Touching story, my best mate has MS, anyone with early stage of the disease should investigate C.C.S.V.I (Google it). I'm not saying it's a cure but see what you think. Hope it helps. Leroy :)
There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore this blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
Thanks for the cheering testimony. I found out yesterday that my sister was just diagnosed with MS, and I'm devastated. I'm now desperately looking for testimonies that can cheer me up, and this is one of them.
i find ur experiences relate to mine so much. im 30 and was just diagnosed this past February. i woke up one morning and was numb in both feet, ankles and pelvic area. i made a joke of it at work for awhile and let people kick me in the feet when they got frustrated, cuz i felt nothing! then i found out it was MS and i wasn't so goof ball'ish about it. but now iv come to grips and taking it one day at a time. i just wanna say thank u for ur post's cuz they have helped me thru all this :)
Why doctor afraid to think whether this disease is cause by chronic Mercury poisoning?? may be they even don't know what is Mercury.
Mercury is a neural-toxic heavy metal ! and it is the second most toxic thing in the world. ( The most toxic thing in the world is "Uranium" - a heavy toxic silvery-white radioactive metallic element.)
Hey!! Keep it up!! I got ms!! My so different ! My friend told me I change do much! I was like no I haven't! Turn to found out I did!! I was peaceful caring!! But now I hate ! Want to fight really bad!! Sometime I want to pick up a stick or something sharp to swing or stab!! I was holy shit! Double vision & numbness on my whole right side!! Pain left knee cap!! I got ms!! Secondary progressive something! 4-5 spot in my brain!! This shit sucks! I need a vacation! My parents talking about w
How many people know that chronic Mercury poisoning cause many disease including Multiple Sclerosis? Do you know Dental Amalgam have 50% Mercury and non-stop leaking Mercury vapor? Do you know Sweden have banned the use of Dental Amalgam in their country already?
How many people know that chronic Mercury poisoning cause many disease including Multiple Sclerosis? Do you know Dental Amalgam have 50% Mercury and non-stop leaking Mercury vapor? Do you know Sweden have banned the use of Dental Amalgam in their country already?
Hi..My Bigg Sister Has MS Too....She Found Out Only When She Was 15..Even Tho She Is Just 16 Now (gonna be 17 jan 26) ..But Im Sure She Would Love To Hear More Stories And Stuff...If You Have A Facebook You Should Add Her.. She Has Alot Of People With MS On There Talking To Her About Everything Since Shes Young And Stuff..But Her Name Is Morgan..On Facebook You Can Find Her Under "Morgan Caitlyn Wagley.
Dear Liz. I hope you are okay. I wish one day, there will be better treatment options, and better diagnosis methods. I wish I could help you and other people with MS. In my heart, I'll be always remembering you and everybody.
This is a really beautiful and honest video lizzy :) I love how positive you are and I completely will take your advice...I was diagnosed with Fibromyalgia a few weeks ago and need an MRI soon to rule out MS as well as another condition called Sarcoidosis. Hope you're still fighting strong. Thank you for making this xo
I have been watching all your MS videos, and I find you a HUGE inspiration. Your stories bring tears to my eyes. You are very strong. I have just been diagnosed and am starting on Rebif next week, so your videos are helping me a lot. Keep it up, I really enjoy them. Good luck with everything! :)
Hey Liz, I like your video xD, I think i have you added on my myspace page. I used to take Avonex, but the meds became to expensive for my parents and its taken me forever to get my own health insurance. I haven't been taking any meds for my MS for over a year. I know I should get back on them as soon as possible but i think that since i dont have symptoms reminding me i have MS i'm basically ignoring the fact that i do have it...probably not the best choice..@_@
Why does every resource and testimonials not describe symptoms in detail? Like is the numbness/tingling constant and as strong as it being asleep, or weaker and intermittent and does it affect how easily it falls asleep due to an awkward position? Blurry or double vision, is it like constant?
He has a theory about MS that I found quite interesting. He offers a book and treatment sessions. I don't have the luxury of getting that type of help for myself seeing as how it's rather expensive, but for you, Liz, or anyone else reading this who has an optimistic and supportive family, it wouldn't hurt to look further into.
That damn red dot monitor test! (and the one with the black and white squares which switch back and forth between black and white) It sent me into siezures every time.
Regarding the pain... My best friend in all the world is a Japanese National. When I used to complain about pain he used to smile at me and say, "Pain is evidence of life." So I started to look at pain as a gift in that it proves that I am still alive.Don't get me wrong.Pain still sucks.But life doesn't so I'm in good shape!
I was diagnosed like a month ago, the doc just put me on rebif- i don't wanna take it, anc i can't quite tell if it's helping yet, but by best friend's grandpa has been taking LDN since before i was born (i'm 18) and he's doing fine, and he says that it's the best thing he's ever taken, and he's had MS for 45 years. Just a suggestion. Thanks for sharing your story
Your story made me cry. Our prayers are with you, hon. The Lord can be your strength. My brother was diaganoised with MS in his late thirties. Please don't rule out altrnative medicines,
Liz Thank you so uch for sharing your story it brought tears to my eyes because I am now on the road of finding a diagnosis which the main one that doctors are thinking is MS mine all started with urinary retention and some tingliing in my extremities but the main thing is the urinary retention I have to use a catheter to pass urine and now have since have had chronic kidney infection that is not related and the neurologist here in my town dismissed me because I passed the evoked potential test
i've watched this before but i've decided to watch it again. Oh Liz you poor, poor girl. I pray to God so that you can find a cure one day. Is it still this bad? anyways, best of luck to you and always remain hopeful! A cure is bound to come one day so be careful and stay patiant. Most importantly, be yourself and dont let ms take! You may have it but it wont have you dammit! I wish you and all the other poor souls who have ms luck.
Dear Liz, thank you for sharing. It sounds just like my own story in lots of ways tho I'm older than you. I've had MS for 42 years now. Still RR; still walking; at times with aid of stick or frame. Tried Rebif for 2 years, not much help for me; starting Tysabri in December hopefully; really looking forward to this. Anyway just want to wish you all the best and let you know life still goes on and being positive is worth so much. The Serenity Prayer is my mantra.
I had the exact same series of tests .. however, I did not feel a thing with my spinal tap .. I guess I got lucky. BTW - many times MRI's do not pickup the lesions. It's important to get the TESLA 3 with contrast.
I'm thinking about forming the IHMSAIS (I have MS and it sucks) Society.
I wish you all the very best and thank you Lizzy for your post.
I also have been diagnosed with MS..after watching alot of the videos on youtube I notice that noone mentions having alot of muscle twitches throughout their bodies..that was my very first symptom that made me seek medical attention..also pain in the side of my head which I now know is my trigeminal nerve..anyone else have the symptom of muscle twitches? Also has anyone heard now that the FDA is saying that Tysabri causes skin cancer?
I had a spasm twitch and numbness too, I am still getting tests done for MS, I have a spinal tap on Monday and had an MRI that showed the lesions so I am not sure if I have that or not but the doc is pretty convinced
Thanks for sharing your story... I was dx with MS @19 as well. I am now 28 almost 29 next month. As a result of the MS dx I was medically retired from the United States Air Force becuase I was serving on active duty... Hang in there and thanks again for sharing!!
Thank you for posting your story. I think you are a beautiful person. I am sorry you had to have the spinal tap. I was able to skip that step, as I had enough lesions and medical history for diagnosis. I had a similar experience with the traffic. A double decker bus on Oxford Street came to a screeching hault in front of me (I was just trying to shop!)
Attitude is everything, and you have the right attitude for sure! I truly believe that MS will NEVER have you.
although i'm aware the disease has hit you harder, my advise is that you enjoy the moments you have, with friends, family, and try not to think in the future (which of course is the most worrying aspect of the disease).
We're both young (i'm 20), so i'm sure we'll both live to see the discovery of a cure. Look how medicine has advanced in the last century! some decades ago people didn't even know MS! Also don't lose faith in Rebif. You don't feel it but it's stopping new sympthoms from appearing
Luckily, i didn't have to go through the spinal fluid test, but it was enough with an MRI, some blood tests, and the Visual Evoked Potential test (that's the name of the test you also had to do, with a monitor flashing). I had the symthoms in April 2007, and started the treatment with Rebif in June. It was all very soon, i was very lucky, and the sympthoms have been away for like a year now.
I read a lot about it too, cause at first i thought it was Amyotrophic Lateral Sclerosis (much worse)
Thank you very much for this video.. i'm truly surprised your diagnosis took so long, and sorry that you had to suffer that much.. I live in Argentina and got diagnosed less than 2 months after the first sympthoms! i would've though that in the US was simpler..
When i had the sympthoms i knew it was something serious about my brain cause it affected my voice. At times i couldn't fully control it, i sounded like a drunk person.
Thank U for your video. I also have MS and have it for almost 11 yrs now. I also have Restless leg syndrome. I didn't get DX till I was 41 but had problems for about 5 yrs before the DX. U are so young and very brave.
Dear Liz, thankyou so much for your video. I do not have MS, but your thoughts have been inspirational to me not the less. Thank you for taking the time to share. I wish u the most comfort possible. Take care cute girl.
I know how you feel liz, at least you didn't have to stay at the ward for 5 weeks, not being able to walk for two much less to speak properly or even to hold a spoon without dropping it, these little youtube comments are just way too small to tell the hole tale, double vision, ataxy, muscle pains i know it all, atleast Tysabri helped me out, (Quite experimental here in finland but it still works, best medical coverage in europe), atleast i can live somewhat normal life; go out with friends again
Got 2 questions - does your doctor put a lot of his/her patients on Tysabri? Also can you say how you were doing before and after? Finally, how many monthly infusions of Tysabri did it take to help?
It really depends Fred, it's often that last trump card if other MS medications prove to be ineffective, such as copaxone and Interferon/Avonex just because Tysabri has most severe side effects, about 72% of these patients had positive experience, but no severe allergic shocks or alike, mostly bladder infections for some reasons which are unknown but it's nothing too serious).
But for me, Tysabri have been more than perfect really, first time was effective but second time did the trick.
Very good, are you saying that you had to try it twice, or that it took only two infusions to get results? Also how were you doing: a) before, and b) after the improvement? Was your vision, walking and balance affected, and how much did this improve?
By the way you should look for the directors "vbeachy" and "laurenvparrott" here on youtube, they also have remarkable Tysabri results.
It took only two infusions only to get results, such as improved (somewhat) hand-eye coordination, better overall balance, less fatigue/ataxia and neuropathic pains.
When it comes to my vision and balance, most of the time i still have to use walking stick like i always did but it's easier however, however when it comes to vision there is no blurriness in right eye anymore, although i still need glasses to read however.
Great video about MS. I am a 44 year old man who has had MS for 10 years, was in a wheelchair and using crutches. But I can now walk again because of Tysabri. My videos are on YouTube under "vbeachy"
Hi Liz! Thank you so much for sharing your story. Our stories are very similiar. From the first tingles in the legs to the spinal tap to the relapses on interferons. Stay strong and positive!
Dear Liz - you are a brave, wonderful woman. I just wanted to share, that I am 40, I have 2 incurable diseases and have just had my 53rd operation, I sleep in oxygen and have to take 21 tabs a day to stay alive. BUT I feel like I am the luckiest woman on earth. My humour helps me to get through, that and the loving support of my husband and mother, I have been ill since I was 15 - but nothing will stop me, attain my life dreams and goals, may you be the same - I KNOW you will - love Susan xxxx
I drove myself batty before diagnosis. Certainly my stress level was at a high the year before having the answers, and symptoms just kept popping up. Once the stress went away, new symptoms weren't appearing!
I'm on Copaxone, but also just began Neurontin/Amitriptyline for my crazy burning mouth, which is total hell!
Attacks are frightening! I've seen too much of the ER as well. Like you said, I know better now. Keep it up girl! :)
Your video is very touching and so well done! You refer to "Pauline" in your story. Pauline is my daughter and I appreciate your trying to help her and others.
Hi Liz!! You are so sweet! Thank you for saying those things about me. You are very brave for doing a video and sharing your experiences. I love that pin because I feel the exact same way - I have MS but it doesn't have me! I wish you the very best and please keep in touch!!
You said it great . would not change thing. You I feel you are real. Alot of people can't say that god bless.
22bellas 3 months ago
Comment removed
jcmeadows1 3 months ago
Touching story, my best mate has MS, anyone with early stage of the disease should investigate C.C.S.V.I (Google it). I'm not saying it's a cure but see what you think. Hope it helps. Leroy :)
4321smokey 4 months ago
Thanks Liz.
You remind me of a girl I used to go to church with.
I have MS as well, found out in 4/2002 while I was in medical school.
You insire me.
Joe Garza :O)
joegarza49 5 months ago
This has been flagged as spam show
There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore this blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
2ndSamuel710 6 months ago
Thanks for the cheering testimony. I found out yesterday that my sister was just diagnosed with MS, and I'm devastated. I'm now desperately looking for testimonies that can cheer me up, and this is one of them.
marcofavre1 7 months ago
i find ur experiences relate to mine so much. im 30 and was just diagnosed this past February. i woke up one morning and was numb in both feet, ankles and pelvic area. i made a joke of it at work for awhile and let people kick me in the feet when they got frustrated, cuz i felt nothing! then i found out it was MS and i wasn't so goof ball'ish about it. but now iv come to grips and taking it one day at a time. i just wanna say thank u for ur post's cuz they have helped me thru all this :)
kboid24 9 months ago
This has been flagged as spam show
Why doctor afraid to think whether this disease is cause by chronic Mercury poisoning?? may be they even don't know what is Mercury.
Mercury is a neural-toxic heavy metal ! and it is the second most toxic thing in the world. ( The most toxic thing in the world is "Uranium" - a heavy toxic silvery-white radioactive metallic element.)
perryhtc 10 months ago
Hey!! Keep it up!! I got ms!! My so different ! My friend told me I change do much! I was like no I haven't! Turn to found out I did!! I was peaceful caring!! But now I hate ! Want to fight really bad!! Sometime I want to pick up a stick or something sharp to swing or stab!! I was holy shit! Double vision & numbness on my whole right side!! Pain left knee cap!! I got ms!! Secondary progressive something! 4-5 spot in my brain!! This shit sucks! I need a vacation! My parents talking about w
ninamyhua 10 months ago
This has been flagged as spam show
How many people know that chronic Mercury poisoning cause many disease including Multiple Sclerosis? Do you know Dental Amalgam have 50% Mercury and non-stop leaking Mercury vapor? Do you know Sweden have banned the use of Dental Amalgam in their country already?
perryhtc 10 months ago
This has been flagged as spam show
How many people know that chronic Mercury poisoning cause many disease including Multiple Sclerosis? Do you know Dental Amalgam have 50% Mercury and non-stop leaking Mercury vapor? Do you know Sweden have banned the use of Dental Amalgam in their country already?
perryhtc 10 months ago
Hi lizzy I was just diagnosed I am 24 my name is Lauren Thank you so much for this
sydsabitch 1 year ago
Hi..My Bigg Sister Has MS Too....She Found Out Only When She Was 15..Even Tho She Is Just 16 Now (gonna be 17 jan 26) ..But Im Sure She Would Love To Hear More Stories And Stuff...If You Have A Facebook You Should Add Her.. She Has Alot Of People With MS On There Talking To Her About Everything Since Shes Young And Stuff..But Her Name Is Morgan..On Facebook You Can Find Her Under "Morgan Caitlyn Wagley.
mrsbiteme1 1 year ago
Do you know who Aaron Solowoniuk is? He's the drummer of Billy Talent (canadian band) and also has MS.
I think if you should go read about him and the band, you'll find LOTS of strength in this guy, he is amazing.
I don't know what MS is like, but I am epileptic.
Also, recently my family won 100,000 on a scratch ticket, Im going to ask my parents if we can donate to the MS society and a few local charitys.
I love the fact that your so strong and keep pushing, you seriously are an inspiration.
SnaacPac 1 year ago
Dear Liz. I hope you are okay. I wish one day, there will be better treatment options, and better diagnosis methods. I wish I could help you and other people with MS. In my heart, I'll be always remembering you and everybody.
poleame 1 year ago
Comment removed
brisbanette 1 year ago
This is a really beautiful and honest video lizzy :) I love how positive you are and I completely will take your advice...I was diagnosed with Fibromyalgia a few weeks ago and need an MRI soon to rule out MS as well as another condition called Sarcoidosis. Hope you're still fighting strong. Thank you for making this xo
brisbanette 1 year ago
you are not alone
123456kingpin123456 1 year ago
Thanks for your MS story.
theoldclamdigger 1 year ago
Hi Liz,
I have been watching all your MS videos, and I find you a HUGE inspiration. Your stories bring tears to my eyes. You are very strong. I have just been diagnosed and am starting on Rebif next week, so your videos are helping me a lot. Keep it up, I really enjoy them. Good luck with everything! :)
mandace87 2 years ago
Hey Liz, I like your video xD, I think i have you added on my myspace page. I used to take Avonex, but the meds became to expensive for my parents and its taken me forever to get my own health insurance. I haven't been taking any meds for my MS for over a year. I know I should get back on them as soon as possible but i think that since i dont have symptoms reminding me i have MS i'm basically ignoring the fact that i do have it...probably not the best choice..@_@
CrimsonRaven1919 2 years ago
Why does every resource and testimonials not describe symptoms in detail? Like is the numbness/tingling constant and as strong as it being asleep, or weaker and intermittent and does it affect how easily it falls asleep due to an awkward position? Blurry or double vision, is it like constant?
Reproductivist 2 years ago
There is a guy by the name of Dr. Noel Batten.
He has a theory about MS that I found quite interesting. He offers a book and treatment sessions. I don't have the luxury of getting that type of help for myself seeing as how it's rather expensive, but for you, Liz, or anyone else reading this who has an optimistic and supportive family, it wouldn't hurt to look further into.
CockslamUrBhole 2 years ago
That damn red dot monitor test! (and the one with the black and white squares which switch back and forth between black and white) It sent me into siezures every time.
Regarding the pain... My best friend in all the world is a Japanese National. When I used to complain about pain he used to smile at me and say, "Pain is evidence of life." So I started to look at pain as a gift in that it proves that I am still alive.Don't get me wrong.Pain still sucks.But life doesn't so I'm in good shape!
QuiglysMom 2 years ago
I was diagnosed like a month ago, the doc just put me on rebif- i don't wanna take it, anc i can't quite tell if it's helping yet, but by best friend's grandpa has been taking LDN since before i was born (i'm 18) and he's doing fine, and he says that it's the best thing he's ever taken, and he's had MS for 45 years. Just a suggestion. Thanks for sharing your story
shifty02 2 years ago
Your story made me cry. Our prayers are with you, hon. The Lord can be your strength. My brother was diaganoised with MS in his late thirties. Please don't rule out altrnative medicines,
Lachance8 2 years ago 2
Liz Thank you so uch for sharing your story it brought tears to my eyes because I am now on the road of finding a diagnosis which the main one that doctors are thinking is MS mine all started with urinary retention and some tingliing in my extremities but the main thing is the urinary retention I have to use a catheter to pass urine and now have since have had chronic kidney infection that is not related and the neurologist here in my town dismissed me because I passed the evoked potential test
dncr2beee 3 years ago
Medical Marijuana...the calm before the cure
Tccote01 3 years ago
MY STORY EXACTLY
Alexknobsob 3 years ago
Comment removed
CaliCousin 3 years ago
i've watched this before but i've decided to watch it again. Oh Liz you poor, poor girl. I pray to God so that you can find a cure one day. Is it still this bad? anyways, best of luck to you and always remain hopeful! A cure is bound to come one day so be careful and stay patiant. Most importantly, be yourself and dont let ms take! You may have it but it wont have you dammit! I wish you and all the other poor souls who have ms luck.
RadicalJeb 3 years ago
yep, i wish you luck Liz. surely the future will bring you a cure! Just stay happy and laugh! Laugh....like this.... Gya ha ha ha!!!
RadicalJeb 3 years ago
Liz i wanna tell u that the Lord Jesus can heal u.. He Healed me!! Why wouldnt he heal u??
I wanna pray for u,,,, Take that healing!!!
That heling is there u must take it as urs cuz he promised already...
aztecathugs 3 years ago
I will pray for God's healing for you.
videolver2 3 years ago
Dear Liz, thank you for sharing. It sounds just like my own story in lots of ways tho I'm older than you. I've had MS for 42 years now. Still RR; still walking; at times with aid of stick or frame. Tried Rebif for 2 years, not much help for me; starting Tysabri in December hopefully; really looking forward to this. Anyway just want to wish you all the best and let you know life still goes on and being positive is worth so much. The Serenity Prayer is my mantra.
51jessica51 3 years ago
Dear Liz,
thank you for sharing your story. You are a very courageous young woman and I wish you the very best.
I am raising funds for research and I truly believe that we will get to a cure soon.
Take good care,
Angela
angelusa73 3 years ago
I had the exact same series of tests .. however, I did not feel a thing with my spinal tap .. I guess I got lucky. BTW - many times MRI's do not pickup the lesions. It's important to get the TESLA 3 with contrast.
I'm thinking about forming the IHMSAIS (I have MS and it sucks) Society.
I wish you all the very best and thank you Lizzy for your post.
soulsoup1234 3 years ago
I also have been diagnosed with MS..after watching alot of the videos on youtube I notice that noone mentions having alot of muscle twitches throughout their bodies..that was my very first symptom that made me seek medical attention..also pain in the side of my head which I now know is my trigeminal nerve..anyone else have the symptom of muscle twitches? Also has anyone heard now that the FDA is saying that Tysabri causes skin cancer?
MissDeepInThought 3 years ago
I had a spasm twitch and numbness too, I am still getting tests done for MS, I have a spinal tap on Monday and had an MRI that showed the lesions so I am not sure if I have that or not but the doc is pretty convinced
cookiesnmilksinger07 3 years ago
Thank you. I to was dx with MS. thank you for your story.
paulajewels 3 years ago
Thanks for sharing your story... I was dx with MS @19 as well. I am now 28 almost 29 next month. As a result of the MS dx I was medically retired from the United States Air Force becuase I was serving on active duty... Hang in there and thanks again for sharing!!
Narimatsu 3 years ago
Hi Liz,
Thank you for posting your story. I think you are a beautiful person. I am sorry you had to have the spinal tap. I was able to skip that step, as I had enough lesions and medical history for diagnosis. I had a similar experience with the traffic. A double decker bus on Oxford Street came to a screeching hault in front of me (I was just trying to shop!)
Attitude is everything, and you have the right attitude for sure! I truly believe that MS will NEVER have you.
very best,
Marlo
teslagirlM 3 years ago
although i'm aware the disease has hit you harder, my advise is that you enjoy the moments you have, with friends, family, and try not to think in the future (which of course is the most worrying aspect of the disease).
We're both young (i'm 20), so i'm sure we'll both live to see the discovery of a cure. Look how medicine has advanced in the last century! some decades ago people didn't even know MS! Also don't lose faith in Rebif. You don't feel it but it's stopping new sympthoms from appearing
saco88 3 years ago
Luckily, i didn't have to go through the spinal fluid test, but it was enough with an MRI, some blood tests, and the Visual Evoked Potential test (that's the name of the test you also had to do, with a monitor flashing). I had the symthoms in April 2007, and started the treatment with Rebif in June. It was all very soon, i was very lucky, and the sympthoms have been away for like a year now.
I read a lot about it too, cause at first i thought it was Amyotrophic Lateral Sclerosis (much worse)
saco88 3 years ago
Thank you very much for this video.. i'm truly surprised your diagnosis took so long, and sorry that you had to suffer that much.. I live in Argentina and got diagnosed less than 2 months after the first sympthoms! i would've though that in the US was simpler..
When i had the sympthoms i knew it was something serious about my brain cause it affected my voice. At times i couldn't fully control it, i sounded like a drunk person.
saco88 3 years ago
I'm feeling exactly like this as well, I don't have the money to get MRIs to check if I have or not. .
I currently have a job now, where I can sit down and don't need to walk much. .I may go to a neurologist soon, but who knows. .
I hope you feel better. .
xoa 3 years ago
Thank U for your video. I also have MS and have it for almost 11 yrs now. I also have Restless leg syndrome. I didn't get DX till I was 41 but had problems for about 5 yrs before the DX. U are so young and very brave.
Take Care of U.
Sue
blondehell28 3 years ago
so thats ms eh? I wish you luck in dealing with it
RadicalJeb 3 years ago
Dear Liz, thankyou so much for your video. I do not have MS, but your thoughts have been inspirational to me not the less. Thank you for taking the time to share. I wish u the most comfort possible. Take care cute girl.
captainziffle 3 years ago
I know how you feel liz, at least you didn't have to stay at the ward for 5 weeks, not being able to walk for two much less to speak properly or even to hold a spoon without dropping it, these little youtube comments are just way too small to tell the hole tale, double vision, ataxy, muscle pains i know it all, atleast Tysabri helped me out, (Quite experimental here in finland but it still works, best medical coverage in europe), atleast i can live somewhat normal life; go out with friends again
TrueNeutrality 3 years ago
Hi True,
Got 2 questions - does your doctor put a lot of his/her patients on Tysabri? Also can you say how you were doing before and after? Finally, how many monthly infusions of Tysabri did it take to help?
thanks...Steve
7mumfred7 3 years ago
It really depends Fred, it's often that last trump card if other MS medications prove to be ineffective, such as copaxone and Interferon/Avonex just because Tysabri has most severe side effects, about 72% of these patients had positive experience, but no severe allergic shocks or alike, mostly bladder infections for some reasons which are unknown but it's nothing too serious).
But for me, Tysabri have been more than perfect really, first time was effective but second time did the trick.
TrueNeutrality 3 years ago
Very good, are you saying that you had to try it twice, or that it took only two infusions to get results? Also how were you doing: a) before, and b) after the improvement? Was your vision, walking and balance affected, and how much did this improve?
By the way you should look for the directors "vbeachy" and "laurenvparrott" here on youtube, they also have remarkable Tysabri results.
7mumfred7 3 years ago
It took only two infusions only to get results, such as improved (somewhat) hand-eye coordination, better overall balance, less fatigue/ataxia and neuropathic pains.
When it comes to my vision and balance, most of the time i still have to use walking stick like i always did but it's easier however, however when it comes to vision there is no blurriness in right eye anymore, although i still need glasses to read however.
Cheers.
TrueNeutrality 3 years ago
Wow, 2 Tysabri infusions, that is amazing. So now you need to have someone buy you a camcorder as a nice gift .....
Looking forward to seeing this - and perhaps seeing even better with time.....
:o)
ps - I know there is Norwegian girl on UTube who does shots for her Crohns - so it would be good to see another "Scanda" getting an IV instead....
7mumfred7 3 years ago
Hi Liz;
Great video about MS. I am a 44 year old man who has had MS for 10 years, was in a wheelchair and using crutches. But I can now walk again because of Tysabri. My videos are on YouTube under "vbeachy"
Your attitude is key...thanks!
vbeachy 3 years ago
Hi Liz! Thank you so much for sharing your story. Our stories are very similiar. From the first tingles in the legs to the spinal tap to the relapses on interferons. Stay strong and positive!
matcav76 3 years ago
Dear Liz - you are a brave, wonderful woman. I just wanted to share, that I am 40, I have 2 incurable diseases and have just had my 53rd operation, I sleep in oxygen and have to take 21 tabs a day to stay alive. BUT I feel like I am the luckiest woman on earth. My humour helps me to get through, that and the loving support of my husband and mother, I have been ill since I was 15 - but nothing will stop me, attain my life dreams and goals, may you be the same - I KNOW you will - love Susan xxxx
trowuttatwo 3 years ago
I drove myself batty before diagnosis. Certainly my stress level was at a high the year before having the answers, and symptoms just kept popping up. Once the stress went away, new symptoms weren't appearing!
I'm on Copaxone, but also just began Neurontin/Amitriptyline for my crazy burning mouth, which is total hell!
Attacks are frightening! I've seen too much of the ER as well. Like you said, I know better now. Keep it up girl! :)
dmplaura 3 years ago
thank you. You so nice and your words are really helpful
zoroodent 3 years ago
Your video is very touching and so well done! You refer to "Pauline" in your story. Pauline is my daughter and I appreciate your trying to help her and others.
1220635 3 years ago
You are very welcome. We are all in this together.
lizzy890 3 years ago
Hi Liz!! You are so sweet! Thank you for saying those things about me. You are very brave for doing a video and sharing your experiences. I love that pin because I feel the exact same way - I have MS but it doesn't have me! I wish you the very best and please keep in touch!!
laurenvparrott 3 years ago
You are very welcome my dear!
lizzy890 3 years ago