I've had blood tests, MRI scan, ultrasound scans ... no answers. Seen my GP, a dermatologist, vascular doctors, rheumatologists ... still no answers. I've already been to 5 different hospitals. Nothing. The dermatologist has suggested a bone scan, whatever that is (I only know that it's not like an MRI). They may be sending me to a pain clinic. Don't think it'll do much good, though, because I'm so hypersensitive that even local anaesthetic doesn't work on me. It's all so frustrating!
I've got a mystery ailment at the moment, which has left me bedbound for mths. When the problem first started, I went to the nearest A&E for help, crying with the pain. The doctor who saw me was foreign (not that it matters to me) & after hearing all my symptoms, he'd decided that it was all in my head. My mum was so angry, she told the whole waiting room "God help anyone who asks that man for medical help". Now, 5 mths later, my right foot & ankle is covered in welts, proof I wasn't lying.
I know how that feels, when the doctors tell you your illness is all in your head and the pain is not real. I have chest pain that the doctors tell me is panic attacks, but my psychologist doesn't agree.
i have tried to do my bit raisng awareness,even done my bit as the dummy for med students but after the strange looks you get and bewildring dropped jaws you start to think should you just not admit your a sufferer....no way,shout and be heard..
Same thing here... on January 25 I ended up in the ER. Ten hours later they admitted me to the hospital and sent a team of doctors to figure out what was wrong. I was told it was in my head but the nuerologist put me on the steroids anyway and then sent me over to the rehab hospital. MS runs in my family but they won't diagnose it because I don't have enough "points" on their scale. And yes, it is extremely frustrating. I am a fine arts teacher and very involved at my church... and newly married
watching the first 2 parts, made me cry and remeber that could have been me....same thing happened to me 3 years ago , they scratched their heads, said I had"fatigue", gave me every test under the sun.....till i finally met my neurologist who said it was TM...
having had this disease myself, i can honestly say that it is one of the most horrible things anyone can ever go through!! it completely turned my life around.... i went from being extremely athletic to being paralyzed (bed ridden), ventilator dependent, developed pneumonia, list goes on...in a matter of hours.
I've been a c6 complete quadriplegic since I got TM on Oct. 4, 2004. I went to sleep feeling like I was getting a cold and about four hours later i woke up with the worst pain I have ever felt going up through my neck into my skull. I couldn't feel or move anything fro my chest down. By the time the ambulance came I had lost even more feeling. Thanks for adding these videos.
All too often people who have TM are passed aside, or referred to a psychologist because the Dr's don't know what it is. The first reaction they have before doing more tests is "it's all in your head". Then once they do the mri and lumbar puncture they rush to treat you.
I was treated with IV steroids the same day I became paralyzed, but I know many who were told they were "faking" or that it was all in their heads! Unreal!
ANy cure for this? I have this too. One day I went to sleep, the other day I couldnt walk anymore. I cant hold my pee, my poop have sex, anything. This is the devil in a disease.
I agree the show is nice but we are real people behind the stories. The show shouldn't be seen only as entertainement. Not saying that's your case. Nice video, awful disease. I wish noone had to go through that.
I don't think people see the show as entertainment... It's educational and brings rare or less commonplace diseases/disorders to be see by people who would never had heard of them and therefore educates them.
I myself have TM and the more people learn what it is the better...
Here's a fun fact, the man doing the voice over is also the voice actor of Kakashi hatake in naruto ;D
BornDynamics 1 month ago
3 years ago. I uploaded it shortly after it aired.
marieked 3 months ago
When did this air?
roosevelthighschool 3 months ago
I've had blood tests, MRI scan, ultrasound scans ... no answers. Seen my GP, a dermatologist, vascular doctors, rheumatologists ... still no answers. I've already been to 5 different hospitals. Nothing. The dermatologist has suggested a bone scan, whatever that is (I only know that it's not like an MRI). They may be sending me to a pain clinic. Don't think it'll do much good, though, because I'm so hypersensitive that even local anaesthetic doesn't work on me. It's all so frustrating!
rachelchunter 11 months ago
I've got a mystery ailment at the moment, which has left me bedbound for mths. When the problem first started, I went to the nearest A&E for help, crying with the pain. The doctor who saw me was foreign (not that it matters to me) & after hearing all my symptoms, he'd decided that it was all in my head. My mum was so angry, she told the whole waiting room "God help anyone who asks that man for medical help". Now, 5 mths later, my right foot & ankle is covered in welts, proof I wasn't lying.
rachelchunter 11 months ago
I know how that feels, when the doctors tell you your illness is all in your head and the pain is not real. I have chest pain that the doctors tell me is panic attacks, but my psychologist doesn't agree.
mizerychamber 1 year ago
THIS A PATIENTS WITH DEVICS/NMO
darionne10 1 year ago
@darionne10 yes I know...
marieked 1 year ago
This pauses all the time - in spite of high speed internet!
GabonViper1981 1 year ago
@GabonViper1981 well, it didn't used to.. I find this happening to many videos on youtube this past week... not much you can do about it.
marieked 1 year ago
holy shit
watching this makes me own legs hurt!!:(
2616Dance 2 years ago
i have tried to do my bit raisng awareness,even done my bit as the dummy for med students but after the strange looks you get and bewildring dropped jaws you start to think should you just not admit your a sufferer....no way,shout and be heard..
allyballyb1 2 years ago
ive had devics 7 yrs now.all you can do is get on dont look at the medical proffesion for help most of them dont have a clue...
allyballyb1 2 years ago
Or you can educate the doctors you do encounter....
marieked 2 years ago
Same thing here... on January 25 I ended up in the ER. Ten hours later they admitted me to the hospital and sent a team of doctors to figure out what was wrong. I was told it was in my head but the nuerologist put me on the steroids anyway and then sent me over to the rehab hospital. MS runs in my family but they won't diagnose it because I don't have enough "points" on their scale. And yes, it is extremely frustrating. I am a fine arts teacher and very involved at my church... and newly married
MillerClan2007 2 years ago
It's good that they put you on steroids that fast. That is what decreases the inflammation and decreases the severity of the damage done.
marieked 2 years ago
watching the first 2 parts, made me cry and remeber that could have been me....same thing happened to me 3 years ago , they scratched their heads, said I had"fatigue", gave me every test under the sun.....till i finally met my neurologist who said it was TM...
ladykom 3 years ago
having had this disease myself, i can honestly say that it is one of the most horrible things anyone can ever go through!! it completely turned my life around.... i went from being extremely athletic to being paralyzed (bed ridden), ventilator dependent, developed pneumonia, list goes on...in a matter of hours.
very horrible.
thank you for posting this video :]
boogiebeebby 3 years ago
You are welcome. I just wish it were more in the media...
They have mentioned it on the show HOUSE many times, but have made errors about how it's treated. That irritates the heck out of me!
marieked 3 years ago
I've been a c6 complete quadriplegic since I got TM on Oct. 4, 2004. I went to sleep feeling like I was getting a cold and about four hours later i woke up with the worst pain I have ever felt going up through my neck into my skull. I couldn't feel or move anything fro my chest down. By the time the ambulance came I had lost even more feeling. Thanks for adding these videos.
WildkatPublishing 3 years ago
All too often people who have TM are passed aside, or referred to a psychologist because the Dr's don't know what it is. The first reaction they have before doing more tests is "it's all in your head". Then once they do the mri and lumbar puncture they rush to treat you.
WildkatPublishing 3 years ago
I was treated with IV steroids the same day I became paralyzed, but I know many who were told they were "faking" or that it was all in their heads! Unreal!
marieked 3 years ago
I do too.. since 2004
marieked 3 years ago
ANy cure for this? I have this too. One day I went to sleep, the other day I couldnt walk anymore. I cant hold my pee, my poop have sex, anything. This is the devil in a disease.
tmmylopez 3 years ago
No there is no cure. Just treatment initially to decrease the inflammation, then meds to help with residual symptoms.
marieked 3 years ago
I have TM since 04 and this really brought back so many memories.. thank you
kimandbri 3 years ago
Amazing Grace
avibytom 3 years ago
thank you for uploading i love this show
khadijafarah 3 years ago
I agree the show is nice but we are real people behind the stories. The show shouldn't be seen only as entertainement. Not saying that's your case. Nice video, awful disease. I wish noone had to go through that.
adelanteman 3 years ago
I don't think people see the show as entertainment... It's educational and brings rare or less commonplace diseases/disorders to be see by people who would never had heard of them and therefore educates them.
I myself have TM and the more people learn what it is the better...
marieked 3 years ago
awesome thanks for uploading
darthabbey 3 years ago