What a sweet heart!! Thanks for sharing this.. I have a grand daughter that is almost five and she is very small and get tired really easy. She was diagnosed with Mitochondrial Myopathy about two years ago. We are doing all we can do to help her get everything she needs. We have set up a foundation page for her. Your Heather was precious and still is in the sight of God.. Your Heather gave enough smiles to fill a huge space and what a refreshing thing that is. Thanks so much for sharing.
Thank you so much for sharing this video. She was so beautiful. I'm a medical student and seeing your video makes me want to learn more about this disease and how to care for the kids who have it. All the best to you and your family.
such a beautiful girl and so much to struggle with. I know what*s mitochondiral myopathy.. My docs think that I have it too... i am 26 now. It is sometimes hard to cope with but Life is wonderful and there are so many things to do. I wish you the best heather!
(P.S. I followed the link to MitoAction, saw other wonderful videos, learned a lot, and pledged my support. You are a talented young man and a natural activist.)
This is one of the sweetest, most beautiful video petitions for support and understanding that I have ever seen. The fact that it was made by a young person living with a disease that he watched his sister die from....what can I say? ..You have a wonderful, loving, and remarkable family. I am deeply deeply moved. Anytime anyone denies you services or minimizes your humanity, give them the link to this video. If they don't get it then, they never will.
What a sweet heart!! Thanks for sharing this.. I have a grand daughter that is almost five and she is very small and get tired really easy. She was diagnosed with Mitochondrial Myopathy about two years ago. We are doing all we can do to help her get everything she needs. We have set up a foundation page for her. Your Heather was precious and still is in the sight of God.. Your Heather gave enough smiles to fill a huge space and what a refreshing thing that is. Thanks so much for sharing.
dlnhill55 9 months ago
Thank you so much for sharing this video. She was so beautiful. I'm a medical student and seeing your video makes me want to learn more about this disease and how to care for the kids who have it. All the best to you and your family.
chipsahuey 1 year ago
i love heather. she was the best sister that i could ever have. poor girl :) too bad she had to die from mito.:(
katie2fi1 1 year ago
such a beautiful girl and so much to struggle with. I know what*s mitochondiral myopathy.. My docs think that I have it too... i am 26 now. It is sometimes hard to cope with but Life is wonderful and there are so many things to do. I wish you the best heather!
springmausi 1 year ago
@springmausi soryy I wish her the best no where she is... Rest in peace! Sorry i wrote the message before seeing th whole video.
springmausi 1 year ago
This has been flagged as spam show
(P.S. I followed the link to MitoAction, saw other wonderful videos, learned a lot, and pledged my support. You are a talented young man and a natural activist.)
crazywomon 1 year ago
This has been flagged as spam show
This is one of the sweetest, most beautiful video petitions for support and understanding that I have ever seen. The fact that it was made by a young person living with a disease that he watched his sister die from....what can I say? ..You have a wonderful, loving, and remarkable family. I am deeply deeply moved. Anytime anyone denies you services or minimizes your humanity, give them the link to this video. If they don't get it then, they never will.
crazywomon 1 year ago
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crazywomon 1 year ago
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crazywomon 1 year ago