How I was diagnosed with Klinefelter's syndrome

[XXYSexChromosomes]

That's weird YouTube, this video in a search has 200 or so more views than the video itself is displaying, why is that? Are the YouTube staff very strange? Yes they are!

[thrashdouche21]

caroline cossey had xxxy type

[XXYforLIFE]

@thrashdouche21 I don't think so, even if she says so. XXXY's are mentally retarded.

[morued]

Have a question? I may be the early sexual impotence, I am healthy and do a lot of exercise of it, do not eat flour or sodas but .. I read that the XXY KS, suffer from impotence at an early age ... I hope that testosterone therapy I remove all the symptoms: according to the books will suffer ... very thanks friend ......

[XXY4Life1]

@morued Sexual dysfunction ought to be a problem for men with KS, it is hypogonadism after all - that is low testosterone. So in theory if you're getting the right level of testosterone sexual dysfunction ought not occur, but then again XXY guys can have all sorts of psychological problems, which may not be resolved by testosterone therapy. If I told you all your problems would be solved with T therapy and they weren't you'd not be very happy with me. Wait and see what happens.

[morued]

many thanks, you have comforted me very well .. if I'm single and I will marry soon, so three years ago I talked with my girlfriend and she accepted, was happy, because she did not want children, but deep down I know she'll want children someday, so why now that she is happy, says he may never padesca that cysts in her womb, because of the pills, or maybe never be claimed to condoms he he he he ...

[morued]

and the endocrinologist told me that I am sterile, my testicles are very small, I am hairless, I never had a mustache, and I have my pear shaped body, although I do plenty of exercise, I have a tendency to have the body of lady. the truth, I have all the features of a ks xxy, I never had given the task of researching, until about a month ago that I started getting more on the subject, and I really feel very bad. thanks for your advice, I wish to be in communication with you. Success!

[XXY4Life1]

@morued I told my Endocrinologist I was sterile, I told him I found no sperm and he described that in a letter as "azoospermia." One you know for sure then you know how to proceed, but if you're single and know you're infertile it's a bit of a worry, I found, finding a partner. Not for many years did I discover many women prefer sex with sterile men, they never have to use birth control, that's a bonus. :) I have a typical male body shape and what I regard as normal testosterone levels.

[morued]

is true, I have my testosterone very low, and before I was in therapy, but stopped, now I'm back to injecting it, I do not have sperm, when I attended high school, we made​a semen samples, and was the only the set of boy showed no sperm, it is more, my semen volume was very low, very low average, the 23 years I went back to do other semen samples,

[XXY4Life1]

@morued I tried to lower my testosterone intake by stretching out the time between injections, but that failed, I found I was suffering from impotence at 10 day intervals. I've now gone back to weekly intervals and dropped from 125mgs to 100mgs, and changed the site of the injection to my thigh instead of my buttock. I'm constantly interested in sex, just the way I like to be. I understand men are usually constantly interested in sex. :)

[morued]

tengo tantas ganas d llorar y no puedo, y de hablar con alguien pero no puedo, yo soy xxy y me siento muy mal, mis padres no me quisieron poner hormonas de niños, no se por que carajo, y ahora quiero tener hijos y no puedo, me siento muy muy muy deprimido, todo me causa depresión, y aunque, deseo morirme, aqui en mexico no hay ninguna ayuda para esto, no conozco a nadie, que tenga el mismo problema....

[XXY4Life1]

@morued So this is Spanish? You might have sperm if you have the cash for ICSI? About 50% of men with Klinefelter's have some sperm either in their ejaculate or inside their testes. You need to see a fertility specialist. As for depression, even if you were successful with ICSI you might still be depressed, you need to see a psychiatrist for that. If you don't have hormone therapy low testosterone might be the cause or your depression? You need to see an endocrinologist for that.

[XXY4Life1]

@morued Así que este es el español? Es posible que haya esperma si usted tiene el dinero para la ICSI? Alrededor del 50% de los hombres con KS tienen cierta cantidad de espermatozoides, ya sea en el eyaculado o en el interior de sus testículos. En cuanto a la depresión, incluso si tuvieron éxito con ICSI todavía podría estar deprimido, usted necesita ver a un psiquiatra para que. La testosterona baja puede ser la causa o la depresión? Usted necesita ver a un endocrinólogo para que.

[XXY4Life1]

@morued Conocer a otros hombres con el síndrome de Klinefelter no hará nada para ayudar, esa es mi experiencia. Los hombres con KS necesita ayuda profesional si tienen necesidades como los otros hombres con KS sólo pueden compartir experiencias que no pueden estar en cualquier uso.

[MrPmMan]

I have Klinefelters Syndrome. I have been taking testosterone since I was 21 yrs old . I am now 46.

[XXY4Life1]

@MrPmMan I'm treated for Klinefelter's syndrome, but I don't have any features, kind of be a waste of time being treated if I did. :) I'm now in my 35fth year of therapy.

[CallMe1967]

Hi

I am 44yrs old I have been diagnosed with klinefelter Syndrome since 1996, in the Uk no one wants to know about it. my own doctor just says have a sex change it is far better. If you wish to make contact send me a message.

Liam

[XXY4Life1]

@CallMe1967 Your doctors an idiot. Check out XXYTALK (dot) COM and KSA-UK. I never had a sex change and I'm doing just fine thanks! LOL

[e1pbsed]

@CallMe1967

i too have KS xxy are you going to the KSA Confrence this year in York?

i will hope fully be attending you will find good 

[XXY4Life1]

@e1pbsed No, l I will never again attend another Klinefelter's or XXY conference. Personally I don't see the point. I am probably the most educated XXY guy on the planet on XXY/Klinefelter's issues. There isn't really anything anybody else can teach me.

[WhingerST]

keep it up man;)

[1truebloodloveable]

Thank you so much for sharing your life experience. I am 48 and about to give birth to a son who has already been diagnosed as being xxy. I'm glad you posted this and I will check it out from time to time.

[XXY4Life1]

@1truebloodloveable Why have I never seen this comment? :) So your son is 6 months old now, how are things going, as expected?

[Doktoru2007]

Sorry for bothering you but I want to ask you something: I have some of the simpoms of Klinefelter sydrome, but I'm also only 5 foot 8 (my dad is 5 foot 6 and my mom is 5 foot 2) and started balding when I was about 20(now I'm 24).Do you think it's possible i have Klinefelter syndrome? Thank you and have a nice day.

[XXY4Life1]

@Doktoru2007 Well I'm 5'8" so height is certainly no barrier from my perspective.

[XXY4Life1]

@TerminalSulcus Oh gee you can comment any time, you can be on my friends list for life. :) So what field are you likely to specialise in?

[XXY4Life1]

@TerminalSulcus I have? Thank you, you're welcome too. :)

[razieltwiggy]

Thanks for sharing this.

[XXY4Life1]

@razieltwiggy You're welcome.  :)