Fibromyalgia Suicide, I wonder how many?

[aleciajeanne]

Im so sorry with how bad your fms is, im 23 and im still able to do things, you are so strong that you still try to get up and do things.im scared, thinking that later ontinueon in life my fms is going to get worse.they try to say its non progressive, yet fms is progressive, because our pain gets worse, our symptoms get worse.im going to continue looking at your videos,stay strong

[colbysvids]

I am in constant pain and severe symptoms from Lyme disease. Is fibromyalgia caused from Lyme disease? could people suffering from Fibromyalgia really have Lyme disease? It is a very common and fast growing disease.

[fibromyalgiarelief1]

Fibromyalgia is indeed connected with stress and electromagnetic fields exposure could be a contributor.

[BrokenMan73]

I have fibro to and it feals like a constant battle between my simtums my sanity and liveing a normal life. It caust me my marrage my carreer my friends, except my close friends. But. I know there are good things I have relearned to enjoy in life.

[theyspar]

Also, to all of the fibromyalgia patients that are bitter towards medical proffessionals, please remember you are only hurting yourself. Literally, all that negativity is only increasing your symptoms, and so what if the doctor didn't diagnose you properly, whatever. Chances are you'd be in exactly the same place you are anyway. I say this with love to you fellow sufferers. Don't give us a whiny name :) we are strong

[theyspar]

@spbrendasp that's funny, I had ankle knee and back pain from very young as well, and doctors told me exactly that, growing pains. I'm now 20 and just finding out that I have fibro.

[windbeamproductions]

I am so worn out with this pain and the useless state it puts me in. I'm also worn out with having what little of my mind I had taken from me with fibro fog. I don't dare leave my room because I'm afraid of how grouchy I'll be to everyone. It's so hard to control. Words and attitudes are out there before I know it. I'm sick of being useless! I'm sick of just sitting here eaten up with the pain!

[FaithInspiredWriter]

In 3/08, I was diagnosed with fibromyalgia. After doc prescribed Cymbalta, I began to encounter severe symptoms of anxiety, irritability, insomnia, worse brain fog & depression. I begged my FMS specialist to taper me off Cymbalta. She refused & she "dismissed" me as her patient. For 2 yrs, I went from bad to SEVERE, docs NEVER listen, I was living in Cymbalta HELL! Mixing Cymbalta with Cipro & Ativan was the WORST choice the docs made. It led to a drug overdose. Thank God I lived!

[FaithInspiredWriter]

In 3/08, I was diagnosed with fibromyalgia. After doc prescribed Cymbalta, I began to encounter severe symptoms of anxiety, irritability, insomnia, worse brain fog & depression. I begged my FMS specialist to taper me off Cymbalta. She refused & she "dismissed" me as her patient. For 2 yrs, I went from bad to SEVERE, docs NEVER listen, I was living in Cymbalta HELL! Mixing Cymbalta with Cipro & Ativan was the WORST choice the docs made. It led to a drug overdose. Thank God I lived!

[bordsyko]

I have fibro and just found your video. I know exactly how you feel... The ignorance around this is astounding...and we all need to band together. I am amazed every day at the amount of misinformation being spread by sso-called "medical experts". It needs to stop and people need to start listening to us plain and simple. Soft hugs to all my fibro family...let's stick together!!

[ccinno6969]

I attempted to take my life 12/10. Major over dose of pills. I could not take the pain any longer. My best friend found me and saved my life. Hospital and stay in the mental ward. I am trying to deal with this now. My partner is a great help. However hard for him to understand all my pain. I feel so bad for the people that are thinking about taking their life. Our fibromyalgia family needs help.

[spbrendasp]

Now their saying it may be hypothyroidism so who knows now I just know I want to sleep a whole 5 hours straight and be able to play with my kids like I would like too,I even went to a pain clinic n they said I had arthritis in my back n degenerative disk and put me on everything that made me felt like I wasn't even on earth they didn't believe and their a pain clinic go figure thanks for listening I've been wanting to share my story to someone that understands

[spbrendasp]

I've had fibromyalgia since I was 7 which my mother called growing pains then at 12 my ankles hurt had them checked out only to tell me nothings wrong. By my 3 rd child the falling arches started and IBS then I was diagnosed with it in 2003 although it wasn't as bad as it is now so from time to time I would self take hydrocodone which basically gave me the energy to do what I need to do daily I am now at 1 pill a day and recently would sometimes increase to a half so I decided to stop for a wee

[pennymay3]

I'm right with you!

[kifurn]

thank u soooo much for this

[heyjude0821]

i have thought of suicide so many times just in 1 day it is sad but we have had 3 suicides in our family and that started my road to fibro and have been diagnosed with it for 3 1/2 years.. my other half has given up on me he was so great for the 1st year now he drinks heavily after being sober for 2 years. I have one friend and her and him talk alot on how to get me up and around. I try to tell them it is not like that they think i am in slump and need to get off my ass and do something about

[TheJohnlennongirl]

Also, I am sick and tired of so called friends telling me there is nothing wrong with me most of the time. At least I know who my TRUE FRIENDS are. Bless my TRUE FRIENDS and you all know who you are gang. :)

[mcertonio]

@TheJohnlennongirl -- Do not let ANYONE hurt you

In any way! If you need pain pills Find another DR.

I know it is difficult to educate DR's each time you

Need one. KEEP TRYING & F@#% Everyone Else!

[TheJohnlennongirl]

@mcertonio Thank you for your kindness. My doctor is a very good doctor actually but I only got her last year and it took me at least ten years to get her. The rest of the time I had to endure walk in clinics and only one problem at the time. No one would take me before because, of my multiple health issues.  Fibromyalgia was right on top with the pain among all the rest. Again, thank you for your support. I will see what is available to me in 2011. Happy Christmas and a Merry New Year 2011!

[TheJohnlennongirl]

I also exercise and swim at the YWCA on a daily basis. That seems to help quite a bit. However, like most things the pain does come back. My doctors took me off pain pills. The worst thing they could have done is to have taken me off my pain pills. Now, my sleep is back to majorly bad again! The depression is coming back with lack of sleep. Yes, suicide is one way of getting out. I just came out of the hospital because, of the pain, etc. I am leaning new pain management techniques. :)

[TheJohnlennongirl]

Hi! I am in fibromyalgia, osteoarthritis, rheumatoid arthritis, and carpal tunnel syndrome hell nightmare pain! Since summer ended the pain has become excruciating where I am beyond tired all the time and I get depressed because, I can not do the things that I like to do normally for quite a long time. Than, only I can do things for a very short time too. In the warmer weather I do still feel pain however not as unbearable as in the winter months. Snow and ice is also a nightmare for me. :)

[monique1369]

Stimulation on your nipples? Wow, I thought I heard some real crap from doctors. I had a real bad flare up and I could hardly breathe and they claimed it was acne on the back of my neck. I am sorry to hear about your loss, my heart goes out to you and I understand what Fibro does to you and others.

[lvm6]

i just saw the video "Fibromyalgia - Lisa's Story" (which totally hit home for me) and then the title of your video caught my eye - so here i am. in answer to the above question, i'm willing to bet it's MANY MANY more than people care to admit. my story and many other's i'm sure is as long and horrible as yours, but i dont think the one's who are really in trouble are going to post.

[dawntenor]

There are no rheumetologists that will see me because I have fibromyalgia. They say they don't treat that disease. If our government has our way taking away our pain meds I fear there will be a mass suicide of us that are trying to live with this kind of pain. I am so sorry sweetie, everything you say is like looking in a mirror.

[mcertonio]

@dawntenor RHEUMS,see inflammation, We have A problem

With our systems fighting pain signals. Go to A pain specialist.

until there is A cure, There is poisen from Lyrica etc.

[dawntenor]

@mcertonio Hi, Thanks for writing. I have tried Lyrica and it made me feel worse than drunk, almost put my truck into a ditch, so threw them away. Funny, they wouldn't allow me to take my oxycontin at work and it didn't make me feel that way? I am seeing a specialist next week. Sleeping is a big problem, either sleeping all the time or not at all. I know you would like everyone to make video's. I've been thinking about it, but always been camera shy, don't know why. Do you do facebook?

[shellbunique]

@dawntenor I am seeing an internal medicine dr. and he has made a huge difference. I haven't broken into a sweat in over 3 weeks... I am taking a combination of med's. If you are interested in knowing more. Please contact me!

[lillmissbaaadasss]

One other thing i want to say becuz this vid hit home when u were talking about the Drs I went to a thyroid dr and they told me once i started telling all my diagnosis was" well we aren't taught to deal with people who have been sick all there lives sry" Bcuz ive been sick since i was born i'd never been so angry at a dr before i just wanted to say Well fkn go back to school! they don't care they are only there for the paycheck that is y people just want to roll over and die cuz there's no help

[lillmissbaaadasss]

Your inspiring me to talk about this i have never talked openly to anyone infact most the time i don't talk about it at all I don't tell my friends I bearly talk about it to my family cuz all i hear is im sorry i don't even try to go to dr anymore im on no meds i just deal with it how ever i can im suppose to take like 6 to 10 pills aday but have quit becuz they don't help at all im a dancer and a artist it can't take away my art but it does hurt my ablitity to dance all the time but i still try

[osummuso]

I've had a similar thought myself.

The 'hypocratic oath' "Do no harm", should really be the 'hypocritical oath' "Do no good"

[himmetwins4]

I know what you are going through. your video touched me heart.

find me Brandi Hrycyk I would love to talk.

[bluesbrrd]

You know, some doctors are just arrogant assholes. Because so little is understood about fibro, there really isn't much they can do to help you, so they cop an attitude because of their own fear and helplessness, because they cannot "fix" you, and as a result you will become disappointed with them, and frustrated, so they try to kick you out right at the get-go.These doctors have zero compassion. There are good doctors out there - I have a great rheumy. No attitude, but empathy? Key question.

[mcertonio]

@bluesbrrd RHEUMY-- Do not get It! FM is not An Innflamattion Sick.

It is A brai Vs muscles disease.

[ClyvCleveland]

I have FM and I wonder if more men were diagnosed with it would have recognized alot sooner than it has if you know what I mean!

[acherrysherry]

@ClyvCleveland I won my disability later in the same year a male ferry boat worker in Wa State won a large settlement based on fibromyalgia affecting him after on job injury. It took me 2 years to get my disability and I have often felt that case was an eye opener about fibromyalgia and his being male made a big difference in helping others win their cases.

[ClyvCleveland]

@acherrysherry Sorry to hear that! I hope some day things will be different for everyone! FM sucks!!! Stay Strong!

[vlucidity]

I had over 18 surgeries in a 10 year period and I had all my woman organs removed the first portion of that was done at 18 yrs old and then they took the last part which was my ovaries at 44 , I am now 46 and this has been hell on me ,, and Dr's there are few who do help us , you are so right , they do more harm then good , I am with you all the way , I have put an end to the surgeries , and it is OK to feel anger but don't let it get to you Michelle, V

[ysabellabravetalk]

i could say every word of this video. thank you.

[mcertonio]

@ysabellabravetalk Remember This A moment In A life!

We need to focus on the good things I feel good if I help anyone

In anyway!

[ValerieLumley]

FMS is a life-ending illness and should be taken very seriously. I am a recovered fibromyalgic who had to leave the medical profession to discover the cause and the cure of this horrific condition. Please do not give up from failed hope, and keep going. There is a way to cure this condition!!! I know because I am proof!!!!

Valerie Lumley, Recovered Fibromyalgic and author of

"Curing Chronic Fibromyalgia - Choosing What Works"

[JustKayKay]

thank you for your video and thank you for the encouragement i wish you all the best keep up the fight and don't let them drag you down ..you know what is best for your body!!

[sunderlandoful]

Thank you for posting this. I have Ankylosing Spondylitis and am in a world of pain 24/7. My spine is now a metal rod that doesn't bend and all my joints are so swolen that I want to cry day and night. Suicide would be a blessing. My doctor is useless and can't even remember my name each month. If it weren't for my girlfriend and the morphine then who knows...

[mcertonio]

@sunderlandoful There is A great movie about FREDA KHALO's life.

She was A Mexican Painter/ it's like my life & sound like you would

Relate. Check it out. I started to paint after sister killed herself

And getting the emotion out HELPS

[robinbutak1]

hello this is robin my dr just diagnosed me after 3 years of pain and thousands of $ worth of medical bills and bs tests. i didnt realy want to accept it but im starting to look stuff up and you are awsome! listening to you gives me chills im sorry for any one going through this but its so nice to hear from a stranger going through the same thing! never before the last few days has sueaside ever crossed my mind but i just feel like i cant deal with all this pain!

[mcertonio]

@robinbutak1 Go on FACEBOOK there is alot of support & easier to stay in touch.

If you havn't signed up for Disibility DO IT now! It took me 3 years so I could

Afford Pain Protocal. HOLD ON BABE!

FIBRO HELL MICHELLE

[terryrodcrz]

Hi Michelle,

Can you please post a lnk to the video of the girl you are referring to. Thanks. This is so sad because I also suffer from fibro and and at my wits end with all the pain. I have two teens myseld and just got denied SS Disability for the 4th time. I guess having Lupus, MCTD, fibro, Bipolar is not enough for these people. They want us all to die because that way they don't have to pay back the social security we paid into the system.

[mcertonio]

There is no Link SHE was my sister.  You can visit my facebook

page I will post some photos & Paintings The emotion I experienced

Prompted me to paint, I will Post songs & poetry also

My family is not educated in Pain management & taking Pain Pills =s Drug abuse

Unless Educated, Pain levels of 7 to 10 NEEDS to be treated

As Diabetics need Insulin FM Brains need Medication

My sister A horseman like me Injuries contributed, Also MANY surgeries

Each Injury or Surgery YOU WILL DECLINE!

[Neojedigoddess]

A great video. I'm a fellow Fibro fighter and you inspired me to want to maybe put myself out there and do my own video....doubt I'll do it, but still...you inspired. I don't blame you for getting angry...I do too. Luckily I have a great doc, but I get angry at "normal" people who just refuse to recognize that there is such a thing as chronic pain or assume that you are faking it etc. Those are the people I want to throw something at. Please keep up with the videos!

[mcertonio]

@Neojedigoddess POST ONE, I did just to Air my anger,

I had NO Idea this would catch on like it has. But your comments help me on A bad day AND GOOD also.

[travers83]

Hi Michele Please email me the name of Dr. Armanda book. Your videos are an inspiration. From daniel @wcgwave.ca

[princessjustice17]

trippin! 1 thing I found interesting is you mentioned stuff about stomache pain & pituitary levels, et. If those can be symptoms (which I've never heard b4)~ that are related to fibro, I've been having this crap for longer than thought! 2004 diag. w/gallactorreaha (w/stomache issues~my "fixed" self had all the symptoms of being prego! had ongoing issues w/that for past yr~w/major fibro symptoms...they said stomache wasn't affiliated w/gallact., other issues! ~ty for the input!

[mcertonio]

@princessjustice17 FIBRO EFFECTS EVERY MUSCLE EVERY TENDON in your

Body! When I was young I wore leg braces, My eyes were plastered shut

Every morning, I was constipated, and MY pain was called GROWING PAINS

MY MOM no longer talks to me unless i buy her somthing. So I can not find my early records from the small town I grew up in, My family made roads to the Uranium Mines HMMM I wonder if that has something to do!

FIBRO HELL MICHELLE

[thistlesw]

@mcertonio I used to break glass thermometers open and play with the mercury. Also have a lot of mercury (and silver) fillings that have broken. Hmmmmm........

[timko78]

hi michelle-thanks so much for your video...like most, i have considered suicide myself;there are so many days where i just feel like i cannot keep living like this, yet somehow i do....thanks again....take care...

[mcertonio]

@timko78 - It is normal when your body deceives you EVERY day!

KEEP TRYING! Offer 1 kind word, Help 1 person, Express the truth

And you have accomplished more than most people!

FIBRO HELL MICHELLE

[PoorBoy1979]

@mcertonio I was wondering if you have ever tried acupuncture? Sorry to hear about your condition.

[psydchick2008]

Hi Michelle! My name is Dr Patty and I just saw your video here and it hits home for more people than you think! I would love to talk to you hon as I too am a sufferer!

[mcertonio]

@psydchick2008 , It is normal when your body deceives you EVERY day!

KEEP TRYING! Offer 1 kind word, Help 1 person, Express the truth

And you have accomplished more than most people!

FIBRO HELL MICHELLE

[lindamariecee]

God bless your heart my precious Fibro friend, I started thinking of ending this life myself, but could not...my family cause them too much pain. But my daughter been thru same as you and tried to cut her wrist...when asked why she did this, she replied, "I just want the pain and insanity to end" she continues to deal with doctors and fibro. Love you and your video helped me with my wanting to end it now and know I am not going crazy...it just wears us down. take care, with all my heart and soul

[king23goodwin]

I was diagnosed with fibro last month after years of suffering, and that's exactly what it is suffering. I had been to several doctors who never even mentioned fibromyalgia as being a cause. I thought I was crazy, my husband thought I was just lazy and depressed, The dr. I am seeing now gave me vicodin to take and that helps to some degree but not much at all. Can anyone tell me how long this lasts and what if anything I can take to make the pain more tolerable. Thanks for any help!

[thistlesw]

@king23goodwin I have been taking a supplement called FibroFreedom, along with the Fibro Energy Formula, and the Fibro Sleep, by ProHealth. Expensive...my brother is finally helping me, after 14 years, by buying this for me. It really has been helping, but I still have a lot of pain. Hope it decreases with extended use. Be careful with the vicodin. I took it for years, then, a new doctor yanked me off of it, and I went thru hellacious withdrawals. Try tramadol. Not as addictive.

[sarbearluvsu13]

I really enjoy your video it speak to my soul being a sufferer also. I have had many experiences with doctors and I too am finished with them. Only brought me more grief.

[Media4Good911]

I had it for 3 yrs, I wanted to die. I was healed 7 years ago after an encounter with God. I was ready to check out and take my life if He didn't answer. I don't know how I had the strength, I didn't. All the sudden I knew what I had to do. Toxins are so deep inside the body, toxins from stress, medicine and things we eat and drink. I did a major fast and drank water and sweated them out. Took about 30 days. Ate raw food, cut and soft drinks No caffeine, no sugar.

[lupusyme313]

That's a girl loved your story. take a look at my page. Im working on a website. I would like to thank you and I would welcome your advise and more stories hear from u soon

[Thorp1988]

I know how you feel. Ive been in daily pain for over 3 years now. It started after a car accident. Since then I have had horrible back ans shoulder pain. I injured my chest wall and have daily pain in my brestbone since. I am 21 years old and have pain everyday. I have school and a life to live and its so hard when I cant get good sleep, my muscle relaxers dont work that well. I have no pain meds. I cant do anything without pain. I feel so alone cause no one listens to me.

[11Miakoda11]

Yes I tried to take my own life because of this illness, because when you have this disease you don't have much of a life left to take.

My doctors think I imagining it though.

[ladytrish51]

yet again Im finding so many videos on this horrid illness.. so Im in the same boat.. guess we can all help each other.. somedays.. ya just want to give up... I quit doctors.. I have one.. but he just gives me little pain med.. and bout it... thanks for doing these.. you will help ppl... pain is so horrible.. .. and yes sleep is non exisistant... so... thanks alot.. :)

[scarlethorse]

I feel like loserella55 now after watching your video.

[ianhit]

I also used to me a very good professional musician. Fibromyalgia stole all of this from me. I had a good life, friends, and I came down with FMS symptoms 15 years ago. Since then each day is a struggle. I am tired. I trust nobody anymore. I only feel safe when I am alone now.

[NeonRose5]

Hi Michelle..

I found you in a search for fibromyalgia.. One of my many medical issues.. :)

You never did tell us why you were arrested at Macy's..

Kelli...

[mcertonio]

started shopping sales racks for a present, rarely go into lighted stores beause they make me feel worse. I had some items in my arms

then tried on a T-shirt Over my clothes IN FRONT of Sales Clerk, Traveled to different departments, Found more items

$300 PAID FOR and DROPPED

sugar fell, dizzy, sweating, panicking. I told the clerk I was ill would pay and not try on because not feeling well. Paid

went to leave was stopped fot the t-shirt I forgot to take off. Sheriff & Lawyer even worse!

[loserella55]

You know what? This video actually made me want to kill myself less. My body and life has been destroyed by this disease. My relationships have been destroyed. I can no longer pursue the career and hobbies that made me want to live. There is nothing left to live for. But the tenacity in your voice and words, despite all the horror of living with this illness... It's inspiring. Thank you.

[mcertonio]

Stay with me baby! help me, help us all. I used to sing pro and was on stage, now Youtube is my stage. i started painting it helps GET OUT some pain. facebook me

if you can and keep in touch, You are stronger than you

think and I will do anything for you

[mcertonio]

LYRICA IS A Dangerous drug! It may have helped some

but It put my brain in A box, Altered my vision, AND contributed to An Ichemic Stroke.

Use with caution!

[getbennt]

Has anyone used LYRICA? please tell me how it worked, i can't have it because its too expensive. Thanx.

[nycemt335]

It did not work for me. However, it increased the amount of terrible headaches I had and it was not worth it.

[SingingCrab7]

I had a terrible reaction to lyrica. It was such a huge disappointment. I almost didn't live through it.

[mcertonio]

Stay AWAY! It is neurontin (for epilpsy) with other shit in it!

These drugs will not work.

[thistlesw]

@getbennt Michelle is right...Lyrica was great for a while, then I started to bloat and swell. I looked like a toad! When I got to sleep, I would wake up stretching my legs, involuntarily. This set off a horrible cramp and incredible heavy, sharp pains down both legs, starting at my kidneys. I would wet the bed, and be thrown out of the bed and onto the floor, where I would fall down, when my feet couldn't hold me, for the pain. No. Please do not take Lyrica. It is very dangerous!

[mzchristinaz]

@thistlesw I had the same reaction to Lyrica. That stuff is SHIT! My "doctor" had the nerve to tell me that I should keep taking it, and that when people start feeling better from taking it, they actually don't want it to work because they want to "hold onto their disease," so they complain of side effects and get off of the med. BULLSHIT!! That came out of a doctor's mouth! Oh, and there were pharm. reps. in his office every time I went there for an appt. Hmm...

[mzchristinaz]

@thistlesw @thistlesw I had the same reaction to Lyrica. That stuff is SHIT! My "doctor" had the nerve to tell me that I should keep taking it, and that when people start feeling better from taking it, they actually don't want it to work because they want to "hold onto their disease," so they complain of side effects and get off of the med. BULLSHIT!! That came out of a doctor's mouth! Oh, and there were pharm. reps. in his office every time I went there for an appt. Hmm...

[mzchristinaz]

@thistlesw @thistlesw I had the same reaction to Lyrica. That stuff is SHIT! My "doctor" had the nerve to tell me that I should keep taking it, and that when people start feeling better from taking it, they actually don't want it to work because they want to "hold onto their disease," so they complain of side effects and get off of the med. BULLSHIT!! That came out of a doctor's mouth! Oh, and there were pharm. reps. in his office every time I went there for an appt. Hmm...

[Krissums1]

I have had it for 8 years, and I have seen some of the dumbest doctors of various specialties. After over a dozen, I have found some good ones. Interview them, be tuff and demanding. Know what your willing to try and not, but be open to new options. Have a friend come for strength. We need them for prescriptions, but ourselves and others to survive. Do what you need to feel hope and get through the day. Search for whatever that is. It's out there! FMS life can be a different good. Gentle hugs!

[ALIAKSEI2579]

hi my name is alex, i live in the uk and i have fibromyalgia and m.e, i really need some friend's who i can chat to and be there for each other, so if anyone out there has same as i do get in touch via yt mail. thanks love alex xx

[Krissums1]

You can email me. I live in California, I have severe fibromyalgia, Chronic fatigue, restless leg syndrome, IBS, insomnia, depression and anxiety. I was diagnosed 8 years ago. I have been through a lot. Willing to listen.

[JosVanOosterwijck]

Hi, I am a Belgian living in Norway. Just send me a PM here and I will give you my email address.

[groovimonster]

Apparently a fibro patient is 9 times more likely to attempt suicide than anyone else.

I'm a fibro sufferer myself and it descended on me a couple of months after my 21st birthday. I live in the UK and the health service seems to have been kinder to me than you. I'm very sorry for the way you've been treated :(

I can relate to everything you say. I used to be an actress in theatre but considering that I find showering a challenge, theatre is out of the question.

We just have to keep strong...

[sigmaspirit2003]

Thank you for your video! I have wondered this myself. There is not one person who really suffers from fibro that hasn't thought about relieving themselves of pain, loved ones from the consequences of the pain, and people's pocketbooks from all the medical pills and bills by taking their own life. I am positive. Even if they suffer silently, they have suicidal thoughts. I tend to deal with them by continuing hope in my own ways but what happens when hope runs out? It is a valid question.

[socoamarettojustine]

exactly!

THANK YOU!!

i just got diagnosed a year ago, i'm nineteen.

it has robbed me of my life. i have tried to kill myself three times, because of this.

i completely agree with you about the doctors. many of them have never felt real pain before.

also, if this were a predominately male disease, there would be so much help for us.

i'm sorry for the rant, i just loved this so much. you said exactly what i feel.

stay strong girl!

[mcertonio]

My NEW FRIEND!

Please do not break my heart i could not take it!

I was hurting when I was your age than I suffered A few accidents the last in 2004. I AM 42 NOW! If I can take

it SO CAN YOU! At your age I was fightong so hard to

have A life. NOW its day by day PLEASE talk to me

I have can help you. Because I had

A stroke after my Hysterectomy< THAT wasn't needed

but I was hustled into because of PAIN IN MY LEFT THIGH!

I check FACEBOOK Help is there. mcertonio

[mcertonio]

No suicide! help me, i can't do this alone! lets make a difference and raise enough HELL we will get funded research

[justnatural]

Life with this disease really is SHIT but i have found lately a pain killer that is a bandaid solution whilst not fixing the problem it makes u feel relatively normal.... that drug being Tramadol.. its a pain drug and can be abused but for relief its a godsend

[TimeSovereign]

You do know that two of the people who use that "Freak" nick have fibromyalgia. One has a three year old spinal cord injury and the other has broken their back. I don't think they were cutting you down.

[willruthie1965]

I have fybro also, I have been sick for almost 3 years. I would love to share the letters I got from my adoring family. Some called me a liar,fake and crazy. We don't talk anymore. Even when I told them about a blood disorder that is hereditary,the called me a fake and a liar.

[mcertonio]

Please share your letters if you would like. I am going to

present an art show and part of it will be comments sents here and i will use your stuff to educate if possible.

awe are dealing with pain that is intense enough to put

our bodies in shock from the pain. We don't have energy to

deal with ignorant people.

[kellyjustus]

the number 1 cause of death for people with Fibro is suicide. The pain is real.

[casperblackcat1975]

@kellyjustus Your not wrong I've had Fibro since I was a child & I've thought of taking my own life goodness knows how many times as all you want to is get rid of the pain.

[tanoshineko]

Hello. I'm sorry you suffer the way you do.

I don't have fibro, but I feel great empathy for you and others who suffer like you. Please feel comfort that we are all broken in this world in some way, and trying to heal together as one body. We are all a part of each other and are cells of the earth. So now I send you good energy.

If you can, eat some strawberry sorbet. :)

[bl0aty]

Help us, we are in hell.

[justnatural]

I have suffered these symptoms for years tight aching muscles, recurrent infections, feeling depressed at stages, ibs at stages and tried everything. Just started reading a book now called Fatigued to Fantastic by Jacob Teitelbaum just seems to hit the nail on the head a bit but yet to try some suggestions. One of the main supplements he recommends d-ribose im going to try will see how i go!

[mcertonio]

I have spent ALOT of money on supplements AND I am starting to think they are pressed cardboard.

I found more truth in Dr. St Armanns book And I tried the

Guifenensen. LETS FACE IT! Our brains do not process

pain signals! No diet, vitamin, or chiropractor can help us!

Since there has been little research WATCH who trie to take your money, I have had A few bad APLLES that promised cure but JUST WANT GREEN (money)

[LindazEyes]

Y'know the expression: To a hammer, everything looks like a nail- that's what specialists can do to us. As a life-FMer, I've had "-ectomies" & "-otomies" out the wazoo. My 25+ yr.'s husband is now "cutting me out" of his life. This FM hell is hard on the "Norms" in our lives, but we need their support, or the gov't's. FMS is like living w/ cancer & chemo- being so sick, but freq.'y looking/acting well: cruel. I don't feel strong enuf to go on anymore myself. Forty-some yrs. of suffering...

[mcertonio]

@LindazEyes I hope you are still around! Go to Face Book There is alot of support

And ALOT OF news that MAY help our Pain SOON!

[waynebofirst]

I wonder if people wouldn't be tickled to see us dead,one less burden on society.

I am sick of being sick and don't want to explain it anymore to people that could care less.

[pozemalo]

I've been watching your video series, my husband has Fibro and as usual for folks like us... nobody friggin' gets it. My husband has contemplated suicide over this and I think he has the strength to deal...there are times when he doesn't think he has. I just wanted to say that I dig your videos because you say what you want, and aren't afraid to piss off the big shots. you have made it ok to be angry at it and that makes us be able to relate. thanks for bitchin'~poze

[mcertonio]

You go your way I go mine. I was born in Blanding. Utah

I was A redneck, mormon, Rodeo Queen.

My first REAL JOB was A Singing Telegram Messenger!

Than I became A well paid Conga/Singer in Key West

And sold original music.

Now I have my own Catering and Entertainment Business.

My Secret: Always go for it no matter what anyone says!

And by the way, What have you done lately?

[KayakFreak]

I can see the fog. I know where you are at, but, if you want to get the message across, try to cut back on the rambling. People who don't suffer from this autoimmune disorder tend to think Fibro people are just 'spacey' and 'lazy'. Perhaps you should write it first, edit it, stick to the point. I know it's hard to focus. But this is so long and rambling, your point, which is very, very important, is obscured. Best of Luck in reposting. I know it will be hard.