Chromosome Disorder Outreach (CDO) YouTube Video

[feepque]

Beautiful video<3

[nivek194]

wonderful kids=)

[RicheleBarbie]

I am very interested in this. my brother has deletion of chromosome 21 & triple of chromosome 7 & partial deletion of the short arm of the y chromosome. doctors at Stanford told them that he is the only person in the world with this. & pretty much they don't know how those chromosomes can change him (if that makes sense). how can we become apart of this?

[yankeegurl62]

how can I get my grandson tested? Where can I get him tested? Help please....

[ismael064]

thank you for this video,is posible cuold you hel me find more information about deletion 7q36.1,next september i going to have a baby with this deletion,god blessed.

[youllalwayswonder]

WOW So my daughter's chromosome disorder is even more rare than I thought! She has a 12q duplication and a 14p deletion the 12q duplication is in the stop where her missing 14p should be.

[mishakailana]

great video, and awesome to see so many different people with different variations.

Hate to ask but since I tend to do tons of research online could you explain the chromosomal inversion. I am not familiar with it's meaning.

[mmoj82]

what a beautifull video,and such precious angels,i have a 6 month old baby boy with partial monosomy 21 as hes missing his 21 chromosome,weve been told there isnt another case,his other 21 is a ring 21

[gentlegirl94]

I've got a chromosone disorder. One of mine is broken. I thought mine was bad, one of the reasons, because it's to dangerous to get pregnant normaly, so I have to have an IVF. And also I'm not aloud to do a lot of sport. Now I know that I'm really lucky. I feel so sorry for all these children, and they are so beautiful, I just can't stop crying. Mine isn't bad. It's hard for me having a chromosone disorder, but it must be so much harder for theese children with much worse chromosone disorders.

[TheMy2girlz]

This is a great video! Brought tears to my eyes! What beautiful kids!

Mom of Elisa

trisomy 3q24.1-3qter

deletion 7q36.1-7qter

[TaylorLautnerlover86]

I am not exactly sure what Chromosone disorder is. Could someone help me?

[motownmagic55]

Its either when you are missing a chromosome or added an extra, or possible part of one is deleted, so it can mess up genes.

[TaylorLautnerlover86]

Oh, thank you.

[gentlegirl94]

it can also be that one of the chromosones is broken!

[sugarbomb187]

@TaylorLautnerlover86 either you have a chromosome in extra or you are missing one or only a fragment.

[TaylorLautnerlover86]

@sugarbomb187 That's great.

[sugarbomb187]

@TaylorLautnerlover86 no its not... haha.. not great at all

[TaylorLautnerlover86]

@sugarbomb187 I'm going to sympathize with you that we're over the internet, and some idiots can't understand sarcasm.

[GregsAdvocate]

I am glad a resource like this is available to parent's like myself. My son has a chromosome 9 deletion. Great Video!

[delcardobaybandgeek]

these children always have such positive outlooks on life. it gives me hope that there is good in the world seeing how much care parents of children with disorders take to make sure they have a good life.

[bpdhell]

I have a 5 year old son who has a deletion of chromosome 16 long arm. I have always been on the look out for other children with a similar deletion.

[haleyii2]

What an amazing video and what an amazing bunch of children!

Beautiful!!!!

Haley (mom to Gauge 9q34.3 deletion)

[ayrissenriane]

Our precious children!

Thank you

Kelly (Ayrissen 1p36 del)

[FluffyJohnson]

Thanks for posting

Mom of Julie

[tdhssp]

Keep holding on. We can and will make a difference!

In loving memory of Samantha Lauren Martin, tetrasomy 18p.

My beautiful angel, I will fight to defend your truth for all eternity.

Love,

Mom (Velvet)

[lolalini]

Thank you for putting out the word! Mom to Finelea (the cutie at about 1:10 in the video)!

[ChocolateComic]

Beautiful! It was so neat to see a picture of Gauge, who has the same deletion as our daughter, Brooke. It's nice to know there are so many more children like her out there than we were told. Thanks.

Becky

[haleyii2]

Hello Becky, It is nice comming across others with the same deletion :)

Haley (mom to Gauge 9q34.3 deletion)

[candicemb83]

These children and their BEAUTIFUL, BRIGHT and COURAGEOUS smiles just made my day. God bless everyone of them.

[tkgiles00]

Thank you so much for the video. It is so beautiful and touching with all of the wonderful children. Very Proud Grandma of Brea Terminal Deletion 4q35.1 - 35.2.

[candicemb83]

Brea's smile was the one that just took the cake for me. Every one of these children are amazing, but Brea is just so great, you can see her love for the world and adventure, in that 1 picture. You are blessed :)

[Karilockwood]

you said it for me too. This video helps in so many ways. Brea is our princess, crown and all. I am Brea's mooma and have no words to express my admiration for the remarkable children and their parents. Their determination and courage are a beacon for us all.

[tianaelle]

Thank you for making this video! I couldn't help crying as I watched the beutiful children in the video!

Thank you for CDO for letting us know we are not alone!

Kelley

Mom to miracle Sofia Annalee

Mosaicism 18 Monosomy

[KieBaby1980]

Thanks for that :) Mom of daughter, 7 week old Reid. Partial Monosomy 13p, Partial Trisomy 2p, translocation. Was told she was the only one.

[vdodart]

I LOVE it! Mom to Simon Trisomy 11q monosomy 20p

[girlpilot]

Beautiful .. Mommy to Eddie monosomy 9p trisomy 8q

[bri276]

We definitely are NOT alone, no matter how different the affected chromosomes are, I truly felt like I could see the face of my own child in every one of "our" BEAUTIFUL kids!

[kateym01]

i love the video.thanks it was great.i cried and everyone that i showed this to cried as well.

[kghw]

Great video!

Beautiful kids!

[ring14not15]

Thank you for making this.

Terri