CRPS/RSD is a hideous disease which I suffer from in my right foot ONLY, and sometimes the left foot. The burning pain is hideous. I can't even begin to imagine what Greg is going through. I will visit his website, but am so broke from being on disability I will be unable to donate, but would like to leave a kind comment for your son and pray that they will continue to try and find a cure for this his horrible syndrome. Warmly, Vicki
Greg, I too have CRPS, and was diagnosed at 24. I'm now 27. I've been told by my family I am an "junkie", an "addict", and my father in law told my husband if he were him, he would have left me for this. It's only the right side affected, but it looks like the left is going too. I have a terrific support system, and am so glad you do too. Keep fighting!! We're all in this together, and there is hope for us all!!
Greg, I too have CRPS, and was diagnosed at 24. I'm now 27. I've been told by my family I am an "junkie", an "addict", and my father in law told my husband if he were him, he would have left me for this. It's only the right side affected, but it looks like the left is going too. I have a terrific support system, and am so glad you do too. Keep fighting!! We're all in this together, and there is hope for us all!!
I do understand my brother; Greg. I've been praying and started crying after seeing your video. You must have a terrific mother, and fiance. I know....I do think, even after having it for so long, God is able. It seemed so long and being out of the loop of knowing what was going on with my family because only sleep brought relief. I wondered if I'd ever get out of it. I still have little residual stuff that isn't worth mentioning. Greg hold on to hope.
I am also dealing with CRPS.I have had it for 6 years.You are so lucky to have the support you do.My wife of 18 years decided I was to sick so she divorced me.I am pretty much alone up here in northern NH where most Dr's don't have any idea about CRPS.I now have almost full body,but somehow I keep fighting,especially the workmans comp carrier,They need to be enlightened about this terrible disease and what it does to us.My thoughts and prayers are with you., Ralph
Made me cry! I have RSD, right foot, from a simple injury picking up a piece of paper. I've followed treatment with alternative therapies. I'm lucky, no spread RSD is calm. Keep an open mind to alternative therapies have no fear you will find something that works for you easing your pain. Blessings to you all!!
Your support group is wonderous. HOPE can shine like a beacon hold tight to the belief that you will defeat RSD, you shall! Always believe. Love to you all!
Greg and Emily, you are two amazing young people. I admire you both so much. I want Greg to be pain-free. My sister Debbie has CRPS/RSD, and I know that she, too, is in constant pain. I hope that the Ketamine is an answer for you. Do not give up hope. Keep researching new treatments for CRPS/RSD. Many people love you and care about you both so much. Your smiles could light up a room. Wishing you the best. Pam C.
@ivory311 My daughter has CRPS as well and was diagnosed very early. Thanks to the doctor who told us that medicine really had nothing to offer, we started doing many different complementary therapies. We did Reiki, EFT, Kinesiology, Aromatherapy oils, Homeopathy medicines, took her for Acupuncture and have seen amazing results. She is almost better and is claiming her life back. Find someone to do these things if you cannot do them yourselves. It is so worth while. God Bless you all.
Thankyou so much for posting this to allow others an insight into CRPS. Until my son was diagnosed with it aged18y a few weeks ago i'd never heard of the desease. Its through your story i am able to have a far better understanding. What a georgous lad. And what fantastic parents you are. I know some of how hard this is for you all but i see the love you all have for each other shinning through. MY best most heartfelt good wishes are with you all. Love liz
This is my sweet dear nephew. He is a christian. Going through all of this horrible pain he has maintained a good outlook and sense of humor. His sweet fiance', Emily has stayed right by his side and has been his advocate and primary caregiver. Yes, Emmy, the very first time I saw this video, I saw the white light over Greg's bed and I thought the very same thing too. That is so very awesome. We love you guys so much. God is going to do a healing miracle. Love Uncle Lloyd & Auntie Patty
i have rsd/crps...after a atv accident 6 months ago its terrible i cant go to school i cant walk and i cant do what i love (atv riding/racing)....please watch my video about this and comment and rate thenk you
i am an ellsworth grad. we should put on a benefit concert at the nugget. i play in a band and know many musicians who would come out and play if i asked them to.
I want you to know how much this impacted me today. I am 26 and have been suffering from CRPS for 2 years. I have not suffered this much but it's still bad and I wish they could find a way to make it better. My thoughts and prayers are with you. I wish your whole family the best... Good Luck
My thoughts and prayers are with you. I too suffer from CRPS/RSD from a spinal cord injury and despite all you have been thru it looks like you did not let it stop you from leading a full life.
Thank you...Greg tries to do the best he can to still lead a full life from the house as much as possible. He was very lucky to have gotten to go to his brother's wedding this past September. I'm sorry to hear that you have this horrible disease as well. Greg was hurt 5 years ago, and it changed all of our lives in so many ways. I wish the best to you and hope you find some relief. Thank you for watching his video...take care :o)
@ivory311 My daughter has CRPS as well and was diagnosed very early. Thanks to the doctor who told us that medicine really had nothing to offer, we started doing many different complementary therapies. We did Reiki, EFT, Kinesiology, Aromatherapy oils, Homeopathy medicines, took her for Acupuncture and have seen amazing results. She is almost better and is claiming her life back. Find someone to do these things if you cannot do them yourselves. It is so worth while. God Bless you all.
Just wanted to let everyone know that there is a picture of Greg in this video (1:55-2:00) with a white light hovering over his head. The person who made this video drew the lines in the light, but the light itself was on the picture already and it wasn't caused by the camera flash. Greg's Guardian Angel?
Greg, my prayers are with you. I have such saddness and hope that you will soon soar like you once did. You are surrounded by some very special people. I hope I can help contribute to your life goals at your dinner. Hope to see you soon! Miss you! Lela
CRPS/RSD is a hideous disease which I suffer from in my right foot ONLY, and sometimes the left foot. The burning pain is hideous. I can't even begin to imagine what Greg is going through. I will visit his website, but am so broke from being on disability I will be unable to donate, but would like to leave a kind comment for your son and pray that they will continue to try and find a cure for this his horrible syndrome. Warmly, Vicki
luvyourpets08 4 months ago
This has been flagged as spam show
Greg, I too have CRPS, and was diagnosed at 24. I'm now 27. I've been told by my family I am an "junkie", an "addict", and my father in law told my husband if he were him, he would have left me for this. It's only the right side affected, but it looks like the left is going too. I have a terrific support system, and am so glad you do too. Keep fighting!! We're all in this together, and there is hope for us all!!
deannrutkowski 11 months ago
Greg, I too have CRPS, and was diagnosed at 24. I'm now 27. I've been told by my family I am an "junkie", an "addict", and my father in law told my husband if he were him, he would have left me for this. It's only the right side affected, but it looks like the left is going too. I have a terrific support system, and am so glad you do too. Keep fighting!! We're all in this together, and there is hope for us all!!
deannrutkowski 11 months ago
I do understand my brother; Greg. I've been praying and started crying after seeing your video. You must have a terrific mother, and fiance. I know....I do think, even after having it for so long, God is able. It seemed so long and being out of the loop of knowing what was going on with my family because only sleep brought relief. I wondered if I'd ever get out of it. I still have little residual stuff that isn't worth mentioning. Greg hold on to hope.
manoffaith3112 1 year ago
Comment removed
manoffaith3112 1 year ago
I am also dealing with CRPS.I have had it for 6 years.You are so lucky to have the support you do.My wife of 18 years decided I was to sick so she divorced me.I am pretty much alone up here in northern NH where most Dr's don't have any idea about CRPS.I now have almost full body,but somehow I keep fighting,especially the workmans comp carrier,They need to be enlightened about this terrible disease and what it does to us.My thoughts and prayers are with you., Ralph
SuperClassiccarguy 1 year ago
Made me cry! I have RSD, right foot, from a simple injury picking up a piece of paper. I've followed treatment with alternative therapies. I'm lucky, no spread RSD is calm. Keep an open mind to alternative therapies have no fear you will find something that works for you easing your pain. Blessings to you all!!
Your support group is wonderous. HOPE can shine like a beacon hold tight to the belief that you will defeat RSD, you shall! Always believe. Love to you all!
Rhonda
ptcruise1 1 year ago
Greg and Emily, you are two amazing young people. I admire you both so much. I want Greg to be pain-free. My sister Debbie has CRPS/RSD, and I know that she, too, is in constant pain. I hope that the Ketamine is an answer for you. Do not give up hope. Keep researching new treatments for CRPS/RSD. Many people love you and care about you both so much. Your smiles could light up a room. Wishing you the best. Pam C.
Pamthecam 1 year ago
This has been flagged as spam show
@ivory311 My daughter has CRPS as well and was diagnosed very early. Thanks to the doctor who told us that medicine really had nothing to offer, we started doing many different complementary therapies. We did Reiki, EFT, Kinesiology, Aromatherapy oils, Homeopathy medicines, took her for Acupuncture and have seen amazing results. She is almost better and is claiming her life back. Find someone to do these things if you cannot do them yourselves. It is so worth while. God Bless you all.
TheMarianneRose 1 year ago
Never give up " jia you"
manjushri2 1 year ago
Thankyou so much for posting this to allow others an insight into CRPS. Until my son was diagnosed with it aged18y a few weeks ago i'd never heard of the desease. Its through your story i am able to have a far better understanding. What a georgous lad. And what fantastic parents you are. I know some of how hard this is for you all but i see the love you all have for each other shinning through. MY best most heartfelt good wishes are with you all. Love liz
neomilly 1 year ago
This is my sweet dear nephew. He is a christian. Going through all of this horrible pain he has maintained a good outlook and sense of humor. His sweet fiance', Emily has stayed right by his side and has been his advocate and primary caregiver. Yes, Emmy, the very first time I saw this video, I saw the white light over Greg's bed and I thought the very same thing too. That is so very awesome. We love you guys so much. God is going to do a healing miracle. Love Uncle Lloyd & Auntie Patty
MrRaiderGirl 1 year ago
i have rsd/crps...after a atv accident 6 months ago its terrible i cant go to school i cant walk and i cant do what i love (atv riding/racing)....please watch my video about this and comment and rate thenk you
atvchick09 1 year ago
i am an ellsworth grad. we should put on a benefit concert at the nugget. i play in a band and know many musicians who would come out and play if i asked them to.
evildrock4ever 1 year ago
I want you to know how much this impacted me today. I am 26 and have been suffering from CRPS for 2 years. I have not suffered this much but it's still bad and I wish they could find a way to make it better. My thoughts and prayers are with you. I wish your whole family the best... Good Luck
kelialexis2006 2 years ago
My thoughts and prayers are with you. I too suffer from CRPS/RSD from a spinal cord injury and despite all you have been thru it looks like you did not let it stop you from leading a full life.
123dietdrpepper 2 years ago
Thank you...Greg tries to do the best he can to still lead a full life from the house as much as possible. He was very lucky to have gotten to go to his brother's wedding this past September. I'm sorry to hear that you have this horrible disease as well. Greg was hurt 5 years ago, and it changed all of our lives in so many ways. I wish the best to you and hope you find some relief. Thank you for watching his video...take care :o)
ivory311 2 years ago
@ivory311 My daughter has CRPS as well and was diagnosed very early. Thanks to the doctor who told us that medicine really had nothing to offer, we started doing many different complementary therapies. We did Reiki, EFT, Kinesiology, Aromatherapy oils, Homeopathy medicines, took her for Acupuncture and have seen amazing results. She is almost better and is claiming her life back. Find someone to do these things if you cannot do them yourselves. It is so worth while. God Bless you all.
TheMarianneRose 1 year ago
Just wanted to let everyone know that there is a picture of Greg in this video (1:55-2:00) with a white light hovering over his head. The person who made this video drew the lines in the light, but the light itself was on the picture already and it wasn't caused by the camera flash. Greg's Guardian Angel?
ivory311 2 years ago
Greg, my prayers are with you. I have such saddness and hope that you will soon soar like you once did. You are surrounded by some very special people. I hope I can help contribute to your life goals at your dinner. Hope to see you soon! Miss you! Lela
lurgee75 2 years ago