Added: 4 years ago
From: DiamondDijana85
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  • What an Angel! We will pray for this beautiful little girl and for her healing.

    God bless you little Kaylah & parents.

  • What a beautiful family and video. Even though your daughter doesn't speak with words, she has taught at least 30,585 people about retts and about love.

  • Hi Dijana, just love your video. Kaylah is stunning and that smile.... oh, she is just gorgeous. What a beautiful little family you are.I can't imagine how hard life must be for you and am sorry that you have to go through all of this. I pray for a cure for this disease and that Kaylah is blessed with a miricle. I will continue to pray x x x

  • I have an adroable little cousin that has retts syndrome and the doctors said she would never talk but now she is saying words like mommy daddy rileigh kindley and she is the only one of her diasese that can talk!! I LOVE MY COUSIN!!!!!!!!! SHE IS A BLESSING FROM GOD TO MAKE ME A BETTER PERSON!!!

  • <3 :-)

  • HI! YOUR DAUGHTER IS SOO BEAUTIFUL! THEY REALLY ARE SILENT ANGELS :) MY DAUGHTER IS 2 AND WAS DIAGNOSED THE DAY AFTER MOTHERS DAY 2010. ITS BEEN VERY HARD FOR ME SEEING MY CHILD GO FROM AN AVERAGE CHILD TO A CHILD THAT IS SOLELY DEPENDANT BUT, LIFE GOES ON SHE MY ANGEL AND SUCH A JOY TO HAVE. THEY ARE THE SWEETEST LITTLE ANGELS YOU COULD EVER HAVE :))

  • She is beautiful lots of love to you all xxxxxxxxxxxx

  • for those suffering from Retts: I just saw several videos on Youtube about stem cell treatments for Rett's, search for retts reversal and retts before after treatment to find them. I have a daughter with Down syndrome but there are not that many success stories. Rett's there are. The neurons are not damaged and function returns very quickly (see youtube video called Rett Syndrome Reversal Summary)

  • @lioralourie2 hello! i just recently heard of this research after taking my daughter (with retts) to the neurologist! i am so excited. about your daughter with down syndrome my sister had down syndrome and was everyones FAVORITE! she was so sweet and independant. she graduated from high school and worked. they are so much fun to have around!!!

  • god bless u angel *tear*

  • I am a special angel to. But I am 16. I have Hemiplegia Cerebral Palsy. I been doing ballet at Omaha JCC For 11 years. I love you Annemarie, Becca, Callie, Keylan, Colleen, Faith, Josee, Kristy, Kristen Koley, Kristen, Mallory R, Moira, Mychel, Natalie, Rachel & Stephanie are my ballet best friends. They now what I can do & can't do. When we are in center I have to be between them.

  • You have a beautiful little girl...she is in my prayers. Ted K

  • Kaylah is a speical little girl with Rett Syndrome. Kaylah family love her so much.

  • Hey I had the wonderful privalage of taking care of a young woman with retts. She was actually on the julia roberts special Silent Angels her name Erika!

    You are so blessed. I have a disaled child her skin blisters and sloths off her body!

    We are wonderfully lucky parents because they need all our love plus extra!

    God Bless!

  • i think she's beatiful. She may not be perfect to other people, but you are so lucky to have such an adorable little girl.

    Love Always. Xx

  • ahh she is so lovely little girl! Will she be ever be able to walk? Or isn't that just possible? I love this song, what the name of it?

  • Your daughter is soo cute, she has the most amazing smile, my niece has Retts and has also got the cutest smile that could melt your heart, thenk you for sharing her pictures with us.

  • am having a doter shes 8 years .she haves rettsyndrom,she cant do anithing by her self...im from norvay and my engelsk is not the best,so i hoppe your understanding me..she is a vonderfull girl and the love of my life,in norvay its only 90 girls that have this diagnos. my doters name is benedikte and mentaly shes 3månd ...shes a big smile a day and all nigt long :)its the smallest thing that matters , and all love her all my life...

  • I want to hug her, she is so beautiful. You have a little angel

  • She has the most adorable clothes

  • Kaylah is a cutie pie! Lilike loves hi 5 2 :)

  • aww she's so pretty she looks like both parents

  • Oh thank you so Much...

  • your welcome

  • But then I guess your cousin doesn't have a genetic disorder either.

    My sister is four and has Rett syndrome and still can't walk on her own. But she's trying her best:)

  • shes adorable... how old is she now loved the pic around 2:27 shes always sooo happy...your very blessed

  • O what a precious girl! She is gorgeous!

  • I love that song did you see my little rett angel her name is Ariana you did a good job on the video good luck and we will keep you in our prayers

    annette

    ariana's mommie

  • I love that song did you see my little rett angel her name is Ariana you did a good job on the video good luck and we will keep you in our prayers

    annette

    ariana's mommie

  • She is just beautiful !

    hugs and butterfly kisses from Maine.

    Alexis MAries forever Nana Penny

  • Hi Manie and Family,

    Thank you so much for your sweet compliments... So Sorry i have not otten back to you sooner i have been really busy... I will be putting some more videos on you tube really soon...Thank you agian and take Care...Always Dee...

  • Such a beautiful girl! My daughter was diagnosed in January this year, although I suspected for a long time. She is also three and unable to sit unsupported, weight-bear, does hardly make sound. We're in QLD but we'll go to the clinic at Westmead in June next year for the second time. We might meet each other sometime down the track:)

  • Hello kpad2,

    Thank you so much for your compliments... I also watched your Video of your Beautiful Lil Angel she is so cute, o sorry to hear that she also has this horrible disorder. I myself have to go to the Clinic but in May... I would love to meet with you and your family i think it would be a great....

    Thank you again and take Care... Give a kiss to your little Angel for me...

    Always Dee

  • I think your daughter is beautiful! She reminds me of mine! My daughter has Rett Syndrome as well.

  • Hi Steadmanclan,

    Thank you for your compliment,

    Its so sad to hear how many little gorls have this Horrible disorder im so sorry to hear that.. How old is your Daughter?

    Take Care... Always Dee

  • My girl is 2 years old.

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