8. Helping A Friend With ME (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome CFS)

[fatassassin123]

dude you guyssss i found out mine was from late stage lyme and im doing better so maybe you should look into ittt

[GetWellFromME]

@fatassassin123 Yes I am going to look into that too - but I've heard the testing isn't very accurate, and the treatment (antibiotics etc etc) is slow as well too?? But you're doing better now? Where would you say the best advice about checking out Lyme is please?

[fatassassin123]

@GetWellFromME well basically i would reccomend finding a LLMD in your area, ands yea the testing sucks mine was a clinical diagnosis, i never found a tick or rash. it takes a while to feel better, but between the antibiotics and vitamins and protein i am actually able to go to school and hang out with friends, i still have random bouts of fatigue but never as bad as before. if you send me the details of where youive in co0uld find some doctors around you...sorry for the huge reply lol

[ChibiYotsuba]

At the moment I'm laying on the couch wondering how to get to bed, 'cause I'm too tired to walk the stairs. Maybe I should sleep on the couch...? :'(

[GetWellFromME]

@ChibiYotsuba So sorry to hear you're so ill - I hope you have managed to get a good sleep somehow, somewhere :)

[ChibiYotsuba]

@GetWellFromME I realised I had to take my anticonception pill which is upstairs, so I just took very long getting upstairs. Took like 5 breaks on 1 stair of 14 steps...

At the moment, physically, I feel a bit better and can go to work again (5 hours a day), but I don't hope my work will keep taking this much from me. It's absolutely terrible to have to call in sick every time. If I do keep getting this tired, I'll have to talk to my jobcoach about it.

It's just an assistant job..

[GetWellFromME]

@ChibiYotsuba That sounds like a really difficult situation, I'm very sorry to say that perhaps for the sake of your longer term health you may need to rest more than your current work is allowing you to. The pill can affect hormones in such a way to exacerbate ME and make it worse.

[ChibiYotsuba]

@ChibiYotsuba Well no need to talk to my jobcoach about it... I got fired due to lack of work for me recently. Time to find another job somehow...

[GetWellFromME]

@ChibiYotsuba Oh that's really tough, sorry to hear that. Any point trying to claim for unfair dismissal because of sickness? Trouble is, the way ME is usually treated in this country, that wouldn't be easy, and would take a lot of energy itself. Look after yourself.

[pookiebear364]

Thank you so much for your videos- I have CFIDS/ME and have ben so frustrated and have lost, sadly, nearly all my old friends because for "not feeling well" so often and having to cancel out at the last minute. Just hearing about someone else-you-who has the same thing means so much!

Thanks

[GetWellFromME]

@pookiebear364 Thank you, really glad to hear it's helped just sharing my experiences too :) It can be such a lonely illness but hang in there, wishing you all the best :)

[jessical1969]

this is wonderful too. Really,even if no one else reads these [but us m.e. people] you have done a great service. It is so reassuring to watch them,makes you feel less alone. I love the "miracle cure"point,sometimes that is the most depressing thing...so many new ideas,and yes,usually they either a.]dont work [and are just more dissapointments or worse b.]punishing. so many great points,positive but real too. thanks. I really appreciated watching them all.

[GetWellFromME]

@jessical1969 Thank you, I really only started doing them to start putting my own thoughts and ideas about ME together, so if anyone else feels helped through any of it, then that's great! I so wish that there were a "miracle cure", but I do know lots of people who have recovered a lot. :)

[GetWellFromME]

Thank you all!

[Dinks71]

Well done, Giles. Thanks for what you are doing for all ME/CFS sufferers.

[TheSleepymum]

Thanks so much for making me feel I'm still human, and not alone in this. I'm a huge fan, please keep making the videos!!!

[Suzanne42]

New subscriber. Great video. Thanks for posting this!

[TheLibra2767]

There's one dislike on this,how?? Absolutely NOT,brill as always!! ;)