I lost everything to this terrible disease....!! And my doctors laughed at me when I asked them if it could be Lyme.... I had to find a Lyme Literate Doctor 158 miles away. (I'm in WI)
Hi all! Hi to TheSoloAsylum! Hang in there, no matter what! To endure what we have already, and continue to, we are tougher than most. We have to remember that, even at what feels like our weakest times. I have felt so many times like I'm in this by myself, but every now and again, I realize that I'm one of sooooo many that are poisoned with this plague. We need to get organized, somehow, so that none of us feel like we're in this alone. There are so many of us. Strength in numbers!
It's a shame the volume is so messed up on this, I can hear the interviewer, but can't hear Randy that well...I would have preferred to hear what Randy had to say...
Hi Randy! I'm writing from Pinellas County, Florida. (That's about where the bird migration hooks a right in its travel south.) I was amazed to see that in the book, Lab 257. I saw you last week on Jesse Ventura's show. Awesome!! You got some big brass ones, brother! Thank you for speaking for us all. I'm trying to spread the word down here in denial land, to warn people. I've had this for so many years, mostly undiagnosed, and my kids were born with it. I really need to contact you.
@Tickscorn I am in Pinellas County and now have learned I am the newest Lyme club member.......they have me on the standard antibiotics now and the CDC has already contacted me. I'm starting to get worried.
was this done for a newscast? I went un/misdiagnosed for 4 yrs thanks to the inept medical community, even went to Duke and Hopkins....found Igenex lab and a LLMD and am now on massive IV abx therapy + Nutramedix SAMento cat's claw and vitamins.....More POWER TO YOU, RANDY!!
I only lived in CT for 2 years...I was given a parting gift. Misdiagnosed in a clinic 50 miles from Lyme County. My case was studied by a Boston Medical Professor for rare co-infection. Since 1998 I have suffered. after 3 rounds of antibios I decided to conserve my organs-using Rife therapy.Look up Plum Island and look at it's geographical position compared to Lyme County. where you live matters little...this was a well(f-ed up) executed plan.
Amen brother! I wish I had seen this a few years ago. I've been laying in bed for three years, with really wonderful looking blood tests, that cost thousands of dollars. I finally decided to skirt my doctors and put myself on doxycycline. I'm watching the mail everyday for it, hoping for a miracle. I'm just sorry I listened to doctors, and allowed it to become a chronic condition.
Bravo! This is long overdue. We need Michael Moore to do a documentary on this. This chronic infection stuff is very real and very scary. I had a neg Lyme test seven yrs ago, so was told I must have ms. I got antibiotics on my own, but am NOT better. Washington/CDC/Insurance companies have gained much by telling us all to go away. Makes me so mad I could spit!
Thanks for the great post.I've been obsessed w/ this kind research,if you could cite your info that'd be wonderful.I'd love to know of any good books on these topics,the only one I know of is Lab 257.
Go Randy! Your are one awesome Lyme Cryme fighter. Remember, one fine day we will win against this terrible travesty against the World. I am so DAMN PROUD to call you my friend and very happy to STAND WITH YOU to FIGHT TOGETHER! I drew my line in the sand. You are so right about patients putting aside their personal differences and act TOGETHER for positive change, for TOGETHER WE STAND!
Good video. How do we fight back? Class action suit? I hate Lawyers but this seems to be the only course... I don't think politicians will touch it... too technical... you can't describe the problem in a 15 second sound bite. I am sick, my wife, my son, my wife's sister. Sister's daughter likely has autistic spectrum. My daughter has issues, is pregnant and won't get tested!
I lost everything to this terrible disease....!! And my doctors laughed at me when I asked them if it could be Lyme.... I had to find a Lyme Literate Doctor 158 miles away. (I'm in WI)
WatchMeGoDown 10 months ago
Hi all! Hi to TheSoloAsylum! Hang in there, no matter what! To endure what we have already, and continue to, we are tougher than most. We have to remember that, even at what feels like our weakest times. I have felt so many times like I'm in this by myself, but every now and again, I realize that I'm one of sooooo many that are poisoned with this plague. We need to get organized, somehow, so that none of us feel like we're in this alone. There are so many of us. Strength in numbers!
Tickscorn 1 year ago
It's a shame the volume is so messed up on this, I can hear the interviewer, but can't hear Randy that well...I would have preferred to hear what Randy had to say...
BetsyRossConservativ 1 year ago
Plz add me ty..
heavensnme 1 year ago
I just noticed that my post disappeared. Did I say something wrong?
Tickscorn 1 year ago
Hi Randy! I'm writing from Pinellas County, Florida. (That's about where the bird migration hooks a right in its travel south.) I was amazed to see that in the book, Lab 257. I saw you last week on Jesse Ventura's show. Awesome!! You got some big brass ones, brother! Thank you for speaking for us all. I'm trying to spread the word down here in denial land, to warn people. I've had this for so many years, mostly undiagnosed, and my kids were born with it. I really need to contact you.
Tickscorn 1 year ago
@Tickscorn I am in Pinellas County and now have learned I am the newest Lyme club member.......they have me on the standard antibiotics now and the CDC has already contacted me. I'm starting to get worried.
TheSoloAsylum 1 year ago
was this done for a newscast? I went un/misdiagnosed for 4 yrs thanks to the inept medical community, even went to Duke and Hopkins....found Igenex lab and a LLMD and am now on massive IV abx therapy + Nutramedix SAMento cat's claw and vitamins.....More POWER TO YOU, RANDY!!
vandlent 2 years ago
I only lived in CT for 2 years...I was given a parting gift. Misdiagnosed in a clinic 50 miles from Lyme County. My case was studied by a Boston Medical Professor for rare co-infection. Since 1998 I have suffered. after 3 rounds of antibios I decided to conserve my organs-using Rife therapy.Look up Plum Island and look at it's geographical position compared to Lyme County. where you live matters little...this was a well(f-ed up) executed plan.
kevininbc 3 years ago
Wrote a very comprehensive Lyme brochure with the help of 2 Lyme specialists. Will email a copy to anyone. GREAT INFO
Elaine in VA
ecftube 3 years ago
Amen brother! I wish I had seen this a few years ago. I've been laying in bed for three years, with really wonderful looking blood tests, that cost thousands of dollars. I finally decided to skirt my doctors and put myself on doxycycline. I'm watching the mail everyday for it, hoping for a miracle. I'm just sorry I listened to doctors, and allowed it to become a chronic condition.
londerosa 4 years ago
This video kicks butt.
hurliegirlie1911 4 years ago
Bravo! This is long overdue. We need Michael Moore to do a documentary on this. This chronic infection stuff is very real and very scary. I had a neg Lyme test seven yrs ago, so was told I must have ms. I got antibiotics on my own, but am NOT better. Washington/CDC/Insurance companies have gained much by telling us all to go away. Makes me so mad I could spit!
kidkollector 4 years ago 2
beta lactams including penicillins and cephalosporins convert some spirochetes into L-forms. What then? Do we avoid rocephin and penicillins?
trebelclef 4 years ago
Thanks for the great post.I've been obsessed w/ this kind research,if you could cite your info that'd be wonderful.I'd love to know of any good books on these topics,the only one I know of is Lab 257.
kalidoscopeyes 4 years ago 2
The Posion Plum, No Compassion Observed.
DontTickMeOff 4 years ago
Go Randy! Your are one awesome Lyme Cryme fighter. Remember, one fine day we will win against this terrible travesty against the World. I am so DAMN PROUD to call you my friend and very happy to STAND WITH YOU to FIGHT TOGETHER! I drew my line in the sand. You are so right about patients putting aside their personal differences and act TOGETHER for positive change, for TOGETHER WE STAND!
Dottie L. Heffron
DontTickMeOff 4 years ago 2
Good video. How do we fight back? Class action suit? I hate Lawyers but this seems to be the only course... I don't think politicians will touch it... too technical... you can't describe the problem in a 15 second sound bite. I am sick, my wife, my son, my wife's sister. Sister's daughter likely has autistic spectrum. My daughter has issues, is pregnant and won't get tested!
loggerbuck 4 years ago
Right on! Ive been poisoned too, and I have been researching the same thing you have.
Im with you 100%...
Dont know about you.. but I am beyond bitter about it all..
LymeKerry 4 years ago 2