Duchenne Muscular Dystrophy

[DefyingMD]

Hello everyone, progression CAN be made, I have Muscular Dystrophy and I started a youtube channel where I make videos of me exercising to see if I can make any progression and I have!! it is definitely possible, check out my youtube if you don't believe me!!!!

[530BigBen]

I'm from australia with a 12 year old brother who has DMD and only this year has now been fully confined to a wheelchair. Seeing that progression is being made gives me and my family a lot of hope.

[nUnA045760]

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[cooldit1]

The 3 people who dislike obviously are insecure.

[farawaysis]

My son is going on 21 and has MD ( DUCHENNE'S ) and is still able to walk. We have a wheelchair incase for long walks. I am VERY interested in this. In the past I used to give him ubiquinol coq10 and that mysteriously stopped the heart from further damage. But I had to stop it because it was starting to upset his stomach. After 2 years of being completly off of it, his heart is showing more signs of damage and his walking has become slower and more unbalanced. He has great will power......

[scadarick]

well it did not work for me very well. my M.S. is very rare...electricty is not very kind to my system. i went for 2 1/2 weeks. some procedures did well, but for a short time. this does not mean it will be the same for others. i have had MS for 34 years, the procedures will work in my opinion on people with bad circulation, my ms cause pain 24/7, so my nerves are very sesitive to these machines, at least i try...you have to at least try...life is too short for us.

richard parker

[MrNikolaos09]

i got the duchenne muscle dystrofi myself and my mon always telliing me about that treatment

[scadarick]

has anyone with M.S. tried his treatment, reason being I am scheduled to see him here in corpus christi. i have done the steroids in the back injections before, with only a few hours of relief. i am all for these kinds of treatment, but my only concern is that with M.S. nevers harden and over time useless, i am in a wheel chair now, over 10 years now. had a major set back just recently, came out of remissions after only 6 years of just slow progression. any chance this could help me.

[Charri6063]

Dr. Rhodes is currently treating Todd Harrison in California. Todd has Becker Muscular Dystrophy. It mirrors Duchenne yet is a slower progression. Todd is sharing his own you tube video diaries. Treatment began August 24, 2010. Search out his videos to see ongoing progress.

[cheyennepmf]

I notice the differences my nephew has this disease and I just wish he had thie opportunity when he was first diagnosed. he is wheelchair bound and unable to feed himself...

[xxxalaisiaxxx]

i rang about it and it will cost $ 5000

[jlsullivan3645]

Would you clarify something for me? This treatment is effective because it increases blood flow to the areas on the hands and feet where the pads are attached. This in turn necessitates the dilation of veins and arteries delivering and removing blood from those areas, which effectively increases whole body circulation. Greater blood volume moving through the body equals greater nutrient delivery, helping to ameliorate the muscle cell malnutrition exhibited by DMD patients. Correct?

[jlsullivan3645]

@blakercam The neuropeptides, then, are the key. Greatly improved circulation can be achieved throught the use of far infrared radiation, as in FIR sauna. The FIR spectrum, and its improvement of blood flow, has been shown to improve DMD. Your neuropeptide therapy adds another dimension to the theraputic benefits of improved circulation. I have studied sports nutrition for the better part of two decades, I am looking for therapies to complement the nutritional regimen I am developing.

[R1ckr011]

@blakercam Actually I would love that monogram if you have it. Unless it is mostly the same as the Parkinson's Monogram that was sent me before by Mr. Gould. I'm still struggling to find a way to integrate sources i'm afraid...

Rick Stephens

[candy4356]

I have muscular distrophy I was in Palestine so they gave me alot of steroid shots and it worked I can walk run and stuff I still get tired after physical activities but it took me like a month to get better I didn't really get diagnosed because there they didn't really no what I had but I had all the symptoms

[joeygolf86]

i would like to know more about it what kind of treatment is it

[Patroels]

@SouthTxInnovativeMed

Please tell us more than just "It's STS"... There are thousands of Duchenne-boys out there, who need to know and you will of course share your knowledge with the other doctors out there, right? ... Or have you set an amount in $ to be met, before you'll help anyone?

Just asking, you know :-)

[rainrtr]

I can't see any difference that can't be explained by (amongst other things): improved gross motor skills with natural development and growth in the 3yr old, ongoing steroid treatment and the phenomenon called "having a good day". Not even the magnification could be controlled for comparison making it overtly manipulative. This videos might have all the trappings of a medical video but scientifically it is a no brainer!

[SouthTxInnovativeMed]

I would like to note that the young boy shown in this video is currently on no steroid treatments. Clinical trials are in the works.

[ladydiana2008]

Is the lack of inflammation in his legs due to the decrease in steroids? Just wondering! BTW for those of you who don't know Dr Rhodes, he is a very kind man and very dedicated to this project. My son was his patient a long time ago and my son has Prader-Willi Syndrome. We might need to see about beginning this treatment again now that new protocols are in place! Trying something new and promising is better than doing nothing and complaining.

[priscillamartin100]

@SouthTxInnovativeMed

nice to see chronic pain treated without narcotics and painful injections. Kudos to Dr Rhodes.

[SecretYoungLink007]

thats not true i have duchenne im 17 years old that kid is not 17 years old its impossible that he is 17 and that he is walking

[kopper]

@SecretYoungLink007 Obviously it's not impossible. That's the point of his treatment!

[SecretYoungLink007]

do you know something about this or duchenne?

[kopper]

@SecretYoungLink007 Yes, I know quite a bit. You should learn more about it yourself!

[SecretYoungLink007]

i don't want to start a fight i have duchenne myself i know enough about this crap dystrophy myself sorry that i call it crap i hate to live with it and i guess you got more witch duchenne someone close

[zoomcube]

There are differnt symptoms for differnt people and it didnt affect his walking as much

[sboileau]

Miraculous work! Dr. Rhodes is a genius.