gastroschisis video

[Heather4828]

my Daughter was born with this Jan 14th 2010 didnt get to hold her till she was 3 weeks old she had surgery at a week old and she got to come home at 2 1/2 months old it runs in her fathers side of the family, now she is very healthy and smart lil 2 year old =)

[irenemlz]

I just found out that my grandbaby has gastroschesis my daughter is 5 months pregnant...we are all worry and concern but been reading alot about it,....trying to educate myself and my daughter with this,...please any advice would help my daughter and her boyfriend are very young 20 and 21 yrs old...they are sooo concern and lost please help!

[Enigmarat]

i am 31 and i had gastroschesis. i was born a mouth early almost and they said if i was any later i would of died, the hospital made a bellybutton for me but i had to have another operation at 13 because i was getting cysts around there (from how it was fixed), i also seem to have problems more on my right side of the body then the left, not sure if related though

[theStarsFallToPieces]

I was born with this disease.

My stomach, liver, intestines and kidney's were outside of my body, similar to anthony's condition. I've had to go through many surgeries over the last 15 years. I was born two months premature, at only 4lbs. I had to live in the NICU for three months, and my own parents didn't get to hold me until I was a month and a half old. At birth, my parents were told Id only live a year, because of the poor condition I was in.

But hey, im here today.

15 years old & healthy.

[knights4030]

A MESSAGE FOR "yoteamomigera"

I WISH YOU THE BEST AND I KNOW YOUR LITTLE ONE IS GOING TO BE OK

AFTER 6 MONTHS IN THE NICU WE NEVER LOST HOPE !

THERE IS LIGHT ON THE OTHER SIDE !

GOD BLESS YOUR LITTLE ONE !!!

[knights4030]

hello! My son was born with gastroschisis and after allot of complications and several surgerys and 6 months in ths NICU we brought him

home but do to the gastroschisis and malabsorbtion his GI doctor decided that he neded a central line for TPN and do to the fact that this is a foreign object in such a little body we have spent many and many more months in the hospital do to the infections but im happy to say that we have our son with us I hope this message helps out parents in the NICU

[yoteamomigera]

my son sergio waz born whit gastroschisis still in the hospitel he waz born augst 19 tomarrow he has to get a test to see if his baowls are ok to all you pepole out there going threw what he is and fighting GOD BLESS YOU ALL

[OrignalShannonHannah]

i have a scar from gastroschisis and im allmost 16 and it appears still be streatching and growing is this right ?

[annieray78]

i am a 33 yr old who was born with gastroschesis and i am so glad to see info out there to educate people on the condition. keep up the good work

[krystalelggg]

I have a now 4 year old, 5 this November, she was born in 2006 with Gastroschesis. Her birthday is Nov 14th 2006 and she came home that following Christmas eve! she is a happy, healthy amazing little girl, and i hope she will be confident later down the road even though nobody will understand why her belly button looks different. I applaud all of you that have posted saying that you wouldn't change a thing, just know that you are all here because you are meant to be, and because you are strong!

[amrich1988]

I am 23 weeks pregnant with my third child. Both of my other two pregnancy were perfect and produced beautiful healthy babies. I recently found out baby number three has gastroschisis. I am a full time youth counselor and college student. I am devastated and cant stop worrying about all of the events that are in store for my baby, myself, and my family in the future months/years.

[crazyjake200]

i was born with this disease in 89 i was in the hospital for 6 months before released to my parents everyday i look im shocked on how much farthur in technology has become

[RosieGal16]

I am proud to say that my little cousin is the little boy, Anthony Robert, in this video! He is a spunky four-year-old now and a handful every time we see him, but I'm thankful that we even have him.

We all love you Ant. <3 We'll always be glad you made it through and have you in our lives.

[ClEaNfReAk85]

I'm 20 weeks pregnant and my baby was diagnosed with gastroschisis. It's heartbreaking but I know it could be alot worse.

[RosieGal16]

@ClEaNfReAk85 I'm sorry sweetie.

Just know that your baby will be beautiful and that they're going to live a very full life. <3

[ZxDiabloXz]

I was also born with this and from the scar i have now it to me seem to be a big opening. I'm now 14 going on 15 soon. I had all ways like having the scar cause it gives me a story to tell about something that i could of died from without proper treatment. Also now as i look at it it looks like a big happy face. : ) close to this <-

[richcashdog]

my grand daughter was born 8/24/ 2010 with her intestines, bladder, reproductive parts and her liver exposed, she has now had 2 surgerys at 1 week old, they have gotten all her stuff put back inside her now, but shes in critical condition and needs lots of care, she will be in there for several more weeks if not months, we have yet to hear her cry

[shortie303720]

i was also born wit gastroschisis and i am 22 years old now! i was teased all the time by my brothers and kids at school! but now i am a healthy women with a 3 year old girl! thank god she wasnt born witht this! i know how much pain it is! my parents said i was in the hosiptal for more then 4 months! :(

[TheSwompShow]

i was born with this desease... i dont have a bellybutton... i am 11 years old and going into 6th grade. people think im an alien... i just tell them, google it its true and im not an alien, millions of people suffer from this desease. being born with this desease put me at risk for a tick disorder, and i jut happend to get it, i have had no problems with my tummy ever sence... not alot of people think that we were in pain for half of a year in the hospital fighting this desease... god bless

[mommy2at]

@TheSwompShow contact me! We have a gastro foundation started now called Averys Angels. we can put you in touch with other survivors around your age if you'd like.

[far1add]

@mommy2at im 14 years old.my shirt went up in class&everyone stopped talking to me. before they saw my stomach i was the girl everyone loved ,in cheer, involved wth school.they saw my stomach i became the kid no one cared about and it hurt really bad. ive been dating this guy for about 1 year&2 months and last week he saw my scar and i broke down and cried my eyes out and he told me im perfect so that really made me feel alot better. I would love to talk to other kids with gastroschisis too(:

[Kx3mommy]

I was also born with gastroschisis in 1983 I was okay as a teen after all the surgerys as a child but the older I get the more problems I am having due to the gastroschisis and Dr are afraid to touch me where they just dont know what to do.. I have had test after test ran all the time, tumors from all the adhesion, cant poo, and pain all the time. All I want is to be able to live my life play with my kids without being in pain.

[25codman]

My first child had gastroschesis and was stillborn February 17, 1997. Three healthy children later, I often think of Destiny Grace & just thought to perhaps search on here for any videos..etc. I found more than I xpectd- thanks for ur stories.

[DeniseJoanReimer]

thank you for this!

I am a 32 year old woman that is a survivor.7th in my country to be exact!!!!!

Bless the Dr's and all involved in creating a better chance for all the angels with strength and courage to fight.

[Enigmarat]

@DeniseJoanReimer would like to know if you have had any more complications and if you think it is related, im 31 and had tis and i seem to have a few problems nd more then not always on my right side

[3Billiejo]

our baby girl was born wiyh gastroschisis on 11-16-09 she is doing great now but is still yet for her to come home. Almost six months old and never been home for one day.What a long road!!!!!

[chloexxrhiannaxx]

My nephew had gastro he has a scar but has a belly button

[lakmak14]

i was born wit gastro too. i love my scar and think its the coolest thing. None of my friends can believe that i have no belly button. (:

[shd2007]

My happy, hyper, healthy eldest son was born with Gastro. He had no further complications and was home after 3 weeks in Birmingham childrens Hospital. He is soon to be celebrating his 3rd birthday and has a little brother who was born with all his bits where they should be!!

[pelon92405]

my baby was born with gastroschisis two months ago! he had to stay in the NICu for about 4 weeks. I thank God for letting my prince survive! This complication made me be stronger and have faith and never give up!

[Jami1808]

My son was born with gastroschisis also. On July 18 2008. He was rushed to Childrens Hospital as soon as he was born for surgery. He was out of surgery in less than an hour and had to stay hospitalized for 3 months due to eating complications. He was on medication till he was 6 months old. Gaige is 16 months old now and is doing very well. We have not had any probpems due to his condition. he was truely a miracle baby.

[imo07]

I Was Born With Gastroschesis 1n 1993 The Doctors Told My Parents I Wouldnt Survive I Had My 1st Surgery 1 Hour Old The Doctors Told My Mother If She Would Donate My Organs Bu I Survived And Im Doing Well MY Scars 5 Inches Long:P

[kristifp1]

Im born with gastrochisis..

[sithlord69]

My son was born wih this condition... he is now 3 and a half and has a perfectly normal life. I wish I knew the reason for all of this!! Does anyone know where to donate?

[danyvette07]

i love this video, my daughter was born with gastroschisis she will be 2 in jan. i'm kinda scared to try for another baby because she went through so much does anyone know more about this. doctors say its not in me or my husband so it wouldnt happen again but i've heard other wise...

[wifey052408]

This video gave me hope, my baby girl is due in 19 days and has Gastroschisis. I am so scared that something will happen. Im praying she will be okay.

[Mummilicious1984]

my little girl was born wit gastroschesis 7 months ago it was such a scary time for us as she got meningitis and nemonea at just 5 days old. she is such a fighter and is so gorgeous and perfect today thank god

[gisellepena]

i am 24 yrs old and was born with gastroschesis i thank god everyday for allowing me to sufviving from it and i know that things have changed now but im proud of my scar cuz i have a story to tell.. thanks for the video..

[dathe91]

i too have a scar from gastroschesis. it makes me who i am now. i wouldnt change it for nothing. :)

[starwinkle2008]

I was born with Gastroschesis in 1995 as well. But Im alive and well...I can't say the same about my scars...but thanks for the encouragement =]

[siennawho]

My daughter Adia was born with Gastrochisis...she had her small intestine, womb and bladder out. I still breakdown sometimes with memories of it all...but feel so encouraged reading this last comment by darshanhilton123. My daughter was 5 on New Years eve 2008 (born in 2003) and already very vain and girly. I hope she can be proud too of her scars. Good luck to all you Gastro mommies/mummies all over the world. God chose you as their mommy for a special reason :) x

[darshanhilton123]

i was born with Gastroschisis and im 15 and proud to show off my scars if your self conscience of your scars just remember that they make you unique and dont let no one bring you down

[Dillan1794]

me too im happy to know that some one my age also has the scar when i was younger i was a little self conscious about it but know its all good and i wouldnt ever want scar surgery and i proudly will show of my scar

[crazyfreaky420ma]

My Daughter was Born with Gastroschisis, she just turned 4 on october 27th, and She hasn't had any problems after, she left the hospital, she only needed one surgery, and she has no hernia, shes great and very very beautiful and Normal! I love her and all our love goes out to all of u with strength to do this!

[sumayyah28]

my son was born with gastroschisis also, 11 yrs ago now, he had another surgery at about 2 months as his intestine had blocked n distended but since then has been fit n well, n extra cheeky! lol i have spoke 2 another about the fact of the child being taken straight away 4 surgery wether this had affected their bonding process i'd like 2 get others veiws aswell if possible, n if so maybe this can help 4 others going through this 2b aware that it may affect then n they can take positive measures

[justCabz]

I had a daughter on July 25th, 2008 with Gastroschisis, her bowel and intestines were out but they had one successful surgery and she stayed in the NICU for less than 2 weeks. She'll be 4 weeks this coming Friday and she's doing very well! These babies are really strong and really do come through. God is watching over her and answering our prayers <3 It's great what these surgeons and nurses do for our babies in need of help :)

[ukwayne21]

iv just had a baby girl wiv gastrochsis she is in the neo natal unit her intestings was out but eveything seems ok the bowls hav gone back in where just wantin for her to recover fully but i still worry. but i know wot people are going throw i felt like crying when i found out but theys so many ways to fix it these days my heart goes out wayne + cheryl :)

[xosoccerluvr4xo]

i was also born with gastroschisis..god was really watching over me..now i am 14 & just fine :)

[linda063]

My Daughter Now 25 born with Gastroschisis now the proud Mummy of two lovely Daughters and An Angel Son (not related to gastroschisis)

25 years ago we never had much going for our Babys, THank God things have changed!!!!

[Snisser44]

:) Hi Linda,

This video is great! I was born with Gastroschesis in 1978 and have a beautiful daughter of my own as well. Isn't it great to hear these stories!

[smiley8522]

I had a daughter the day before Valentine's day of 2007 with gastroschisis. Hearing it at around 13 weeks pregnant it was the scariest thing of my life. But i am happy to say that My little Jacklynn is now a happy healthy 17 month old!!!! These babies come through so much!!!

[MARCOSESSOLIVE]

lovely

[lindclay1414]

thanks for the video! im 34 weeks and 3 days pregnant, were having our first baby, its a boy and at 13 weeks they told us he had gastroschisis. I'll be delivering him sunday and it helped to watch this video, im still really scared but i just wanted to say thanks

[justCabz]

I'm 7 months (29 weeks) pregnant with my first baby.. it's a girl. I found out at 18 weeks that she had Gastroschisis, her intestines are out.. Watching videos like these sort of helps, but I'm still worried. But thank you for making this video <3

[chasca23]

I am 32 years old and was born with gastroschisis. When I was 24 years old, I had a surgery to remove a lot of the scar tissue and found out that I could never have children because the scar tissue was too thick and would get in the way of the baby's growth. Today I am well, I have issues with my pelvic floor which is very weak as a result of gastrochisis, but I am in therapy to strengthen those muscles. Yes, miracles do occur,I will pray for the pregnant women who contributed to this post.

[enigmamandy]

hello when i was born i had gastroschisis i am now almost 28 and i have done well, Had another operation when i was 14 because cysts were developed, i have alot of scare tissue other but im fine, Drs made me a bellybutton gets sore sometimes but that is from the scare and scare tissue, they didnt know i had it until i was born, another girl is is one yr older then me in the usa who also had gastroschisi. u have a gift who will make your love wonderful

[MrsLaurenShinkle]

I am now 28 weeks and my son will be born with gastroschisis sometime in july. watching these videos and reading other ppls comments have helped me out alot. The doctors belive only 1/4 of my baby boys intestines are on the outside of his body. Thank you all these videos and stories really do help and are amazing.

[Kymberly88]

I am 6 months pregnant with my first baby. It's a girl, and she has gastroschisis. these videos are amazing.

[fincharlz]

I had my first daughter in 1999 and she was born with gastroschisis. She had her intestines, ovaries, bladder outside of her body.She spent just 19 days in the neonatal wing of the childrens hospital and has been perfect since then. She showjumps with her pony, excells at most sports and is soo bright.Please have faith in the hospitals, what they can do is miraculous and I will be forever grateful. Best of luck, kindest regards Zoe and Charlee : )

[Kymberly88]

I am 6 months pregnant with my first baby. It's a girl, and she has gastroschisis. these videos are amazing.

[gracioussix]

My daughter was born with Gastroschisis on January 3 of this year, we're still in the Nicu but close to going home. Thanks for the Video. God Bless

[ruppie13]

We found out at 16 wks our baby girl had gastro, when she was born her small intestine became tangled and then "died" she now suffers from short bowel syndrome. A 3 month stay in the NICU and now 14 months old she is still on TPN and some tube feedings but doing great! To all families that go through this, bless these children they are a true miracles and know everything will be fine!

[katwoman627]

This video is wonderful! My son is currently in the nicu because of gastroschisis. He is 25 days old and finally yesterday I held him for the first time. He still has atleast 6 weeks ahead of him because of complications. Thank you for making this!!

[sekceej]

Kayte you did an amazing job!