Multiple Sclerosis: What a relapse can be like

[aweltlin]

I had the exact same symptoms with the double vision, numbness of the hands and left side of the face. I was weak and could not walk or eat without assistance. It lasted about 2 and a half months. I was put on steroids injection and then prednisone. Never again will I take the prednisone because after I was done with my pills it seemed as though I had new symptoms like very weakness and shaking tremors along with pain in my shoulder, back and fingers. Depression and mood swings came also.

[holobody]

I hope everyone has heard of LDN, a tiny dose of a conventional approved drug. In thousands of fellow patients it has stopped all progress of MS.

[saffiyah06]

@holobody wats LDN and do u no if is it available in ireland?

[holobody]

@saffiyah06 Google LDN Ireland. Keep well!

[saffiyah06]

@saffiyah06 tanx for da info ur a star.

[guitarobsessed85]

Partial Facial numbness that lasted a few days and back numbness that lasted a few mins. Shooting warm feelings in legs. I always had vibrations in my legs and thought it was normal. Never really had any vision issues except photosenstivity (can this be optic neuritis? Or does it always impair color vision?) This is over the course of two weeks. Numbness is gone in my face but I'm still getting hot sensations in my legs. Are these symptoms of MS or are they too mild?

[guitarobsessed85]

How long do MS symptoms usually last? Can they be very short lived? I got facial numbness and some numbness on my shoulder and back. The shoulder and back numbness lasted only an hour or so. The facial numbness lasted a few days but got less and less severe. I've had warm sensations in my legs and sometimes on my face like warm water running down them. Do symptoms usually progressively get worse or just stay the same over the course of a month or so? Two people have MS in my family and I worry

[danhudson101]

You just seriously made me laugh. I have MS and I do stand up. I tell about the Steroid IV and I say in my set up to the joke..It was like my wife went to the bank and got every penny there.

[Emily8421]

I got diagnosed in april this year at the age of 14. i have had optic nuritis twice. it sucks, i also get very dizzy with optic nuritis

[TVfreakje1]

What always annoys me is when people around you get annoyed when you joke about it and get angry for it. When I joke about my MS my family goes mad at me but seriously WTH?! I'm the person going through the shitty situation but it doesn't mean I wanna go all depressed about it and cry about it. They should be supportive that one can smile with it.

[07pollee2ndtime]

@TVfreakje1

Good for you! I agree. I have MS too. What do people think you'll do? THERE'S NOTHING YOU CAN DO!! So curl up and die......or laugh at the b*st*rd!

I'm not an Osmond fan but the one with MS said it right. "I have MS, MS does not have me"

[TVfreakje1]

@07pollee2ndtime I love the Osmond saying. It certain says it all.

My alternative dietist doctor once gave a great comment about MS patients, about them in general being nice, sweet and optimistical patients. He said he had people with other illnesses that kept complaining and be pessemistic about it. So I guess that's one upside. It's proven that if you are optemistic about your situation you'll be healthier because stress is a giant factor in getting relaps.

[TheMagichands1]

yes that i v was grows the taste of metal i sucked on candy but barrley helped.now we are pregnant its our 4th an its twins!they said i wouldn't have m s symptoms. but i do my legs are sore for days an my hands are tingly too.i had my first heat attack. but its all good i don't mind most the time.at least i can still see.

[Alexknobsob]

The first thing I notice is your weak-leg thrust, especially on stairs, and then you say the metallic coin taste in the mouth the same as I had 28 years ago. I'm trying inclined bed therapy too, it seems to work.

[savingbeauty]

Perhaps relapses are a thing of past with oral LDN now.

[TheMagichands1]

@savingbeauty what is ldn im looling for a med i dont need a needle to take it

[AndrewKFletcher]

Inclined therapy can help you. And costs nothing.

Google "andrew k fletcher" or "inclined therapy"

[ms26babe]

Very good - i dont know what else to say i know how you feel and just keep smiling and laughing like me xxxxx

[QuiglysMom]

A musician!!! I used to be one too... a concert violist with a London-based orchestra with an excellent world-wide reputation. I have progressive MS, and it steals things from you a little at a time. It eventually stole my ability to play. It has now stolen my ability to walk or even sit up in my wheelchair, so now I'm bed-bound.And isolated with no friends or support.Somehow I always find a way to go on.I always know that it could be worse,but also fear the day when it will be.Darn.Outta space

[cujojila01]

when i had a relaspe that my chest wall is still numb my doctor still did not use steroids i was perplexed by this. its been 1.5 months now and still the same he did order mri for check for thoraic lesion. he stated he does not always prescribe steriods i do not understand if it is to increase my ability to get well faster? i question alot of what he does sometimes i know i am a hard pt i was a RN before so its like the dr seem to make it harder on me any comment please wright me michelle

[teslagirlM]

Hi Michelle, You bring up an interesting point. Some doctors disagree on the use of steroids . I think for two reasons: 1-steroids are not good for your bones, 2- they don't work for everyone.

I had a relapse that was a million times worse than this one displayed, and they did not give me steroids (different dr from now). At the time I did not know about steroids.

What doctors look for is how disabling is the relapse? Is the numbness affecting your breathing? continued...

[teslagirlM]

Is the relapse affecting your life? If it is, then I would insist that you want steroids. If the answer is no, then I would not ask for the steroids.

Also, and I know people disagree with me, but i don't think it is necessary to have MRI's each time we have a relapse. I feel it can have a negative effect where we are thinking, 'oh crap, I have another lesion. Things are getting worse.'

Do you have an MS nurse as well?

Marlo

[youri1980kp]

First i want to say that you make very nice video's, they are filled with information and give they viewers a good image of how people with MS life.

About the steroids part. I agree that you must not use them allot. In mine case i have a three day steroids treatment just 2 weeks ago. The reason i took it this time is because it was affecting me at my work. So I decided with the neurology to take a solumedrol cure ( thats how they call the steroids in the Netherlands)

Continued...

[youri1980kp]

It was very useful for me, because I had problems with walking and after 1 day I started to feel the positives effects of the steroids. After the cure I could walk for miles. For me the part to decide to take them id when the relapse is affecting my work.

Well I hope that things stay good for you and that you make lots of videos, I always watch them :-)

Greetings Youri

[teslagirlM]

I think you made a wise choice. If a relapse is affecting your work, steroids are needed. thanks for writing!

I am glad you like the vids! There's more vids to come (God help us!)

[nancy44fr]

thank you so much for shared with us ,

You are a very brave woman and you are a model for many persons,

thank you

[angelusa73]

Thank you for sharing. You know how to take this disease in the right way: with humor and with strengh!

I wish the very best!

[aztecathugs]

Hello.... U kno is not just to believe God has power to heal u... U Gotta, u Must take that healing that tha lord Jesus already promised it...

is hard to say it i dont have the words but,,,, take that healing

Amen?

[teslagirlM]

thanks for your comment. I also believe that we have the power to heal ourselves. You know the saying 'God helps those who help themselves'? I believe it is part of it. We all have the power inside our spirit.

wishing you blessings and light,

Marlo

[sistagrl7]

I have MS too. 15yrs ago, I had optic neuritis. In 2003, I woke up with cranial nerver six palsy (scared the shit out of me!!

). I found out then I had MS. My right eye was moving around by itself, six months ago it happend again. I pray that God continues to keep you strong and, for all others that have it too. 1 luv! from chicago.

[teslagirlM]

Yes, well put! When I first got nerve 6 palsy, it scared the shit out of me too!

Thanks for your prayers. I promise to stay strong, if for nothing else, out of spite for MS. You stay strong too! I will send you good energy! One of my best friends lives in Chicago, so I am used to sending good vibes over that way! LOL! Thanks for posting!

[lizzy890]

you are an absolutely beautiful person.

Yes, you and I both share MS, but it looks as though you are stronger, your love and humor make things much more brighter for you.

I wish I had the same... Best wishes from Chicago.

-Liz

[teslagirlM]

Hi Liz! Thank you. I am not stronger than you, though! I have always had humour (English spelling LOL!) and odd humour, at that. It definitely helps. I remember when I first moved to England I was in the hospital waiting room. I was peeing blood (sorry!), going blind, and jobless. I thought of my friends in the US asking how I was doing here, and I started to go into hysterical laughter. Like a fit of laughter! It helped. I do get depressed though! Its hard to see light in the darkness, u know?

[QuiglysMom]

Reminds me of something my sister and I would always do.She had astrocytoma (a particularly agressive and incurable form of brain cancer)and was starting to experience some of the same symptoms I had experienced for years.On days when things were particularly nasty we'd start to sing,"Always Be on the Bright Side of Life"from Monty Python's Life of Brian, just like the poor lads on the Sheffield.Was kinda fun laughing in the face of hopeless futility and was somehow empowering too! (continued)

[QuiglysMom]

(continued) It was like saying, "Yeh, shove it MS (or in my sister's case, astrocytoma)! You might steal my abilities and my cognition, the whole while assulting me with all manner of pain, but you will never get my spirit!

"When life is jolly rotten,

there's something you've forgotten,

And that's to laugh and cry and dance and sing..."

Damit I miss her.

But guess what?She left me with a way to get past these tears and MS stuff,and to keep laughing,dancing(in my heart),and singing!

[labernitrum]

thats the right way to look at such things. i really admire you! do you like rock music? if yes, i got the perfect song for you: replace it with the right part of the link in your browser bar: watch?v=T9hwimb6pNk

the drummer of billy talent is diagnosed with my ms aswell and thats a song about him and his illness.

best wishes

[teslagirlM]

I don't know how I didn't respond to this sooner, except that I have had my head up my own bum. sorry about that. Thank you so much for sharing this. I am now singing the Monty Python song now. LOL

I am sorry you lost your sister but happy for what she gave you and you are right to keep singing! i hope many people read what you wrote! Thanks again.

Marlo

xx

[dmplaura]

Awesome video! Your positivity will take you far with this stinky disease we have. Laughter truly is the 'best medicine'. I did laugh watching your video, but at the same time, you did mention some points that are so very true to those of us with MS. Excellent work!

[teslagirlM]

Thanks so much, Laura. I see you were diagnosed quite recently. Stay strong. by the way, have you been to England? You would probably enjoy Tintagel (Cornwall) and Glastonbury! Knights of the round table stuff!

Best wishes,

Marlo

[dmplaura]

No, but I wish I could go to England! I've pretty much seen a virtual view of England in my online game that I play! :)

I was diagnosed in March of this year. So yes, very recently. Luckily I am meeting a lot of wonderful people like yourself who are strong and encouraging in the fight against this disease. It gives me hope and lifts my spirits :)

[omexmc80]

excellent video, I got diagnosed with MS in march'08, people usually ask me the same question on relapse's. but your like me, laughing and having fun helps me too..

[teslagirlM]

Thanks for your comment. Yes, the laughing helps. It is better than crying, for sure! Be well.