theres a purpose for everything.
302jkfsd 7 months ago 74
@302jkfsd Johnny could bring the world together
ty1977 7 months ago
@302jkfsd You should stop eating cakes then.
StonesTHATdontROLL 3 months ago
@StonesTHATdontROLL you are so ignorant to think all overweight people eat cakes actually im not a cake eater i have a thyroid conditon that causes fluid and weight gain and i dont eat junk so the next time you see a fat person dont assume thats what they do eat cakes and junk actually alot of fat people eat very little, and one more thing i can see you have no sympothy for people and quick to judge whose gonna wipe your ass wen you get old you probly be alone
302jkfsd 2 months ago
@302jkfsd I'm sorry some ppl have no class... no compassion. You needn't explain yourself to anyone, certainly not the likes of an ignorant jerk like that. Hold your head high. Your top comment is exactly what Johnny wanted ppl to get from his story. xx
AZAP28 2 months ago
R.I.P. Brother
ty1977 7 months ago
Awfully awkward song to play at a funeral... Still appropriate for such a brave man. Sweet dreams, Jonny.
poempoorlywritten3 8 months ago
In my biology class we had to research a genetic disorder and i chose EB...at the end of the presentation i put "For Jonny"
R.I.P Jonny
cdlkrider 8 months ago
Comment removed
poempoorlywritten3 8 months ago
what a great man!
pearldrop2 10 months ago
This Johnny fellow is one of the most amazing human beings I ever saw.
If there is a heaven, this guy is among the angels.
intothevoid20 10 months ago
EB is such a horrible disease, i know someone that had it, he passed away last week at just 16.
R.I.P
AlexYates1994 10 months ago 2
@AlexYates1994 So sorry. My brother passed away at 16 ( in 1995) from the same form of EB that Johnny had. This was so hard to watch. And you are right, it is a horrible disease, the most horrible. So much pain is involved.
ajones42973 8 months ago
This is heartbreaking, Jonny seemed like a wonderful man. I dont think anyone deserved to have EB. I cried so hard from watching this.
R.I.P Jonny you are miss
shymissfefe 10 months ago
I remember crying to this :(
TheUnreaI 10 months ago
as worthless as he was?
lilspliff69 11 months ago
@lilspliff69 I'm assuming she mean't "not as worthless as he felt he was"... hoping anyway...
postcardpinches 9 months ago
@postcardpinches not sure why I put an apostrophe in meant... lol In my defense, it is 2:30 in the morning.
postcardpinches 9 months ago
I LOVE how he say "im away now" at the end bless :'( xx
miley9537839 11 months ago 2
Man this really made me think, what a brave man! R.i.p
zadion 11 months ago
He is the greatest soul, and as well as his Mum and his brother
jj538 11 months ago
and Jonny just showed us how strong he was . how he wanted to go an be free from all his pain. thats how we felt when we lost our brother david . fore they r both free from pain , free to do anything that they want to do. they r lookin down on there love ones , just like all there loved ones r lookin up to them . so rip Jonny Kennedy , an David . u will be truly missed an loved for ever
maymaywebkinz 1 year ago
i had a brother , who was much older then me , he passed away when he was 27 years old , people made fun of him , be cuz he was different . he was not like me an u . he himself . he had a disease that caused him to become blind, not able to walk nor talk. but all my brothers an sisters looked passed that , for he was our brother an we loved him so much . we miss his even more then we could ever say. he's been gone for 8yrs already but it still feels like yesterday. no one is worthless .
maymaywebkinz 1 year ago 2
To be 'worthless' in this life or in the eyes of this carnal world, is the best investment for the life to come. As I see it, these are the type of people who will be the rulers of the coming righteous age
qui3tude 1 year ago
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MoniRokse 1 year ago
more people should be like jonhnny .. I lovr him and I hope he is doing great ! I hope his family can smile instead of cry when they think of him.
He is truly an angel and a huge insperation to all who ever knew him! To be delt the hand he was delt he sure as hell handled them cards right ! This documentry touched my heart as im sure it will anyones .... John was a blessing and I hope people can open thier eyes and see it not about what you dont have its what u do with what you do that counts !
Ashlycampbell25 1 year ago
Rest in peace Jonny. Now I want to listen to Queen...
twelvethousandcats 1 year ago
Im happy he died. Not because he was gone but all the pain he had gone through everyday of his life. This man is great and he showed the world that he could do whatever he even through so much pain. I repeat Im happy he died not because he was gone but because he didnt have to go through any more pain. Rest in peace Jonny. We all love you and miss you dearly. You were an inspiration.
Haadi92 1 year ago 3
I LOVE HIS MOTHER...WHAT AN INCREDIBLE LADY! I DO NOT THINK THAT SHE MEANT FOR THE COMMENT THAT SHE MADE TO COME OUT THE WAY IT DID. (AS WORTHLESS AS HE WAS). I THINK THE STATEMENT JUST CAME OUT WRONG.
angelicinspiration1 1 year ago 35
@angelicinspiration1 I'm pretty sure she was saying that thats the way he felt about i...
Barnabi20 8 months ago
@angelicinspiration1 yeh i think she ment not as worthless as he felt
302jkfsd 7 months ago
WHAT AN INCREDIBLE HUMAN BEING JONNY WAS. UNBELIEVABLE COURAGE.
PEOPLE OF THE WORLD,,,,JONNY IS A ROLE MODEL! WHAT AN INCREDIBLE INSPIRATION! OUR PHYSICAL BEING IS NOTHING BUT A SHELL. SO TRUE!!!
angelicinspiration1 1 year ago 3
WHAT AN INCREDIBLE HUMAN BEING JONNY WAS. UNBELIEVABLE COURAGE.
PEOPLE OF THE WORLD,,,,JONNY IS A ROLE MODEL! WHAT AN INCREDIBLE INSPIRATION!
angelicinspiration1 1 year ago
WHAT AN INCREDIBLE HUMAN BEING JONNY WAS. UNBELIEVABLE COURAGE.
PEOPLE OF THE WORLD,,,,JONNY IS A ROLE MODEL!
angelicinspiration1 1 year ago
Cheeky bugger, he had such a wicked sense of humour. Bless him. Rest in peace, Johnny.
reaperette 1 year ago
amazing video and amazing guy as i can see a vast majority agree
all these people on here who laugh at this are not worth even arguing with, just know that when you people die.. whos gonna give a fuck, noone!! youre sick!
godbless
Chachachedda 1 year ago
I cried so much waching this.
I really found him beautiful. That beauty that comes from the inside of a beautiful soul.
RIP Jonny. You deserve It. Looking forward to skydiving from a cloud with you.
lonely0soul 1 year ago
hes amazing
peppermintcandyxxx 1 year ago
@peppermintcandyxxx amazing thas thru
solarni1 1 year ago
@solarni1 i know its amazing
peppermintcandyxxx 1 year ago
Jonny was a proper man.
CHRISTMASBASTARD 1 year ago 4
@aagandesg I can't comprehend people who laugh at others who are in pain. They have no conscience. I understand that in most cases, it's because compassion wasn't instilled in them growing up...but they're so repugnant, that I wish that there is an afterlife dimension of anguish to teach them how foul they are. I should pity them, but I can't. And that's my fault. But I can't change it.
supersuperrich 1 year ago
that was a awesome, courageous and inspirational story, growing up with a condition like that he had plently support from his family and friends but it was his time to go, to end the suffering for himself and his falmily, God Bless.
amosboys 1 year ago
What a courageous and wonderful man!! we all lost a beautiful spirit but god and heaven gained a beautiful angel. <3
Serenitynite 1 year ago
you know it's sick when people con the goverment,and say they are sick when they are not, look at this guy tough as boot leather, I can understand the pain he was going through, I had an attack of sjs and I was in agony for 6 weeks, this fellow is one tough guy
kopynd 1 year ago
atleast he lived thro the millennium
lucydobbyn 1 year ago
My god, what a man, what a disease, what a pain...
Some parts were hard to watch like changing the bandages, my lord he must have suffert a lot.
Cried most of the time watching.
Rest in peace you brave soul with a heart of gold
Rudewomantt 1 year ago
@aagandesg Yes its very fucked up to laugh at him. I could not imagine the pain he went through everyday.
Luckiestof13 1 year ago
bloke was an inspiration,so brave
BadEggCymru 1 year ago
RIP Jonny-- You're truely amazing.
I wish someday to be as understanding of the world as you've shown me :)
Aupas 1 year ago
rest in peace brother
Martyr7788 1 year ago
I hope he's happy, where ever he is. He really had an amazing out look on life.
superduperadelynn 1 year ago
Rest in peace Jonny kennedy , brave soul you were. God recieved an awesome angel.
Mayan87 1 year ago
This is my 3rd time watching it and every time Queen starts playing i ball my eyes out.
taniafatbitch32 1 year ago
I feel sorry for his mother, there must have been a sense of relief at the same time as sadness when Jonny passed away, relief that he was at peace. His brother seemed a nice enough bloke, i felt sorry for him too.
What he says about life and having to learn and that our bodies are a shell, it's so sad and yet so inspiring. I'd advise anyone with doubt about their lives to watch this.
blackandorange55 1 year ago
wot a guy x
scotty365365 1 year ago
Jonny Kennedy the super sonic man :)
Thelittleblackjack2 1 year ago
did he pass away on the bus ride? RIP brother.
RespectfulFart 1 year ago
I hope when my time is up, I can embrace death half as well as this beautiful soul.
XenomorphLV426 1 year ago 3
i feel so sorry for this guy. i hope knowone ever has to go through what he went through... :( R.I.P jonny.
anthony40395 1 year ago
now he's free of all pain, but his story broke my heart pretty bad.
omeuusername 1 year ago 34
channel 4 has blocked this on other channels under copyright i hope they don't stop it all together because I like to watch it from time to time and spare johnny a thought or too he inspires me to keep going in my own struggle
blobby1972 1 year ago
I actually teared up watching this :'(
Sasinator104 1 year ago 3
I can never hear this song without thinking of Johnny...such a sad story, but what a brilliant outlook he had on Life....and his Heinz 57 coffin was classic
R.I P. Johnny
putthatcaninyermouth 1 year ago
When he was in the cuffin, he wasn't dead. He was moving his eyes.....
jdavidgaviria 1 year ago
@jdavidgaviria yes he actually was Dead at that time. the way the screen moved made it look like his eyes moved but they didnt. I thought the same thing at first but then I relized it was just the screen "Moved" that made it look like that.
jsrcamp 1 year ago
To fight like that means something- you weren't worthless, Johnny.
Milubbles 1 year ago
this guy was a legand
hotbambi2010 1 year ago
at 6:18 that boy looks like jonny when he was a kid.
bumble1995 1 year ago
Somebody reeeeally needs to present this documentary to every single Emo in existence.
ResurrectionJoe 1 year ago 7
did his mother call him worthless at the end?
he wasnt, at all. RIP JONNY
lickmaclitt 1 year ago
She meant not as worthless as Johnny thought himself as. Man this doco made me really take notice of my own illness, how I THINK I can't cope, but all I have to do is think of HIS suffering and I know I can go on.
Beautiful soul, may his charity get all the help it needs.
gracefulangels 1 year ago
damn i remember watching this when i was younger made me sad
macfilmz 1 year ago
so dramatic life..... but i admire his strenght
tenordramaticitm2 1 year ago
jonny died on that train back home...he was 36...makes you realise how fortunate you are if you are in full health, it's the most important thing we take for granted...RIP mister kennedy...
vlad1984tm 1 year ago 5
this is a lesson for us....life is very important, and we dont realise this...we only see money and cars and big houses and we don't think about our life..... thanks jonny... your place is in heaven...
sweetesterotica 1 year ago 2
The strongest man! Absolutely amazing!
Rest in Peace!
Hunorrrr 1 year ago 2
omg i love him ,i agree the words he spoke i will as long as i live not ever forget his strength! not enough earthly words to describe how this made me feel,period. Thank you Jonny ! you have helped me and others,you were never a waste of space, only people that are are killers and sex offenders my friend! i will never forget you or your story, love you always sasha from wisconsin!
scottandsasha 1 year ago
man this had to be the most inspiration vid i have ever seen to watch johnny go threw wat he went threw but with a smile on his face was heart warming...now thats a person who lived life and to think goin threw wat he did he still lived life to the fullest then most ppl....thank u johnny for teaching us a life lesson....and to his mother and bother god bless
juiicyism 1 year ago
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flokkertje 1 year ago
arn't we all in misery and pain every day thats the beauty of death whether you believe in god or not. ps i don't think thats the point of the documentary !!
routex7044 1 year ago
You must be the most bravest person ive seen. Bless you.
Ziana0011 1 year ago
WOW I WOULD LOVE TO DONATE MONEY TO THIS
blissfullydelicious 1 year ago
the pain u felt wen ur dressins were bein taken off made me cry, u were a funny guy, never met you tho :( RIP x
Olinike 1 year ago