Hi there, My name is Arik I live in Southern CA and my Mom and I both have EDS. We have hypermobile and classical type. She is 48 and I am almost 28. She and I both live with it but she can deal with it better then I can. I try to be normal and do normal things but I miss having friends who understand and I miss taking long walks and sitting through a movie and other things. I only have 1 friend anymore that will accept me. I was hoping we can email back and forth about our eds. Arik.
I got the link for this and another YouTube video from a friend. I want to vote and on this site I have said it is my fav. and all that but I was given another URL from the same friend saying it was where I needed to go to vote. All it does is show Chase bank and ask for my approval to add it to my Facebook account. do you know the correct URL to vote for this video?
@Melodyed yes that is the correct website, the promotion is through chase bank, just make sure that the vote you cast is for "ehlers danlos syndrome network cares"
wow what a powerful video with such a great message. I'm going to vote right now. I'm so sorry for your losses but i believe everything happens for a reason and this is a great cause that you are involved in that could save countless lives. What a great way to honor your family members who have passed. I wish you all the best and god bless.
THANK YOU for doing such a Fabulous job in producing this video. Amanda, you are a gem. I've enjoyed the friendship of your Aunt Kathy for many years now.
you marked arik1912's as spam..how dare you he is in need of a companion
mikez44 1 year ago 2
This has been flagged as spam show
Hi there, My name is Arik I live in Southern CA and my Mom and I both have EDS. We have hypermobile and classical type. She is 48 and I am almost 28. She and I both live with it but she can deal with it better then I can. I try to be normal and do normal things but I miss having friends who understand and I miss taking long walks and sitting through a movie and other things. I only have 1 friend anymore that will accept me. I was hoping we can email back and forth about our eds. Arik.
arik1912 2 years ago
This has been flagged as spam show
tinyurl . com / vote4eds
without the spaces that will take you to the page that allows you to vote
Gmoney5863 2 years ago
PLEASE SPREAD THE WORD!! we need a lot to win this! and appreciate all votes
amandams23 2 years ago
I got the link for this and another YouTube video from a friend. I want to vote and on this site I have said it is my fav. and all that but I was given another URL from the same friend saying it was where I needed to go to vote. All it does is show Chase bank and ask for my approval to add it to my Facebook account. do you know the correct URL to vote for this video?
Melodyed 2 years ago
@Melodyed yes that is the correct website, the promotion is through chase bank, just make sure that the vote you cast is for "ehlers danlos syndrome network cares"
Gmoney5863 2 years ago
This is super!
angelEDSer 2 years ago
Beautifully done Amanda!!
christielynn04 2 years ago
wow what a powerful video with such a great message. I'm going to vote right now. I'm so sorry for your losses but i believe everything happens for a reason and this is a great cause that you are involved in that could save countless lives. What a great way to honor your family members who have passed. I wish you all the best and god bless.
jles1989 2 years ago
Amazing video, thank you for sharing your story and your talent.
renoscoe 2 years ago
Awesome job!! Hope is all we have. Maybe hope can become reality. Great job with the video.
thurmanmusic 2 years ago
THANK YOU for doing such a Fabulous job in producing this video. Amanda, you are a gem. I've enjoyed the friendship of your Aunt Kathy for many years now.
TiaMayMay 2 years ago
well done...THANK YOU!
kareneroso 2 years ago