Living with Multiple Sclerosis - Steroids for a relapse

[22bellas]

You are a inspiration love your videos the I have spinal ms and brain scared im havin relaps. They offered. Mr steroids I said no cause my bones loss what else can u do pray for all hugs

[komentero]

OI LINDA....MUITO SHOW SEUS VIDEOS DE GRANDE INFORMAÇÃO..PARABÉNS....CONTE COM NOSSO APOIO canal KOMENTERO vai pros favoritos VENHA NOS CONHECER SERÁ UM PRAZER TER VC POR LAH...ATÉ MAIS......SAUDE SEMPRE E MUITO BOA SORTE SEMPRE.....

[LYNXVAL]

I know it must be frustrating not being able to do the things you want to do. I will pray you get better with the meds!!

[laurenvparrott]

@LYNXVAL Hello! I'm sorry for taking so long to respond. Thank you so much for your prayers!

[LuvRuins62210]

Laura,

You're exceptional. Thank you for sharing. For teaching. For your bubbling perspective in the face of not so fun stuff. Your insights are spot on. Real. Appreciated. Keep striving to do what you're doing. :o) I like you're spunk. (Especially that wanting to toss the walker at the nurse.)

[laurenvparrott]

@LuvRuins62210 Thank you so much for this comment! It really means a lot! Haha...I DID want to toss the walker at the nurse!! :)

[LuvRuins62210]

@laurenvparrott I am new to YouTube. A relapse culminated Christmas Eve with Solumedrol. I'm full of p&Vinegar because of  it all and really kinda fed up overall. Not my 1st rodeo, but wow....stumbled into your video updates and want u to know, you spoke volumes in your brief video logs, and made it more easily understood and able to comprehend than half the OTHER input I've received in my 20 year journey. VERY COOL!

[laurenvparrott]

@LuvRuins62210 I am so glad that my video made things more easily understood! That was definitely the intention! I wish you the very best!!

[LuvRuins62210]

@laurenvparrott : 20 years ago I was diagnosed with a disease I'd never heard of. I was 26. The book the hospital loaned me was published in the 1964. The nuerologist in Visalia said I had 25 years.  When I got home I called the MS society asking for current information and they sent me fundraiser pamphlets to give donations. I was denied life insurance a few months later. I have never been able to 'communicate' my questions. I did not know it was the MS. Videos like yours 'clicked'.

[laurenvparrott]

@LuvRuins62210 I'm so glad the videos "clicked" and helped you understand more!!

[LuvRuins62210]

Laura,

You're exceptional. Thank you for sharing. For teaching. For your bubbling perspective in the face of not so fun stuff. Your insights are spot on. Real. Appreciated. Keep striving to do what you're doing.  :o) I like you're spunk. (Especially that wanting to toss the walker at the nurse.)

[Emily8421]

I am 14 and i was diagnosed in early april. i have 3 relapses in 4 months and twice the doctors have given me the steroids. made me feel a lot better in the long run but i hate needles!

[laurenvparrott]

@Emily8421 Hello! Oh my gosh! We were around the same age! I was a couple years older, but I'm so glad that the steroids have helped you! Are you on any medication?

[Emily8421]

@laurenvparrott not at the moment, the steroids seem to be the things that is perscribed everytime. they have helped a lot with my dizziness and fatigue but i suffer with a lot of pain especially in my legs. the problem is because i am so young to be diagnosed a lot of the drugs are for adults. as i am not eighteen we have to apply for special funding.

[laurenvparrott]

@Emily8421 I see...Doctors know what they're doing so I would listen to them. Just stay positive and take care of yourself and you'll do great!!

[lavigia]

Hi, Laura i really hope ur getting better, your voice sounds great!!!! my name is JaydaI am 24yrs i never cemented so plz bare with me i have trouble sleeping,,keep up the great. Progress a lot better my prays are with you better am 24yrs with 2 kids,,,and i ,My Pray;s are with you and your family,,thank u Jayda

[laurenvparrott]

@lavigia Thank you so much! I appreciate your prayers! I wish you and your family the best!

[lavigia]

Hi, Laura your videos, have help me so much, they have helped me realize that i have

MS,, and except it ,,My pupils are real dilated usually yet the sun does not bother me thank god your DOING GREAT<<Laura

[TheMagichands1]

that treatment makes you hot an craby i now what you mean i had it for five days.thanks for the video

[laurenvparrott]

@TheMagichands1 So you can relate! Thanks for writing!

[alwayswet2008]

i like watchin your videos they help me alot cause they say all my test are ok but now i have o have a ct scan because the doctor seems to think i have ms i have trembers all the time

[laurenvparrott]

@alwayswet2008 Thank you for writing! I wish you the best with everything!

[ANOTHERHOLEINYOHEAD]

I wish there was a cure for this terrible disease, it really breaks my heart to see people like this lovely girl suffer.

[laurenvparrott]

@ANOTHERHOLEINYOHEAD You are so kind for saying that! I wish there was a cute too!

[Baini229]

I was just diagnosed 2 weeks ago! I also had a three day steroid treatment, but they have me on copaxone. Already I am walking better. I am looking forward to a day when I can jog again, maybe even run :) I am glad there are people who understand. It is disheartening to get that look from people, it always makes me feel like a freak. Thanks everybody!

[laurenvparrott]

@Baini229 I wish you the very best! Keep that positive attitude and you'll be just fine! I started on Copaxone as well. Please keep me posted your progress!

[bearcats2819]

I was just diagnosed in October i had to go to the hospital in November because i couldnt write. I had to get steroids but I got it once a day. For 3 days. I take Avonex every Friday. I feel alot better now =).

[laurenvparrott]

I'm so glad you feel better! That's great!! I wish you the best!

[Baini229]

I was just diagnosed 2 weeks ago. I had a three day steroid treatment and I am now on copaxone. I am already walking better. There were some days I couldn't even walk across the room without shaking. I hate that look people give sometimes, it makes me feel like a freak. Now that I finally have an answer to what has been goin on the past 5 years, I will be able to jog or even run again. Thanks everybody!

[lilprincessred]

Please DON'T take the steroids!!!!! It can destroy your heart !!! There are other alternatives!

[AtifAtifAtifAtifAtif]

Hi everyone...i have MS and iv been talking this drug called LDN!! Everyone who is newly diagnosed should take this!!!! Itl stop MS progression!! Do tha research on LDN...the drug works MIRACLES!! Itl bring normality back into ur life again!!!!...

TAKE LDN IF U HAVE MS!!!!

[nikki33100]

i really v dont mean to scare yall but i had a friend of mine had ms and he took steroid treatments he ended up gettin bladder cancer and he died 2 years ago doctors said he got bladder cancer from steriods

[nikkijean07]

yeah i am only 23 and diagnosed and have had it for 3 years and im scared

[laurenvparrott]

I am so glad you wrote - everything is going to be ok! I know it doesn't seem like it now but I've had MS for 9 years and you would never know it. I'm 25 and my MS started when I was 16. Please write to me anytime with qustions or concerns that you have!

[nikkijean07]

i was just diagnosed and i am so scared.. i can't see strait like vertigo.. so scared... but you have given me hope.. im just so scared

[sfrs222]

Lee el libro de Ann Boroch, sigue sus indicaciones y verás cómo mejoras.

Saludos

[laurenvparrott]

Gracias!

[stillstrong16]

Hi Lauren! I was just diagnosed with MS on Tuesday. I have been in a daze and feel so confused about all the internet data. I want to thank you for all the information from your videos. I will be keeping in touch with you for sure. Can you give me some advice with coming to grips with this? I have so many things going through my mind. My doctor recommended the Betasaren medication and I actually just received a call from my intial appt. I look forward to you writing me back.

Stay Positive!

[laurenvparrott]

Hello! Before I say anything, just know that there are so many wonderful medications and treatments availble for MS now and you are going to be fine!!

The best advice I can give is to stay positive!! If you eat healthy, exercise, and take care of yourself you're going to do great.

Good luck and please write to me anytime with questions!!

[autumncornsilk]

Hi again,Lauren. How brave you are! Steroids have been my main treatment for ms since 1965. I have a love/hate relationship with them - love the way they help when I have a setback - hate the side effects. But hey, they have kept me living independantly for decades, so you hang in there~!Stay safe:-)

[laurenvparrott]

Oh thank you so much! I know what you mean about steroids - but if they're helping, that's great! I hope you have a very Merry Christmas!!

[JackassHighSchool123]

I hope your ok! And i like your Teddybear :)

[laurenvparrott]

I'm doing great, thank you! Beary is so special to me...thanks!

[obamanodraft]

Hope in positive soothing healing...

Hope in good science.

[laurenvparrott]

I live by believing in hope in a positive fashion!!

[obamanodraft]

For individuals who suffer a lot of pain, it is hard sometimes to keep the positive focus, without sincere positive support of others ~ it's really hard.

I suffer from chemical sensitivity, and I go thru pain. I try to keep the hope that things will change for the better and that is what keeps me going...

[laurenvparrott]

I can understand that. It's hard when you're in pain...I've been through that many times. Things will change for the better - keep going!

[nayaz75]

Thanks for your reply. When I said Infusion I meant Syeroid Infusions. That is what they call them when you have them. For instance you had a 10 day Steroid Infusion. I am not aloud to have the in the hospital enless i just happen to be there. Otherwise i am out of luck because of the bad reaction te home service will not allow it and the nuro will not just send me to the hospital just for the Steroid infusion. I think that explains it better. Thanks Again

[laurenvparrott]

Hi Renea - I'm very surprised that your neuro wouldn't send you to the hospital for steroid treaments. I was actually there for 5 days and had 2 infusions a day. Since you have a tough time getting the steroids at home, I would talk to someone at the hospital and see if there is anything they can do to help!

[nayaz75]

My nurologist tels me she has never had to put someone in the hospital for infusions. So i am wondering does your doctor send you to the hospital for them and if so have you ever had it done at home? Sorry ran out of space in previous comment. thanks hope you are well

[nayaz75]

Lauren, hello this is renea again. I had commented on another one of your videos. i was telling my husband about you and we both had a question. Any time I have to do steroid infusions they would come out to my house. i would have a 3 day. I had to do it twice in about a year but it made me very ill. I di dnot react to it well. It was noted in my chart. So the home health service will no longer give me steroids even if my doctor prescribes it. Did you go on your own or prescribed.

[laurenvparrott]

Hi Renea! I got my steroid treatment in the hospital and it went very well because I was being monitored 24 hours a day.

I get my infusions at an infusion center that's connected to my hospital. No one can get Tysabri infusions at home - it has to be done at an infusion center. Some neurologists offer it in their offices, but I love my infusion center.

I hope this helped!

Lauren

[jgperry73]

Hi Lauren! I just got an alert from some neuros that be careful & watch your symptoms while on Tysabri. Due to many people on the treatment are having bad liver damage to this drug compared to Rebif, Avonex ect.. Take care & get well soon. I know what it's like, I have MS also.

[laurenvparrott]

Thank you - I'll ask my neuro about the liver problems at my next appointment. Thank you!

[jcrane722]

God Bless you Lauren. jcrane722

[laurenvparrott]

Thank you, God Bless you too!

[laurenvparrott]

Thank you, God Bless you too!

[IslandOfSanity]

This is great! You have shown very well how we all feel-unsure, fearful, and trying very hard to be positive in the face of uncertainty..

[laurenvparrott]

Thank you so much!! I know I'm just trying my best and that's all I can do :)

[violetmathersss]

This video sure brings me back a year ago I was sitting in a hospital bed,There would be 9total stay's there after,the longest I have been without an attack has been 3 to 4 weeks.Now on Tysabri I feel pretty good.Don't want to jinx myself so I'll just stop here.I am so glad I am not alone.I shake too I am a bit older than you however I have 2 children. This has been the scariest most difficult time,My wonderlful husband by my side, my 2 angles and My Mom I am so blessed. Theresa

[laurenvparrott]

I'm so happy that you have your husband, children and mother at your side. I'm positive that you're going to do extremely well with Tysabri!! Good luck and God Bless!

[ammarz24]

Am not a MS patient..Am not American..Am not white..am not even a christian..i maybe the exact opposite of you...but you know what..I am just a human being..and I think you are the bravest human i ve ever seen in my whole life..I pray to you deep in my heart..god bless you Lauren..God bless you all MS patients..Thank you..I was simply lost before i got to see how brave and beautiful you are..

THANK YOU..THANK YOU..THANK YOU..

[laurenvparrott]

Thank YOU so much for writing! I wish everyone thought the way you do - we're all human! Regardless of race, culture, religion, and whether or not you have a physical problem, we're all human!!

Thank you for writing from Zimbabwe! That's so exciting for me! I appreciate you writing more than you know.

God Bless you!

Lauren

[blinggroup]

God bless you my friend! I too have MS..... Stay strong and all will be well!

[laurenvparrott]

Thank you so much! God Bless you! I wish you the best!

[poppypat]

started 10/07 with L'Hermitte's, vertigo, dizzyness, cognitive impairment, shakes, P&N's, numbness ,fatigue Dec 22nd = paralysis of the RHS of face, given steriods but still paralysed. had MRI, no results yet. electro therapy for face and LP,VEP.Thanks so much for your strength and motivation, I would love to hear from you how your ms started and as my tremors are less than yours, Thanks again and God Bless you Lauren!

Penni

[laurenvparrott]

Hey Penni! I wrote you a message to your account explaining how my MS started. I wish you luck and God Bless!

[poppypat]

thanks so much Lauren, I wanted to write more but only limited space, I will read ur message thanks, How can I exchange longer messages with you?

P

[7mumfred7]

Lauren.....do you describe in any of your videos why you or your doctor decided on Tysabri ? Thanks and may I wish you Best of Luck & Good Health.

[shockermum]

Thank you, thank you, thank you, Lauren! I'm and "MSer" too.

[laurenvparrott]

I'm so glad you liked the video. Good luck to you!

[lissadawn1966]

This is a great video. Very helpful.