Hi. I found your video searching for information. This makes me feel better and not so alone in my experiences. I've been deaing with (living with) this for 17 years with the latest series of episodes that of seize-like events that finally brought me to the diagnosis. Today I was told and I am in a place of heartbreak and healing all in one. I hope we can be in touch, anyone that can support one another. Thanks and best wishes... Melyssa
Maybe I had this when I gave birth to my son in 2002 when I had trouble walking & needed a wheelchair from the car to the special care nursery. I had NO energy and blood work for my iron levels came back normal. I had severe anxiety around my son's health for years, maybe because, as a newborn, he was in the special care nursery...not sure. I was diagnosed 5 years ago with Post Partum Depression and have been on Effexor since. I too have lost large chunks of memory and have some disassociation.
hey i have this disorder as well and i have the non epileptic seizers my legs kick my body contorts and i cry a lot during them i am so happy to know that im not alone. my episodes have me scared to death and its quite comforting knowing theres others out there just like me so thank you so much for making this video. you have made me a little less afraid. :)
Thank you so much for setting up this channel. I also have non-epileptic seizures and my memory stinks. It's been so frustrating. I've felt so alone and isolated. I'm always scared when out in the public that I might start having a fit. It's humiliating for me. My legs often have a mind of their own. I have fallen too many times to count. I fell off one ladder and went down the stairs twice. I was teaching full time when the seizures started. It was really tough.
I've been diagnosed with CD as well. I'm really searching for solutions on living with it. It's been 2 years now, and my symptoms continue to keep me homebound. It's very frustuating. How do you deal?
thankyou for setting up this video, ive had conversion disorder for almost 8years now and still struggle with it. i go paralysed from head to toe thankfully i am always conscious whether my eyes are open or not. it is definitely very hard to live with, especially when no one understands what we go through. people constantly think im putting my episodes on for attentions which is difficult. does anyone know if CD is genetic, is it possible my children could get it??
Hi. I found your video searching for information. This makes me feel better and not so alone in my experiences. I've been deaing with (living with) this for 17 years with the latest series of episodes that of seize-like events that finally brought me to the diagnosis. Today I was told and I am in a place of heartbreak and healing all in one. I hope we can be in touch, anyone that can support one another. Thanks and best wishes... Melyssa
MAHarmon1 1 week ago
Maybe I had this when I gave birth to my son in 2002 when I had trouble walking & needed a wheelchair from the car to the special care nursery. I had NO energy and blood work for my iron levels came back normal. I had severe anxiety around my son's health for years, maybe because, as a newborn, he was in the special care nursery...not sure. I was diagnosed 5 years ago with Post Partum Depression and have been on Effexor since. I too have lost large chunks of memory and have some disassociation.
jlouutube65 1 week ago
You're very sweet. God bless you.
nshpls 2 weeks ago
hey i have this disorder as well and i have the non epileptic seizers my legs kick my body contorts and i cry a lot during them i am so happy to know that im not alone. my episodes have me scared to death and its quite comforting knowing theres others out there just like me so thank you so much for making this video. you have made me a little less afraid. :)
princesssnowflake15 4 weeks ago
Thank you so much for setting up this channel. I also have non-epileptic seizures and my memory stinks. It's been so frustrating. I've felt so alone and isolated. I'm always scared when out in the public that I might start having a fit. It's humiliating for me. My legs often have a mind of their own. I have fallen too many times to count. I fell off one ladder and went down the stairs twice. I was teaching full time when the seizures started. It was really tough.
kjmylly 1 month ago
Thanks so much for posting this. It's good to know we're not alone. I'm still working to get a diagnosis, but I believe it's PNES.
TheBlueDawg80 1 month ago
I've been diagnosed with CD as well. I'm really searching for solutions on living with it. It's been 2 years now, and my symptoms continue to keep me homebound. It's very frustuating. How do you deal?
rhondab1456 2 months ago
thankyou for setting up this video, ive had conversion disorder for almost 8years now and still struggle with it. i go paralysed from head to toe thankfully i am always conscious whether my eyes are open or not. it is definitely very hard to live with, especially when no one understands what we go through. people constantly think im putting my episodes on for attentions which is difficult. does anyone know if CD is genetic, is it possible my children could get it??
kireena2010 5 months ago
@kireena2010
maybe you have periodic paralyses,do you know this disorder ?It's a kind of channelopathy,and there are not many drs knows it...
rockydogsa 5 months ago
I have this as well, it is so hard to live with, I can't drive because of it
Meiscochan 6 months ago