ME patient infected with Adenovirus in 1980 demands CDC act over HGRV pandemic

[karmakomodia]

I want to SCREAAAAAAAAAAAAAAAAAAAAAAAM LOUDER~ This is a serious situation and people are SO SICK From this Illness.. Where did the money go!!! ??? Why is this woman suffering ALONE.. ??? Because we don't have American Idol raising money for M.E. We don't have useless Celebrities singing CRAP songs like WE ARE THE WORLD.. .. BLECH. CFS NO MORE..IT is called MYALGIC ENCEPHALOMYELIST !

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[karmakomodia]

@karmakomodia myalgic encephalomyelitis.. CFS.. ??? NO NO NO NO NO NO NO!! The NAME IS MYALGIC ENCEPHALOMYELTIS

[Dziltiozhaa]

I'm so glad to know that Megan attended this meet. Her voice speak for all of us that cannot attend the meet due to the severity of the illness. I'm not alone after all.

Thank you Megan and God Bless you!

Tanya

[tiggerkenwood]

Thank you Megan. My family is very appreciative for your testimony and your willingness to go to these CFSAC meetings every year since the 80's. It means a lot to pwcf who cannot get there.

My son's illness was also triggered by an adenovirus. He was in children's hospital for a month when they tested him for and found the adeno virus. This is when it all started. I am curious to find out what the connection is with the adeno virus--Is it a trigger or a cause?

[coyne12543]

Thank you for posting, thank you to Megan and grateful that you had to raise your voice! It does seems no one is listening. I totally admire all that you have done!

[chanounie]

Please don't say you are sorry darling !! When will they listen and DO something !!

[chanounie]

She shouts because NOBODY is listening !!!

[geoffhallmann]

Well said ... very well said

[theonlyfluffyone]

I understand her frustration,, maybe they will to, we can hope x

[wowcolors]

Yelling does not help

[tiggerkenwood]

@wowcolors I disagree completely.  I think Ms. Shannon's testimony was the most compelling because she showed emotion. You could see and feel her frustration and heartache and it got their attention--finally!!!

[Farkmaster]

@tiggerkenwood It was a totally incoherent rage fueled ramble. There is one of those every single CFSAC meeting and it doesn't really lend credibility especially when the disease is stigmatized with mental health concerns.