joseph seizure july 28,2011 ....1 week after starting the keto diet

[littlelambju]

Moma, what a great one you are! I am 48 and when I hear my family during my seizures it makes me feel I am going to come back. Your baby reacted how I do. I know he felt your love, and strenth even at such a young age. I am so sorry for your's and your family's loss. God bless you.

[colleenknight26]

@littlelambju

thank you .....sorry that you have seizure . where do you live ?

[colleenknight26]

@MsFuckingSunshine

HE HAD HUNDREDS OF SIEZURE EVEYDAY ALL DAY... WITH NO ANSWERS WHY ... HIS AUTOSPY REPORT SAID HE NO ABNORMAL FINDS TO EXPECT HIS SEIZURES OR HIS DEATH OTHER SEIZURE THAT CAUSE HEART ATTACK AND HE STOPPED BREATHING. HIS FIRST SEIZURE WAS WHEN HE WAS ABOUT 4 WEEKS IN THE NICU ... HE WAS FULL TERM BABY..PERFECT SIZE ....

[WhereWeBelong92]

I'm so sorry you lost your little baby. How are you coping?

[colleenknight26]

@WhereWeBelong92 .... SOME DAYS ARE BETTER THEN OTHER ...I HAVE OTHER CHILDREN TOO CARE FOR ..... AGE 10 WEEK OLD ,ALMOST 6 YEARS OLD, 16 YEAR OLD... THANK YOU FOR ASKING .....DO YOU EPILEPSY OR YOUR CHILD?

[WhereWeBelong92]

@colleenknight26 I don't have any children nor do I have epilepsy, but I do have other problems, I just wanted to send my love to you. I cannot imagine the pain you're going through. May I ask what was wrong with him? x

[colleenknight26]

@WhereWeBelong92 ... HE HAD SEVERE SEIZURE DISORDER ... HE WOULD HAVE HUNDREDS OF SEIZURE A DAY ... EVERYDAY SINCE HE WAS 4 OR 5 WEEKS OLD ....WE HAVE NO IDEAL WHY HE HAD SEIZURES .... THERE WAS ABNORMAL IN HIM.

[dany080]

omg,i dont know what would i do whitout my son :,(

[mrskathyb]

Im so sorry you lost your sweet little one. Those little eyes just break my heart to look into. Just looking at him in this state makes me want to do anything that could have helped him.Im sure you loved him with all the love you had in your heart and Im sure just by you being there he knew and felt your love for him.He will always be with you momma & waiting to see you again with open arms someday.So young to be such a brave and strong little fighter.You are both in my thoughts and prayers. <3

[colleenknight26]

@mrskathyb

THANK U .....HE WAS A LITTLE FIGHTER .....I KNOW HE IS WAITING FOR ALL US ... HE WOULD HAVE ABOUT COUPLE DOZEN OF THESE DAY EVERY DAY AND OTHER SEIZURE TYPE ALL DAY LONG .... HE HAD JUST GET HOME FROM HOSPITAL ... HE WAS THERE FOR A WEEK IN PICU ... THE DR TOLD ME THAT HE WOULD NOT MAKE IT HOME BUT HE DID ... HE WAS WITH US FOR 3 MORE WEEKS THANK GOD ....THANK U FOR WATHING HIS VIDEO .... HE PASSED AUG 7 2011 ... HE HAD JUST TURN 19 MONTHS OLD THAT DAY ...

[lollipwop703]

hes cute, this made me cry a little poor joseph :( wish he was straight, :( hes cute...:)

[mustang19898]

wow I've only seen a kids' eyes do that one other time...it was also during what we believed was a seizure although he was never tested for them...his eyes were the scariest part b/c they didn't move at all for about 2 minutes until he came to

[colleenknight26]

@mustang19898

this video about 3 weeks before he passedd away in his sleep from a seziure .......... YES THIS WAS A SEIZURE GRAND MAL { TONIC/CLONIC} SEIZURE ....

[mustang19898]

@colleenknight26 oh I'm so sorry to hear that. I've heard of that happening. It's always scared me b/c I have seizures as well. On occasion, my seizures wake me up during the night.

[mustang19898]

@colleenknight26 I wish the parents of the little boy I worked with would get him tested again. They tested him once, and it was negative. They thought that was good enough. But we kept seeing episodes that were very likely seizures. I don't work with him anymore, but I hope they got him better.

[catorinaid]

did he bust his head?

[colleenknight26]

@catorinaid

no he didn't bust his head..... he was not able move from neck down ..... he had no muscle tone........he was in his bed then i put him on the floor......