Dystonia

[Gracious827]

Jay is impressive in bowling. This video makes me understand more about different people.

[cenck09]

This is very interesting and educational, thank you for posting this so people may have a better understanding. I'm an incomplete C2 SCI and ever since I have been fascinated with neurology. I may know what spasms and SCI are like but I can only wish to spend 5 minutes in your shoes just to better understand dystonia and what you endure.

[minastevens1]

I also have a form of dystonia, so I know what you are going trough!

good luck!

[BMFjay78]

this video is me. any rude dumbass comments expect one back i don't sit back and take shit from iggnorant douchebags!!!!! their is a lot of them out there.

[Arwinspeceis123]

This guy should teach dubstep dance lessons

[BMFjay78]

@Arwinspeceis123 and you should teach douchebag lessons. since you are the king DB.

[dystoniadisease]

I had the spasms of focal eyelid dystonia that was tortortous but nothing like what Jay has to live with. However, after suffering for two years and three doctors, I was finally properly diagnosed. After two treatments of botox I stopped and later found a nutritious food that eliminated my spasms.

Steve Zarren

[bradicul86]

i am not sorry for this man but proud. this is obviously not something that is easy to live with but he is making the most of it. well done mate.

[Katilea69]

that's cool! (the running thing) but how it is possible for someone to be able to run and not walk as well?

Do you use a wheelchair sometimes? (longer distances)

[jaydunn78]

@Katilea69 yes, i do use a wheelchair once in a while

[deathorlove16]

hes handsome^^

[jaydunn78]

@deathorlove16 thanks

[KPitts1922]

im so proud of him that he can run nd manage thru his life. Keep up the good work Jason. :) (im in tears rite now)

[KPitts1922]

this is so hard 4 me 2 watch. it jus breaks my heart 2 c ppl suffer things like this. I'm not relli sure if i should like it bcuz he trys so hard or dislike it bcuz its sad so im not gonnna do either. i wish i could do sumthin 2 help so bad.

[vartatoosh]

Can I ask how long he is having dystonia?

[jaydunn78]

@vartatoosh i've had dystonia since age 6 and i still have it.

[vartatoosh]

@jaydunn78 Can you tell me which medicine works on you better than others?

[jaydunn78]

@vartatoosh i only take baclofen.... i wouldn't say it works, it helps a little.

[vartatoosh]

@jaydunn78 I got Baclofen, one more question I want to ask. How much do you take daily? is it fixed or some days you have to take more?

I am like you Dude with 1 defference. I have commited suiside two times and I hope baclofen will change the way I think about life.

[wouter8492]

3:25 sorry had to lol

[jaydunn78]

@wouter8492 lol at you doucher

[wouter8492]

@jaydunn78 Ok, i'm sorry for my comment, but i've worked with people with the same disease. At my job it was very important to laugh WITH them. It's a hard life. But if you try hard, you can have a great one!

[jaydunn78]

@wouter8492 thats ok man, i just love the word doucher. i call some friends that sometimes lol.

[svernarsky2010]

Thats my Jay!!

[jaydunn78]

@svernarsky2010 is this my g/f Sara? lol

[CalebTheGuitarist]

they say its a neurological disease??? i honestly believe in the power of the mind, so there HAS to be a way to overcome this mentally. there has to be.

[vartatoosh]

@CalebTheGuitarist You are absolutely right... BUT;;;; say there are some exercises which will improve your willpower, but problem is you have to have willpower to do these exercises!!!

For dystonia it is same (if not worse) you first have to relax and then start a form of meditation (or something else) If you can relax then you don't have dystonia. I hope you get my point Dystonia won't let you think about anything else.

[matserchaos1]

amazing bowler.. i have dystonia to .. and i was somewhat like that.. not that bad but still pretty bad.. i remember it was easier for me to run than walk... i take pills now and i dont have a problem wat so ever.. i just wanted to know if jason tried these pills and if yes wat were the results?

[jaydunn78]

@matserchaos1 i'm sure i tried them. i've tried everything. what kind of pills?

[matserchaos1]

@jaydunn78 The Pills are called Levo/Carbidopa

[cookiedipp]

Wow he's a good bowler!!! :D

[aprilaprilaprilapril]

He has such a beautiful face! 

[jaydunn78]

@aprilaprilaprilapril Thanks, i seem to get that a lot. lol

[lordofthesting]

I have NOTHING to complain about after watching this. Well done Jason. Thank you for recording this. Changed many perspectives I once thought meant something.

[jaydunn78]

@lordofthesting thanks for watching ;)

[CreeperCam181]

That running looked more like break dancing.

[Cyndonia]

its crazy that even as sophisticated as the human body is. one little thing wrong with the brain can cause something like this. =(

[MegaDoris1]

I forgot to tell that I can run too, but while running for a while it's coming all back again. And for the poeple who are thinking the laughing is bad. It's not. Having dystonia, you have to make the best of the rest of your life. So why not laughing? If you can make fun of yourself, like I'm saying "oh look my shrimp or banana is back from holiday". Than you can handle it better for yourself and your family.

Good to see how he is dealing with dystonia!

[jaydunn78]

@MegaDoris1 thanks, where did you have DBS done at? i'm probably having mine redone in NY soon. yeah, laughing is how i deal with dystona, but somedays it just doesn't work and i get pissed off at the world.

[MegaDoris1]

Good to see, he can bowl. I have dystonia too and I can't bowl. But he is sitting, that might work for me the next time. Recently I underwent DBS and my life is much more better now. I'm 33 years old/young. And yes, you can't control the movements.

[MindControlProtocol]

Wholly crap, I seen the flu shot girl and looked up this condition cause I thought it might be funny... but I aint laughing. This dude is cool and has more strength than I will ever have... ...the man.

I will never whine about my aching feet after work again.

No pity here, just respect ;) Peace

[jaydunn78]

@MindControlProtocol thanks, i try my best not to complain.

[TheDimitrieur]

this makes me hate that cheerleader who faked this more and more.

[vartatoosh]

@TheDimitrieur You see, I have dystonia, tic disorder plus Parkinson. All neurological symptoms can change dramatically by your mood and situations. For example it happened for me for 1 whole day, I didn't do any movements untill somebody rang and asked me about how I am doing, then movements started. Finding exactely what happend in that day is impossible, So I don't think that girl was really pretending.

[TheDimitrieur]

@vartatoosh she did fake it, she acted like that on camera but when they followed her while she didn't know she was perfectly normal till she saw the camera's again

[UnholyAngel210]

Now remember, when you put the car into drive your going to need to-...

[nielzdg]

He could play zombie in zombie movies very nicely

[littlelnelson]

Thank you for sharing this, it's hard to imagine having to go through that every day, and was still able to make jokes, such as running like a 30 yr old man. It is awesome he has such a wonderful support system from whoever is taking the video.

[jaydunn78]

@littlelnelson thanks, yeah somedays its tough... my buddy Mike is taking the video.

[LongbowGirl]

thank you so much for uploading this and thank Jason for allowing us to follow him for a day. This is a great way to raise awareness, and has given me a better understanding about the condition which will hopefully aid me in my travels in becoming a doctor. :)

[jaydunn78]

@LongbowGirl thanks for taking the time to watch my video ;)

[XxAmusingLobsterxX]

i would like to know how this disease works how does it affect the human body excactlly also no disrespect but why do you keep laughing it seems like the laughing is being directed at him like your insulting him but i onestly dont know

[Aotommo]

You know, I think it's pretty awesome that Jason clearly has a lot of people in his life who love him dearly. He certainly deserves them!

[groovysherrie65]

Incredible, I can't run, but that is because I am out of shape, and lazy! Awesome job!!!

[NoNiceNamesLeft]

he looks hilarious when he starts running in circles. I was loling

i know i'm going to hell.

[jaydunn78]

@NoNiceNamesLeft just as long as you know where your going! and i'll see you there ;)

[yongpack0]

@5418266 im sorry that you have this condition... people like you inspire me. Keep on living life to the fullest and always remember that you shouldnt care what people think... just do what you want to do with your life.. go out, have fun etc

[yongpack0]

@5418266 i also wondered.... are all these spasms involuntary?

[Renasolo]

:O he bowls better than me!!....last time i went bowling i slid the ball and fell...i suck becuz me 4 yearold cuzin bowl better than me.jason also runs fater than i do...i suckk

[flexbrat]

Kava is also efficient as a organic muscle relaxant and has been grown and used inside South Pacific for hundreds of years. There’s also some evidence that it is powerful as an aid in the improvement of memory and concentration. Kava is considered to be normally secure to use, though people can experience unwanted side effects which include an allergic reaction; it also must not be utilized with alcohol..

[jaydunn78]

@flexbrat thanks for your concern man, but i've tried everything. i've seen a nutritionist for about 3 years and put me on a stricked diet, taking about 100 vitamens a day and one of them was valerian... it did help, but not enough to stay on it. and it got expensive.

[flexbrat]

Catnip doesn’t just satisfy your cat, its oil can also be employed as a all-natural relaxant for muscle spasms or tension, as well as helping to relieve colic, menstrual cramps and swelling of your joints. Many other plants are also powerful – valerian, bergamot, basil and caraway. Valerian has been applied since medieval times and is especially powerful in alleviating tension within the neck...

[PINKamazinqSTAR]

omg this is so sad ? what happened to make him get dystonia ? was it something he took or just genetic ?

[jaydunn78]

@PINKamazinqSTAR i don't know how i got dystonia, but was 6 when it started and it just kept getting worse.

[konataizumi465]

omg when he got that strike

i started crying, i was so moved :')

such an inspiration <3

[jaydunn78]

@konataizumi465 thanks ;)

[008sergio]

yes BOTOX TREATMENTS !

[flexbrat]

why cant BOTOX RELAX the muscle / brain / receptors ????

[jaydunn78]

@flexbrat i've tried botox injections. it does help a little, but i have so much dystonia that it barely helps at all.

[flexbrat]

@jaydunn78 ? about bee sting theraphy an acupunture ?

[jaydunn78]

@flexbrat i've tried everything... i have tons of stoner friends, its ok once in a while. i do eat brownies, but it seems like all it does is make me tired and hungrey. and it makes me hard to focas in what i'm doing. witch i don't like.

[flexbrat]

@jaydunn78 does pot help relax the muscles ?

[DRTMaverick]

@flexbrat It does with certain diseases that cause muscle spasms and tension, however I wouldn't suggest he goes and tries to smoke it, we'd have no idea how his mental chemistry would handle it. Hopefully federal medical science on cannabinoids will become legal and they can do research on independent cannabinoids and possibly find ways to cure diseases without having to smoke herb, but rather a single cannabinoid would be taken that wouldn't get you high, but would target the illness.

[raider8sox]

Poor Guy Man, Seriously, I Got Tears In My Eyes!, God Bless Him!

[superkyle99]

Teach me how to dougie

[canthony1019]

@superkyle99 that's mean as fuck man, what if you were to get it? then what?

it's people like you who need to have something bad to happen to em before they realize how good they have it compared to others.

[jaydunn78]

@canthony1019 thanks man, theirs a lot of assholes out there.

[jaydunn78]

@superkyle99 how about i teach you to knock your teeth down your fucking throat! DOUCHEBAG!

[xxx9888888888]

i will pray for you jayson ...

[corynn89]

he bowls better than i do! jeez!

[bwhitman08]

lol

[davedigi1]

awww :( poor cunt

[TheWeakAmerica]

Very sad it makes me cry. While scientists are fucking around making nuclear bombs they are too fucking useless to create a cure for a common cold. The day cures start coming out is when I will give up my strong hate for science and medicine will end

[veronicachic]

@TheWeakAmerica

why dont you stop bitching around and actually learn a little something about medicine. you are an ingrateful cunt

[TheWeakAmerica]

@veronicachic Fucking little whore. My father is a neurosurgeon. You know nothing about this condition you horrible little slut. Give you a fucking slap bitch

[cfl990]

@TheWeakAmerica Are you fucking stupid? its because the common cold is different every fucking year the shit changes too much every year you are just being an ignorant asshole

[merlin999fall]

@TheWeakAmerica you're making me feel like i've never been born

[cshelton200]

keep motivated man. hope they find a cure. youre an inspiration

[R3ptilian]

watch his index finger at 2:20

it bends like its broken!!

[AircraftVids]

Have you tried the DBS treatment? Ive heard it has worked out for many people :)

[jaydunn78]

@AircraftVids yes, i have tried DBS and it has been so disapointing... at least so far.

[AircraftVids]

@jaydunn78 So you are the Jay in this video? I have to say that i am honored to speak with you :)

[vetworker3]

Wow, Jay, you bowl like a pro. I like to bowl but I am not good at it . You also run alot faster than me! I wonder why dystonia is lessened when u are moving faster?! I would think the muscles would react worse when forced to move faster. Anyway, u r a great runner. Thanks for sharing.

[DaintyDollyz]

Poor guy.

[mahbs]

He can bowl better than me =/

[keribee]

Jason is an amazing man. I saw the special about muscles on NatGeo last night featuring Jason. I do not feel sorry for him, I am inspired by his life. I hope they find or will find the right settings for his brain stimulator so that he may continue to amaze us all!

[EndlyRara]

aww man, i really feel sorry for him..i hope he'll be okay..

what is this dystonia? maybe he's just lost his balance control over his body, but not lost his intelligence... and body control is commanded by brain, so i'm pretty much sure this dystonia attacks the body control from human's brain...just my opinion...

well, good luck Jason..God bless you..

[MsJoey68]

Wow, Jay, what an ispiring video, what an inspiring person YOU are. Kee up the fight, you make us all want to do better!

[jaydunn78]

@MsJoey68 thanks,but i'm just livng my life... don't mean to inspire anybody lol

[heartnsoul40]

how long you had dystonia?

[jaydunn78]

@heartnsoul40 i've had dystonia since i was 6. i'm now 32 and yes i've tried dbs it has been a big disappointment at least so far, but they are still trying to play around with the settings,

[heartnsoul40]

@jaydunn78 I hope it will work eventually for you.You are so very young.Its amazing that you bowl.You have facebook account?

[heartnsoul40]

i have focal dystonia since 12 im 40 now.Jay can you get a brain stimulater to help your dystonia.I am sorry you have to deal with this,i understand how you feel.

[dollazndiamondz]

You go boy! Bowl that ball. God, I love to bowl, & I believe you are doing a terrific job.  I will subscribe!=)

[TissTime4Tea]

wow, now i really understand what this is all about. jay, i really look up to you! thank you

[angelkubin]

Jay you are FABULOUS! TOTALLY MARVELOUS!! IM SUBSCRIBING TO YOUR CHANNEL , LOVE THE BOWLING...

JAY DOES IT HURT YOU? ARE YOU IN PAIN?

[jaydunn78]

thanks, no it doesn't hurt... i just get very frustrated sometimes

[Kberiotwhn]

@jaydunn78 the way you're able to deal with this make's me frustrated when people i know feel self pity over the simple problems everyone feels in normal life. you are helping more people than you can imagine just through inspiration.

[Darklorden]

Thanks for sharing a few moments of your life with us Jay.

[jaym7918]

I'd love to see him drive. Out on the salt flats maybe. Give him a sweet muscle car do some donuts bet he would love it.(NOT JOKING)

[maddancingcric]

what happens if it's raining?

[ShutupPlease]

Why isnt he a candidate for DBS? Its ridiculous that doctors/his insurance or whatever havent already recommended this

[jaydunn78]

i tried dbs 4 times, but now i've going to cleveland clinic for the past year or so and i feel a little better.

[evac171]

WAY TO GO JAYYY!!! YOU ARE AWESOME!!!

[Trythisonline]

You are AWESOME!

[spiritshy]

thanks for posting this, <3 u J

[idranktheseawater]

I will never complain again...

[jaydunn78]

its generalized dystonia... throughout the whole body, as you can see.

[OriginalBeauji]

Now I know. B4 when I saw this had never seen anyone else w dystonia... Had never seen my own in mirror or vdos. I have generalized too...

[OriginalBeauji]

What kind of dystonia is this?

[chad5161]

My sister thinks hes hot

[brenodudeongc]

@chad5161 i actually agree, Jason is not bad looking at all, he is quite good looking! :)

[jaydunn78]

@brenodudeongc thanks so much ;)

[JayBeard0]

Jason is such a cool guy, I have been diagnosed with cervical dystonia. for those who dont know its only spasms in the neck.. I have been through my own personal hell but i see guys like jason and i feel humbled and very lucky. Jason shows you can still have fun despite what affliction is put upon you. I have learned alot from this video. My affliction is nothing compared to jasons, and I've bitched and moaned whereas jason gets on with it and enjoys life. Keep living Jason, your an inspiration

[melm14]

I have this and i walked pretty much exactly like this. They now have a cure, DBS surgery. I had it done when i was 12, it worked miracles. I can now work normally and no one knows that i have this unless i tell them. I am now 16

[jaydunn78]

"Cure" I wouldn't go that far. a cure works for everybody. and DBS doesn't always work. I'm living proof of that... and if you turn off your batteries the dystonia comes back and you have too go get them changed every few years. that doesn't sound like a "cure" too me. I'm sorry if I sound frustrated, but its because I am! I tried BS that what I call it, because they should take out the D and what do you have? just BS. Too make a very long story I've tried DBS 4 times since 2000.

[melm14]

I agree with you. It doesnt always work, but its at least worth a try for most people.I have to have the batteries changed every 6 months, its not a cure...its just a way to help i guess u could say.

[myarjammed]

My uncle has this.

;/

[sk8terrr22]

my school helped him>

[cellblockearth]

Way to go Jason. That party on Sunday was great. We all had a blast.

[deniseASLterp]

Not only am I moved by this man's determination and strength, I must say "hats off" to those filming him (his father?) and all those who support him. The love and respect you show him is to be commended. I am sure there was a LOT of hard work on both ends (Jay and his family/teachers/friends) to develop the skills and positive attitde he has. We could all learn a lesson or two from this video... Thanks! and way to go all of you! Denise in St. Louis

[grfields]

Yo Jason! Got your tickets! lol

See you at the gym bro~

[gameguy79]

Jay, your strength of character and spirit is inspirational to every person you come in contact with. not the least of which is myself. I can only hope that one day I can be more like you. Much love for you cuz!

Greg F.

[ResilientLilOne]

Jason You are so cute and not only that You ROCK !!!!

Recently my left arm is starting to pull back just like Yours.