Added: 3 years ago
From: northunit
Views: 1,523
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  • i am the mother of zara who has sanfilipo sydrome type a she is now 21yrs old she still walks and talks and is very cheeky and full of mischief i just wanted to send this message of hope to other familys. especially the family of jared x

  • my sister suffered with sanfilipo syndrome, she lived till the age of 16.

    i like watching vids like this, it gives me more information about my sisters condition.

    god bless you jared x

  • reia i think i am going to cry i didnt relize how sad and scary this is!

    kylie:(

  • That was really awesome Rick and Reia. great job Elizabeth and friends. My God Bless you all......Alanna and Family

  • god bless jared

  • JARED =D!!!

  • i would have been on the stage but i was in stinkin florida

  • aw that's really sad. i hope they find a cure ):

    i'm in it at 1:59 !

  • I love you Jared. You are going to make a difference in this world. In your short 3 yrs since you arrived you have taught me so much about life. You are the strongest person I know. You will beat this disease.--MAMA

  • nice vid i dotn know this kid but ive heard fo him

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