Thank you for sharing your story, it is a wonderful life and we all deserve to live it!
Btw, you look amazing, I though you were so much younger!
I am grateful to have found out and started LDN a couple of months after my diagnosis because I also have children that need me! I also am so grateful to my MS friends for leading me to it! My neuro wanted nothing to do with LDN but that's too bad I take it anyways and love it!
@talkbak67 oh you are more than welcome..I just want to spread the word about the marvels of this little pill...I've been liberated but sill on LDN and always will be...it reverses the damage done by that monster MS...it does suck about the drs, but I was so lucky...I now make my own from naltrexone tablets...much cheaper!!! no fillers!! I'm happy to meet a fellow LDNer! peace to you x
Hi Jayne! It's K-Sue ( Luvaste Drumaste) from facebook...I don't have MS, but I do have Fibro, Ulcerative Colitis, Bronchiectasas and COPD Emphesemya....I finally found a Dr who prescribes LDN and just ordered my Rx from Skips Pharmacy!!! YEAH!!!!!!! I support LDN for anybody and everybody!
Keep up your good work! I lost a sis from Fulminating MS in 1982...If only we knew about LDN then!
Loved the video Jayne. I totally agree! I've been dxd for over 27 yes and since LDN sleep all night, no need for loo trips and no longer lose far too much fluids or become dehydrated. I am happy and have no leg jerking or clonus. That's just over 4 months on LDN. It's not true that regular symptoms are permanent. I've had loads of symptoms go away yet had SPMS which is now stable and inactive according to my doc and my neuro in Edinburgh.
@bill9808 Within 4 days I noticed changes, by Day 11 I was starting to feel like I may Live. That was back in April 2003, life's been manageable since.
I am very interested in LDN. The thing that makes me so mad is that it is a low cost drug therefor no drug studies as to the effectivness of it.
I am currently in a drug study so I am on Avonex. I really don't like all the side effects that go with it but I have no insurance and no doctors anymore. I stay with it because I get to see some of the best doctors every 3 months for free.
Thank you for this infromative video and sharing your story.
Hi Andrea, I really hope you try LDN..My friend Sandra went on Copaxone, and not to scare you, but after 6 months she got the tremors and 5 yrs later still has them..Watch for side effects please & if you don't feel comfortable on the Avonex, get of of it and give the LDN a go..I have never looked back :D Good luck to you my friend
Wow! What an emotional, personal testimonial about your life with MS. This has to be one of the best stories I have heard. And you know something...I can relate to a lot of it. You brought tears to my eyes! Thank you for sharing something so personal in hopes of getting others to open up about their experiences.
Thank you, but I really didn't want to bring anyone to tears, I just want people to realize we are all in the same boat...sometimes scared, angry, confused, BUT hopeul :D...peace love and light to you my friend xo
Thank you for sharing your story, it is a wonderful life and we all deserve to live it!
Btw, you look amazing, I though you were so much younger!
I am grateful to have found out and started LDN a couple of months after my diagnosis because I also have children that need me! I also am so grateful to my MS friends for leading me to it! My neuro wanted nothing to do with LDN but that's too bad I take it anyways and love it!
talkbak67 1 year ago
@talkbak67 oh you are more than welcome..I just want to spread the word about the marvels of this little pill...I've been liberated but sill on LDN and always will be...it reverses the damage done by that monster MS...it does suck about the drs, but I was so lucky...I now make my own from naltrexone tablets...much cheaper!!! no fillers!! I'm happy to meet a fellow LDNer! peace to you x
edannajaynes59 1 year ago
AND NOW I'm going to be LIBERATED!!! How lucky can one get?! LDN and LIBERATION? watch out!!! I'm coming back full force ;) xo
edannajaynes59 1 year ago
Hi Jayne! It's K-Sue ( Luvaste Drumaste) from facebook...I don't have MS, but I do have Fibro, Ulcerative Colitis, Bronchiectasas and COPD Emphesemya....I finally found a Dr who prescribes LDN and just ordered my Rx from Skips Pharmacy!!! YEAH!!!!!!! I support LDN for anybody and everybody!
Keep up your good work! I lost a sis from Fulminating MS in 1982...If only we knew about LDN then!
Luvaste'!
simonsue2 1 year ago
@simonsue2 And now you are going on it!!! (((HUGS))) :D
edannajaynes59 1 year ago
Loved the video Jayne. I totally agree! I've been dxd for over 27 yes and since LDN sleep all night, no need for loo trips and no longer lose far too much fluids or become dehydrated. I am happy and have no leg jerking or clonus. That's just over 4 months on LDN. It's not true that regular symptoms are permanent. I've had loads of symptoms go away yet had SPMS which is now stable and inactive according to my doc and my neuro in Edinburgh.
lynne4cobis 2 years ago
I realize that all of our conditions/reactions are different, but how long did it take LDN to go into effect?
What does your diet consist of now?
Thank you so much
Bless
bill9808 2 years ago 3
my profile has my link to my story, can't post it here apparently
On LDN since 4/17/2003
SagDec15 2 years ago
@bill9808 Within 4 days I noticed changes, by Day 11 I was starting to feel like I may Live. That was back in April 2003, life's been manageable since.
SagDec15 1 year ago 3
HI Jayne,
I am very interested in LDN. The thing that makes me so mad is that it is a low cost drug therefor no drug studies as to the effectivness of it.
I am currently in a drug study so I am on Avonex. I really don't like all the side effects that go with it but I have no insurance and no doctors anymore. I stay with it because I get to see some of the best doctors every 3 months for free.
Thank you for this infromative video and sharing your story.
Andrea
MSVlogSupport 2 years ago
Hi Andrea, I really hope you try LDN..My friend Sandra went on Copaxone, and not to scare you, but after 6 months she got the tremors and 5 yrs later still has them..Watch for side effects please & if you don't feel comfortable on the Avonex, get of of it and give the LDN a go..I have never looked back :D Good luck to you my friend
peace and love to you xo
edannajaynes59 2 years ago
Wow! What an emotional, personal testimonial about your life with MS. This has to be one of the best stories I have heard. And you know something...I can relate to a lot of it. You brought tears to my eyes! Thank you for sharing something so personal in hopes of getting others to open up about their experiences.
enfermera72 2 years ago
Thank you, but I really didn't want to bring anyone to tears, I just want people to realize we are all in the same boat...sometimes scared, angry, confused, BUT hopeul :D...peace love and light to you my friend xo
edannajaynes59 2 years ago