Thank you so much for this. I have PM & am happy with the free commode from Medicare that raises the toilet height and has arms for pushing up on. One tip: I never let a splash of water remain on the floor in case I slip - cheap microfiber towels from the dollar store will mop it up without spreading it. You can buy tiny sports/camping towels which are super absorbent & don't weigh anythng. I use one to dry hair and body.
Hi Mary Jane. Thank you so much for the video. I have MS and on the wheelchair since December, before I was OK, working and walking with a cane. We changed my shower a little few month ago but now I obviously need more changes, so we are making a wet room just like yours. I chose stone samples , bars, fold up chair etc. But when I saw your video I totally fell in love with decor. What a great taste! Where did you get mosaic tiles? I googled- linear random bricks glass/stone combo... Galina
Thanks so much for your video! I have PM. Just recently ordered a Safe Step Walk In Tub. We are in process of renovating upstairs hall bath. Was extremely interested in vanity with pocket doors. Can you tell me how I might contact the manufacturer or vendor who sells them? I am not in a wheelchair, but want to look ahead. Thanks for your help!
@PrismSeven: We used a custom cabinet maker. We tried to buy stock cabinets but they were not available with this feature. Show your cabinet maker the video. Perhaps that will help. And possibly we could put them in touch with our cabinet guy. We live in Indialantic, FL. Hope this helps a bit. Mary Jane De Lauder
Thank you everyone for your nice comments. I thought this video provided a platform for discussion and thought about how "we" cope and accommodate! As progression takes its toll, we are challenged with how we can do! And with the help of others suggestions, we CAN! Thank you again!
I'm so glad you took the time to share your experience with everyone. Wish I had a bathroom as big as yours. We installed a chair height toilet which makes it easier to get up. I'm new to the disease but have found little tricks like the handle that you can just pull down or up is much easier to use instead of knobs.
It's nice to have the room and finances to make these changes. My entire bathroom would fit in your shower. I need to watch what gripping rails and bars I use because I've lost gripping strength above my second knuckle.
@rwundrock That's why I love this grab bar. It is NOT thick and large in diameter so I can get my whole hand around it, especially the proximal joints that still have some strength. They also make one that has rubber on the inside for better grip
@rwundrock I hear you on the size of that bathrooom - I llive in a 1BR/1BA that probably has fewer SF than the poster's bathroom. However, this video was posted in the spirit of sharing and helping and I am just grateful for the recco on the towels. I second that recco on the grab bar.
It was amazing when I finally got an old friend to come over and install the grab bars. He just happened to choose the ones I would have picked.
I have to say here that I don't have IBM, "just" PM.
@rwundrock I got cut off earlier. I wanted to tell you to install the grab bars before you need them. With any myositis, the odds are high that you will trip and break a leg on the easiest of surfaces. I did. It took eight days of agony before the wheelchair arrived, and ten days before I got the grab bars. Don't put yourself through that. The bathroom is a very likely site of slipping. Good luck to you.
Thank you very much for all of the useful information you have shared...we are just starting this journey & are just starting to realize all that is ahead of us.
What a wonderful video and a true gift to those of us who have IBM or anyone who wants a beautiful bathroom!! Hopefully, by the time I might need help in the bathroom, I could get financial help from an organization! It's too bad it costs so much money to be safe and try to live a semi-normal life.Thanks again for sharing your story and video! Be healthy and happy!
@partyof06 Thank you for your comment. If Dad needs someone to talk to, by all means contact me. I have had this disease for a LONG time and I am a good listener. MJD
Thanks for posting this. I'm suffering serious bathroom envy here - your bathroom is huge and gorgeous! I only wish my bathroom and my budget were big enough to accommodate all that, but I'm sure it will be usefuly to many people. Could you please post the name of the towels? I too have had problems with the heavier bath sheets.
Wishing you the best of luck.
P.S. I have those grab bars, too! They are excellent.
Hi Jamie, they are Linden Street Quick Dry from JCPenneys. I just purchased a 6 piece set last week for about $25.00. Thank you for your comments. Let's keep in touch. MJD
Hello. I received an email directing me to your video. I have IBM also and may need to figure out some changes later on. So far I'm doing relatively ok but walking is becoming a challenge. Good video. It's giving me some ideas of maybe making a video of my own about IBM. Thanks again for posting this video.
Thank you so much for this. I have PM & am happy with the free commode from Medicare that raises the toilet height and has arms for pushing up on. One tip: I never let a splash of water remain on the floor in case I slip - cheap microfiber towels from the dollar store will mop it up without spreading it. You can buy tiny sports/camping towels which are super absorbent & don't weigh anythng. I use one to dry hair and body.
angliase 4 months ago
@angliase Thank you so much. I love my bathroom. I love your idea about the tiny towel! Will be looking into that ASAP!
1mntgal 4 months ago
Hi Mary Jane. Thank you so much for the video. I have MS and on the wheelchair since December, before I was OK, working and walking with a cane. We changed my shower a little few month ago but now I obviously need more changes, so we are making a wet room just like yours. I chose stone samples , bars, fold up chair etc. But when I saw your video I totally fell in love with decor. What a great taste! Where did you get mosaic tiles? I googled- linear random bricks glass/stone combo... Galina
kotonmoon 11 months ago
Thanks so much for your video! I have PM. Just recently ordered a Safe Step Walk In Tub. We are in process of renovating upstairs hall bath. Was extremely interested in vanity with pocket doors. Can you tell me how I might contact the manufacturer or vendor who sells them? I am not in a wheelchair, but want to look ahead. Thanks for your help!
PrismSeven 1 year ago
@PrismSeven: We used a custom cabinet maker. We tried to buy stock cabinets but they were not available with this feature. Show your cabinet maker the video. Perhaps that will help. And possibly we could put them in touch with our cabinet guy. We live in Indialantic, FL. Hope this helps a bit. Mary Jane De Lauder
mntgal1 1 year ago
Thank you everyone for your nice comments. I thought this video provided a platform for discussion and thought about how "we" cope and accommodate! As progression takes its toll, we are challenged with how we can do! And with the help of others suggestions, we CAN! Thank you again!
mntgal1 1 year ago
Thank you for sharing!
BayouBellePhotograph 1 year ago
I'm so glad you took the time to share your experience with everyone. Wish I had a bathroom as big as yours. We installed a chair height toilet which makes it easier to get up. I'm new to the disease but have found little tricks like the handle that you can just pull down or up is much easier to use instead of knobs.
bsls59 1 year ago
It's nice to have the room and finances to make these changes. My entire bathroom would fit in your shower. I need to watch what gripping rails and bars I use because I've lost gripping strength above my second knuckle.
rwundrock 1 year ago
@rwundrock That's why I love this grab bar. It is NOT thick and large in diameter so I can get my whole hand around it, especially the proximal joints that still have some strength. They also make one that has rubber on the inside for better grip
mntgal1 1 year ago
@rwundrock I hear you on the size of that bathrooom - I llive in a 1BR/1BA that probably has fewer SF than the poster's bathroom. However, this video was posted in the spirit of sharing and helping and I am just grateful for the recco on the towels. I second that recco on the grab bar.
It was amazing when I finally got an old friend to come over and install the grab bars. He just happened to choose the ones I would have picked.
I have to say here that I don't have IBM, "just" PM.
Jamie10014 1 year ago
@rwundrock I got cut off earlier. I wanted to tell you to install the grab bars before you need them. With any myositis, the odds are high that you will trip and break a leg on the easiest of surfaces. I did. It took eight days of agony before the wheelchair arrived, and ten days before I got the grab bars. Don't put yourself through that. The bathroom is a very likely site of slipping. Good luck to you.
Jamie10014 1 year ago
Thank you very much for all of the useful information you have shared...we are just starting this journey & are just starting to realize all that is ahead of us.
JohnFlatt 1 year ago
What a wonderful video and a true gift to those of us who have IBM or anyone who wants a beautiful bathroom!! Hopefully, by the time I might need help in the bathroom, I could get financial help from an organization! It's too bad it costs so much money to be safe and try to live a semi-normal life.Thanks again for sharing your story and video! Be healthy and happy!
Cindy
cindyeb 1 year ago
Thanks for your video. My dad has IBM and I will pass on your helpful tips to him!
partyof06 1 year ago
@partyof06 Thank you for your comment. If Dad needs someone to talk to, by all means contact me. I have had this disease for a LONG time and I am a good listener. MJD
mntgal1 1 year ago
Thanks for posting this. I'm suffering serious bathroom envy here - your bathroom is huge and gorgeous! I only wish my bathroom and my budget were big enough to accommodate all that, but I'm sure it will be usefuly to many people. Could you please post the name of the towels? I too have had problems with the heavier bath sheets.
Wishing you the best of luck.
P.S. I have those grab bars, too! They are excellent.
Jamie10014 1 year ago
@Jamie10014
Hi Jamie, they are Linden Street Quick Dry from JCPenneys. I just purchased a 6 piece set last week for about $25.00. Thank you for your comments. Let's keep in touch. MJD
mntgal1 1 year ago
Hello. I received an email directing me to your video. I have IBM also and may need to figure out some changes later on. So far I'm doing relatively ok but walking is becoming a challenge. Good video. It's giving me some ideas of maybe making a video of my own about IBM. Thanks again for posting this video.
guitargeezer48 1 year ago
@guitargeezer48
Hi and thank you so much for your kind comments. If you ever want to gripe to someone, let me know. I would be happy to call you. MJD
mntgal1 1 year ago