I have been sent to a very good psychiatrist who cares for my meds while I live with stressful never ending pain in my body from illnesses of: fibromyalgia, rheumatoid arthritis, osteoarthritis, carpal tunnel syndrome, severe depression , chronic fatigue syndrome, brain-fog that feels more like dementia and is scaring the crap out of me. I have asked numerous times to see my rheumatologist one more time but I am refused as he does not see patients after diagnosing them!
I am drained every day with my chronic pain. I persevere with a smile on my face. Lately however, I am not sleeping well at all. The pain is making me wake up a lot. It's brutal to my well-being. If I had lots of money and had a good job that I could continue to work at then I would be able to get all the expensive treatments like massage and chiropractic care that has helped me immensely in the past.
After 40 years of searching for help with environmental illness (multiple chemical sensitivity), I was helped by two things.
1. Autohemotherapy (without ozone added)
2. An alternative to muscle testing, on amino acids, and other supplements that involved a computer and electronic sensors touched to speciffic points on the feet and hands (can't remember the name of the devise)
I;m very sick from dteregents that are sented.people have in there cloths.perfume..cologne...i been sick from them for years....first it was sinus infections headaches...then spasic bowel.I;m tired..I have bladder infrctions from perfumes
I;m very sick from dteregents that are sented.people have in there cloths.perfume..cologne...i been sick from them for years....first it was sinus infections headaches...then spasic bowel.I;m tired..I have bladder infrctions from perfumes
Wow, amazing how some can be so narrow minded... simply working does not keep you skinny and fit lol My heart goes out to all the "unseen" illness sufferers out there. You all are courageous, mightily strong in heart and I commend you. You are not alone, and know there is some people out there championing you to get better.
This comment has received too many negative votesshow
I do feel this way you disfunctioned societal outcast. You need to stop responding to me. I say what everyone else thinks. You get positive feed back on here because everyone is the same as you. I work full time and still have time to argue on here. WHY? because i dont bloody whine about my aches and pains. And this keeps me skinny and healthy. when no one listens shut the F up.
This comment has received too many negative votesshow
You need to lose weight, excersise everyday, eat healthy, get friends, and stop bloody whining and trying to make videos to prove a condition that is mental, and not physical. Doctors diagnose this condition to shut you up, because you drain the system and use resources when there are people dying. Go to a sick kids unit, and tell them about your condition. We all have pains and reactions to chemicals, but we just suck it up and get on with life.
ezadda, obviously you have no understanding about this disease. CFIDS is real, and it is disabling. Your comments are cruel and ignorant. Thank goodness that awareness about CFIDS is increasing and people are getting real help instead of ignorant people calling them crazy. Susan is doing what she can to raise awareness and I applaud her for that.
People who dont understand m.e please shutt up as your annoying! i just want to let you i go through m.e each day! ive had it since i was 13 im 23 now!but i am a mild suffer now!, i know what you go through ive been there!i was house bound for over a year but now im a little better im gunna make a change...i hope you will support my cause!!! Next year im doing a big campaign for awareness for m.e/cfs...so watch this space!! just watch me! we deserve rights!take care everyone!!
Living in a gas heated unit brought out the worst of my MCS. I was sensitive to hundreds of chemicals. "People with chemical allergies/ sensitivities react extremely adversely to even minute traces of gas."
I had severe CFS until I took out my root canal tooth in 2003. Now I get CFS when I go off my strict diet. when I eat lots of raw green vegetables and fruit, I am fine. When I start eating breads and sweets, I get CFS and depression. The hardest thing to do is change your diet. Thanks for your video.
ada, everyone is different. I tried every type of diet including total vegan, the difference was minimal at best, and I still had relapses. Saying it's all about diet only adds to the ignorance out there, it helps people who blame us for what is by all accounts including recent research, viral. Three retroviruses, one causes leukemia one causes HIV and one causes CFS/ME and yet, people tell us to eat more fiber. LMAO.
Very good professional video - thanks for making the effort to make this and show us all.
Thank god you have a good Doctor who cares, they must be a star in your eyes, thats one positive thing at least amidst so many negatives you must deal with.
I wish you all the best in your struggle for treatement and acceptance of this truly horrible condition.
I dont have exzactly the same as you i have chronic fatigue syndrome and im 16 . I love this video i get the whole you dont look ill thing , turning up for an hour at school get a lot of people saying you skiver you dont look ill
Thanks so much for sharing your pain and CFIDS (a terrible illness) with us.
I really do understand...I have had CFIDS since 1994 and it has disabled me. I am a 53 year old man but i feel like I am 93.
I did get somewhat better but my relapses are terrible. I was feeling awful and i decided to search for CFIDS on YouTube, I found your video and some others and now I feel better.
I am a musician/composer/producer and I can only work very, very slowly.
I think you need an excellent shrink.
missmissy22556 11 months ago
I have been sent to a very good psychiatrist who cares for my meds while I live with stressful never ending pain in my body from illnesses of: fibromyalgia, rheumatoid arthritis, osteoarthritis, carpal tunnel syndrome, severe depression , chronic fatigue syndrome, brain-fog that feels more like dementia and is scaring the crap out of me. I have asked numerous times to see my rheumatologist one more time but I am refused as he does not see patients after diagnosing them!
TheJohnlennongirl 1 year ago
@TheJohnlennongirl
The Cherry on top of our "cake".. the SOBs " doctors"...
EutuveX 1 year ago
I am drained every day with my chronic pain. I persevere with a smile on my face. Lately however, I am not sleeping well at all. The pain is making me wake up a lot. It's brutal to my well-being. If I had lots of money and had a good job that I could continue to work at then I would be able to get all the expensive treatments like massage and chiropractic care that has helped me immensely in the past.
TheJohnlennongirl 1 year ago
After 40 years of searching for help with environmental illness (multiple chemical sensitivity), I was helped by two things.
1. Autohemotherapy (without ozone added)
2. An alternative to muscle testing, on amino acids, and other supplements that involved a computer and electronic sensors touched to speciffic points on the feet and hands (can't remember the name of the devise)
okydokysmoky 1 year ago
Ya I feel ya, air fresheners really attack me and so do perfumes of others! & others don't get it. The fabric softeners kick my buttocks too!
ironbith 2 years ago
I;m very sick from dteregents that are sented.people have in there cloths.perfume..cologne...
dbfillmore 1 year ago
This has been flagged as spam show
I;m very sick from dteregents that are sented.people have in there cloths.perfume..cologne...
dbfillmore 1 year ago
I;m very sick from dteregents that are sented.people have in there cloths.perfume..cologne...i been sick from them for years....first it was sinus infections headaches...then spasic bowel.I;m tired..I have bladder infrctions from perfumes
dbfillmore 1 year ago
This has been flagged as spam show
I;m very sick from dteregents that are sented.people have in there cloths.perfume..cologne...i been sick from them for years....first it was sinus infections headaches...then spasic bowel.I;m tired..I have bladder infrctions from perfumes
dbfillmore 1 year ago
Wow, amazing how some can be so narrow minded... simply working does not keep you skinny and fit lol My heart goes out to all the "unseen" illness sufferers out there. You all are courageous, mightily strong in heart and I commend you. You are not alone, and know there is some people out there championing you to get better.
ThornSFlower 2 years ago 5
This comment has received too many negative votes show
I do feel this way you disfunctioned societal outcast. You need to stop responding to me. I say what everyone else thinks. You get positive feed back on here because everyone is the same as you. I work full time and still have time to argue on here. WHY? because i dont bloody whine about my aches and pains. And this keeps me skinny and healthy. when no one listens shut the F up.
ezadda 2 years ago
ezadda, everyone is different. Accept that fact and get on with your life instead of spending time attacking people who are already at their lowest.
RubyMiami 2 years ago 2
This comment has received too many negative votes show
You need to lose weight, excersise everyday, eat healthy, get friends, and stop bloody whining and trying to make videos to prove a condition that is mental, and not physical. Doctors diagnose this condition to shut you up, because you drain the system and use resources when there are people dying. Go to a sick kids unit, and tell them about your condition. We all have pains and reactions to chemicals, but we just suck it up and get on with life.
ezadda 2 years ago
ezadda, obviously you have no understanding about this disease. CFIDS is real, and it is disabling. Your comments are cruel and ignorant. Thank goodness that awareness about CFIDS is increasing and people are getting real help instead of ignorant people calling them crazy. Susan is doing what she can to raise awareness and I applaud her for that.
JillGriffin61 2 years ago 2
What happened if you started to feel this way? Then would you believe?
Idiot.
cuddyx3valium 2 years ago
You obviously don't know what you're talking about! I'd give everything I have to be able to exercise. but it just make your condition worse.
You are completely IGNORANT!
LSecret 1 year ago 3
People who dont understand m.e please shutt up as your annoying! i just want to let you i go through m.e each day! ive had it since i was 13 im 23 now!but i am a mild suffer now!, i know what you go through ive been there!i was house bound for over a year but now im a little better im gunna make a change...i hope you will support my cause!!! Next year im doing a big campaign for awareness for m.e/cfs...so watch this space!! just watch me! we deserve rights!take care everyone!!
SAMMYBABYLOVE 3 years ago
Living in a gas heated unit brought out the worst of my MCS. I was sensitive to hundreds of chemicals. "People with chemical allergies/ sensitivities react extremely adversely to even minute traces of gas."
ada7indo 3 years ago
I had severe CFS until I took out my root canal tooth in 2003. Now I get CFS when I go off my strict diet. when I eat lots of raw green vegetables and fruit, I am fine. When I start eating breads and sweets, I get CFS and depression. The hardest thing to do is change your diet. Thanks for your video.
ada7indo 3 years ago
ada, everyone is different. I tried every type of diet including total vegan, the difference was minimal at best, and I still had relapses. Saying it's all about diet only adds to the ignorance out there, it helps people who blame us for what is by all accounts including recent research, viral. Three retroviruses, one causes leukemia one causes HIV and one causes CFS/ME and yet, people tell us to eat more fiber. LMAO.
RubyMiami 2 years ago
Very good professional video - thanks for making the effort to make this and show us all.
Thank god you have a good Doctor who cares, they must be a star in your eyes, thats one positive thing at least amidst so many negatives you must deal with.
I wish you all the best in your struggle for treatement and acceptance of this truly horrible condition.
luminescentfeeling 4 years ago
Thanks for posting this
redrachel76 4 years ago
I dont have exzactly the same as you i have chronic fatigue syndrome and im 16 . I love this video i get the whole you dont look ill thing , turning up for an hour at school get a lot of people saying you skiver you dont look ill
Sexybumasdfghjkl 4 years ago
I'm 18, and I get that skiving thing all the time too. Man it's annoying.
looweehse 4 years ago
Thanks so much for sharing your pain and CFIDS (a terrible illness) with us.
I really do understand...I have had CFIDS since 1994 and it has disabled me. I am a 53 year old man but i feel like I am 93.
I did get somewhat better but my relapses are terrible. I was feeling awful and i decided to search for CFIDS on YouTube, I found your video and some others and now I feel better.
I am a musician/composer/producer and I can only work very, very slowly.
Thank you so much,
Hal
htael111 4 years ago