Work in progress

[abriln3]

my son has apsergers and he is 5. he seems to be getting worse and when he gets tired he becomes non verbal, asking for a drink by pointing to his mouth. but usually he is very verbal, great vocabulary but several sensory issues and takes things literally and he has seizures (small but effect him) and he's become aggressive and very indecisive, very loud,... do you think my son could be regressing? just wanted your opinion please.

[Skymaker69]

@abriln3 Hi there- sorry for late reply- I would suggest that you really look at what causes his fluctuations- very often this can be normalised- the risks of further regression are real and yes my son did continue to regress after this initial insult at age 6. He was only recently diagnosed with Lyme, which could explain many of his developmental features and difficulties. Good luck- never give up.

[lamplitbridge]

At the begining the boy fell over in the chair; I have autism too, and I rock on chairs just like that boy did.

[Kumari58787]

I have read about this kind of autism before, It's never really interested me too much but I might learn more about it (although my books don't say much about it)

I am autistic too(Aspergers) and would like to work with children that have autism or other conditions.

[Skymaker69]

@Kumari58787 Well thanks for your interest- Every child is worth attention and care and every child has a unique story. Good luck in your endeavor.

[BariikaShanii]

Hes getting harder 2 engage n hes soo hyperactive, complete opposite 2 Jaden, This videos left me with quite a lot of questions about him...

[BariikaShanii]

OMG, so many things u say about ur son av just hit home 4 me.. I hadn't had a chance 2 see this video, its amazing, ur so good with him n he's gorgeous.. My 3 yr old Jaden is Autistic n Im new 2 it all n trying 2 learn as much as possible n sharing what Im learning along the way.. Dylan whos nearly 2 dont stop spinning things n hides himself under a blanket, i've spoke 2 mums whos lil 1s spins things but ur the 1st mum i've seen whos lil boy does the hiding under the blanket thing..

[gutierrezbagg]

Wow, what a great mother you are, you work so well with your son to help him to progress. Kudos to you!

[melissaahmed]

he is beautiful- you are wonderful mother

[leoleponge]

I think he likes beer, not berries. lol. He's a sweet little affectionate boy. Amazing progress from the time he was on the swing with noticible abdominal pains to his home schooling sessions.

Do you think his progress came from biomedical intervention or from maturity? My son use to carry on the same way until we took him off dairy products.

[Skymaker69]

My son had been on GF/CF diet since age 4 about- before a diagnosis, he was then AS but I didnt know. This did not prevent regression that occurred 2 years later. I attribute the initial progression to more biomedical intervention. The timing and speed of progress undoubted suggests of a link. However, at the same time, I received much better training to teach him and combine it with play, the progression was yet faster. Our dependency on both types of intervention has remained to this day.

[ABAisSCIENCE]

What a fantastic Mommy and a great kid who is enjoying schedules of reinforcement during social interactions such that he is learning the critical things.

Thank you for this wonderful video.

When I read the description prior to watching the video I was nervous that I was going to be watching Childhood Disintegrative Disorder being called autism.

I'm so glad he's making progress and there is still ways to improve motivation for things you see needed.

[Skymaker69]

Thanks for your comment. Childhood Disintegrative Disorder is probably the best diagnosis to encapsulate what happened to my son. Progression was not sustained once returning at school but picking up again now with better school placement and other changes. I am working with other children with autism and unfortunately I see other cases of CDD, with very severe and debilitating regression taking place late 6-10 years old. We are starting to understand what is happening medically.

[ABAisSCIENCE]

I know nothing of Childhood Disintegrative Disorder by experience, but what I have heard is scary stuff and if it is the best diagnosis then I'm glad to see there is some hope.

You really have great footage for before and after and do it in a real respectful way.

I hope you enjoy my videos & if you haven't seen them then take a look.

[justamutt90]

this is the same thing that happened to my brother he regressed after around 4 or five.

[locajoka22]

I couldn't take my eyes off this video, it was so captivating. In watching, it was delightful to take a peak and share in your son's progress, the twinkle in his eyes, his curiosity, your love for him, and patience. You're an amazing mother and your son is absolutely marvelous and beautiful. How is he doing now? Thank you for sharing this. I wish you all the best and a world of possibilities for your son. He's a gift.

[Skymaker69]

Thanks- My son is not doing as well now, in part because he joined a school system that does not have sufficient knowledge and passion for these children. He has lost the twinkle in his eyes, and he now whispers when he speaks. It's a constant battle for parents to get the quality of intervention these children need. No one has been so far interested to look at what we did and insure that it could be maintained whilst I had to go back to work to support my family. The system sucks.

[locajoka22]

I'm sorry to hear, how truly disappointing. I can imagine how infuriating it must be for you to witness this decline in your son's progress due to school systems that are so inadequate. The video of him interacting & expressing himself really drew me in. I love the look kids get when they discover or experience something for the first time, it's truly magical, truly divine. Stay strong and keep fighting another day. I'll pray for you both. I'll carry the image of that twinkle in his eye...

[PeterMacMusic]

I spent some years working with autistic kids and always felt parents were the world's unknown heroes...I simply wish that all you hope for your son comes true :))

[jpfarland]

Thanks for sharing. I also run a Son-Rise program (2 1/2 years and going strong!) and it has made a world of difference in my son. It is stories like yours that keep me going - it is hard - alot of sacrifice, but it is worth it!. I am sending love and support your way.

[apotnis97]

I have a 10 year old autistic kid who was declared mentally retarded before he started typing and doing academics 5+ grade levels above him. Dont underestimate your kid. Keep on encourgaing him

[mommyfieldmouse]

Thanks for sharing your story. We ran a Son-Rise program for 1 year and are so grateful to Son-Rise for learning how to love and accept and motivate our child to the fullest. Son-Rise taught me how to be empowered and never give up, while accepting and enjoying the beauty of him right now. We also felt that he needed more structure and a more give & take experience in his program and are moving in the Growing Minds direction. It was fun to watch your video.

[fuglar]

good movie he is cute boy end you are very good mom my friend have autism end it is fun learn aboud it thank for this video take care

[PhilCommander2]

fantastic and extremely interesting video. thanks so much for sharing this and your story.