Areas of Inflammation in Ankylosing Spondylitis

[aks37403]

there's not more painful disease than as. sometimes you can't even sleep at nights

[Kilpoola]

Just started month 3 of Low Dose Naltrexone, along with suppository Diclophenac and huge amounts of dietary supplements. My Rhumy doc and an endocrenologist are really working together on this. I am 50 years old, had my first surgery of 9 at 26 and this is the best I've felt for years, much better than Humera and TNFblocker therapy ever could. Give it a try, but be patient. The pain is forever but managable.

[Kilpoola]

@Kilpoola And try not to be too hard on those of us that give up fighting for fitness. Sometimes just surviving becomes enough. Used to do sports but gave everything up 5 years ago. Sometimes, exercise does become impossible for some of us. We are all at different battle stations!

[ajonz9213]

i would like to invite you to check out a new site that i set up to network people with AS and to share wisdom, treatments and encouragement!

Please come check out the website! im hoping to make a large network and bring us together to understand this disease!

check out my profile for a link to the site

as help within .webs .com

Andrew J

[MrVickydoc]

thanks for the video ,very informative

[sybaris1]

@MsMagicalCat I see you seem to believe you have it worse than anyone else in the world. Bah you make me sick.

[sybaris1]

@MsMagicalCat What do you do make stupid comments abuse people make out there is only you in the world that has this disease and also you happen to have it worse than anyone else, then delete it?

I get abusive replys and then you have taken them off, well you really are a piece of work and I hope its as bad as you make out you deserve it :0 Have a crap day and be in lots of pain I'm not I take my medication in fact I injected myself today and thats it for 2 whole weeks.

[hellbreakingkid]

I have severe AS and affects all areas except my eyes. Iam on lots of medication and keep extremely active i love playing sports and have been doing professional wrestling for three years now. This high impact sport is the only thing stopping my spine from curving even though it hurts like hell but i love the sport. Im only 23 but was diagnosed at the age of 14. Im starting to get scared after seeing the long term affects on mick mars from motley crue and the damage i have caused myself. But yo

[vtdark]

@hellbreakingkid Hey I was thinking of doing wrestling but is their an increased risk of injury for us when we are thrown? On top of that how do you deal with the positions with a limited range of motion?

[sybaris1]

High impact sposts eh, nice. Is your spine still flexible? Mine has become a solid bone no movement at all except a small bit in my neck which is growing smaller as I get older, I am 43 now and have had the disease for years. I currently inject myself once every 14 days with HUMIRA (humira.com). I would love and I mean that from the bottom of my heart to be able to play any kind of contact sport be it high or not but its impossible. Enjoy it while you can my friend.

Oh and the pain. lol :(

[urusol]

had you try with "low dose naltrexone " ?

I will start this month , best wishes for all !!!

[sybaris1]

@urusol no mate I went straight onto humera sorry, hope you find some relief and some info :).

[urusol]

do you know "lowdosenaltrexone"??

[swajansen]

Try homeopathy.

[blobvision]

@swajansen Homeopathy is a scam. It's nothing more than a placebo. It's been proven over and over that it doesn't work and there's nothing therapeutic in them.

Natural remedies that work include proper diet ( the four basic food groups), relaxation techniques, yoga and exercise...or cannabis if you're willing to accept the evidence that it helps inflammation, which there's plenty of. with little side effects other than feeling high and hungry(especially if you consume it orally or vaporize)

[blobvision]

@swajansen I know you're trying to help people. But you need to know that homeopathy is a lie, scientists and doctors have proven this. It's not just something big pharma made up to keep people from getting care at home.There's other companies that are scamming consumers, like supplement companies. They're trying to make money off of people because they know people don't trust the FDA.

[safeerullah2003]

i m suffering from AS from 20years.i want share my experience and disease and want listen who are sufferd.share with me im so alone please contact me safeer_ullah2003@yahoo.com.pk

thanks

safeerullah

28year old male

[antcell]

I have chronic AS in all those parts barring the shoulders. im so glad my shouldrs are ok. im 24. I feel like an old man.

[gafoorpanhwar]

I have back AS problam, But living , taking Remicade,

[Gdayguy36]

@bonebut54 Actually, back in 06 I had to go to the hospital because of anemia. I also have AS, didn't know the two were related. But my heart and lungs are fine, knock on wood...

[Gdayguy36]

I've got this and spina bifita.

[Bradbiss]

Bamboo spine sounds great

[Bradbiss]

@MsMagicalCat I've been in a lot of pain with this. A LOT. i know fine well it's not great. So don't start thinking you're the ONLY one with this condition, because you're not. Silly Woman.

Sounds like it's someone else here needs to "grow up" why would i go crying to mummy?

Use what little initiative you clearly have left and recognise that i was being facetious. Why would i want to attack you? seems 'attacking' people on here is something YOU like do quite regularly so i'll leave you to it.

[sybaris1]

@MsMagicalCat Good god I have never met anyone with symptoms like you describe Ok its painfull but come on your post is a little over the top dont you think, It reads to me as if you may have some depression there as well. Understandable but you should get some help for it.

[LexyGrey1]

Hi Folks I got AS and was diagnosed in Nov 08 yet have had it for 20 years now. I watched this vid and thought "oh look thats me ... but not for much longer" my hunch and neck is so bad I am having surgery done to correct it. Been on Humira now for 12 months and it has helped to turn me around I hate walking around like I am nearly 100 when I am only 36.

[Yahya76]

@LexyGrey1 Hey there, i hope your surgery went smoothly and i hope that you are feeling better physically and mentally. I've had AS since i was 16(now 35) and i have severe deformation. I live in UK and i dunno if surgery is possible. I hope u dont mind if i add you and all of us AS sufferers in my prayers, thanks.

Stay strong.

[Chapps]

Yep, it sucks, and, yeah, there are a whole lot more areas that get swollen and hurt like hell (can't use hands sometimes, feet, freakin' Iritis 5x/year, swollen jaw, etc.).

But for someone who's been suffering from it for nearly 15 years, I'm really lucky, because my spine shows very little deterioration. Maybe all of the years of insane workouts and weight lifting did some good. Dunno. But starting Remicade next week, so cross your fingers. I'd sure like to have my life back.

[DLSNiiganii]

@Chapps I hope the Remicade works for you as it has for me. I am 46 and have had AS since 17-18 and Reiters Syndrome before that nice age 11-12. I can totally relate. The remicade seems to have helped with the Iritis so I will cross my aching fingers for you,. God Bless.

[Itsdolphindoll]

i also have AS,its tooooooo painfull....i can't explain my pain's areas and my pain also....pray for all patients

[Surf2130]

lol.. oh man.. I wish I was one of those who can say.... "Yeah, It's pretty painful at times" lol.. Not too say your not bad.. But Some are bad.. And some live in hell. I like this video. Except it's missing about 20 other areas that hurt. lol Maybe more.

[ELoney]

I have AS and let me tell you, it SUCKS !