My Brother was 22 and he had cystic fibrosis. He had a lung transplant and a little less then a month ago, he passed away. I miss my brother like crazy and I know that all he really wanted was to find a cure for CF. Every year me and my family go to one of those "Walk to cure CF" walks and try to raise money to stop CF. And to everyone that has CF, hold on and breathe easy :)
RIP Stephan Alpert and all others that have lost their life to CF
my brother is 18 and has cystics fibrosis. hes always going into hospital and when he was little we were told he was only ganna live to 12 well he has past it and i never wanna let him go he is my only older brother and we are really close. he is still in and out of hospital all the time but i sit in my room and cry sometimes coz i know how hard he has it and how it just dosnt effect him but my family. and just thinking he could pass on at anytime is the worst thought i could ever think off :'(
I have to say I really agree with what you said in the description about us CFers being somewhat special and chosen to inspire others. I've noticed that a lot of people with CF (including myself) tend to have a more positive and gracious outlook on life, and I'm thankful for every moment I have with my friends and to do the things I love, and for every moment I'm not ill.
So, I hope you're doing well in health and the rest of your life, and thanks for the beautiful vid to all of us!~
I have CF and 2 years ago I had a double lung transplant. I just celebrated my 30th birthday! I have close friends who are 34yrs old, another one is 38yrs old and I have a friend who lived to 40 and had 2 children. We were all told the median age of our life was maybe 15yrs old. . So don't worry so much about statistics, they aren't always right! Stay hopeful and strong!
I have a video of my transplant journey, just look up my channel under buggerjlewis :)
Im 13 and i have CF, i have seen leaflets and it says that the life expectancy (sorry cant spell) is 32, is that still right, am i going to die when im 32, please tell me i am just corious
heyy yes it is 32 now, but it goes up every years with all the treatments and everything that is coming out =] So dont worry when i made this video a little under a year ago the life expectancy was 31 now it is 32 but many if not loads of cf people are living long pasted 31/2, long past. =]
hey i am 13 as well and not to burst your bubble but you have a bigger chance of dyeing in your teen years and yes you can die before or after 32 there is this one guy who is 65 with cf but all depends on what you whant . i whant to die and i have sever cf so there for there is a big chance of me dyeing in my teen years .!!! but it depens if you have mild or sever or deathly bad ask your parents or doctor .
Yes, i think that god would of gave us this if he didn't think we could handle it. It doesn't happen how long we are here it is what you do with that time that counts. =] Wow my sister said something little that to me a few years back.
I have a good understanding of the disease, bob flanagans movie is alot like this, i think everyone with a disease like this needs a documentry of there life.
Ahh yes, Bob Flanagans movies are great for people to see who know little about cf. I agree about that everyone does need to made one as although it is cf everyone has a different story to tell.
Hey hun! I am so sorry it has took 3 months to reply. wow i am sorry i been so busy with treatment and exams..exams suck! haha Anyway yehh i know it can be hard i went thru a big rough patch abut 2/3 years ago all with cf and stuff, anyways i am in a better place now and making my dreams come true (trying to be a actor =] ) i would love to chat to you and it dont matter what age you are i dont mind. I love talking to people. btw i am 15 nearly 16 in just under a month! :)
Very cool. You did a great job on it. My daughter has CF too. She just had an operation to remove part of her lung. She is doing great now. She loved seeing your video. Youtube has made it possible for her to see that she is not alone.
this video has shown me that behind the YouTube 'faces' [i.e. accounts] behind the chirpy videos and special effects, there are real people who have real problems and i think you are a huge inspiration honey...
the way you just face the problem gives me courage
great vid, wouldve been good if the photos at 2 mins were shown abit longer but its a great message! btw i do know you're other account thats how i got ur this account.thanks for the uploads aswell! ur brill!
thankyou hun please please can u share this video with everyone u know please the more people who know about it the closer we are to finding a cure....
Brill video. Informative. But I especially love the way it switches to colour in the middle. I think the message is subtle but powerful. Hope and happiness in the face of something sad.
thankyou hun please please can u share this video with everyone u know please the more people who know about it the closer we are to finding a cure....
thankyou hun please please can u share this video with everyone u know please the more people who know about it the closer we are to finding a cure....
thankyou hun please please can u share this video with everyone u know please the more people who know about it the closer we are to finding a cure....
My Brother was 22 and he had cystic fibrosis. He had a lung transplant and a little less then a month ago, he passed away. I miss my brother like crazy and I know that all he really wanted was to find a cure for CF. Every year me and my family go to one of those "Walk to cure CF" walks and try to raise money to stop CF. And to everyone that has CF, hold on and breathe easy :)
RIP Stephan Alpert and all others that have lost their life to CF
ForeverPrussia 2 weeks ago
my brother is 18 and has cystics fibrosis. hes always going into hospital and when he was little we were told he was only ganna live to 12 well he has past it and i never wanna let him go he is my only older brother and we are really close. he is still in and out of hospital all the time but i sit in my room and cry sometimes coz i know how hard he has it and how it just dosnt effect him but my family. and just thinking he could pass on at anytime is the worst thought i could ever think off :'(
TEZ18201102 4 months ago
i have cf..and im 12..but i have more severe digestive then lungs...but im thankful for still being alive(:
sk8terchickie98 11 months ago
I have to say I really agree with what you said in the description about us CFers being somewhat special and chosen to inspire others. I've noticed that a lot of people with CF (including myself) tend to have a more positive and gracious outlook on life, and I'm thankful for every moment I have with my friends and to do the things I love, and for every moment I'm not ill.
So, I hope you're doing well in health and the rest of your life, and thanks for the beautiful vid to all of us!~
Wawagirl17 1 year ago
i know how you fell my cousin had cf and its hard but i love her sooo much i cant live without hier
caitlin1618 1 year ago
Hi,
I have CF and 2 years ago I had a double lung transplant. I just celebrated my 30th birthday! I have close friends who are 34yrs old, another one is 38yrs old and I have a friend who lived to 40 and had 2 children. We were all told the median age of our life was maybe 15yrs old. . So don't worry so much about statistics, they aren't always right! Stay hopeful and strong!
I have a video of my transplant journey, just look up my channel under buggerjlewis :)
buggerjlewis 2 years ago
hi
you are right statistics, they aren't always right,i know two persons.one is 38years and the other 42,both rewborn after the lung transplant...
stay all strong and healthy
teiubesc36 2 years ago
Hey codeblue96.. i have sever CF ,
theboxinman 2 years ago
yes we r. rock on cystic fibrosis teen kids audlts. we can all make it:)
Shanaynay1994 2 years ago
Im 13 and i have CF, i have seen leaflets and it says that the life expectancy (sorry cant spell) is 32, is that still right, am i going to die when im 32, please tell me i am just corious
theboxinman 2 years ago
heyy yes it is 32 now, but it goes up every years with all the treatments and everything that is coming out =] So dont worry when i made this video a little under a year ago the life expectancy was 31 now it is 32 but many if not loads of cf people are living long pasted 31/2, long past. =]
dogermad 2 years ago
hey i am 13 as well and not to burst your bubble but you have a bigger chance of dyeing in your teen years and yes you can die before or after 32 there is this one guy who is 65 with cf but all depends on what you whant . i whant to die and i have sever cf so there for there is a big chance of me dyeing in my teen years .!!! but it depens if you have mild or sever or deathly bad ask your parents or doctor .
codeblue96 2 years ago
I have CF.. (A)
Amazing to see that almost every person with CF emotionally handles it the same way..
"We have been "chosen" to change the perception of life of people around us."
I also see it this way.
MY brother even said to me:" It's a good thing that you got this disease.. because if I had it, I would have killed myself years ago allready.."
If you don't see that as an inspiration to others.. ;)
Keep it up all of you!!
martindemik 2 years ago
Yes, i think that god would of gave us this if he didn't think we could handle it. It doesn't happen how long we are here it is what you do with that time that counts. =] Wow my sister said something little that to me a few years back.
dogermad 2 years ago
I have a good understanding of the disease, bob flanagans movie is alot like this, i think everyone with a disease like this needs a documentry of there life.
Eccentricass 2 years ago
Ahh yes, Bob Flanagans movies are great for people to see who know little about cf. I agree about that everyone does need to made one as although it is cf everyone has a different story to tell.
dogermad 2 years ago
love it nice one keep it up
jayrye25 3 years ago
I have CF also! and i can be hard :(
and i would love to chatt about that its always ben my dream ( becz we cant get near others w/ it) but i think im, younger than u .
Hreedproductions 3 years ago
Hey hun! I am so sorry it has took 3 months to reply. wow i am sorry i been so busy with treatment and exams..exams suck! haha Anyway yehh i know it can be hard i went thru a big rough patch abut 2/3 years ago all with cf and stuff, anyways i am in a better place now and making my dreams come true (trying to be a actor =] ) i would love to chat to you and it dont matter what age you are i dont mind. I love talking to people. btw i am 15 nearly 16 in just under a month! :)
dogermad 2 years ago
this was such a great video, i have CF and everytime i read that each weeek some one has died from this terrible disease i start crying. ):
xxliiiiiibbbyxx 3 years ago
Very cool. You did a great job on it. My daughter has CF too. She just had an operation to remove part of her lung. She is doing great now. She loved seeing your video. Youtube has made it possible for her to see that she is not alone.
Thanks for the video
krystalmike1999 3 years ago
Simply beautiful. I will send this video to my subscribers. We need to spread awareness of CF!
stonesfanatik 3 years ago
thankyou hun =]
HjayAndLuu12 3 years ago
You are welcome! If you ever have and respiratory related questions, please feel free to pm me Thanks!
stonesfanatik 3 years ago
i will share..!
this video has shown me that behind the YouTube 'faces' [i.e. accounts] behind the chirpy videos and special effects, there are real people who have real problems and i think you are a huge inspiration honey...
the way you just face the problem gives me courage
<3
NiaMiaDramaQueen 3 years ago
Thankyou so mucch! x
HjayAndLuu12 3 years ago
Thanks for sharing...
Ireland0112 3 years ago
great vid, wouldve been good if the photos at 2 mins were shown abit longer but its a great message! btw i do know you're other account thats how i got ur this account.thanks for the uploads aswell! ur brill!
chicharwali 3 years ago
thankyou hun please please can u share this video with everyone u know please the more people who know about it the closer we are to finding a cure....
HjayAndLuu12 3 years ago
sure hun, no problem, i will send it out to
wepke 3 years ago
Brill video. Informative. But I especially love the way it switches to colour in the middle. I think the message is subtle but powerful. Hope and happiness in the face of something sad.
simpy158 3 years ago
thankyou hun please please can u share this video with everyone u know please the more people who know about it the closer we are to finding a cure....
HjayAndLuu12 3 years ago
wow, hun i feel so sad when i say it
but you are a very strong girl i now that
and you don't have to worry to mutch because your family and friend are there for you and love you with hole there heard.
and i to !!!!
i wich you so mutch joy and love
hugs and kisses xxxx
wepke 3 years ago
hun dont feel sad for me :) i live a amazing life i would not change a thing in my life :) I put this video up for more people to know what it is....
dogermad 3 years ago
yeah, i now hun, but i can't help it, you now me he and it's very good that you life a amazin live me to :)
wepke 3 years ago
thankyou hun please please can u share this video with everyone u know please the more people who know about it the closer we are to finding a cure....
HjayAndLuu12 3 years ago
Very Sad video but at the same time very interesting!!!! I Loved the way you put it with a well chosen song.
GarcPatty 3 years ago
thankyou hun please please can u share this video with everyone u know please the more people who know about it the closer we are to finding a cure....
HjayAndLuu12 3 years ago