my fasciculations started to get severe about 2 months ago all over my body
(mainly eyelids, but also arms, shoulder, back, tummy, legs and hands)
additionally I feel pain and strange sensitivness on my hands and arms, like stabbing pain. arround 1 and a half year ago, I started to have symptoms, mainly with my sight. I see flashes in the dark, and when I am sitting quiet and trying to fix on something, my sight moves like on a boat... and mostly dry eyes all time. Occulist couldnt find a.th.
I am still around, no weakness but I do have tongue twitches now and then. But as far as I know, I am not the only one. I get the same tongue twitches as shown on the video from some girl here on YT..
Regarding the twitching AFTER weakness, it is not always true.
well, if it were als, the symptoms would be progressing very rapidly. also, many people twitch for simple reasons. a magnesium deficiency is a big culprit, and if u are and anxiety sufferer, you may tend to have spasms as well.
i can actually SEE my arteries B ounce up in my hand i think i still got to check with the dokter.first i tought it where fasciculations but they looked like going same as my heart beat in the middle of my hands .. i was freaking out. i can actually feel my heartbeat in my fingers and my fingers can actually move with my heartbeat so gonna go check that out first xD probably worse then my fasciculations. Ive walked for 5 days . so doubtfull its ALS ^^.
i also had a clean EMG. but when you read on the "internet" it seems alot of people with ALS do too. but they have muscle weakness. and athrophy. i on the other hand have tingling hands somethimes and feet. i got a pinched nerve from my hernia.
i am afraid its weird i do have alot of symptoms with people who have MS.
i somethimes to have weakness in my hand in my feet i wouldnt really know.
but it comes and go's more like not enough blood in my hands..
I have been having fasciculations mainly in my calves and all over my body
but they are more rare in other places like lets say my arm sometimes it twitches 5 times somethimes only once it actually does move my arm. i tought my fasciculations where rare but i actually looked at my calfs and i noticed they where twitching without me feeling it somethimes. it freaked me out have been having fasciculations for 1 and a half years now.
This is exactly what I have. It started out in a bunch of different places, and a lot in my toe, but then that completed stopped. That was 5 months ago and last week it started up in my thumb..it's almost constant and driving me insane!
Do you take benzos? Benzo withdrawal syndrome (BWS) causes this type of twitching, even if you are still taking benzos due to tolerance. I have the same exact symptom and I'm withdrawing from Diazepam. It's no fun but it resolves after time away from the drug.
I have exactly what you have, on top of that I have twitches on my little finger which basically causes the whole finger to twitch as well as twitches on my calf and thighs.
I've consulted a neurologist, and there's nothing wrong with my brain. I've got it down to Magnesium Deficiency, because on top of this twitch, I also get migraines, feel tired and a touch of stress.
i get these on my thumb, shoulder, and around my elbow...and once around my eye... its wierd....im only 16 and i get em everyone like.. 2 months for like.. a whole week straight...what is it?? or what can it be??
i have this all over my body,. i have no idea why its happening,. i think maybe its from benzo withdrawal but im not sure. Docs think it may be from a nutrient deficiency but all my nutrients are fine. The docs dont even know what this is called, one doc says fascilitations, another will say muscle spasms, another will say twitching, another will say vibrations. Im worried and scared and want this to stop!
a lot of places on the internet say that muscle spasms differ from twitching and twitching differs from vibrations etc.. some are painful and involuntary, some are painless and voluntary, etc..
basically all your doctors are referring to the same thing, there are a few common names for this. If you get these twitches alot, then you more than likely have what I have which is Benign Fasiculation Syndrome, but don't worry because it is pretty much harmless, just really annoying. Basically your brain sends random messages to your motor neurons and they fire off at random.
This stuff can make you go mad! I've had fasics all over my body now for nearly four years. I'm sore and have difficulty running, but other than that...I'm fine. Neurologists find nothing. Horrible at first b/c you think you have ALS and you start preparing for the end.
I know. I get them.... about every half hour. Usually it only jumps once. Once in a blue moon, it will either pulsate so fast that it's like a vibration, or sometimes it's jsut like 1 time per second. The only annoying part to get them at is the neck.
Mine occasionly twitch very violently in my neck. On the left. And this is no lie, my chest area, around the heart spazzed out. I 'm really concerned about how severe they might get.
I remember the worst time I had them. I was taking a standardized that we were taking for the whole week. And one day of this test, for the whole time, my chest did this pattern:
Bump once
Vibrate
Wait ten seconds
bump once
vibrate
wait ten seconds
It was cool but annoying. When I was done, I looked through the neck whole of my shirt and watched it. SO FRIGGIN AWESOME! But it was getting annoying... Wow this is a long comment so I will shut up now.
Do any of you exercise with this problem exercise or eat a healthy diet? I had fasiculations all over my body and they got to be quite annoying, I changed my diet and started running and lifting weights and they have virtually gone away, I still get the occasional one but not as intense and often.
I just came across your video and have the same problem as you (random, involuntary twitching of the left thumb and/or index finger), as well as fasciculations throughout various other parts of my body. I've seen a neurologist and have been cleared of any serious neurodegenerative disorder. Even so, the fasciculations persist. I'm curious as to how you're coping with this matter?
Are you taking anything? I'm taking Lyrica which is an anti-consulsive medicine.I had serious twitching in the legs which made me weak. The twiching has spread but is less intense. I have a hard time swallowing sometimes and I have nerve pain in my forarms and upper legs. I have hard time focusing with my eyes. However my muscles are getting stronger and I'm lifting weights again after 10 months of having this problem. Anyone taking anything?
I have myotonia, and most likely myotonic dystrophy because I have atrophy too. And I twitch. Doctor thought ALS at first, but with the myotonia, not so much. Myotonia causes muscles to tighten and not relax immediately.
Bliznacek, ask the doctor to use the little rubber hammer thingy (or you can do it to yourself with a blunt object) and tap it on the same muscles you rubbed in the video. If your thumb tightens up and moves toward your palm, and those muscles contract, it might be myotonia.
omg I don't have muscle twitches under my skin like this but my left fingers in my hand twitch sometimes when I hold them out in front of me and sometimes randomly when I am just laying them on the table or whatever I'm sooo freaked out I have something wrong with me... my parents don't believe there's anything wrong with me...
but I've had it for a few months now, it's freaking me out.
Meh. Mine has been going for over a week in my foot. My Aunt has ALS so it's freaking me out but I am caffeine addicted and it did start when I had no caffiene in my system for two days straight.
Deadjustice: If your aunt has ALS, then you know twitching occurs with presence of weakness (at least) or with atrophy. I know the feeling "Im gonna die" :(
what? just hold it above your head for awhile and dont think about it- its like the hiccups... except it makes me nauseous. and dont take any stimulants such as caffeine. ta dahhh.
Hey guys, I've had a twitch for two days straight. Originally I liked the feeling but it's wearing thin. Know an easy cure that's not magnesium tablets?
the only way your body can absorb a cheap drug store MAGNESIUM supplement is to put it into a half full cup of microwave hot water, wait for it to dissolve (not dissapear, this is the cheap stuff, you should buy the expensive kind) and drink it. take 3 or 4 if needed, or more depending on how magnesium deficient you are. just taking cheap magnesium supplements aint going to work unless maybe you dissolve them, chewing them up might help but water is best also take a GNC multivitamin and potassiu
hi, i feel for you...i really do. i've been twitching for the past 2 months(on and off but at least a few times everyday). it just started randomly one day, no sickness, nothing. i'm almost certain it is BFS but it's not enough for me to see a doctor yet bc i think they'll just shrug it off as anxiety. however, odd thing about me is I NEVER GET ANY TWITCHING IN MY FACE! not even once,ever! not even the eye, tongue, anywhere on my face.
Please do not worry mate, I have twitched for nearly four years and so far have no other symptoms. I sent myself crazy worrying and had to have treatment for stress. Very very very unlikely that you are ill, we all twitch.
Same story as me,most people are worried they have cancer or that every headache is a tumour.Until the internet i thought i was the only person weird enough on the planet to think my twitching was MND.But the memory of those 12 Months over 15 years ago we live with me forever,this young man must never let it go that far !
You know what can cause muscle atrophy? Apart from nerve damage? Being nervous and not sleeping and eating enough. You'll soon stop noticing it most of the time. I usually get it the same place lots of times during a period of days until it moves. Often several places on my body at once. If I count them, it can easily be tens of series in an hour. And other stuff, but it doesn't worry me even enough to see a doctor about it. If anything, it has bulked me up, not wasted my muscles.
Hi, Im still living, twitching is the same..probably I have nerve hyperirritability, after much chocolate I twitch more..Im twitching for 9 months now so Im not concerned about ALS so much..
Hi,I haven't been twitch-free since 1990. And this is no joke...I have it 4 to 5 times per minute (!!) and it began when I was 17, I am now 34 and nothing has changed.I did neurology tests,the doctor told me that the membranes of my muscles are too sensitive,but there is NOTHING that you can do unfortunately.You just have to learn to live with it.
Hello. I have this muscle twitches for almost a year. I had some kind of infection and after these twitches appeared. First they happened in my toe and some weeks after they widespread. Nowadays I have them in all muscles in my body and they are random and widespread too.
Like you I'm scared about some neurological problem but I had two clean emgs, one with 2 months and other after 8 months. The fasciculations appeared in the test but there were no other signs so the doctor said that they are benign. I'm still scared but I prefer to believe in BFS. Some things that help in my case are some supplements. I take chelated magnesium (600 MG) and E Vitamim (1000 MG) every day and during some hours the twitches go away.
My magnesium lavel in blood are normal and I don't know why magnesium helps, neither the doctor know. But it works. Maybe you can try and see if it works for you too.
Well, I twitch in my shoulders 20-30 per day. However, usually I can recruit twitching if I stretch my arms after resting - its almost sure way how to activate twitching. But then I got 3-10 twitches and its gone. I dont have non-stop twitching, fortunately. After 6 months I know its not ALS, but Im still scared a bit.
Most of the information on ALS sites seems outdated. If fasciculations are a part of ALS they should occur after atrophy has set in and in specific areas of the body (where atrophy has set in) and only there. Not all over the body.
I once read a peer-reviewed epidimiological survey saying that 6-7% of ALS patients has fasciculations as initial symptoms - but that is in atrophyed areas on not all over the body like yours.
Unfortunately, there are some exceptions and even docs dont know why. I know a girl (27) who had widespread twitches for 7 months, clean EMG and today she has ALS.
I hope so, I really do. I know after 5 months and in 22 years the chance to have ALS is almost zero. But the July 07 was the absolutely worst time in my life, full of anxiety, depression, despair and fear of death. And I still have dark days now..I wish I never heard of ALS
detdds: because I had clean EMG, that would be pretty rare (almost impossible with ALS) and I have if for more than 5 months. I twitch everywhere - back, shoulders, thigs..
In ALS twitching before atrophy is extremely rare and if so, those symptoms follow early.
I have had similar twitching of my thumb and several other areas. how did the neurologist assure you that it was benign. I also worry about worse things.
Mine (shown in the video) is gone now. Only after really hard tapping it appears for a few seconds. It was typical "hot spot", altough I have them pretty often in my shoulders.
my fasciculations started to get severe about 2 months ago all over my body
(mainly eyelids, but also arms, shoulder, back, tummy, legs and hands)
additionally I feel pain and strange sensitivness on my hands and arms, like stabbing pain. arround 1 and a half year ago, I started to have symptoms, mainly with my sight. I see flashes in the dark, and when I am sitting quiet and trying to fix on something, my sight moves like on a boat... and mostly dry eyes all time. Occulist couldnt find a.th.
PatagonianWarrior 11 months ago
@PatagonianWarrior part 2: also my bones make sounds all time when I move them since about 3 months...legs and arms feel weaker than they used to.
Its feeling like I am falling appart and dunno what might be the reason for it!
PatagonianWarrior 11 months ago
Hi,
I am still around, no weakness but I do have tongue twitches now and then. But as far as I know, I am not the only one. I get the same tongue twitches as shown on the video from some girl here on YT..
Regarding the twitching AFTER weakness, it is not always true.
Bliznacek 1 year ago
i get those all over my body atleast 3 a DAY
georgeannaclark 1 year ago
hey blizna how are you man ? :)
HylianFury 1 year ago
well, if it were als, the symptoms would be progressing very rapidly. also, many people twitch for simple reasons. a magnesium deficiency is a big culprit, and if u are and anxiety sufferer, you may tend to have spasms as well.
JennelleBelle 1 year ago
In ALS the twitching starts AFTER the musclues are already WEAK, i have this exact thing...its BFS
safarsafar1234 1 year ago
i can actually SEE my arteries B ounce up in my hand i think i still got to check with the dokter.first i tought it where fasciculations but they looked like going same as my heart beat in the middle of my hands .. i was freaking out. i can actually feel my heartbeat in my fingers and my fingers can actually move with my heartbeat so gonna go check that out first xD probably worse then my fasciculations. Ive walked for 5 days . so doubtfull its ALS ^^.
HylianFury 1 year ago
i also had a clean EMG. but when you read on the "internet" it seems alot of people with ALS do too. but they have muscle weakness. and athrophy. i on the other hand have tingling hands somethimes and feet. i got a pinched nerve from my hernia.
i am afraid its weird i do have alot of symptoms with people who have MS.
i somethimes to have weakness in my hand in my feet i wouldnt really know.
but it comes and go's more like not enough blood in my hands..
and tingling.
HylianFury 1 year ago
How old are you ?
I have been having fasciculations mainly in my calves and all over my body
but they are more rare in other places like lets say my arm sometimes it twitches 5 times somethimes only once it actually does move my arm. i tought my fasciculations where rare but i actually looked at my calfs and i noticed they where twitching without me feeling it somethimes. it freaked me out have been having fasciculations for 1 and a half years now.
No real weakness
HylianFury 1 year ago
Good to hear you are well
TheLeutrimExperience 1 year ago
This is exactly what I have. It started out in a bunch of different places, and a lot in my toe, but then that completed stopped. That was 5 months ago and last week it started up in my thumb..it's almost constant and driving me insane!
allisonc7770 1 year ago
sometimes when i rub my palms they twitch like that but i have become addicted and my hands are so sore now =(
XxIceSkaterLauraxX 1 year ago
LOL! I can definately identify with you! my thumb does the same thing!
burger414 2 years ago 5
Do you take benzos? Benzo withdrawal syndrome (BWS) causes this type of twitching, even if you are still taking benzos due to tolerance. I have the same exact symptom and I'm withdrawing from Diazepam. It's no fun but it resolves after time away from the drug.
xen0nflash 2 years ago
I have exactly what you have, on top of that I have twitches on my little finger which basically causes the whole finger to twitch as well as twitches on my calf and thighs.
I've consulted a neurologist, and there's nothing wrong with my brain. I've got it down to Magnesium Deficiency, because on top of this twitch, I also get migraines, feel tired and a touch of stress.
reginashwartz 2 years ago
i get these on my thumb, shoulder, and around my elbow...and once around my eye... its wierd....im only 16 and i get em everyone like.. 2 months for like.. a whole week straight...what is it?? or what can it be??
rauleezy2 2 years ago
do you think, in some cases where there is no pain involved,. that a possible liver or kidney malfunction could be the reason?
akuma4u 2 years ago
Comment removed
akuma4u 2 years ago
i have this all over my body,. i have no idea why its happening,. i think maybe its from benzo withdrawal but im not sure. Docs think it may be from a nutrient deficiency but all my nutrients are fine. The docs dont even know what this is called, one doc says fascilitations, another will say muscle spasms, another will say twitching, another will say vibrations. Im worried and scared and want this to stop!
akuma4u 2 years ago
That's all the same.fascilitations,muscle spasms, twitching,vibrations
DeathUponLovers 2 years ago
a lot of places on the internet say that muscle spasms differ from twitching and twitching differs from vibrations etc.. some are painful and involuntary, some are painless and voluntary, etc..
akuma4u 2 years ago
basically all your doctors are referring to the same thing, there are a few common names for this. If you get these twitches alot, then you more than likely have what I have which is Benign Fasiculation Syndrome, but don't worry because it is pretty much harmless, just really annoying. Basically your brain sends random messages to your motor neurons and they fire off at random.
Trainzvideo 2 years ago
This stuff can make you go mad! I've had fasics all over my body now for nearly four years. I'm sore and have difficulty running, but other than that...I'm fine. Neurologists find nothing. Horrible at first b/c you think you have ALS and you start preparing for the end.
stuart1097 2 years ago
I know. I get them.... about every half hour. Usually it only jumps once. Once in a blue moon, it will either pulsate so fast that it's like a vibration, or sometimes it's jsut like 1 time per second. The only annoying part to get them at is the neck.
DestroyAndVoid18 2 years ago
Mine occasionly twitch very violently in my neck. On the left. And this is no lie, my chest area, around the heart spazzed out. I 'm really concerned about how severe they might get.
AyumitheDemonWolf 2 years ago
Neck? Me too...
Chest? Me too...
I remember the worst time I had them. I was taking a standardized that we were taking for the whole week. And one day of this test, for the whole time, my chest did this pattern:
Bump once
Vibrate
Wait ten seconds
bump once
vibrate
wait ten seconds
It was cool but annoying. When I was done, I looked through the neck whole of my shirt and watched it. SO FRIGGIN AWESOME! But it was getting annoying... Wow this is a long comment so I will shut up now.
DestroyAndVoid18 2 years ago
Uhhh no. They hurt like crap. And crap hurts..
DestroyAndVoid18 2 years ago
Do any of you exercise with this problem exercise or eat a healthy diet? I had fasiculations all over my body and they got to be quite annoying, I changed my diet and started running and lifting weights and they have virtually gone away, I still get the occasional one but not as intense and often.
mattse2003 2 years ago
Cool! Does it feel cool?
DestroyAndVoid18 2 years ago
I just came across your video and have the same problem as you (random, involuntary twitching of the left thumb and/or index finger), as well as fasciculations throughout various other parts of my body. I've seen a neurologist and have been cleared of any serious neurodegenerative disorder. Even so, the fasciculations persist. I'm curious as to how you're coping with this matter?
veejee777 2 years ago
Are you taking anything? I'm taking Lyrica which is an anti-consulsive medicine.I had serious twitching in the legs which made me weak. The twiching has spread but is less intense. I have a hard time swallowing sometimes and I have nerve pain in my forarms and upper legs. I have hard time focusing with my eyes. However my muscles are getting stronger and I'm lifting weights again after 10 months of having this problem. Anyone taking anything?
bodybuilder26us 3 years ago
do you get like small twicthes that move your legs? because I've been getting that for a few days now
ChaosTheory909 3 years ago
only twitching within the muscle. mine may be related to anxiety and stress. the body can take so much.
bodybuilder26us 3 years ago
I have myotonia, and most likely myotonic dystrophy because I have atrophy too. And I twitch. Doctor thought ALS at first, but with the myotonia, not so much. Myotonia causes muscles to tighten and not relax immediately.
Bliznacek, ask the doctor to use the little rubber hammer thingy (or you can do it to yourself with a blunt object) and tap it on the same muscles you rubbed in the video. If your thumb tightens up and moves toward your palm, and those muscles contract, it might be myotonia.
shawniemar 3 years ago
it happens to me in the same spots, like somethings in my skin.
mist12345678910 3 years ago
Hi,
thanks, Im well. Just had second EMG- clean. So no way it is ALS...but Im still anxious..I need to treat anxiety seriously
Bliznacek 3 years ago
omg I don't have muscle twitches under my skin like this but my left fingers in my hand twitch sometimes when I hold them out in front of me and sometimes randomly when I am just laying them on the table or whatever I'm sooo freaked out I have something wrong with me... my parents don't believe there's anything wrong with me...
but I've had it for a few months now, it's freaking me out.
sanctionedangel 3 years ago
i mean teh fingers in my left hand
sanctionedangel 3 years ago
Meh. Mine has been going for over a week in my foot. My Aunt has ALS so it's freaking me out but I am caffeine addicted and it did start when I had no caffiene in my system for two days straight.
Deadjustice1 3 years ago
Deadjustice: If your aunt has ALS, then you know twitching occurs with presence of weakness (at least) or with atrophy. I know the feeling "Im gonna die" :(
Bliznacek 3 years ago
what? just hold it above your head for awhile and dont think about it- its like the hiccups... except it makes me nauseous. and dont take any stimulants such as caffeine. ta dahhh.
ladyxeona 3 years ago
Hey guys, I've had a twitch for two days straight. Originally I liked the feeling but it's wearing thin. Know an easy cure that's not magnesium tablets?
Deadjustice1 3 years ago
my lip muscle twitching oooh i just hate the feeling.
tigress3000 3 years ago
the only way your body can absorb a cheap drug store MAGNESIUM supplement is to put it into a half full cup of microwave hot water, wait for it to dissolve (not dissapear, this is the cheap stuff, you should buy the expensive kind) and drink it. take 3 or 4 if needed, or more depending on how magnesium deficient you are. just taking cheap magnesium supplements aint going to work unless maybe you dissolve them, chewing them up might help but water is best also take a GNC multivitamin and potassiu
datacomputation 3 years ago
how long did it last for you? Was it 24/7?
jeje6868 3 years ago
man i hate twitching, it feels like there is something underneath my skin like a little worm or something
CaptTapSumBong 3 years ago 5
yea me too, i thought a worm got inside my skin. sometimes its on my eye lids.
Yo0T0oB 3 years ago
Don't see me as wierd, but I sort of like the muscle twitching. I find it relaxing.
Deadjustice1 3 years ago
hi, i feel for you...i really do. i've been twitching for the past 2 months(on and off but at least a few times everyday). it just started randomly one day, no sickness, nothing. i'm almost certain it is BFS but it's not enough for me to see a doctor yet bc i think they'll just shrug it off as anxiety. however, odd thing about me is I NEVER GET ANY TWITCHING IN MY FACE! not even once,ever! not even the eye, tongue, anywhere on my face.
shaman642 3 years ago
If you had ALS, your EMG would've been dirty before you noticed twitching.
controldenied33 3 years ago
Please do not worry mate, I have twitched for nearly four years and so far have no other symptoms. I sent myself crazy worrying and had to have treatment for stress. Very very very unlikely that you are ill, we all twitch.
Nibster213 3 years ago
Same story as me,most people are worried they have cancer or that every headache is a tumour.Until the internet i thought i was the only person weird enough on the planet to think my twitching was MND.But the memory of those 12 Months over 15 years ago we live with me forever,this young man must never let it go that far !
kerfuddle 3 years ago
You know what can cause muscle atrophy? Apart from nerve damage? Being nervous and not sleeping and eating enough. You'll soon stop noticing it most of the time. I usually get it the same place lots of times during a period of days until it moves. Often several places on my body at once. If I count them, it can easily be tens of series in an hour. And other stuff, but it doesn't worry me even enough to see a doctor about it. If anything, it has bulked me up, not wasted my muscles.
Reproductivist 3 years ago
Hi, Im still living, twitching is the same..probably I have nerve hyperirritability, after much chocolate I twitch more..Im twitching for 9 months now so Im not concerned about ALS so much..
Bliznacek 3 years ago
How is the twitching going? Have found any reason for it?
detdds 3 years ago
no idea
i can't sleep because of it i think
sketch519 3 years ago
i have the twitching first on my left foot and now it spreaded to my right foot, stomach, arm, thigh and my legs
i feel like something is seriously wrong with my health, i went to the doctor but he said it was nothing to worry about
i don't believe him
this twitching is hell..
sketch519 3 years ago
its prolly just BFS
Bowtome09 3 years ago
Part1:
Hi,I haven't been twitch-free since 1990. And this is no joke...I have it 4 to 5 times per minute (!!) and it began when I was 17, I am now 34 and nothing has changed.I did neurology tests,the doctor told me that the membranes of my muscles are too sensitive,but there is NOTHING that you can do unfortunately.You just have to learn to live with it.
Lene1973a 4 years ago
Hello. I have this muscle twitches for almost a year. I had some kind of infection and after these twitches appeared. First they happened in my toe and some weeks after they widespread. Nowadays I have them in all muscles in my body and they are random and widespread too.
rogeriopaguilar 4 years ago
Like you I'm scared about some neurological problem but I had two clean emgs, one with 2 months and other after 8 months. The fasciculations appeared in the test but there were no other signs so the doctor said that they are benign. I'm still scared but I prefer to believe in BFS. Some things that help in my case are some supplements. I take chelated magnesium (600 MG) and E Vitamim (1000 MG) every day and during some hours the twitches go away.
rogeriopaguilar 4 years ago
My magnesium lavel in blood are normal and I don't know why magnesium helps, neither the doctor know. But it works. Maybe you can try and see if it works for you too.
I hope you feel better.
Bye.
rogeriopaguilar 4 years ago
How often do you have twitching in shoulders? I have a twitch somewhere everyday. I have soreness in my right shoulder and more twitches there.
detdds 4 years ago
Well, I twitch in my shoulders 20-30 per day. However, usually I can recruit twitching if I stretch my arms after resting - its almost sure way how to activate twitching. But then I got 3-10 twitches and its gone. I dont have non-stop twitching, fortunately. After 6 months I know its not ALS, but Im still scared a bit.
Bliznacek 4 years ago
i twitch a hell of a lot too, the exact same as you, bout 6 moths now after a particularly bad spell of anxiety and depression.
i was also worried about MND and also tumours. how you getting on now?
marcwilliamUK 3 years ago
Most of the information on ALS sites seems outdated. If fasciculations are a part of ALS they should occur after atrophy has set in and in specific areas of the body (where atrophy has set in) and only there. Not all over the body.
I once read a peer-reviewed epidimiological survey saying that 6-7% of ALS patients has fasciculations as initial symptoms - but that is in atrophyed areas on not all over the body like yours.
AMNielsen 4 years ago
Unfortunately, there are some exceptions and even docs dont know why. I know a girl (27) who had widespread twitches for 7 months, clean EMG and today she has ALS.
Bliznacek 4 years ago
BFS - classic
AMNielsen 4 years ago
I hope so, I really do. I know after 5 months and in 22 years the chance to have ALS is almost zero. But the July 07 was the absolutely worst time in my life, full of anxiety, depression, despair and fear of death. And I still have dark days now..I wish I never heard of ALS
Bliznacek 4 years ago
The reply was meant for you but I guess its posted as a general comment by now
AMNielsen 4 years ago
detdds: because I had clean EMG, that would be pretty rare (almost impossible with ALS) and I have if for more than 5 months. I twitch everywhere - back, shoulders, thigs..
In ALS twitching before atrophy is extremely rare and if so, those symptoms follow early.
Bliznacek 4 years ago
I have had similar twitching of my thumb and several other areas. how did the neurologist assure you that it was benign. I also worry about worse things.
detdds 4 years ago
Mine (shown in the video) is gone now. Only after really hard tapping it appears for a few seconds. It was typical "hot spot", altough I have them pretty often in my shoulders.
Bliznacek 4 years ago
at the moment, it happens to me between my thumb and my index finger..
fazillah78 4 years ago
Happening to me as I type.
AlucardZero 4 years ago