I am 30 yrs old right now, and I got my first seizure in the year of 1996. I got a brain tumor while I was born, but noone knows. Until year of 1980 which means I was 4 yrs old thats the time I had my brain surgery. After my surgery everythings goes fine but 16 yrs old thats the first time I had my seizure, it mades me feel so unhappy. Its been 11 yrs now my seizure still could not under control, I have seen through lots of specialist but no use.
Just like Alcoholics Anonymous, why isn't the Epilepsy Foundation available any where in USA, except designate areas? Who finances the EFA? Besides dispensing redudant self-serving brochures, how, what, where and when did the EFA helped any victim of Epilepsy since it ever came to happen around? I wonder, if the EFA have any idea that victims of seizures are losing every thing they have ever earned for persistent seizures? WHERE'S THE HELP?
We are the epilepsy Foundation of Victoria, Melbourne Australia. I think you may have us confused with the Epilepsy Foundation of America. I think they are seperate epilepsy organisations that have formed together under one name. This may be why they are not everywhere, I am sure they understand lots of the issues you are facing. Can you find one near you & give them a call, they may just be able to help a bit. I wish I could be more helpful, good luck.
"I.am.not.reading.from.a.script...nor.am.I.a.robot."
Lealan786 1 year ago
Brooke Hanson your next to a fool who done nothink for melbourne. Jump on the desalination train be a real Ambassador
3aw77 2 years ago
Its good to see how John so is such a dedicated Mayor!
eppingmce 4 years ago
anyone has information about how far the development in treating inherited epilepsy is?
luxcretia2 4 years ago
I am 30 yrs old right now, and I got my first seizure in the year of 1996. I got a brain tumor while I was born, but noone knows. Until year of 1980 which means I was 4 yrs old thats the time I had my brain surgery. After my surgery everythings goes fine but 16 yrs old thats the first time I had my seizure, it mades me feel so unhappy. Its been 11 yrs now my seizure still could not under control, I have seen through lots of specialist but no use.
akiralee9669m 4 years ago
Ask your Senator,
Just like Alcoholics Anonymous, why isn't the Epilepsy Foundation available any where in USA, except designate areas? Who finances the EFA? Besides dispensing redudant self-serving brochures, how, what, where and when did the EFA helped any victim of Epilepsy since it ever came to happen around? I wonder, if the EFA have any idea that victims of seizures are losing every thing they have ever earned for persistent seizures? WHERE'S THE HELP?
MySeizures 4 years ago
We are the epilepsy Foundation of Victoria, Melbourne Australia. I think you may have us confused with the Epilepsy Foundation of America. I think they are seperate epilepsy organisations that have formed together under one name. This may be why they are not everywhere, I am sure they understand lots of the issues you are facing. Can you find one near you & give them a call, they may just be able to help a bit. I wish I could be more helpful, good luck.
jmaxwell27 4 years ago