neurofibromatosis type 1

[Briandaman24]

Hey man. Just wanting to wish you luck. I know what you are going through. I have had a lot of MRI's and Three Brain surgrys. All I can say is goold luck from one Brian to another keep stong

[nickolas82]

Hi Brian, I'm Nikos 28 years old from Greece, I also have a nf1 and hydrocephalus from the day I was born and in the last three years have started to appear on my body small tumors (previously I only had brown spots - signs, no tumors). Fortunately so far none of these tumors were not malignant, but every time they appeared a new tumor until proven that there is no malignancy i was worried. I hope you all go well, we go all right all of us NF1 humans and live normal lives for many years.

[LarrysGirl2006]

The tumors that I have are inside and out that I have- & a lot of them are very painful. There are days that goes by that I cannot even stand myself. Some people who have this disease are so lucky they do not even show any signs of having this disease- when I had the blood work done to find out which one I had I am very rare so they say. I am think I am just unlucky. The blood work shows that I carry both parts of the disease the NF1- is on LVL 4 and the NF2 is on level 2... Keep talkin 2 us

[LarrysGirl2006]

Hey there Brian- I am one who is living this life with this disease I hate so much... With this thing that we have (you and me) I have already since the age of six years old have had 332 surgires having tumors removed. I have had 3 brian surgeries done. The first one was back in 96, and was on the brian stem - (not fun at all) The tumor was found to be on the brian stem from the C1 and C2 so now on the back on my head the neck I have a scare that is at least 7 inchs long. I have em inside & out

[tom8412008]

good luck 2 u = )

[sloowburn]

brian I have NF type 1 and all my tumors are external. They always told me if they develop internally it'd be type 2. Maybe talk to them about..

[christo6969]

90% of NF Tumors are Non canceras...the only danger is where they develope hope ur ok man all the best

[nate9512]

poor guy :(

[GhostFerret3000]

As long as they found it early enough , you shouldnt be affected by the tumor in any way.

[LarrysGirl2006]

@GhostFerret3000 they do not always find then right away---With my first brian surgery I had- it was God, who made them find the tumor on the MRI once I was in there having the scan was done there it was plain as day on the brian stem and it was ready to kill me within the next month- I was not even going in on the MRI for that it was on my ear (so God, is with us and does help in every way) I have the tumors inside and out- I have many, many, many of them and 332 surgeries due to the disease

[shooter5535]

why does this guy have a police scanner always on? i hope he is not a cop ahah

[WiggerWallace]

The Dr's most likely found the tumor early. You'll be fine im sure.

[LarrysGirl2006]

@WiggerWallace--- they do not always find then right away---With my first brian surgery I had- it was God, who made them find the tumor on the MRI once I was in there having the scan was done there it was plain as day on the brian stem and it was ready to kill me within the next month- I was not even going in on the MRI for that it was on my ear (so God, is with us and does help in every way) I have the tumors inside and out- I have many, many, many of them and 332 surgeries due to the disease

[DJDubz1977]

@LarrysGirl2006 Thankyou for standing up ... All I have to say to the haters, the trolls, the people making fun of people with NF is, get a life. Try living with what we go through for one week. The pain, the nerves and everything else. Lets take your eyesight away, your hearing, your speech away for one week. What if you go out tonight, get in an accident, and become paralyzed. How would you feel if someone made fun of you. HAHA Look at the dude in the wheelchair, he cant walk EVER AGAIN

[LarrysGirl2006]

@DJDubz1977 You're welcome; and yes I know they could not even do it for a day. I have the bad case of NF and I have also lost my leg due to a growth that I had and after having so many surgeries on it it just was not able to be done anymore. I got an infection that the doctor left wide open to the bone for a year and half it was nasty but lost it due to both I also lost my eyesight in my right eye due to a tumor that could not be removed. It is behind the eyesocket; the other eye is going also

[LarrysGirl2006]

@DJDubz1977 So yes, I know that they all should just shut up and stop making fun of us. My own family disowned me due to me being different than them,. I sure wish they knew how it feels. I was the unlucky one to be born with this evil disease. I hate it.

[waypastthat]

Ok sorry but i just have to say this

youi say neurofibromatosis extremely funny because its such a long word and you say it in about 1 second :P

anyway take care, stay healthy, hang in there :)

[sloowburn]

ya us nfers make peoples heads spin when we say it so quickly

[waypastthat]

<3 stay safe

[TVWitness23]

im sorry brian. stay healthy and my best wishes go out to you

[MisterDoodyHead]

RESPECT

[bobisgoodatyou]

Whoever is mean to this guy is such a fag. Seriously. He can die from this.. God why be so mean to this guy? He didn't do anything, yet you sit here on your ass and write little meaningless comments.

[LarrysGirl2006]

@bobisgoodatyou I ask myself all the time "What did I do to have this disease" So yes, I do know where you're coming from when you said this about Brian, With the 3 brain surgeies I have had done and the 332 surgeries I had done- It sucks to carry this disease. People who do not have it- they really do not understand even the ones who do not even have it that badly they do not even understand, and yes you can die from this disease I was given less than a year to live now. Live your life happy

[WNxPredatorPL]

God bless Beebee

[LaurenCutthroat]

Oh I hope all goes well for you in the future, sir. :)

[bung70]

get well brain you have made my life worth wiel

[NanetteFan]

hope you feel better

[WORMGERM]

you can spell neurofibromatosis but you can't spell sandwich? Go fuck yourself beebee

[LarrysGirl2006]

@WORMGERM- she copied how to spell "Neurofibromatosis" also people can have a typo- does not mean that they cannot spell. Also some people can spell the big words and not the small ones. Why, be so rude to someone maybe the person could have something wrong with them? I really dislike people like this who say things about people when they do not know them. Or even know what is going on with the person. Like myself I have less than a year to live and my skull is hanging out due to NF-

[Null1fy]

Hope you recover, beebee! Your videos make my day!

[drknyght]

I hope you get better beebee

[WORMGERM]

who cares. Stop making stupid videos. Neurofagtosis isn't an excuse for the crap you put up

[GranFury440]

Hey WORMGERM go forth and fucking DIE. What has beebee890 done to you? Don't like his videos? Then don't bother watching them. but I know why you watch them! You do so to pick at him to make your own pathetic life somehow [to you] meaningful. You are one more reason I don't like people.

[hayleypetamarrs]

thats so well said

[LarrysGirl2006]

@WORMGERM- people do and CAN die from this disease... Do not dare call people gay from this disease. You seem like someone who just does not care for anyone. Here you are making fun of people on their spelling and this disease. Hey it I had a wish it would be NOT TO HAVE IT AND NOT TO BE DYING FROM IT. So watch what you are saying to people. Love yourself before you dison other people. Brain I am sure he wishes NOT to have this disease. I know I hate it and I am very rare and carry both...

[priceethewarrior]

wow if he dies after I always post BeeBee RIP I will feel bad :(

[scotttgross]

be strong bro.

[lkkjhg45]

my dad had brain tumors, but the doctors lasered that shit out. GOOD LUCK BEEBEE

[Gerkinmen]

beebee890 I love your videos! You have the best videos! Keep up the good work and stay healthy! Can you please make a happy birthday video for my friend Josh Davidson? Thanks beebee890!

[Sk0nski]

KEEP IT UP BEEBEE

[KTownWho]

yeah dude stay healthy and keep us updated.

[cabaji54]

BEEBEE IS A BEAST!!!!!!!

[Hutchie281081]

Brian just to let you know that a lot of people out here really enjoy your videos and think you're a cool guy. Hope everything works out for you and that you continue making videos for many years to come.

Hate the haters!

[DJDubz1977]

@Hutchie281081 You rock sir

[JoshFaille]

This is sad. Continue to fight that stuffBeebee. I appreciate your videos.

[angrypizzagirl]

I'm sorry you have to deal with such a difficult disease, Brian. But I do think that it is part of what makes you so compassionate towards others. Hope everything is going okay for you.

[Danube03]

beebs... will you still be able to can crush after all this?

[Whopzer]

God bless you Brian. Hope you gett better soon. Stay strong.

[Tank797]

RIP Beebee!

[RS9an9sta]

you'll be okay

[kylieluvsya]

Good video BeeBee/Brian. I hope the doctors can make you better! Keep can-crushin!

[QponFILMZ]

Beebee get well. But the good thing is you have had this for a very long time, and you know that the doctors can take care of it for the most part, so i plan to see a lot more cancrushes in the future.

[XmetalmikeXx]

Finally, he's admitting it... soon a video would say he's dead. .R.I.P

[CosmoHunter24]

Thanks for sharing this wuth us BeeBee. I hope you don't suffer..

[HarassmentAuthority]

1o1

[jordannnnnnn]

beebee god bless you, you give inspiration to us all

[humans4targets2]

Glad you are doing good Brian, keep up all the good work.

[mistabiggz16]

God bless you beebee ill pray for you all the time.

[SkaterTom14]

Pray for beebee!

[xXIDanIZz]

R.I.P

[LarrysGirl2006]

@xXIDanIZz You are so rude- that is all I can say...

[stringqueen2002]

praying for you here Beebee

[JackEdwards94PSN]

Get well soooon

[DebUSA]

There is no cure for neurofibromatosis at this time. It is not necessarily life threatening, but the tumors can be debilitating and appears in different degrees with different patients.

w w w . c t f . o r g

[joaosimpson99]

oh god :(