It was not in vain! I have gaucher disease and I'm am 27 years old. I have been getting treatments since I was eight. Now that I am older my veins are wearing out and I am now facing a port. I have been so scared and depresses lately. I thought I would get used to it. Anyways after watching this video and lil baby hannahs I feel different. I thought I lost my fight but these children have brought it back! I'm going to continue to fight for the and my family as well. One day we will fin
:*( one of the most heart breaken stories i have seen, its hard losing a baby but its truely harder losing a child youve had more time to spend with this i know, my heart goes out to you and your family
this breaks my heart as i am struggling to fight for complete custody of my daughter (i am custodial parent however) and these may be two separate issues, but i'm so scared one day to end up in a position of burying my child at such a young age, i can't imagine your pain, and i know my tears couldn't amount to yours, and with that being said, i'll keep this family in my prayers ... such ahorrible loss...
i'm crying so hard right now, i've lost many in my life, but nothing that could compare to losing a child... i'm sorry for your loss, be strong, he's waiting and watching!
You will meet your son again, in heaven. This world is temporary, its the hereafter that's forever. Be happy he is waiting for you and you will reunite - this time for keeps.
wow,that was painful to watch.but reminder of all important people in your life,and to appreciate the time you have with them.and even those who you might never know,but may have suffered the same loss.love and light..beautiful little boy. :)
This made me cry so much. He is resting in God's arms now and I am truly sorry for your loss. But, thank you for sharing this with me and the rest of the world, this story will forever be in my heart. :) God just missed his beautiful angel and wanted to give him his wings back:) I hope all is well for your family and all of you including Alex will be in my prayers. Even though Alex surely doesn't need them where he is.:)
It is hard as an outsider to convey the depth of my sympathy for your family's loss, but I do feel it. It brings me back to singular moments in my life when I lost cherished family members: my own sister, a beautiful young cousin, and others - each singular and special people who touched many hearts. Sometimes I think that the most important events in life are - the making of a new friend , and friends we must say good-bye to. It is the mystery of life.
i'm sorry for your loss.. i also loss my daughter last month due to cardiac arrest and trisomy 18. i'm truly sorry. your son and my daughter are angels
@drewelhvac i am so sorry for ur loss your story tore my heart to pieces u are an amazing woman may you angel rest in peace and be watching over his beautiful sister and family my thoughts are with you xx
I stumbled upon this today and it was absolutley heart wrenching. As a father of three, I cannot even begin to comprehend your loss and I know it will be with you each day. I just pray you can find peace as a family and pull through because your son would want it that way. We have to believe he is happy and watching over you now.
@drewelhvac aww hunny im so sorry for your loss. my heart breaks for you. ive miscarried 2 times. my most recent was on 12-13-2011. i hope that God brings you peace and i know that your son is watching over u and your family.
That is the greatest tribute you could possibly give to your son. Thank you for sharing it with us and I'm sure Alex is running around with his uncle Russ laughing and playing waiting for all of us to be reunited one day. Thank you sis for being you, you are an inspiration to me and I will hug and kiss my daughters a little more tonight. I love you.
Oh Mama.... God bless you. I hope you find some comfort in knowing that this life is short .... and you will soon enough be with your darling little boy. In the meantime.... I'm praying that God touches you with a love that you can FEEL and that you find strength to go on and enjoy your beautiful family. ((((HUGS))))
What a beautiful video to honor your darling. I have a 27 yr old son who is my life. Stay strong darling...I can't even imagine your pain. This just breaks my heart! I know that he is being cradled in God loving arms right now.
Wow you are a strong woman..................I have a daughter and a son and I just could not imagine your pain..........God bless you and your beautiful family
Oh Honey you did everything you could! It was not your fault. I cannot say I understand exactly what you are going through because I am not a mother but I do know the pain of grief. We cannot bring our loved ones back, we can make sure our hearts are prepared so we can meet those we love that die in the Lord. He is not dead he is only sleeping. Earth hath no sorrow that Heaven can't heal. When you are reunited the hurt will be no more. Until then you are in my prayers. U r a go a good mom!
I read your description and my heart breaks for you at the loss of your son. Such tragedies are hard to overcome. The video was beautiful. It really captured your hearts and your emotions. NILMDTS is such a wonderful organization. I pray that you find strength in the Lord..."May the God of hope fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit. Romans 15:13."
OMG lady,I am so very heart broken over your loss,I may seem to be very rough on the outside and people view me as billy badass because I trained with the SEAL team,but children are naturally drawn to me they seem to find a way into my heart, but my heart is broken now and even while i'm typing this I am in tears. Children are the best joy life has to offer. The last time I cried was at my little brothers furneral when he was murdered .
i am sooo unbelievably sorry for ur loss of ur son. my heart breaks for u all. i have a 5 yr old and i cannot even imagine the pain of how much it would hurt to lose any of my kids. i had a miscarriage in dec 08 and that pain was unbearable to me. please fly high sweet angel we are thinkin of u...
One of the hardest things I've ever had to do as a friend was watching helplessly, as these pictures unfolded in front of me. Oh, how I wish I could take away the pain, what I wouldn't do to bring him back again. For such a little man, he sure does take up a HUGE place in my heart. I MISS YOU ALEX! I can't wait to hear you say "Stacy" again, with that big smile and bright eyes! I love you little buddy, and I love you April!
@305lamala thank you for your kind words, yes he was still alive, but we had just recieved the devestating news that he was brain dead, and so they called in the "Now I Lay Me Down to Sleep" Photographer to record our last hours with him...thank you again...Alex's Family
I am so deeply saddened by your loss. Thank you for sharing your son through this beautiful tribute. I too unexpectidly loss my son on Sept 11, 2008. From one gieving mother to another, my pain and tears are shared with you. In loving rememberance of your angel, my angel, and all of our sweet children that left this Earth to soon. Donita, Mom to Jason Sanchez 4-2-97*9-11--08 w w w .jasonsanchez.virtual-memorials . com
I am so, so sorry. I hurt so much for you and your family, and I was brought to my knees with this video. We almost lost our baby boy, but we were lucky enough to eventually be able to take him home from the hospital. I thank God every day for that. Please know that you will see Alex again. You will be together again one day. I am so sorry and cry as I type...but all this will be over one day, and you WILL all be together again.
I came across your video and I wanted to tell you how sorry I am for your loss, but how happy I am for the wonderful moments that you did get to spend. I have a 2 year old little boy and I am grateful for every day that I have with him. Again I am so sorry and I hope nothing but blessings on your family.
Your video made me cry too; it's so touching. I have two kids with Citrullinemia, an urea cycle disorder. I pray every day that I don't have to let them go...I am certain you think of your little angel each day.
I am lost with words:-(
toddwills 3 days ago
what a beautiful memorial video you have made for Alex. Brightest Blessings to you and your family.
blessedmommy73 1 week ago
It was not in vain! I have gaucher disease and I'm am 27 years old. I have been getting treatments since I was eight. Now that I am older my veins are wearing out and I am now facing a port. I have been so scared and depresses lately. I thought I would get used to it. Anyways after watching this video and lil baby hannahs I feel different. I thought I lost my fight but these children have brought it back! I'm going to continue to fight for the and my family as well. One day we will fin
orderedbullet 1 month ago
Thank you so much for sharing your precious video. It had to be so hard for you and your family.
blacksatire2002 2 months ago
;'( I miss you Megan! My tiny baby sister, died the night before her first birthday.
Megan: 26th November 2006-25th November 2007 :'(
BonJoviLoverLASHY 2 months ago
I am so sorry. I cant comprehend how much pain this took to get through. I am soo sorry.
UnicornsRawr123 2 months ago
oh god sat here in floods of tears , im so truly sorry for the loss, you can see the love there xxxxx
davethephotoman 3 months ago
god bless u alex everyone loves u!! he inspires me
dance90x 3 months ago
:*( one of the most heart breaken stories i have seen, its hard losing a baby but its truely harder losing a child youve had more time to spend with this i know, my heart goes out to you and your family
samanthaadamsterry 3 months ago
this breaks my heart as i am struggling to fight for complete custody of my daughter (i am custodial parent however) and these may be two separate issues, but i'm so scared one day to end up in a position of burying my child at such a young age, i can't imagine your pain, and i know my tears couldn't amount to yours, and with that being said, i'll keep this family in my prayers ... such ahorrible loss...
kbsdotcom 3 months ago
i'm crying so hard right now, i've lost many in my life, but nothing that could compare to losing a child... i'm sorry for your loss, be strong, he's waiting and watching!
~jessica
phoenix1988jlp 4 months ago
You will meet your son again, in heaven. This world is temporary, its the hereafter that's forever. Be happy he is waiting for you and you will reunite - this time for keeps.
Fatalloo 4 months ago
OMG this is so heartbreaking. I can't even imagine, God Bless you Mama and help you through the long days....
rygysmom 4 months ago
I am very sorry. He's such a lovely angel.
Phuong46able 5 months ago
So sorry for your loss, he will be forever in your heart. God needed another Angel, one day you will met again. be strong, God Bless
antoinetteroutledge 5 months ago
soooo sorry for your loss
loveotto1 6 months ago
wow,that was painful to watch.but reminder of all important people in your life,and to appreciate the time you have with them.and even those who you might never know,but may have suffered the same loss.love and light..beautiful little boy. :)
Riv3rQu33n 6 months ago
This made me cry so much. He is resting in God's arms now and I am truly sorry for your loss. But, thank you for sharing this with me and the rest of the world, this story will forever be in my heart. :) God just missed his beautiful angel and wanted to give him his wings back:) I hope all is well for your family and all of you including Alex will be in my prayers. Even though Alex surely doesn't need them where he is.:)
gottegirl10 7 months ago 3
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Bless Him...He can never be lost to you.
poetsoul5 7 months ago
Bless Him...He can neverbe lost to you.
poetsoul5 7 months ago
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Maybe its for the best... God called him home :) Immanuel!
slasherz1000 7 months ago
Maybe its for the best... God called him home :)
slasherz1000 7 months ago
It is hard as an outsider to convey the depth of my sympathy for your family's loss, but I do feel it. It brings me back to singular moments in my life when I lost cherished family members: my own sister, a beautiful young cousin, and others - each singular and special people who touched many hearts. Sometimes I think that the most important events in life are - the making of a new friend , and friends we must say good-bye to. It is the mystery of life.
bearvarine 9 months ago
Alex is beautiful and so is his family!! Happy Belated Birthday in Heaven Alex!!
malcolmsnake 9 months ago
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Thank you for sharing your beautiful boy with the world. I know the hurt never stops, but pray that peace will increase. (God bless NILMDTS!)
TheWigleFamily 9 months ago
Thank you for sharing your beautiful boy with the world. I know the hurt never stops, but pray that peace will increase.
(God bless NILMDTS!)
TheWigleFamily 9 months ago
so sad.. sorry
KekeTaylorful 10 months ago
Alex, Its your 7th Birthday today and the tears are as always, never ending. I miss you so much.....
I will love you forever,
love,
Mommy
drewelhvac 10 months ago 15
@drewelhvac
I know the hurt never goes away, I pray peace will grow over the years. Thank you for sharing your beautiful boy with the world.
TheWigleFamily 9 months ago
i'm sorry for your loss.. i also loss my daughter last month due to cardiac arrest and trisomy 18. i'm truly sorry. your son and my daughter are angels
annetarayful 7 months ago
@drewelhvac i am so sorry for ur loss your story tore my heart to pieces u are an amazing woman may you angel rest in peace and be watching over his beautiful sister and family my thoughts are with you xx
1982kristylee 5 months ago
@drewelhvac
I stumbled upon this today and it was absolutley heart wrenching. As a father of three, I cannot even begin to comprehend your loss and I know it will be with you each day. I just pray you can find peace as a family and pull through because your son would want it that way. We have to believe he is happy and watching over you now.
vanimull 3 months ago
@drewelhvac I'm so sorry. "I miss you little man and mommy is so sorry i couldnt save you..." It's not your fault....he knows that. :(
eve6grl02 2 months ago
@drewelhvac aww hunny im so sorry for your loss. my heart breaks for you. ive miscarried 2 times. my most recent was on 12-13-2011. i hope that God brings you peace and i know that your son is watching over u and your family.
jjac31456287 2 months ago
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I agree with all these comments
sek17514 11 months ago
That is the greatest tribute you could possibly give to your son. Thank you for sharing it with us and I'm sure Alex is running around with his uncle Russ laughing and playing waiting for all of us to be reunited one day. Thank you sis for being you, you are an inspiration to me and I will hug and kiss my daughters a little more tonight. I love you.
Doug
dougwinomaha 11 months ago
Oh Mama.... God bless you. I hope you find some comfort in knowing that this life is short .... and you will soon enough be with your darling little boy. In the meantime.... I'm praying that God touches you with a love that you can FEEL and that you find strength to go on and enjoy your beautiful family. ((((HUGS))))
shellakers 11 months ago
I am so sorry for your loss. My six week son has OTC, urea cycle and it is the most painful thing ever.
meeper80 1 year ago
What a beautiful video to honor your darling. I have a 27 yr old son who is my life. Stay strong darling...I can't even imagine your pain. This just breaks my heart! I know that he is being cradled in God loving arms right now.
rygysmom 1 year ago
Wow you are a strong woman..................I have a daughter and a son and I just could not imagine your pain..........God bless you and your beautiful family
shannonm1 1 year ago
Oh Honey you did everything you could! It was not your fault. I cannot say I understand exactly what you are going through because I am not a mother but I do know the pain of grief. We cannot bring our loved ones back, we can make sure our hearts are prepared so we can meet those we love that die in the Lord. He is not dead he is only sleeping. Earth hath no sorrow that Heaven can't heal. When you are reunited the hurt will be no more. Until then you are in my prayers. U r a go a good mom!
bullycatmom 1 year ago
Oh my God,,i cant stop to cry,,,,,,,,,,,God bless your family,,,
joore44 1 year ago
I read your description and my heart breaks for you at the loss of your son. Such tragedies are hard to overcome. The video was beautiful. It really captured your hearts and your emotions. NILMDTS is such a wonderful organization. I pray that you find strength in the Lord..."May the God of hope fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit. Romans 15:13."
hdhart85 1 year ago
Your son was beautiful. May he dance with the angels.
Foolishheart12123 1 year ago
Dear Alex's Family,
I am so absolutely sorry for your loss. Just seeing these pictures brought me to tears. I can't imagine how you must have felt that day.
FlutterbaiDestiny 1 year ago
OMG lady,I am so very heart broken over your loss,I may seem to be very rough on the outside and people view me as billy badass because I trained with the SEAL team,but children are naturally drawn to me they seem to find a way into my heart, but my heart is broken now and even while i'm typing this I am in tears. Children are the best joy life has to offer. The last time I cried was at my little brothers furneral when he was murdered .
hawk1buster 1 year ago
sad and beautiful. thanks for sharing
Amanda2336 1 year ago
i am sooo unbelievably sorry for ur loss of ur son. my heart breaks for u all. i have a 5 yr old and i cannot even imagine the pain of how much it would hurt to lose any of my kids. i had a miscarriage in dec 08 and that pain was unbearable to me. please fly high sweet angel we are thinkin of u...
jjac31456287 1 year ago
One of the hardest things I've ever had to do as a friend was watching helplessly, as these pictures unfolded in front of me. Oh, how I wish I could take away the pain, what I wouldn't do to bring him back again. For such a little man, he sure does take up a HUGE place in my heart. I MISS YOU ALEX! I can't wait to hear you say "Stacy" again, with that big smile and bright eyes! I love you little buddy, and I love you April!
bashful1269 1 year ago
so beautiful, so sorrowful.
thanks for sharing this wonderful moments with us.
was your son still alive when this pictures where taken?
(:
305lamala 1 year ago 2
@305lamala thank you for your kind words, yes he was still alive, but we had just recieved the devestating news that he was brain dead, and so they called in the "Now I Lay Me Down to Sleep" Photographer to record our last hours with him...thank you again...Alex's Family
drewelhvac 1 year ago
@drewelhvac thanks for your answer
someday i'll get a NILMDTS photographer, that's for sure
lara (:
305lamala 1 year ago
I am so deeply saddened by your loss. Thank you for sharing your son through this beautiful tribute. I too unexpectidly loss my son on Sept 11, 2008. From one gieving mother to another, my pain and tears are shared with you. In loving rememberance of your angel, my angel, and all of our sweet children that left this Earth to soon. Donita, Mom to Jason Sanchez 4-2-97*9-11--08 w w w .jasonsanchez.virtual-memorials . com
donita1978 1 year ago
I am so sorry for your loss, a mother should never out life her children, its just not right, you and your family are in my thoughts and prayers.xxxx
mrsturrell1 1 year ago
Dear Drewelhvac..
I am so, so sorry. I hurt so much for you and your family, and I was brought to my knees with this video. We almost lost our baby boy, but we were lucky enough to eventually be able to take him home from the hospital. I thank God every day for that. Please know that you will see Alex again. You will be together again one day. I am so sorry and cry as I type...but all this will be over one day, and you WILL all be together again.
jerryandthevman 1 year ago
I am so sorry. This video brought me to tears.
StingersJohncena 1 year ago
I came across your video and I wanted to tell you how sorry I am for your loss, but how happy I am for the wonderful moments that you did get to spend. I have a 2 year old little boy and I am grateful for every day that I have with him. Again I am so sorry and I hope nothing but blessings on your family.
charm0722 1 year ago
I miss him so much and it is so hard to watch this but it is also hard not to. My heart is still aching for you Alex. Love Brandma Eileen.
ceheard731 2 years ago
Your video made me cry too; it's so touching. I have two kids with Citrullinemia, an urea cycle disorder. I pray every day that I don't have to let them go...I am certain you think of your little angel each day.
all4Yah 2 years ago
im so sorry this made me cry :(
sexiskatergirl2 2 years ago
I'm so sorry for your loss.
theresab72 2 years ago