Living with Multiple Sclerosis - Tysabri B & A

[cliffpov1]

I've watched several of your video's and you are amazing. Glad that tysabri is one of the positives in your life. I'm hoping for an ms diagnosis as my legs are weakening and als is always in the back of my mind. btw congrats to the bears. Your bear "Berry" had a big role in their success, no doubt.

[laurenvparrott]

@cliffpov1 Oh my gosh, thank you! I wish you good news with everything...and yes, congrats to the bears! Haha I'm sure Beary had a lot to do with it!

[medad1]

Hi Lauren

I'm so glad to hear that you're looking more beautiful &bright congratulations :)

Today I knew that my TYSABRI is available at hospital and I'm waiting for my appointment "next April 14th" to get my 1st infusion

I hope I get best result of it and get red of my wheelchair

Thanks dear for information and I'll tell you about all my results afterworlds

Regards

Mody :)

[laurenvparrott]

Hi Mody! Thank you so much - you are very sweet!

Yay! Tysabri is available for you! Yes, please keep me posted on how everything goes!!

[verticalapp911]

Hi lauren is that you in the elan annual report? wow!!!

[laurenvparrott]

Yes that is me! I haven't even seen the pictures yet!

[nicv11ita]

Hey Lauren

I was diagnosed in July. I came home from that hospital stay with literature from the doc about MS as well as researching many MS websites, etc... but I wanted you to know watching your videos during that time of my life was more helpful in so many ways and I just wanted to say thank you.

I wonder if you wouldn't mind clarifying the comment you made re your last MRI and how it showed you have no more lesions.

Do you mean no additional lesions, active lesions or none at all?

Thanks!

[laurenvparrott]

Hello! I'm so glad my videos were helpful for you! My MRI showed that I have no NEW lesions. I still have symptoms and lesions on my brain but I feel great. Please write to me anytime!

[gmag44]

hey lauren..it's been a while, hope youre well!! just wanted to say that i am so happy to hear that the tysabri is working for you and that you have no lesions and your other symptoms are gone as well. that is so exciting!!! anyway...things are going well for me...i finally made the move to north carolina and now work for the charlotte police department as a dispatcher!!! i love it here and my wife and son are so happy too. anyway...glad to see youre doing so well.

take care....greg

[laurenvparrott]

Hi Greg! It's so great to hear from you! I'm so glad you and your family are happy in North Carolina! You need to keep me posted on how everything goes!

[Parrott24]

Go Bears!

[laurenvparrott]

Yay! Coach, why don't you just kick me in the sac...

[Whoelsebutmeee]

Hi again!

Once again thank you for your videos! I my self have been all of the medications you mentioned but there were not enough for me because my I have a very aggressive form of the condition and the last thing that I tried was Tysabri but I developed Anti-bodies very soon after just a few months on it so I was really disappointed! and now...

[laurenvparrott]

Thank you so much! I wish I had more information for you - please keep in touch and let me know how you're doing!

[watzgoodinthe718]

GET LOW DOSE Naltrexone... tysabri sucks ass...

[oldcourtbray]

Hi Lauren, Just To Say You Look And Sound Fablous Here. You Can Really See The Diffrence Between Your First Video And This.

Stay Well.

Lou X.

[laurenvparrott]

Hi Lou! Thanks for this comment!!

[Aubree1976]

What a lovely young woman you are Lauren. We are blessed to have you share your life with MS with all of us. I'm sure you have helped so many people and it's just wonderful that things are going so well for you! Please continue with these wonderful videos! God bless~

[laurenvparrott]

Thank you so much!!

[wendell3308]

Thank you for mentioning your bad experiences with both Copaxone and Betaferon.

Thank you for mentioning how Tysabri has helped you.

[laurenvparrott]

Oh, thank you for your comment!

[tinribs65]

Thats great Lauren Im really pleased you have found some thing that works for you I watch all your videos and they are a big help to me

Wendy

[laurenvparrott]

Thank you so much! I hope you are feeling well!

[cellmedicine]

What a great inspiration !! keep it up

[laurenvparrott]

Thank you so much!

[polarlarve]

Thank you for all the videos. They are helpin! I am really getting alot of new knowledge. Please don't stop in the nearest future.... I love them

[laurenvparrott]

Thank you so much! I really appreciate it! I wish you the best :)

[harveysmummy]

Hi Lauren!!

You are doing fantastically well on tysabri!! you deserve it hun, you are an inspiration to so many of us and seeing you happy makes me so glad that you chose tysabri!!

I am going to speak to my MS team next month about switching from Copaxone to Tysabri, fingers crossed they consider me for it!

Much love my friend ~ Mel xxxxxxxx

[laurenvparrott]

Hi Mel!! It's so great to hear from you! Thank you so much - that means a lot to me. I think it would be awesome if you could take Tysabri! Please keep me posted!

Much love!!

Lauren :)

[Lipplz]

Congratz on your brothers team im starting to get worried once again my neuroligist is going to take me of tysabri for 3 months because it has been 12 months since i started but i honestly do not understand why i have had less lesions im as fit as i was before i was diagnosed.But i guess the doctor knows best nice to see another great vid

Take care Lipplz

[laurenvparrott]

Thank you! Your neurologist is taking you off and you have less lesions? That doesn't sound right. I might get a second opinion. Maybe I misunderstood - I want you to have no more progression!! It sounds like you're feeling great though and that's awesome!

[peterpan3930]

Hey girl,

Good to see that you have had no more lesions- thats the whole point to all of these drugs.

I have had 3 infusions but had some mild old symptoms flare up last week- Luckily i have a check up with my doctor tomoz so we shall see what this means.

I am completely with you on feeling better since swapping to Tysabri-I was given a rough time with Avonex only to find out it wasn't effective enough after 1 year.

Glad that tyabri is working for you

Take care smiley

Nekita

xo

[laurenvparrott]

Hi Nekita! I'm so glad you're feeling better with Tysabri. I do still have symptoms...I still have MS...but I feel so much better!

I hope to talk to you soon!

xoxo

Lauren

[angelusa73]

Dear Lauren,

thanks for sharing your story and for teaching us about Tysabri. As you know, I am close to my second infusion and I hope that I will get to experience the wonderful things that you are experiencing!

Thanks for sharing and good luck with everything!

hugs

Angela

[laurenvparrott]

Hi Angela! I sure hope you see improvements with Tysabri! I really think that with your positive attitude, you're going to be great!!

xoxoxo

Lauren

[teafourtao]

Thanks again, Lauren. You are a bright spot in our lives. I am so glad Tysabri is working for you. I'm currently on Rebif, and it seems to be working, but its good to know about effective options that I may need further down the load.

[laurenvparrott]

Thank you! I'm so glad Rebif is working for you...that's great! I wish you the best :)

[eclipsedeyes]

Thanks for the update Lauren. I just uploaded an introductory video of my own if you're interested. :)

[laurenvparrott]

I just commented on your video. Great job!!

[kcsportsfan]

Thanks for the update. You look great and it is so wonderful to see you doing so well. Hopefully you will continue to do terrific for many years to come.

Keeping telling your story. It helps everyone with MS

[laurenvparrott]

Thank YOU for the idea! I really appreciate your comment. I hope you are doing well!

[cjknight1979]

My wife Sarah has had problems with M.S. since the age of 14. The course of her disease has been very very progressive. She is 29 and unable to walk and often, more often than not, cannot speak. Rebif and Avonex did absolutely nothing. I'm not willing to say that Tysabri has been the answer for her (the only answer is a cure) but her flare ups have been less frequent and taking it only once a month is very nice.

[cjknight1979]

p.s. recent studies have shown that drinking coffee may slow the progression of multiple sclerosis. just google "caffeine effects on multiple sclerosis". Coffee drinkers raise their mugs and rejoice!

[laurenvparrott]

Oh my gosh that's awesome!! Well I'm a HUGE coffee fan so I'm raising my mug!! Cheers!

[laurenvparrott]

I am so glad that Tysabri has allowed your wife's flare ups to be less frequent. That's the goal until there is a cure! And yes, once a month is amazing!

[macycj]

U have the most awesome attitude ive ever seen!!

keep up the great work lauren!!

love and hugs,

aly

[laurenvparrott]

Hi Aly! Thank you so much! You are so sweet - I hope you are doing well!

[macycj]

the fatigue is driving me nuts,but other than that,im doing great!!!

hugs,

aly

[MSDeaf]

I'm glad Tysabri is working for you! You look great.

[laurenvparrott]

Thank you so much!!

[OSA503]

I am so happy that Tysabri is working for you. Yeah to no lesions!

Jolie

[laurenvparrott]

Thanks Jolie! I know, yeah no lesions!!

[tonywilde1234]

Hi Lauren, wow another video where i think "that's me" at everything you say. I am closing in on infusion 14, although i haven't tried any other meds i know Tysabri is the reason i am able to work again, and live a fairly normal life. For anyone doubting you they should look at your first video compared to now, the difference is startling, i just looked myself, forgot how much progress you have made.

p.s looking as beautiful as ever Lauren take care xx

[laurenvparrott]

Hello! Thank you so much for your support - you are such a sweet person! I'm so glad that Tysabri is working for you. That's awesome!

[heavensentfashanna]

hello i'm fa'shanna i take tysarbri also i use to take rebif and avonex i was wondering have you had any flare ups using it, and if so how are they treated?because i am in my sixth month andi havent had any but i just got over being sick and my flare ups usally come after i get sick and i am scared just wondering if i do have a flare up is that a sign of pml or just a flare?

[laurenvparrott]

No I have not had any relapses since I started taking Tysabri. If you do ever get one I'm sure you'd be treated by getting steroids, and talk to your doctor about what to do next. Flare ups aren't necessarily signs of PML, but I would talk to your doctor and tell them everything you're feeling when you're going through a flare up.