Added: 2 years ago
From: mbaza5
Views: 3,638
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  • love this video, it made me cry. I have a niece and a nephew (not brother and sister, but cousins) that have fragile x syndrome. all three of my half sisters, as well as their half sister, carry the gene. my sisters' sister also has a son affected by fragile x syndrome. my nephew is the most severe and is still nonverbal and in diapers at the age of seven. he progresses every day though. the day my sister sent me a photo of him feeding himself was magical. this video is truly amazing. <3

  • im the mom of a child with smith-magenis syndrome and wow there are so many things they have in common

  • really enjoyed your video i have a 4 year old little girl wih fragile x

  • Comment removed

  • Marvelous piece, Bonnie. One of the best educational videos I/we have ever seen. Your boys are lucky to have a mother like you.

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