Chronically Hopeful [Doctors, college, & laughing at life]

[ironbith]

U r so adorable and strong!

[Amanda0517Melissa]

My daughter was diagnosed with POTS at Mayo Clinic in Minnesota by Dr.. Philip Fischer in May 2009.

In Jan of this year her blood pressure shifted from low to high...as in stroke level so we went back to Mayo in Minnesota and some of her meds were changed. We are back home now but my daughter is so discouraged about so many things, her inability to go to school for one. It would be wonderful if you could possibly message us on here. She needs some encouragement!!

[81kphelan]

wow,your such an inspiration to many people and me,tuns of hugs

[dancergrlrocks]

hey i would really love to know where you went to the doctor, because penn isn't too far away from where i live and if you have found a great doctor i would really like to know!

[tophatkat11]

Hi Kylie, YAY for being back in school. Rest is so VERY important in the life of someone with pots. It's just so hard to limit the energy output.

I am still a full time student at University and trying to deal with my pots symptoms. IT IS TOUGH! So, to anyone out there going to school and dealing with pots, YOU CAN DO IT! Thats what I have to remind myself all the time.

Keep up the great work Kylie! I hope you find some time for your photography. I love photography as well!

~Katherine

[cmilhn]

i LUV YOU KYLIE AND CAN DEFINATLY RELATE TO EVERY THING YOU SAY. THANKS FOR HELPING ALL OF US TO NOT FEEL SO ALONE. POTS IN INVISIBLE TO THE UNTRAINED EYE INCLUDING FAMILY, FRIENDS, AND DOCTORS . THANKS FOR BING THERE WITH ALL OF US. WE ARE THERE WITH YOU 2

[someluckystar]

Did you get any test results that helped you!?! I hope so! I've been looking for quite awhile with no results, but hey- giving up isn't something I do :)

[ashpauls]

Hi :) I have just watched your videos for the first time (I started right from the beginning and couldn't stop watching). It was so amazing to watch you bc I look at what you have to go through, and think, "OMG me too!" and it's awful at the same time, to think that there is someone out there going through what I am.. and having to suffer through it. What you are doing is really important, bc people need to see what this is from the patients perspective. Feel better hun! & thank you :)

Ash,

[ReineDeLaSeine14]

YAY KYLI!

[KolinaLind]

God Bless you dear!!! I will pray for you ^__^

[happy2b4family]

Hi Kyli,

Your video on what is pots was the first thing I saw when I learned I might have pots. I have since been diagnosed, and look for your videos all the time. The way you share your life and struggles with everyone is wonderful. It helps me so much when I see I am not the only one. And I love the humorous people you do like the office lady that wouldn't let you use the phone. I hope you keep the videos coming just the way they are. Thank you.

[lauriloubird]

You amaze me again. I was lucky enough to get through both degrees before I started fainting so much and then POTS where the docs here just ignore it completly. I guess my second degree I was pretty sick but blocked it out..and I know the stress made it more difficult and the exhaustion was crazy and yes I laughed alot about my fainting more than the tachacardias arg I feel for you girl but so glad you make these videos

[hiphopqueen265]

I have POTS too, and I know how rough it can be. I'm glad to hear your doing great! You go girl!

[bambaleja]

Kyli,

I am so happy to see that you are doing great. This gives hope to other ppl suffering with chronic illness that it might be possible to live a somewhat normal life. I would love to hear all the tips that you for ppl with POTS how to make a life more managable.

Good luck to you girl.

[gina2westies]

Hi Kyli,

I came across your videos when I was "Googling" POTS. I was diagosed with POTS in December 2008. I'm also one of the lucky 30% of POTS patients that also faints (vasovagal). I just created a YoutTube account so that I can subscribe to your videos. I think they are funny, easy to understand and informative. I know what you are going through. Thanks for letting others know about Dysautonomia.

~Gina

[ashpauls]

hahaha me too! i never had a user account until I saw these videos from her.

[AllySpencerJohnson]

I know the feeling. I often feel like there is something else underlying this, and feel like once they dx'd me with POTS they stopped searching, but I wont. Good luck with your search! I hope the best for you!

[alexaralu]

glad to hear from you , and i hope that your new doctor finds the other condition so it could get better treatment so that your life to be better. And a super update . Keep us posted we care about you , Loot's of hugs alexa.

[infocus1983]

awesome update kyli i hope this new doctor can help you get on the right path now. def keep me updated on everything. great video:)