Sort by time | Sort by thread (beta)
- Your queue is empty. Add videos to your queue using this button:
or sign in to load a different list.
Loading...Saving...
Loading...Saving...
Hello.. My youngest I can now say Had Laynglomacia. ( he out grew it by his second birthday.) Just suddenly decided to look up things, as My son had a complication. where he ended up with a repiratory infection in his first year, which I was told caused his airway to be blocked, and because of the larynglomacia (extra tissue) he had suffered oxygen deprivation. My heart goes out to all those babies, as I know how scary it can be, in a few minor cases.
Defiantwonder 1 year ago
He still has tracheamalacia (which they've determined should be able to correct itself with time), and they were only able to diagnose for sure when he was under general anesthetic during his supraglottoplasty surgery. We're in Canada, so we had to wait quite a while, once the decision was made, to get the surgery done. I'm so thankful he got it, and we can move onto the next chapter. Good Luck with your daughter!
jacigemmell 3 years ago
He finally did get the surgery, after we'd tried everything else to get him to gain weight. Apparently, such a small percentage of cases actually need surgery, but he was one who did. I spent a lot of time in the hospital, at pediatricians, specialists, feeding teams etc., trying to get him back on the growth chart for weight and growing. When the second ENT specialist did the probe, his words were, "Well - you've been essentially banging your head against a wall, haven't you":-D.
jacigemmell 3 years ago
hi my daughter has laryngomalacia also did ur sone do better after surgey?
hazellsmommy 3 years ago
ah, read the info box and see you guys are booked for surgery. Hope it goes well for you guys!
MotherWhimsey 3 years ago
I thought it rather humourous myself. LOL Ahh well, the alliteration is lovely. :-) We actually have surgery booked for December. He's been a FTT (failure to thrive), I have to pump and add calories to his breast milk, and at one point he had almost spent more of his life in the hospital, than at home. We're so thankful this chapter is almost hopefully closed. Was your sons supraglottoplasy successful?
jacigemmell 3 years ago
how funny is it that we both have babies named Linden who have laryngomalacia! have you guys thought about getting a supraglottoplasty?
MotherWhimsey 3 years ago