Julie, Bailey, & Dakota Bihn on that's life w/Robin Swoboda

[GCCCP]

i know u tried everything, but gene therapy has improved a lot have you tried to sing up for the gene therapy, i know its still in the first stages but it might help

[ellieorchid]

thats my baby cousin. ilove her to bits thanks to everyone supporting her

[icango6hrs]

she does'nt have a smile that lights up a room,she has a smile that lights up the world and warms stranger's hearts.take care and hold on.xoxo

[vorama1]

my thoughts are with you all.

[DakotasDream]

Thank you so much!

[RachellikeRawr69]

:)

My little brother turned four in june and he has tay-sachs, bailey is actually a little bit younger than me and we have been talking by mail and my grandpa is talking to bailey and dakota's father.

And let me tell you...tay-sachs is terrible!

you really never know what is important in life or hard in life untill you have your little brother/sister having an uncurable desiese like tay-sachs :(

[DakotasDream]

We are so sorry to hear that. Really sorry for you. Enjoy all the time you have been blessed to have. Our hearts really do go out to you.

[Alienchick1]

Oh yeah I forgot.

Julie I have a very rare syndrome too Called PHACES, your little girl is so sweet and her smile made my day.

If there is anything I can do here in New Zealand let me know.

[DakotasDream]

Please visit our web site, there is much you can do to help.

Our site address is on our channel's main page. We are sorry for you and sympathize with you and your situation. Thanks for stopping by.

[Alienchick1]

Way to go Dakota

[DakotasDream]

Thank you! Have a great day!

[WiddieWiddie]

I can't not smile when I see her smile!

[DakotasDream]

Thank you! Her smile is contagious.

[appelsauseboy123]

mikala is my littel sister

[DakotasDream]

Hello Mikala's brother! =)

[WiddieWiddie]

God bless Dakota Bihn and let her have a happy and great life. Dakota is such a beautiful and brave little girl she deserves the best.

[DakotasDream]

Thank you.

[manders452]

What a beautiful little girl!! God Bless!!

[AcidEntertainment]

Keep raising awareness! And you're right, Dakota has a smile that lights up the room. Julie, you speak so well in this video and did a great job expressing your story.