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  • I was misdiagnosed with Fibromyalgia and for 2 weeks no one at the hospital knew what was really happening to me. Later to be told that I had Polyartritis nodosa (aka PAN). Even though it is known as vasculitis and so many people have no idea about these diseases and yet it's symptoms can be very similar to Fibromyalgia but PAN is fatal if not treated aggressively. Let's find a cure for all these diseases and YES I AGREE let's talk. It's an autoimmune disease and it's not in your head.

  • This is very well said. What a fantastic group of people to help educate the world. Please keep getting your voices out. I work very hard to raise visibility as well!!

    We are in this together, my friends.

    JUNE 6th is DAY OF VISIBILITY for people living with these Invisible Diseases.

    Love to all....

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